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Small lymphocytic lymphoma (SLL)
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From hospital bed to San Fransisco in 72 hours!
05 Oct 2012 The thing about recovering from a bowel transplant is the unpredictability; you are fine and then before you know it you are back in a hospital bed. I woke up feeling like I had the flu; you know that achy feeling, joints hurting and a bad headache. I never get headaches or at least I
05 Oct 2012 The thing about recovering from a bowel transplant is the unpredictability; you are fine and then before you know it you are back in a hospital bed. I woke up feeling like I had the flu; you know that achy feeling, joints hurting and a bad headache. I never get headaches or at least I
michaelseres
in
IBS Network
12 years ago
He forgets and she reminds me
Bit of this Man in a bad mood hasn't brought the address or his phone and can only vaguely remember the instructions of how to get there. We start at the bottom of the dead end, where there is a young girl schooling a horse. And work our way up the lane. 2 men have no idea either but invite himself
Bit of this Man in a bad mood hasn't brought the address or his phone and can only vaguely remember the instructions of how to get there. We start at the bottom of the dead end, where there is a young girl schooling a horse. And work our way up the lane. 2 men have no idea either but invite himself
nedd
in
Pain Concern
12 years ago
has anyone had lumps in neck , swollen lymph nodes that dont hurt and if so was it lupus or lymphoma.
AlisonE
in
LUPUS UK
12 years ago
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My first attempt at baking gluten free bread in a machine - help needed pls!
I have been cooking gluten free, dairy free food for over a year now but never had the nerve to try and make my own bread. Until now. My mother in law has a bread machine and offered to lend it to me, as we have all had problems getting hold of the 'nice' Genius bread in the supermarkets of late. We
I have been cooking gluten free, dairy free food for over a year now but never had the nerve to try and make my own bread. Until now. My mother in law has a bread machine and offered to lend it to me, as we have all had problems getting hold of the 'nice' Genius bread in the supermarkets of late. We
Feedingmyintolerantchild
in
Gluten Free Guerrillas
12 years ago
Extreme tiredness, low ferritin - both myself and daughter
Well I could not believe it when the hospital in London said that both of our levels are very low hence why I fall asleep so suddenly and my daughter saying how extremely tired she is put it down to A levels but they said low ferritin. Looking at our results it says about low Haemcrit, high red cell
Well I could not believe it when the hospital in London said that both of our levels are very low hence why I fall asleep so suddenly and my daughter saying how extremely tired she is put it down to A levels but they said low ferritin. Looking at our results it says about low Haemcrit, high red cell
daisy11
in
Hughes Syndrome APS Forum
12 years ago
GF DF Meatloaf recipe – cheap, quick to prepare and so easy!!!
A while ago, I posted a blog about revisiting some classic 1970’s recipes for some inspiration. http://feedingmyintolerantchild.com/2012/05/16/a-cook-back-in-time/ It was because I feel that home cooking was a lot more simple back then and a lot of the recipes in my Mum’s old cookbooks were real
A while ago, I posted a blog about revisiting some classic 1970’s recipes for some inspiration. http://feedingmyintolerantchild.com/2012/05/16/a-cook-back-in-time/ It was because I feel that home cooking was a lot more simple back then and a lot of the recipes in my Mum’s old cookbooks were real
Feedingmyintolerantchild
in
Gluten Free Guerrillas
12 years ago
Update on ice cream cones – very disappointed with Sainsbury’s
If you have been following my recent blog posts, you will know that I have been searching for the Barkat gluten free, dairy free ice cream cones. I approached the Barkat stand at the Allergy Show several weeks ago and they assured me they would be back on the shelves in Sainsbury’s very soon. I have
If you have been following my recent blog posts, you will know that I have been searching for the Barkat gluten free, dairy free ice cream cones. I approached the Barkat stand at the Allergy Show several weeks ago and they assured me they would be back on the shelves in Sainsbury’s very soon. I have
Feedingmyintolerantchild
in
Gluten Free Guerrillas
12 years ago
Goodnight all - catch up with you tomorrow
Hi all and a goodnight to you all. That's my lot for the night. Hi ho hi ho and off to bed I go, with a yawn yawn here and a yawn yawn there Hi ho hi ho zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz Sleeeeeeeeeeeeep tight and don't let the bed bugs bite. Love and hugs Chris xx
Hi all and a goodnight to you all. That's my lot for the night. Hi ho hi ho and off to bed I go, with a yawn yawn here and a yawn yawn there Hi ho hi ho zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz Sleeeeeeeeeeeeep tight and don't let the bed bugs bite. Love and hugs Chris xx
Hidden
in
Fibromyalgia Action UK
12 years ago
GINGER CAKE ALERT !!!!
Ok everybody i know you are all on the edge of your seat waiting for my next phase of thing s to eat well i can announce that i have bben to asda and purchased a Mcvities jamacian ginger cake and also a golden syrup cake and i thought i would be healthy and instead of fresh cream i bought a pot of creme
Ok everybody i know you are all on the edge of your seat waiting for my next phase of thing s to eat well i can announce that i have bben to asda and purchased a Mcvities jamacian ginger cake and also a golden syrup cake and i thought i would be healthy and instead of fresh cream i bought a pot of creme
Hidden
in
Fibromyalgia Action UK
12 years ago
Legs seized up
Hi i have just had a really scary experience, i was walking up stairs and both legs seized up, like cramp but much worse. I felt i had no control over them, i couldnt move. I have had leg cramps before but never anything like this. The reason i found it so upsetting is I wondered what i would have done
Hi i have just had a really scary experience, i was walking up stairs and both legs seized up, like cramp but much worse. I felt i had no control over them, i couldnt move. I have had leg cramps before but never anything like this. The reason i found it so upsetting is I wondered what i would have done
tmoxon
in
Gluten Free Guerrillas
12 years ago
it was the dog not my man ...
as i had not slept well for a while due to pain, went to bed last night so decided to take a small sleeping pill... i was woken at 4.30 by this loud snoring so i said to my fella hay you are snoring abit loud darling, there was a slight movment and the snoring stop, well i thought it did ten mins
as i had not slept well for a while due to pain, went to bed last night so decided to take a small sleeping pill... i was woken at 4.30 by this loud snoring so i said to my fella hay you are snoring abit loud darling, there was a slight movment and the snoring stop, well i thought it did ten mins
Hidden
in
Fibromyalgia Action UK
12 years ago
How long did anyone with DH stay on Dapsone if that was the route they took?
It has been one year since my husband was diagnosed & put on Dapsone. One month ago he cut his dose down from 50mg to 25mg, unfortunately he has been itchy ever since & last night decided to go back to 50mg. I know we are all different but I am also struggling with it( as those of you that have read
It has been one year since my husband was diagnosed & put on Dapsone. One month ago he cut his dose down from 50mg to 25mg, unfortunately he has been itchy ever since & last night decided to go back to 50mg. I know we are all different but I am also struggling with it( as those of you that have read
angel1980
in
Gluten Free Guerrillas
12 years ago
Apologies,it's 50mg Dapsone not 25mg
I wrote yesterday in desperate mode as I was/am worried about my husband's tiredness & coping with DH.7 kind folk on here responded but I said that hubby was on 25mg when actually it is 5omg,which kind of alters the whole thing really.He is not the same sharp thinking person that he was prior to DH &
I wrote yesterday in desperate mode as I was/am worried about my husband's tiredness & coping with DH.7 kind folk on here responded but I said that hubby was on 25mg when actually it is 5omg,which kind of alters the whole thing really.He is not the same sharp thinking person that he was prior to DH &
angel1980
in
Gluten Free Guerrillas
12 years ago
Looking for info on Naltrexone please.
I have had the 'dreaded itch' for 7 months now, antihistamines give slight relief as does Aveeno moisturiser. I have tried Questran which didnt work, Rifampicin which worked but I suffered terrible side effects and my liver tests were really bad. I have been offered Naltrexone by my Consultant which
I have had the 'dreaded itch' for 7 months now, antihistamines give slight relief as does Aveeno moisturiser. I have tried Questran which didnt work, Rifampicin which worked but I suffered terrible side effects and my liver tests were really bad. I have been offered Naltrexone by my Consultant which
Jill68
in
PBC Foundation
12 years ago
has anyone else reacted badly to the genius cheese & onion slices?
i recently went shopping and found new additions in the dozen "free from" range, I'm not going to lie - i did get a little excited!! i picked up these genius cheese and onion slices, re checked the ingredients as always and gave them a try, (i have cut out everything, but still have dextrose as i don't
i recently went shopping and found new additions in the dozen "free from" range, I'm not going to lie - i did get a little excited!! i picked up these genius cheese and onion slices, re checked the ingredients as always and gave them a try, (i have cut out everything, but still have dextrose as i don't
xxtwheatyxx
in
Gluten Free Guerrillas
12 years ago
Being treated for Splenic Lymphoma but positive for APS antibodies could it really be APS?
I am a 45 YO woman who's father died of APS and Lupus. It was not dignosed for 17 years and many of the symptoms were treated as other diseases. I have been diagnosed with Marginal Zone Splenic Lymphoma with strange infarcs (blood clots) on a giant spleen. Bone marrow biopsy reflected abnormal B-cells
I am a 45 YO woman who's father died of APS and Lupus. It was not dignosed for 17 years and many of the symptoms were treated as other diseases. I have been diagnosed with Marginal Zone Splenic Lymphoma with strange infarcs (blood clots) on a giant spleen. Bone marrow biopsy reflected abnormal B-cells
MerrittM
in
Hughes Syndrome APS Forum
13 years ago
The role of gluten in baking
Understanding the role gluten plays is often the key to finding ways of overcoming it's absence. For example in a cookie- the role of gluten is to keep the cookie from falling apart, but it also adds texture. Those crispy edges in a chocolate chip cookie and the snap in a ginger snap, come from gluten
Understanding the role gluten plays is often the key to finding ways of overcoming it's absence. For example in a cookie- the role of gluten is to keep the cookie from falling apart, but it also adds texture. Those crispy edges in a chocolate chip cookie and the snap in a ginger snap, come from gluten
Adriana
in
Gluten Free Guerrillas
12 years ago
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