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Small lymphocytic lymphoma (SLL)
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Great to be among new Friends :)
Hi friends, my name is Nancy. I live in Pittsburgh PA. I'm new to this page. I was diagnosed with FNHL in may of 2012. After getting a partial remission in 2014 with retuxan, I relapsed extensively in 2015 requiring 5 cycles of bendamustine. I started retuxan maintenance treatment last month for 2 years
Hi friends, my name is Nancy. I live in Pittsburgh PA. I'm new to this page. I was diagnosed with FNHL in may of 2012. After getting a partial remission in 2014 with retuxan, I relapsed extensively in 2015 requiring 5 cycles of bendamustine. I started retuxan maintenance treatment last month for 2 years
dermnurse
in
Non Hodgkin's Lymphoma Friends
8 years ago
CRISPR gene-editing tested in a person for the first time, treating aggressive lung cancer
[i]'A Chinese group has become the first to inject a person with cells that contain genes edited using the revolutionary CRISPR–Cas9 technique.[/i] [i]On 28 October, a team led by oncologist Lu You at Sichuan University in Chengdu delivered the modified cells into a patient with aggressive lung cancer
[i]'A Chinese group has become the first to inject a person with cells that contain genes edited using the revolutionary CRISPR–Cas9 technique.[/i] [i]On 28 October, a team led by oncologist Lu You at Sichuan University in Chengdu delivered the modified cells into a patient with aggressive lung cancer
AussieNeil
Partner
in
CLL Support
8 years ago
Hi I'm new here
I'm new here. Does anyone have or know of someone that has Cutaneous T Cell Lymphoma? I was diagnosed in September and have joined other sites, but am unable to connect with others who have this,
I'm new here. Does anyone have or know of someone that has Cutaneous T Cell Lymphoma? I was diagnosed in September and have joined other sites, but am unable to connect with others who have this,
budsmom912
in
Non Hodgkin's Lymphoma Friends
8 years ago
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Agressive B Cell - Marginal Zone
I was first diagnoised December 2012 was Agressive B Cell. I had 6 chop chemos every 3 weeks. Then 2 more, because it was still in bone marrow in my right leg. Clear PET and 8 days before 2 year diagnosis, I had Marginal Zone. 6 Rituxin drips every Friday for 6 weeks and the 1 every other month for 1
I was first diagnoised December 2012 was Agressive B Cell. I had 6 chop chemos every 3 weeks. Then 2 more, because it was still in bone marrow in my right leg. Clear PET and 8 days before 2 year diagnosis, I had Marginal Zone. 6 Rituxin drips every Friday for 6 weeks and the 1 every other month for 1
dbalthrop
in
Non Hodgkin's Lymphoma Friends
8 years ago
Burkitt's NH Lymphoma - extranodal
Hi everyone. I am 56 yr old female and am now 9 months cancer free!. I was diagnosed with Large B-cell NH lymphoma in June 2015. The biopsy showed Burkitt-like behavior so my dx was Burkitt's. The treatment plan was Hyper-CVAD alternating with High dose Methotrexate plus cytarabine with Rituxamab
Hi everyone. I am 56 yr old female and am now 9 months cancer free!. I was diagnosed with Large B-cell NH lymphoma in June 2015. The biopsy showed Burkitt-like behavior so my dx was Burkitt's. The treatment plan was Hyper-CVAD alternating with High dose Methotrexate plus cytarabine with Rituxamab
ntbusby
in
Non Hodgkin's Lymphoma Friends
8 years ago
Mantle Cell Lymphoma
Hello! Would really appreciate feedback on treatment options for Indolent Mantle Cell Lymphoma for a healthy 49 year old male. Anyone familiar with Bendamustine/ Rituximab followed by Autologous SCT? Thank you, Reem
Hello! Would really appreciate feedback on treatment options for Indolent Mantle Cell Lymphoma for a healthy 49 year old male. Anyone familiar with Bendamustine/ Rituximab followed by Autologous SCT? Thank you, Reem
Reem-ayoub
in
Lymphoma Canada
8 years ago
CLL Research Down Under into BTK cardiotoxicity, e.g. development of AF on Ibrutinib - from CLL Global Research Foundation
From the CLL Global Research Foundation - October / November Issue [i]'Earlier this year CLL Global was approached by a donor interested in making a contribution that would be directed specifically towards research into cardiotoxicity associated with Bruton's tyrosine kinase (BTK) inhibitors such as
From the CLL Global Research Foundation - October / November Issue [i]'Earlier this year CLL Global was approached by a donor interested in making a contribution that would be directed specifically towards research into cardiotoxicity associated with Bruton's tyrosine kinase (BTK) inhibitors such as
AussieNeil
Partner
in
CLL Support
8 years ago
Chicago LRF Conference News
Hi everyone, Just a quick highlight from the Conference: We are beginning to see a move from single use of the exciting new targeting agents to see if better remissions if not cures can be achieved through combining these newer agents. Dr. Craig Portell had a Poster presentation on a Clinical Trial combining
Hi everyone, Just a quick highlight from the Conference: We are beginning to see a move from single use of the exciting new targeting agents to see if better remissions if not cures can be achieved through combining these newer agents. Dr. Craig Portell had a Poster presentation on a Clinical Trial combining
ThreeWs
in
CLL Support
8 years ago
Help night sweats
Hello thank you for allowing me to be part of your group. I was diagnosed in 2012 with lymphoma the cancer had attacked my L2 and I have a small hole in that bone. I had radiation and chemo. I also had 9 shots of ge a reclass drug. They did scans recently because I was having so much trouble with my
Hello thank you for allowing me to be part of your group. I was diagnosed in 2012 with lymphoma the cancer had attacked my L2 and I have a small hole in that bone. I had radiation and chemo. I also had 9 shots of ge a reclass drug. They did scans recently because I was having so much trouble with my
clairerrut
in
Non Hodgkin's Lymphoma Friends
8 years ago
Gluten-free & Dapsone - but still struggling
I've been GF and on Dapsone for two full years. I've been treating at Mayo Clinic where their reputation leads one to be optimistic about resolving this miserable condition. This week I told the doc that perhaps I should stop the Dapsone - to see if it actually makes any difference - because my symptoms
I've been GF and on Dapsone for two full years. I've been treating at Mayo Clinic where their reputation leads one to be optimistic about resolving this miserable condition. This week I told the doc that perhaps I should stop the Dapsone - to see if it actually makes any difference - because my symptoms
dwaage1
in
Gluten Free Guerrillas
8 years ago
Starting clinical trial for non noudle marginal lymphoma
Hi my name is Theresa, I was diagnosed with low grade marginal Lymphoma almost 2 years ago,. At that time I had a mass on back for which I received radiation and rituxin infusion once every week for four weeks and a maintenance schedule of once every two months for a 2 year period. I was about 6 months
Hi my name is Theresa, I was diagnosed with low grade marginal Lymphoma almost 2 years ago,. At that time I had a mass on back for which I received radiation and rituxin infusion once every week for four weeks and a maintenance schedule of once every two months for a 2 year period. I was about 6 months
Tmcarmicino
in
Non Hodgkin's Lymphoma Friends
8 years ago
Sharing resources
Hi Everyone - I am new to this online community. I am not a cancer patient, however I am a caregiver with substantial cancer experience. I provided primary care to both of my parents following their diagnosis and treatment for bladder cancer (both deceased). When my husband was diagnosed originally
Hi Everyone - I am new to this online community. I am not a cancer patient, however I am a caregiver with substantial cancer experience. I provided primary care to both of my parents following their diagnosis and treatment for bladder cancer (both deceased). When my husband was diagnosed originally
AnneNewman
in
Non Hodgkin's Lymphoma Friends
8 years ago
Watch and Wait - LGFL
I was diagnosed in July of 2015 with Low Grade Follicular Lymphoma. I had one node which was surgically removed. I am stage 1 Grade 1. I am in watch and wait. I wish there was some treatment that could cure this since I am in a low level but my oncologists says there is not. Although I am fine it
I was diagnosed in July of 2015 with Low Grade Follicular Lymphoma. I had one node which was surgically removed. I am stage 1 Grade 1. I am in watch and wait. I wish there was some treatment that could cure this since I am in a low level but my oncologists says there is not. Although I am fine it
Josie2rulrs
in
Non Hodgkin's Lymphoma Friends
8 years ago
Follicular Lymphoma Patient Survey
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
LCAdmin
in
Non Hodgkin's Lymphoma Friends
8 years ago
Follicular Lymphoma Patient Survey
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
Don't know what to do
Hi all need some advice my 15 year old daughter is now attending a hospital school she has not been in full time education for 1half years now she's full time loves it there head has got her on 4 week trail everything was going great until last Tuesday since then couldn't attend going through a bad flare
Hi all need some advice my 15 year old daughter is now attending a hospital school she has not been in full time education for 1half years now she's full time loves it there head has got her on 4 week trail everything was going great until last Tuesday since then couldn't attend going through a bad flare
Hollie121
in
Fibromyalgia Action UK
8 years ago
Introduction
Hi everyone, my name is Hildegard and I would like to introduce myself. I love to crochet and knit, and I had follicular Non Hodgkins Lymphoma stage 4 since 2004. I did 22 Radiation treatments after surgery to take out my salivary gland out. Then I went to almost 5 years and in 09 it came back it was
Hi everyone, my name is Hildegard and I would like to introduce myself. I love to crochet and knit, and I had follicular Non Hodgkins Lymphoma stage 4 since 2004. I did 22 Radiation treatments after surgery to take out my salivary gland out. Then I went to almost 5 years and in 09 it came back it was
hildegard1921
in
Non Hodgkin's Lymphoma Friends
8 years ago
New to group, but old to DLBCL NHL
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
fwhip14
in
Non Hodgkin's Lymphoma Friends
8 years ago
Aggressive Follicular Lymphoma Now In NIH CAR-T Clinical Trial
In 2011 my 64 year old (at that time) wife was diagnosed with follicular lymphoma. She relapsed within 4 months of R-CHOP (6 cycles) and within 2 months of bendamustine/rituximab/velcade (6 cycles). This is when her oncologist said she had an aggressive form of follicular lymphoma. Next she was in a
In 2011 my 64 year old (at that time) wife was diagnosed with follicular lymphoma. She relapsed within 4 months of R-CHOP (6 cycles) and within 2 months of bendamustine/rituximab/velcade (6 cycles). This is when her oncologist said she had an aggressive form of follicular lymphoma. Next she was in a
wmay13241
in
Non Hodgkin's Lymphoma Friends
8 years ago
World Lymphoma Awareness Day
Today is World Lymphoma Awareness Day: Every 3 minutes someone is diagnosed with a Blood Cancer in the USA.
Today is World Lymphoma Awareness Day: Every 3 minutes someone is diagnosed with a Blood Cancer in the USA.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
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