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Experiences with
Small lymphocytic lymphoma (SLL)
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Digestive Enzymes
Hi all, Love all the care, information and support here at Health Unlocked. Brilliant! Does anyone take digestive enzymes (like Pepsin, Betaine hydrochloride) or apple cider vinegar to help sore tummies with any success? Or are we not supposed to? Ta.
Hi all, Love all the care, information and support here at Health Unlocked. Brilliant! Does anyone take digestive enzymes (like Pepsin, Betaine hydrochloride) or apple cider vinegar to help sore tummies with any success? Or are we not supposed to? Ta.
Lizzy71
in
PBC Foundation
7 years ago
When CLL Goes Awry
Hi, All -- I've written before, at first when I lost eyesight in May and again in June after seizures began, both of which stemmed from my relapsing CLL. It infiltrated my spinal fluid, brain lining, and eyes and caused extensive lesions. It's an extremely rare condition -- one specialist told me cases
Hi, All -- I've written before, at first when I lost eyesight in May and again in June after seizures began, both of which stemmed from my relapsing CLL. It infiltrated my spinal fluid, brain lining, and eyes and caused extensive lesions. It's an extremely rare condition -- one specialist told me cases
Eagle5327
in
CLL Support
7 years ago
Venetoclax -> Ibrutinib
I am new here and write on behalf of my father. He is 62 y/o and was diagnosed with CLL 1.5 year ago. He received BR treatment and experienced an early relapsed with del17p/Tp53. He could not afford Ibrutinib but got enrolled into a 2-year Venetoclax trial. Meanwhile, we are seeking opportunities to
I am new here and write on behalf of my father. He is 62 y/o and was diagnosed with CLL 1.5 year ago. He received BR treatment and experienced an early relapsed with del17p/Tp53. He could not afford Ibrutinib but got enrolled into a 2-year Venetoclax trial. Meanwhile, we are seeking opportunities to
artkula
in
CLL Support
7 years ago
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Sam
I am 81 yo man live in Southern California. I have a rare type of nh lymphoma , called lymphoplasmocytic lymphoma, w/o macroglobulinemia. Two weeks ago I started ibrutinib capsules but after 4 days i quit taking it after having violent side effects including disorientation, constipation, herd. Gases
I am 81 yo man live in Southern California. I have a rare type of nh lymphoma , called lymphoplasmocytic lymphoma, w/o macroglobulinemia. Two weeks ago I started ibrutinib capsules but after 4 days i quit taking it after having violent side effects including disorientation, constipation, herd. Gases
Sam-1
in
CLL Support
7 years ago
Friends and Fans from around the World
I Thank all those for the messages of support at times they can make a huge difference. I am back home now just been watching the highlights of the Final day of the Tour I was there but you can't see everything hey. I had a great time and meet some lovely people, our group had no punctures like all the
I Thank all those for the messages of support at times they can make a huge difference. I am back home now just been watching the highlights of the Final day of the Tour I was there but you can't see everything hey. I had a great time and meet some lovely people, our group had no punctures like all the
TheFlyer
in
CLL Support
7 years ago
Just starting Ibrutinib
I was diagnosed with Waldenstrom's Macroglobulinemia 10 years ago and was successfully treated with R + CVP. The lymphoma remained in remission for 7 years until last November 2016 when I was diagnosed with Splenic Marginal Zone Lymphoma. A repeat of R + CVP (two sessions) was unsuccessful as was R +
I was diagnosed with Waldenstrom's Macroglobulinemia 10 years ago and was successfully treated with R + CVP. The lymphoma remained in remission for 7 years until last November 2016 when I was diagnosed with Splenic Marginal Zone Lymphoma. A repeat of R + CVP (two sessions) was unsuccessful as was R +
Steve41
in
CLL Support
7 years ago
Red dots
Every now and then i get a red, flat, pin prick sized dot on my skin, any where on my body. It doesn't hurt or itch and after a few days it fades to brown, like a freckle. It's not like a cherry angioma which is raised. Does anyone else get these? It was dismissed as nothing by the rheumy i saw, as he
Every now and then i get a red, flat, pin prick sized dot on my skin, any where on my body. It doesn't hurt or itch and after a few days it fades to brown, like a freckle. It's not like a cherry angioma which is raised. Does anyone else get these? It was dismissed as nothing by the rheumy i saw, as he
salbee55
in
LUPUS UK
7 years ago
Stem Cell Transplant Research
Trying to find a way to eliminate the need for bone marrow donors ... http://tinyurl.com/y8rm9p6u
Trying to find a way to eliminate the need for bone marrow donors ... http://tinyurl.com/y8rm9p6u
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Non Hodgkin Lymphoma and Cll
JERRY was diagnosed with CLL CLA about 3 years ago. On Imbruvica for 7 mos. Dr filling in for orig cancer dr ordered another pet scan showing diagnosis as N-Hodgkin lymphoma on the order sheet??? anyone ever hear of this? thanks Deb
JERRY was diagnosed with CLL CLA about 3 years ago. On Imbruvica for 7 mos. Dr filling in for orig cancer dr ordered another pet scan showing diagnosis as N-Hodgkin lymphoma on the order sheet??? anyone ever hear of this? thanks Deb
deb1610
in
CLL Support
7 years ago
Update on the breast screening
Hi all Its me again! So today was my appointment for the screening. I went with my mum, because we thought it will be very quick. I got called by the nurse and she checked and found two lumps (on my left breast) and marked it l , she said i needed a scan. I went back to the waiting room and after awhile
Hi all Its me again! So today was my appointment for the screening. I went with my mum, because we thought it will be very quick. I got called by the nurse and she checked and found two lumps (on my left breast) and marked it l , she said i needed a scan. I went back to the waiting room and after awhile
ijeasike
in
LUPUS UK
7 years ago
Chromophobe renal cell carcinoma treatment
Hi all, My uncle is diagnosed with chromophobe renal cell carcinoma and it has metastasized. He did not have any other health problems earlier. Please suggest the best treatment option, doctor and hospital Thanks,
Hi all, My uncle is diagnosed with chromophobe renal cell carcinoma and it has metastasized. He did not have any other health problems earlier. Please suggest the best treatment option, doctor and hospital Thanks,
nandakishore
in
Cancer Patients Aid Association India
7 years ago
Treatment for Renal Cell Carcinoma
My uncle has recently been diagnosed with Chromophobe Renal Cell Carcinoma. Initially in the biopsy it came as Angiosarcome and then by re-biopsy and IHC it's been confirmed as Chromophobe Renal Cell Carcinoma. Hence it has metasized any effective treatment available? Doctor suggested sutent drug.
My uncle has recently been diagnosed with Chromophobe Renal Cell Carcinoma. Initially in the biopsy it came as Angiosarcome and then by re-biopsy and IHC it's been confirmed as Chromophobe Renal Cell Carcinoma. Hence it has metasized any effective treatment available? Doctor suggested sutent drug.
nandakishore
in
Cancer Patients Aid Association India
7 years ago
Test results
I got my test results back from the CAT scans. I have an enlarged liver, spleen, and borderline heart. Multiple lymph nodes lumps. My white blood cell count is around 19,000, he's sending me to a hematologist. So I still don't know if I have non Hodgkin's lymphoma. What do y'all think? Thank you, so
I got my test results back from the CAT scans. I have an enlarged liver, spleen, and borderline heart. Multiple lymph nodes lumps. My white blood cell count is around 19,000, he's sending me to a hematologist. So I still don't know if I have non Hodgkin's lymphoma. What do y'all think? Thank you, so
Gailbarnes
in
Non Hodgkin's Lymphoma Friends
7 years ago
Checking These Areas for Lumps Can Help Catch Lymphoma Early
https://lymphomanewstoday.com/2017/06/29/checking-neck-armpits-groin-lumps-spot-lymphoma-early/ This video from uses a Barbie doll to demonstrate how lymphoma patients often discover their lumps. During Barbie’s usual beauty routine of shaving, moisturizing and applying fake tan she notices a lump
https://lymphomanewstoday.com/2017/06/29/checking-neck-armpits-groin-lumps-spot-lymphoma-early/ This video from uses a Barbie doll to demonstrate how lymphoma patients often discover their lumps. During Barbie’s usual beauty routine of shaving, moisturizing and applying fake tan she notices a lump
wmay13241
in
Non Hodgkin's Lymphoma Friends
7 years ago
Neutropenia problems - Non-Hodgkins Lymphoma
My sister was diagnosed agressive malignant Non-Hodgkins lymphoma. She had chemotherapy using rituximab viusimilar and bendamusten drugs, after 3 weeks her leucocytes count is 200, the highest she ever had was 600 a couple of days ago, she was told the normal count is between 4000 and 10 000. The hospital
My sister was diagnosed agressive malignant Non-Hodgkins lymphoma. She had chemotherapy using rituximab viusimilar and bendamusten drugs, after 3 weeks her leucocytes count is 200, the highest she ever had was 600 a couple of days ago, she was told the normal count is between 4000 and 10 000. The hospital
gaby1953
in
CLL Support
7 years ago
62 and feeling alone
Hi I have been treated for the last year for large cell type B lymphoma I have had six chemo treatments and 23 radiation treatments to clear up a couple of small spots on my spine, I am really scared I know nothing about my disease as I have been scare to do any research on my own, I just sit around
Hi I have been treated for the last year for large cell type B lymphoma I have had six chemo treatments and 23 radiation treatments to clear up a couple of small spots on my spine, I am really scared I know nothing about my disease as I have been scare to do any research on my own, I just sit around
Connie621955
in
Lymphoma Canada
7 years ago
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS:
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic
lymphocytic
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL).
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic
lymphocytic
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL).
LCAdmin
in
Leukaemia Support
7 years ago
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic
lymphocytic
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL).
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic
lymphocytic
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL).
LCAdmin
in
CLL Support
7 years ago
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic
lymphocytic
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL).
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic
lymphocytic
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL).
LCAdmin
in
CLL America Support
7 years ago
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic
lymphocytic
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL).
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic
lymphocytic
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL).
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
7 years ago
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