Search
Search
About
Log in
Join
Experiences with
Sodium iodide
Posts
Communities
6,631 public posts
Filter results
Anagrelid to Interferon and Hashimoto.
I’m seriously thinking of changing from Anagrelid to interferon. I’ve always had heart palpitations from Anagrelide. All doctors to date said no interferon (I have Hashimoto) and no HU ( I have inborn anaemia). When I tried it once, I had nasty neurological side effects. Now I found a new MPN
I’m seriously thinking of changing from Anagrelid to interferon. I’ve always had heart palpitations from Anagrelide. All doctors to date said no interferon (I have Hashimoto) and no HU ( I have inborn anaemia). When I tried it once, I had nasty neurological side effects. Now I found a new MPN
Anag
in
MPN Voice
2 years ago
radium 223
looking for info on side effects. We are 5 hours from a treatment center and would like to be comfortably at home for any side effects. I’d love to hear side effect experiences for this treatment. Thanks
looking for info on side effects. We are 5 hours from a treatment center and would like to be comfortably at home for any side effects. I’d love to hear side effect experiences for this treatment. Thanks
Mcrpca
in
Advanced Prostate Cancer
2 years ago
Depressing example of medical intransigence
For a long time, the medical world has ignored the potential effects of valproate on infant health after birth. Even though guidance commitees have cautioned against giving valproate to pregnant women. This scandal continues, and babies are still being born with serious problems. The response of the
For a long time, the medical world has ignored the potential effects of valproate on infant health after birth. Even though guidance commitees have cautioned against giving valproate to pregnant women. This scandal continues, and babies are still being born with serious problems. The response of the
diogenes
in
Thyroid UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
What first?: Provenge or Nubeqa?
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
How did we arrive at Disease?
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
Cons10s
in
Cure Parkinson's
2 years ago
TT or RAI
HiI have Graves disease - diagnosed 30 Sept 22 with zero TSH and high TRAB count. Carbimazole 40mg less than 3 weeks and neotrophils dropped with slightly raised AST and ALT liver enzymes. Endo told my GP to stop that and go on PTU. One week on only beta blockers then started 400mg PTU. Liver enzymes
HiI have Graves disease - diagnosed 30 Sept 22 with zero TSH and high TRAB count. Carbimazole 40mg less than 3 weeks and neotrophils dropped with slightly raised AST and ALT liver enzymes. Endo told my GP to stop that and go on PTU. One week on only beta blockers then started 400mg PTU. Liver enzymes
MsPeartree
in
Thyroid UK
2 years ago
Can probiotics ease diarrhoea and daily loose stools?
I have tried so, so many things over the years to help my IBS. I am low fodmap, dairy free and am very careful with my food and drink intake, listen to gut directed hypnotherapy, exercise, I drink mint tea, have peppermint capsules, Imodium, mebeverine, alverine etc. But not much helps. The daily
I have tried so, so many things over the years to help my IBS. I am low fodmap, dairy free and am very careful with my food and drink intake, listen to gut directed hypnotherapy, exercise, I drink mint tea, have peppermint capsules, Imodium, mebeverine, alverine etc. But not much helps. The daily
rustydog
in
IBS Network
2 years ago
IBS after eating evening meal
I have been a coeliac for many years, when I was diagnosed I thought my diarrhoea would cease. I also have trouble with an over active bladder. My diarrhoea seems to arrive about 4 hours after my evening meal. It can happen up to 4 times a week then perhaps nothing the next week. I get very painful cramps
I have been a coeliac for many years, when I was diagnosed I thought my diarrhoea would cease. I also have trouble with an over active bladder. My diarrhoea seems to arrive about 4 hours after my evening meal. It can happen up to 4 times a week then perhaps nothing the next week. I get very painful cramps
PayPal
in
IBS Network
2 years ago
Maize starch, Sodium Metabisuphate and validation at home
Blimey what a week! After months of elimination diet, AI diet and feeling really well on it. I’ve had a recurrence of gastro symptoms, IBS type looseness, scared to fart type days. Heightened anxiety. Aches and pains. First bout followed some Kokos coconut yogurt that we can only assume the maize
Blimey what a week! After months of elimination diet, AI diet and feeling really well on it. I’ve had a recurrence of gastro symptoms, IBS type looseness, scared to fart type days. Heightened anxiety. Aches and pains. First bout followed some Kokos coconut yogurt that we can only assume the maize
Regenallotment
in
Thyroid UK
2 years ago
Hashimoto's and CT scan with Iodine Containing Contrast Materials
I had a CT scan in August. No one warned me that this would involve an IV with an Iodine Containing Contrast solution. No one had any idea how this would affect me with regard to thyroid levels. In other words, I encountered the usual apathy with regard to being a thyroid patient and what my needs
I had a CT scan in August. No one warned me that this would involve an IV with an Iodine Containing Contrast solution. No one had any idea how this would affect me with regard to thyroid levels. In other words, I encountered the usual apathy with regard to being a thyroid patient and what my needs
kferrer
in
Thyroid UK
2 years ago
liquid radioactive iodine therapy
hello. I’m booked in at Mount Vernon hospital on November 14th for RAI. I’m totally rubbish at swallowing tablets so they have agreed to give it to me as a liquid. I’m now getting anxious it may be a massive beaker full and May taste disgusting Has anyone else had it this way and if so what was
hello. I’m booked in at Mount Vernon hospital on November 14th for RAI. I’m totally rubbish at swallowing tablets so they have agreed to give it to me as a liquid. I’m now getting anxious it may be a massive beaker full and May taste disgusting Has anyone else had it this way and if so what was
Titch121
in
Thyroid Cancer Support
2 years ago
Practical Advice for having a social life with IBS-D
I'm determined not to let IBS-D stop me from living an active lifestyle. I'm a married mom of 3 and also very social however most people around me don't know about my daily struggle with IBS-D. I'm not looking to share this information either. If I'm going anywhere with friends or family, I generally
I'm determined not to let IBS-D stop me from living an active lifestyle. I'm a married mom of 3 and also very social however most people around me don't know about my daily struggle with IBS-D. I'm not looking to share this information either. If I'm going anywhere with friends or family, I generally
MeliHere2
in
IBS Network
2 years ago
What Does Everyone Do For Diet?
I am going to start the Mediterranean diet, with some modifications because I need lower sodium. if you do it, please let me know how its going for you. I have to drop 50 pounds, most of which I gained back :( I got lazy.
I am going to start the Mediterranean diet, with some modifications because I need lower sodium. if you do it, please let me know how its going for you. I have to drop 50 pounds, most of which I gained back :( I got lazy.
Elsie1955
in
Atrial Fibrillation Support
2 years ago
Suspected Erythromelalgia - boiling red hands, began in early 2021. Urgent advice needed - feel very poorly
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hanna_josef
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Availability of Sodium Cromoglicate
Hi, is anyone else having supply issues with Sodium Cromoglicate at the moment? It’s been a bit hit or miss the last couple of months, but today the pharmacy attached to our GP said they can’t get it. They are having one more try and then suggest we take the prescription around pharmacists to see if
Hi, is anyone else having supply issues with Sodium Cromoglicate at the moment? It’s been a bit hit or miss the last couple of months, but today the pharmacy attached to our GP said they can’t get it. They are having one more try and then suggest we take the prescription around pharmacists to see if
PCAD
in
The UK Mastocytosis Support Group
2 years ago
Lamotrigine and Sodium Valproate.
My neurologist is now talking about adding Sodium Valproate to my current 400mg daily dose of Lamotrigine. Does anyone else take that combination and if so how has it been? And what other drugs are people taking along with Lamotrigine?
My neurologist is now talking about adding Sodium Valproate to my current 400mg daily dose of Lamotrigine. Does anyone else take that combination and if so how has it been? And what other drugs are people taking along with Lamotrigine?
Michael_M
in
Epilepsy Action
2 years ago
Alk Phosphate going up after third Radium 223
hello all. Husband dx in 2017 with 489 PSA. So far we’ve done Docetaxel, Xgeva, Zytiga. Currently on Xofigo (Ra 223) it knocked the Alk Ph way down then after the third treatment it went up a few points. Has this happened to anyone? RO suggests doing 4th treatment then PSMA scan to see if there’s
hello all. Husband dx in 2017 with 489 PSA. So far we’ve done Docetaxel, Xgeva, Zytiga. Currently on Xofigo (Ra 223) it knocked the Alk Ph way down then after the third treatment it went up a few points. Has this happened to anyone? RO suggests doing 4th treatment then PSMA scan to see if there’s
mdiaz76
in
Advanced Prostate Cancer
2 years ago
Can you give me advice on my blood results please?
Full blood count Monitoring Total white blood count 4.7 10*9/L [3.9 - 10.2] Red blood cell count 4.48 10*12/L [3.9 - 5.2] Haemoglobin concentration 144 g/L [120.0 - 156.0] Haematocrit 0.449 L/L [0.355 - 0.455] Mean cell volume 100.1 fL [80.0 - 99.0] Above high reference limit Mean cell haemoglobin
Full blood count Monitoring Total white blood count 4.7 10*9/L [3.9 - 10.2] Red blood cell count 4.48 10*12/L [3.9 - 5.2] Haemoglobin concentration 144 g/L [120.0 - 156.0] Haematocrit 0.449 L/L [0.355 - 0.455] Mean cell volume 100.1 fL [80.0 - 99.0] Above high reference limit Mean cell haemoglobin
bubbatetley
in
Thyroid UK
2 years ago
stage 3a ckd
hello all, went for regular check up 9/1/22 and doctor said my global filtration was down some and to drink more water. asked if i should be concerned and he said no not at this time. i am 67 yrs old, male, white. previous 6 months it was 47, 6 months before that was 75. got home same day and pulled
hello all, went for regular check up 9/1/22 and doctor said my global filtration was down some and to drink more water. asked if i should be concerned and he said no not at this time. i am 67 yrs old, male, white. previous 6 months it was 47, 6 months before that was 75. got home same day and pulled
surveyor07
in
Kidney Disease
2 years ago
Discussing Doctors Blood Test
hello all I’ve been on previously, last year, with my daughters blood test results from medicheks. Our Gp has just taken these bloods and here are the results. Could you please have a look and advise as she has a telephone call to discuss them. Just a little reminder background information, she was
hello all I’ve been on previously, last year, with my daughters blood test results from medicheks. Our Gp has just taken these bloods and here are the results. Could you please have a look and advise as she has a telephone call to discuss them. Just a little reminder background information, she was
sunnyday7
in
Thyroid UK
2 years ago
1
...
44
45
46
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
3802 results
IBS Network
336 results
Advanced Prostate Cancer
334 results
View top 10 communities
Sort by
Most Relevant
Newest