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Experiences with
Sodium Bicarbonate
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Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
5 months ago
The 'Brain Energy Gap' and its possible implication on the progress of PD.
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Mezmerric
in
Cure Parkinson's
5 months ago
Could I try BAT to restore sensitivity to previously used antiandrogen treatments.
I failed Abiraterone and SOC doesn't allow the switch to Enzalutamide. I was reading on the use of BAT to resensitize mCRPC. Would this be a therapy that could work or is it too late now that I have failed. I know its not SOC but I am running out of choices and looking for some clarity. Its basically
I failed Abiraterone and SOC doesn't allow the switch to Enzalutamide. I was reading on the use of BAT to resensitize mCRPC. Would this be a therapy that could work or is it too late now that I have failed. I know its not SOC but I am running out of choices and looking for some clarity. Its basically
Islandboy2021
in
Advanced Prostate Cancer
11 months ago
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Enzalutamide any advice/tips for dealing with side effects
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since scans
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since scans
Ronnie7C
in
Advanced Prostate Cancer
11 months ago
ICU recovery nightmare
Was in ICU for 6 days following a seizure due to low sodium (92) due they think to stomach virus though still having investigations for Addisons. 2 ambulances, helicopter , CPR , a stroke originally suspected. No ICU diary kept by hospital , no discharge help, no rehab , no advice on how I would feel
Was in ICU for 6 days following a seizure due to low sodium (92) due they think to stomach virus though still having investigations for Addisons. 2 ambulances, helicopter , CPR , a stroke originally suspected. No ICU diary kept by hospital , no discharge help, no rehab , no advice on how I would feel
downthemoor
in
ICUsteps
1 year ago
Advice about diarrhoea symptoms please
I have had very little assistance from my GP in relation to my Pernicious Anaemia with gastric parietal cell antibodies diagnosis earlier this year. GP reluctantly agreed 5 loading doses but no more than three monthly injections after that, even though I have neurological symptoms. I have been supplementing
I have had very little assistance from my GP in relation to my Pernicious Anaemia with gastric parietal cell antibodies diagnosis earlier this year. GP reluctantly agreed 5 loading doses but no more than three monthly injections after that, even though I have neurological symptoms. I have been supplementing
yorkshiregirl4
in
Pernicious Anaemia Society
1 year ago
B12 by injection đ - first steps . . . đŁ
Hello All ! đ About to embark on the path of trialing B12 by injection as there seems plenty to confirm that those who do not benefit from supplementation, do ( - often enough!) see improvements via đs! Don't yet know if this will be available via the NHS, even citing credible info, of which there
Hello All ! đ About to embark on the path of trialing B12 by injection as there seems plenty to confirm that those who do not benefit from supplementation, do ( - often enough!) see improvements via đs! Don't yet know if this will be available via the NHS, even citing credible info, of which there
Sid_Arthur
in
Pernicious Anaemia Society
1 year ago
PMR & Stage II Polycystic Kidneys
PCP determined PMR based on my âtinman stiffnessâ and bloodwork showing crazy inflammation levels in late January, and started me on 20 mg of prednisone. An ultrasound and xray turned up polycystic kidneys with a too-large to pass stones. Iâve tapered to 15 mg of prednisone at this point, and am wondering
PCP determined PMR based on my âtinman stiffnessâ and bloodwork showing crazy inflammation levels in late January, and started me on 20 mg of prednisone. An ultrasound and xray turned up polycystic kidneys with a too-large to pass stones. Iâve tapered to 15 mg of prednisone at this point, and am wondering
Eleanor0123
in
PMRGCAuk
1 year ago
Mct oil
Can you take Mct oil if you have pbc?
Can you take Mct oil if you have pbc?
Survived-
in
PBC Foundation
5 months ago
Supplements
I have just been diagnosed with Osteoporosis T -2.9 in hips and spine at 64 years old. Dr prescribed biophosphates as my risk of fracture is high (statistically in paper). The thought of having drugs with side effects makes me run a mile and so I started my research that brought me here. I was prepared
I have just been diagnosed with Osteoporosis T -2.9 in hips and spine at 64 years old. Dr prescribed biophosphates as my risk of fracture is high (statistically in paper). The thought of having drugs with side effects makes me run a mile and so I started my research that brought me here. I was prepared
Nerea
in
Bone Health and Osteoporosis UK
1 year ago
Advice about results please. T3 prescription Portugal?
Thank you to all the admin and everyone on this great resource for your time and knowledge. Saw Endo a couple of weeks ago in Algarve, pretty depressing experience. He says not possible to get T3 prescription in Portugal. Says I need to lower my medication and wants to put me on statins. Can I please
Thank you to all the admin and everyone on this great resource for your time and knowledge. Saw Endo a couple of weeks ago in Algarve, pretty depressing experience. He says not possible to get T3 prescription in Portugal. Says I need to lower my medication and wants to put me on statins. Can I please
Bubydizer
in
Thyroid UK
1 year ago
One year on Alendronate Sodium
I was hoping to get off of this medication after 1 year. I didnât start it until a year after my 2021 Dexa scan. 2121 spine -3.2 ,fem neck -3.0, total hip -2.2 2022 Started Alendronate sodium 70 mgs weekly 2023 spine -2.9, fem neck -3.1, total hip -2.4 I wasnât expecting a drastic change, but
I was hoping to get off of this medication after 1 year. I didnât start it until a year after my 2021 Dexa scan. 2121 spine -3.2 ,fem neck -3.0, total hip -2.2 2022 Started Alendronate sodium 70 mgs weekly 2023 spine -2.9, fem neck -3.1, total hip -2.4 I wasnât expecting a drastic change, but
Alisa25
in
Osteoporosis Support
1 year ago
Blood Results Advice
hi there, please can you help me I had my bloods taken about a month ago as I was having heart palpitations and extreme fatigue. I have also been attending a chiropractor over a year and he discovered I have a intolerance to gluten, grains choc and caffeine. I am off all those things over three months
hi there, please can you help me I had my bloods taken about a month ago as I was having heart palpitations and extreme fatigue. I have also been attending a chiropractor over a year and he discovered I have a intolerance to gluten, grains choc and caffeine. I am off all those things over three months
Soprano67
in
Thyroid UK
1 year ago
Adalimumab serious side effects, any advice?
I had my first injection last Saturday and wonât be having another! Sheer fluke blood tests were booked for Thursday and the GP rang me Thursday evening. Sodium levels had gone very low which could lead to a coma. Iâm now taking SIS electrolytes to try and raise them with more blood tests next Tuesday
I had my first injection last Saturday and wonât be having another! Sheer fluke blood tests were booked for Thursday and the GP rang me Thursday evening. Sodium levels had gone very low which could lead to a coma. Iâm now taking SIS electrolytes to try and raise them with more blood tests next Tuesday
netballnow
in
NRAS
1 year ago
Child-Pugh Score for Cirrhosis Mortality
Under the scoring rate for ascites..Absent Slight Moderate Basically I was extremely bad when diagnosed but now absent but only via sodium and fluid restrictions and diuretics. Which would you count as your score?
Under the scoring rate for ascites..Absent Slight Moderate Basically I was extremely bad when diagnosed but now absent but only via sodium and fluid restrictions and diuretics. Which would you count as your score?
Male47
in
British Liver Trust
1 year ago
Zanubrutinib and water intake and sodium level
I am a 78 year old woman who has been on a very long watch and wait since 1999. I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except ivig which started in June2021 due to infections. My watch and wait is over as I will be starting treatment
I am a 78 year old woman who has been on a very long watch and wait since 1999. I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except ivig which started in June2021 due to infections. My watch and wait is over as I will be starting treatment
Bethsaida
in
CLL Support
1 year ago
Is this IBS
Hi folks, I was diagnosed with Diverticulitis last year and I usually have a bout of it every month or so for 5/10 days. Then in between times, I have been fine. This latest bout was really bad for about 4 days then every day since (over a month now) I need the loo 2/3 times in quick succession first
Hi folks, I was diagnosed with Diverticulitis last year and I usually have a bout of it every month or so for 5/10 days. Then in between times, I have been fine. This latest bout was really bad for about 4 days then every day since (over a month now) I need the loo 2/3 times in quick succession first
wb54
in
IBS Network
1 year ago
Mouthwash
Mouthwash is a really hard one as often it has glycols in it. My dentist said sometimes we can wash our mouths out with salt water and this helps when we have bad breath. and I am going to try listerine total care: Ingredients: sodium fluoride, water, alcohol, sorbital, paloxamer 407, eucalyptol flavor
Mouthwash is a really hard one as often it has glycols in it. My dentist said sometimes we can wash our mouths out with salt water and this helps when we have bad breath. and I am going to try listerine total care: Ingredients: sodium fluoride, water, alcohol, sorbital, paloxamer 407, eucalyptol flavor
memedeeme
in
Allergic to Glycols
1 year ago
Ongoing issues
Hi allI am 1 year out of treatment for stage 3C1 cervical cancer. I had radiotherapy, chemotherapy and brachytherapy. I have since had a colonoscopy, bowel biopsies, a SeHCAT scan and EPI test because of terrible bowel issues. I have seen a letter to my GP saying my SeHCAT and EPI test were clear but
Hi allI am 1 year out of treatment for stage 3C1 cervical cancer. I had radiotherapy, chemotherapy and brachytherapy. I have since had a colonoscopy, bowel biopsies, a SeHCAT scan and EPI test because of terrible bowel issues. I have seen a letter to my GP saying my SeHCAT and EPI test were clear but
Dasch123
in
Pelvic Radiation Disease Association
1 year ago
Indapimide and Losartan
Hello Everyone, So I have been on Losartan 25mg for about 10 months,46 year old .I am fit ,Exercise extremely eat right no red meats and everything in the book. Due to recent sleep disturbances and my numbers staying in the 140/77 range sometimes gets the 130s/78 but mostly in the 140s . I saw my
Hello Everyone, So I have been on Losartan 25mg for about 10 months,46 year old .I am fit ,Exercise extremely eat right no red meats and everything in the book. Due to recent sleep disturbances and my numbers staying in the 140/77 range sometimes gets the 130s/78 but mostly in the 140s . I saw my
SonofGod
in
British Heart Foundation
1 year ago
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