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Just need to have a rant about this horrendous condition 😡
I thought this would be a good place to have a rant about my IBS. I am completely fed up of this horrendous condition completely taking control over my life. I have not slept in days due to constant nausea and pain and not being able to get in any sort of comfortable position so I can sleep. I find
I thought this would be a good place to have a rant about my IBS. I am completely fed up of this horrendous condition completely taking control over my life. I have not slept in days due to constant nausea and pain and not being able to get in any sort of comfortable position so I can sleep. I find
Floss-12
in
IBS Network
11 months ago
Laxido orange...
Hi all,I'm new to the community and this is my first post. I've had bowel problems on and off for many years but found they worsened in November 2022 when I was prescribed Laxido 2 to 3 times daily. Unlike usual the symptoms returned immediately after stopping laxido but was told by my GP its safe to
Hi all,I'm new to the community and this is my first post. I've had bowel problems on and off for many years but found they worsened in November 2022 when I was prescribed Laxido 2 to 3 times daily. Unlike usual the symptoms returned immediately after stopping laxido but was told by my GP its safe to
John_70
in
IBS Network
1 year ago
Clinical trial: keep an eye on this
First results should be available by the first months of 2024. Radiation Medication (Radium-223 Dichloride) Versus Radium-223 Dichloride Plus Radiation Enhancing Medication (M3814) Versus Radium-223 Dichloride Plus M3814 Plus Avelumab (a Type of Immunotherapy) for Advanced Prostate Cancer Not Responsive
First results should be available by the first months of 2024. Radiation Medication (Radium-223 Dichloride) Versus Radium-223 Dichloride Plus Radiation Enhancing Medication (M3814) Versus Radium-223 Dichloride Plus M3814 Plus Avelumab (a Type of Immunotherapy) for Advanced Prostate Cancer Not Responsive
Maxone73
in
Advanced Prostate Cancer
7 months ago
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General blood test - do I need to worry (not that it helps!)
Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum creatinine level 86 urology/L (49.0-90.0) EGFR. (F) 1.73M2 eGFR using creatinine (CKD-EPI) per 1.73 square metres 60 mL/min (60.9-200.0) …results
Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum creatinine level 86 urology/L (49.0-90.0) EGFR. (F) 1.73M2 eGFR using creatinine (CKD-EPI) per 1.73 square metres 60 mL/min (60.9-200.0) …results
Bluey-1
in
PMRGCAuk
1 year ago
Good News - Nephrologist Visit Today
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Early CKD Support
1 year ago
Good News From Nephrologist Today!
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Kidney Disease
1 year ago
Another consultant cancellation
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
Diamondbabe
in
British Liver Trust
1 year ago
Disimpacted 9 year old and still soiling
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
Natster90
in
ERIC
1 year ago
Virus affecting IBS-D
I recently had a mild virus (headache, stomach pains and bad taste in mouth), which made me feel very tired. However, I was still able to go about my daily life whilst taking paracetamol to keep me going. The virus also affected my stomach causing loose bowel movements and occasional diarrhoea after
I recently had a mild virus (headache, stomach pains and bad taste in mouth), which made me feel very tired. However, I was still able to go about my daily life whilst taking paracetamol to keep me going. The virus also affected my stomach causing loose bowel movements and occasional diarrhoea after
laurajn087
in
IBS Network
10 months ago
Besremi Update 15 Months
Hi Community! I titrated my Besremi to 180 from 150 over the last three doses (a bit of a story there for another time). I assumed I'd need a phlebotomy as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without phlebotomy. Everything
Hi Community! I titrated my Besremi to 180 from 150 over the last three doses (a bit of a story there for another time). I assumed I'd need a phlebotomy as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without phlebotomy. Everything
Elizka
in
MPN Voice
1 year ago
Don't know What's happening to me!!
Doc recommended 2 x Amytryptyline in Feb., after it was discovered I had 2 x damaged discs in my lower back. Referred me to Physio, (appt. on 22nd!)I was OK for a couple of months, then started to feel dizzy, lost my appetite and taste, everything tastes sweet!, even a roast dinner. Went to see ACP
Doc recommended 2 x Amytryptyline in Feb., after it was discovered I had 2 x damaged discs in my lower back. Referred me to Physio, (appt. on 22nd!)I was OK for a couple of months, then started to feel dizzy, lost my appetite and taste, everything tastes sweet!, even a roast dinner. Went to see ACP
JanboC
in
PMRGCAuk
1 year ago
Laxido - diarrhoea
hi there, I was suffering with constipation so my doctor prescribed Laxido. The label from the pharmacy said take one twice a day generally but if constipated you can take 6 in 1 hour. I took 5 in 1 hour last Saturday. Since then, I have loose stools/diarrhoea. I have bloating and cramps also. I thought
hi there, I was suffering with constipation so my doctor prescribed Laxido. The label from the pharmacy said take one twice a day generally but if constipated you can take 6 in 1 hour. I took 5 in 1 hour last Saturday. Since then, I have loose stools/diarrhoea. I have bloating and cramps also. I thought
LMEB_92
in
IBS Network
10 months ago
Steroids and Radium 223
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
NLondon43
in
Advanced Prostate Cancer
8 months ago
finding Answers
I have had diarrhea most of my life and have used Imodium for the most part. Have been working with GI specialist but no help so far. Taking Colestipol which at least usually keeps me from having an accident but goes not help the symptoms of needing to go. They seem to want to find right pills to help
I have had diarrhea most of my life and have used Imodium for the most part. Have been working with GI specialist but no help so far. Taking Colestipol which at least usually keeps me from having an accident but goes not help the symptoms of needing to go. They seem to want to find right pills to help
LadyHash
in
IBS Network
11 months ago
Normal bloods
Woopidoo! Throws hat into the air. Just checked today’s bloods and after 3 years of Pred all the critical bits are normal: urea, creatinine, potassium, sodium, liver function. MCH (part of FBC) is technically low at 26.9 when the normal range starts at 27 and RBC is 5.32 when the upper range of
Woopidoo! Throws hat into the air. Just checked today’s bloods and after 3 years of Pred all the critical bits are normal: urea, creatinine, potassium, sodium, liver function. MCH (part of FBC) is technically low at 26.9 when the normal range starts at 27 and RBC is 5.32 when the upper range of
Mayadill
in
PMRGCAuk
1 year ago
Latest blood results
Total White Cell Count69 10 9/L NR 4.0-11. Red Blood Cell Count 4.30 10 9/L NR 3.8 - 4.8 Haemoglobin Est 159 g/L NRb120-150 Abnormal Haematocrit 0.48 L/L NR 0.36-0.46;abnormal Mean Corpuscular Volume 110.4fl NR 80-100 Abnormal Mean corpusc Haemaglobin 36.9pg NR 27-34 Abnormal Mean Corpusc Hb 334 g/
Total White Cell Count69 10 9/L NR 4.0-11. Red Blood Cell Count 4.30 10 9/L NR 3.8 - 4.8 Haemoglobin Est 159 g/L NRb120-150 Abnormal Haematocrit 0.48 L/L NR 0.36-0.46;abnormal Mean Corpuscular Volume 110.4fl NR 80-100 Abnormal Mean corpusc Haemaglobin 36.9pg NR 27-34 Abnormal Mean Corpusc Hb 334 g/
Meerkat1234
in
Thyroid UK
1 year ago
Point of Interest
I was just trawling over my last very full blood results to see what I could learn. Again! All this towards taking T3 which appears to be my very necessary direction. Really there were no surprises. Vit D low, minor so far knock on effect to bone tests etc etc. However, for thoroughness and making
I was just trawling over my last very full blood results to see what I could learn. Again! All this towards taking T3 which appears to be my very necessary direction. Really there were no surprises. Vit D low, minor so far knock on effect to bone tests etc etc. However, for thoroughness and making
arTistapple
in
Thyroid UK
1 year ago
Provenge
I'm at the 5-year mark on Lupron only (except for moderate demos man). All-time low PSA was 0.5 in 4/2021. This year 1.01, .98, .97 (two months ago). PSA up and down over the years. Axumin PET scheduled for January, last 9/2021. At least three bone Mets, two in vertebrae, one inside hip socket. Am I
I'm at the 5-year mark on Lupron only (except for moderate demos man). All-time low PSA was 0.5 in 4/2021. This year 1.01, .98, .97 (two months ago). PSA up and down over the years. Axumin PET scheduled for January, last 9/2021. At least three bone Mets, two in vertebrae, one inside hip socket. Am I
dhccpa
in
Advanced Prostate Cancer
8 months ago
low sodium diet
hi everyone need advice it’s been a really bad week for me lately worrying about my brothers liver total failure and me going on a low statin as I mentioned in an earlier post. Well yesterday I had to take my hubby to emergency A and E. kidney stone. A lot of pain and vomiting we arrived early evening
hi everyone need advice it’s been a really bad week for me lately worrying about my brothers liver total failure and me going on a low statin as I mentioned in an earlier post. Well yesterday I had to take my hubby to emergency A and E. kidney stone. A lot of pain and vomiting we arrived early evening
Tinker2015
in
British Heart Foundation
1 year ago
Order of treatment?
My husband has been on Abiraterone for 5 months during which time his PSA has risen,. Before that he had had 6 rounds of Docetaxel which also saw his PSA rise. Having waited for 6 weeks to have a biopsy and get the results for neuroendocrine PC (he didn’t have it) his oncologist has said he can either
My husband has been on Abiraterone for 5 months during which time his PSA has risen,. Before that he had had 6 rounds of Docetaxel which also saw his PSA rise. Having waited for 6 weeks to have a biopsy and get the results for neuroendocrine PC (he didn’t have it) his oncologist has said he can either
NLondon43
in
Advanced Prostate Cancer
8 months ago
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