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Experiences with
Small lymphocytic lymphoma (SLL)
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My cancer experience
Cerous uterine cancer surgery February 2016. Chemo/radiation completed the end of June 2016. Clear of cancer as of September 2016.
Cerous uterine cancer surgery February 2016. Chemo/radiation completed the end of June 2016. Clear of cancer as of September 2016.
GrandmaG
in
Pain Concern
8 years ago
watch & wait - immunizations....how long to treatment ?
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
garrick66
in
CLL Support
8 years ago
CNS Lymphoma awareness
I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
Jennchap1
in
Non Hodgkin's Lymphoma Friends
8 years ago
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Vaginitis and SLE
Hi my friends I do have some problems in my vagina but now I have sever pain and imflammation in my vagina and when I urient I feel remain some urien in my uletra I went to GP he said it doesn't about urinary system it's refer trichomonas vaginitis and take me Metronidazole but I don't know if this pill
Hi my friends I do have some problems in my vagina but now I have sever pain and imflammation in my vagina and when I urient I feel remain some urien in my uletra I went to GP he said it doesn't about urinary system it's refer trichomonas vaginitis and take me Metronidazole but I don't know if this pill
asma1364
in
LUPUS UK
8 years ago
Adding additional chemo
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
lyn26041
in
CLL Support
8 years ago
4 weeks post FCR
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
jackhammer
in
CLL Support
8 years ago
Can Maintenance Trastuzumab be taken during Radiotherapy?
My wife is going under chemotherapy after mastectomy of her left breast (On 26/12/2015). Cancer was T2N2G2, ER/PR negative & HER2 positive. 3 weekly ECx4 & weekly Taxol + Trastuzumab has been completed. Now doctor advice for 25 days Radiotherapy & 3 weekly maintenance Trastuzumab for next 9 months.
My wife is going under chemotherapy after mastectomy of her left breast (On 26/12/2015). Cancer was T2N2G2, ER/PR negative & HER2 positive. 3 weekly ECx4 & weekly Taxol + Trastuzumab has been completed. Now doctor advice for 25 days Radiotherapy & 3 weekly maintenance Trastuzumab for next 9 months.
shashishekhar
in
Breast Cancer India
8 years ago
Confused about Lymphoma
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
HANNAHEWEBB
in
LSN
8 years ago
Lymphoma
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
HANNAHEWEBB
in
CLL Support
8 years ago
CLL/SLL Patient Survey
Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: —Venetoclax for the treatment of patients with chronic
lymphocytic
leukemia (CLL)/
small
lymphocytic
lymphoma
(SLL) who have received at least one prior therapy; this includes patients with 17p deletion
Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: —Venetoclax for the treatment of patients with chronic
lymphocytic
leukemia (CLL)/
small
lymphocytic
lymphoma
(SLL) who have received at least one prior therapy; this includes patients with 17p deletion
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
Share Your Thoughts on Clinical Trials- Take Our Survey
Patient Power’s Andrew Schorr will be speaking again before another major audience – this time in Boston on July 21st to heads of research at pharmaceutical companies and government officials. They know clinical trial participation is very low and they want to hear from patients on how they can help
Patient Power’s Andrew Schorr will be speaking again before another major audience – this time in Boston on July 21st to heads of research at pharmaceutical companies and government officials. They know clinical trial participation is very low and they want to hear from patients on how they can help
tclementi
in
CLL Support
8 years ago
Ibrutinib/Imbruvica brings hope to stem cell transplant patients with chronic graft-versus-host-disease
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
AussieNeil
Partner
in
CLL Support
8 years ago
Chemo done..scans tonight
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
momof12
in
CLL Support
8 years ago
Sex, maggots, castration and politicians lead to this year's Golden Goose Award - for a technique that could prevent Zika's spread
[i]"Sometimes offbeat, quirky-sounding science is the best science, paving the way for discoveries years down the road which can revolutionize medicine, physics, biology, technology and how we view the world," said US Republican Representative Randy Hultgren from Illinois.[/i] [i]:[/i] About 80 years
[i]"Sometimes offbeat, quirky-sounding science is the best science, paving the way for discoveries years down the road which can revolutionize medicine, physics, biology, technology and how we view the world," said US Republican Representative Randy Hultgren from Illinois.[/i] [i]:[/i] About 80 years
AussieNeil
Partner
in
CLL Support
8 years ago
Something New
Well this is new to me. I know my lymphoma is active, but I just started having chills and jerking my shoulders, and now my calf muscles are aching. My voice is weak and the lymph nodes in my groin are aching. Is this normal?
Well this is new to me. I know my lymphoma is active, but I just started having chills and jerking my shoulders, and now my calf muscles are aching. My voice is weak and the lymph nodes in my groin are aching. Is this normal?
Shortcake2
in
CLL Support
8 years ago
Interview with Dr. Kipps
In June, they include: June 16th at 6 PM in Salt Lake City, UT: The
Lymphoma
Research Foundation will be hosting Updates on Chronic
Lymphocytic
Leukemia /
Small
Lymphocytic
Lymphoma
as part of their Ask the Doctor series.
In June, they include: June 16th at 6 PM in Salt Lake City, UT: The
Lymphoma
Research Foundation will be hosting Updates on Chronic
Lymphocytic
Leukemia /
Small
Lymphocytic
Lymphoma
as part of their Ask the Doctor series.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
What to do?
Hi all, I have a decision to make and would like your feedback. I read the posts regularly but don't post much. So, I was diagnosed with CLL last year 6/15 at age 65 (though I suspect it really started around 2009 when I had a slightly elevated absolute lymphocyte count and a swollen lymph node in
Hi all, I have a decision to make and would like your feedback. I read the posts regularly but don't post much. So, I was diagnosed with CLL last year 6/15 at age 65 (though I suspect it really started around 2009 when I had a slightly elevated absolute lymphocyte count and a swollen lymph node in
SandiC
in
CLL Support
8 years ago
Dr. Mato on what really happens when we must stop our ibrutinib or idelalisib
In June, they include: June 16th at 6 PM in Salt Lake City, UT: The
Lymphoma
Research Foundation will be hosting Updates on Chronic
Lymphocytic
Leukemia /
Small
Lymphocytic
Lymphoma
as part of their Ask the Doctor series. You can find out more information and register here.
In June, they include: June 16th at 6 PM in Salt Lake City, UT: The
Lymphoma
Research Foundation will be hosting Updates on Chronic
Lymphocytic
Leukemia /
Small
Lymphocytic
Lymphoma
as part of their Ask the Doctor series. You can find out more information and register here.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Failed Bone Marrow Biopsy
Well it's just typical... after having an allergic reaction to contrast from the body scan, I then had a bone marrow biopsy on Tuesday. The doctors was fab, talked me through the whole thing...lots of tugging pulling etc... she then told me..after 20 mins.. that she was really struggling to get a
Well it's just typical... after having an allergic reaction to contrast from the body scan, I then had a bone marrow biopsy on Tuesday. The doctors was fab, talked me through the whole thing...lots of tugging pulling etc... she then told me..after 20 mins.. that she was really struggling to get a
Bethan49
in
CLL Support
8 years ago
What about Duvelisib and CLL?
[http://cllsociety.org/2016/05/ipi-145-duvelisib-cll/] In other news, the FDA expanded the Imbruvica® (ibrutinib) label to include overall survival data in previously untreated CLL and added a new indication for
small
lymphocytic
lymphoma
(SLL) patients.
[http://cllsociety.org/2016/05/ipi-145-duvelisib-cll/] In other news, the FDA expanded the Imbruvica® (ibrutinib) label to include overall survival data in previously untreated CLL and added a new indication for
small
lymphocytic
lymphoma
(SLL) patients.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
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