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Clear Cell Progression
Here is an update on my treatment for ovarian clear cell carcinoma, which I guess has now moved into Stage IV (started 1a). My taxol/carboplatin & Avastin chemotherapy treatment was discontinued after 3 infusions, as CT scan showed progression of tumors, and invasion into my liver. The doctors at UCSF
Here is an update on my treatment for ovarian clear cell carcinoma, which I guess has now moved into Stage IV (started 1a). My taxol/carboplatin & Avastin chemotherapy treatment was discontinued after 3 infusions, as CT scan showed progression of tumors, and invasion into my liver. The doctors at UCSF
Susi3
in
SHARE Ovarian Cancer Support
4 months ago
Treatment for low-PSA mHSPCa
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Purple-Bike
in
Advanced Prostate Cancer
8 months ago
Mets to lungs and lymph nodes need some advice
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Niso
in
Advanced Prostate Cancer
8 months ago
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Chemo Side Effects
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
Joeym1040
in
Advanced Prostate Cancer
4 months ago
Phase III Study: Saruparib Combo with New Hormonal Agents in mCSPC +/- HRR Mutations: AUA 2024 EvoPAR-Prostate01 Trial
AUA 2024: EvoPAR-Prostate01: Phase III, Double-Blind, Placebo-Controlled, 2-Cohort, Randomized Study of Saruparib (AZD5305) in Combination with New Hormonal Agents in Patients with mCSPC +/- HRR Mutations (UroToday.com) The 2024 American Urological Association (AUA) annual meeting featured a session
AUA 2024: EvoPAR-Prostate01: Phase III, Double-Blind, Placebo-Controlled, 2-Cohort, Randomized Study of Saruparib (AZD5305) in Combination with New Hormonal Agents in Patients with mCSPC +/- HRR Mutations (UroToday.com) The 2024 American Urological Association (AUA) annual meeting featured a session
God_Loves_Me
in
Advanced Prostate Cancer
4 months ago
Uncertainty is the worst
Hello!To cut a long story short, I had Hodgkins lymphoma in 2005 and therefore am at higher risk of breast cancer. A CT scan showed that something in my right breast took the dye. The follow mammogram is not showing anything but I have very dense breast tissue. The right breast is now a whole cup size
Hello!To cut a long story short, I had Hodgkins lymphoma in 2005 and therefore am at higher risk of breast cancer. A CT scan showed that something in my right breast took the dye. The follow mammogram is not showing anything but I have very dense breast tissue. The right breast is now a whole cup size
Nightkittens
in
SHARE Breast Cancer Support
8 months ago
Flummoxed and in a Pickle 🙃🙂
Hello from Australia 👋 I hope you're all coping and doing as well as you can. Sorry to barge in from the other side of the world but I have an English based query. I have triple negative Inflammatory beast cancer and nearing completion of about a year and a half of chemo with a mastectomy and
Hello from Australia 👋 I hope you're all coping and doing as well as you can. Sorry to barge in from the other side of the world but I have an English based query. I have triple negative Inflammatory beast cancer and nearing completion of about a year and a half of chemo with a mastectomy and
Freckle1000
in
My Breast Cancer Community
4 months ago
I have mutations, What is better ATM Frameshift Mutation Keytruda or Lymparza? Other? Liver Mets and Lung Nodules
Starting Chemotherapy with I think Docetaxel and Cisplatin MO suggesting Immunotherapy
Starting Chemotherapy with I think Docetaxel and Cisplatin MO suggesting Immunotherapy
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
4 years after thyroidectomy
total thyroidectomy for papillaire carcinoma my tsh is 0.5 on levo 75 Thyroglobulin =1 after my USS found a little nodes in thyroid area noother nodes detected my endo whant me to be off levo 1 month to do scintigraphy is there any other way to kow if my cancer is back . Thanks guy for feed back
total thyroidectomy for papillaire carcinoma my tsh is 0.5 on levo 75 Thyroglobulin =1 after my USS found a little nodes in thyroid area noother nodes detected my endo whant me to be off levo 1 month to do scintigraphy is there any other way to kow if my cancer is back . Thanks guy for feed back
Raoudha
in
Thyroid UK
6 months ago
Triplet Therapy for HSPC
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
treedown
in
Advanced Prostate Cancer
8 months ago
Scared and Feeling Helpless
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Cafu6
in
Advanced Prostate Cancer
8 months ago
Testosterone too high?
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
JPnSD
in
Advanced Prostate Cancer
8 months ago
Dana Farber 2nd opinion?
I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in thoracic and lung area. Apparently, ribociclib (Kisqali) + exemestane didn't work at all. That is the last of the CDK4/6 inhibitors and ER inhibitors
I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in thoracic and lung area. Apparently, ribociclib (Kisqali) + exemestane didn't work at all. That is the last of the CDK4/6 inhibitors and ER inhibitors
TammyCross
in
SHARE Metastatic Breast Cancer
4 months ago
ALC doubling time
I was diagnosed with CLL/SLL Jan 2023.i completed O and V March 8 th of this year. My most recent labs show that my ALC went from 2.45 in March to 4.8 with yesterday's labs. Almost all of my numbers are down. (Rbc'sHgb, hct, platlets) Throughout treatment my labs were close to within range except for
I was diagnosed with CLL/SLL Jan 2023.i completed O and V March 8 th of this year. My most recent labs show that my ALC went from 2.45 in March to 4.8 with yesterday's labs. Almost all of my numbers are down. (Rbc'sHgb, hct, platlets) Throughout treatment my labs were close to within range except for
Shangonmom
in
CLL Support
4 months ago
*NEW online session - 6th February* Our stories: having a hereditary increased risk of ovarian cancer
Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis. This session will feature Ovacome members Hilary and Sue, who will
Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis. This session will feature Ovacome members Hilary and Sue, who will
OvacomeSupport
My Ovacome Team
in
My Ovacome
8 months ago
Niraparib Time Line?
Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years now, my oncologist said they will review after three years. I haven’t any problems, my bloods and CA 125 have always been good. I read so many
Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years now, my oncologist said they will review after three years. I haven’t any problems, my bloods and CA 125 have always been good. I read so many
Jingles6
in
My Ovacome
8 months ago
Proton Treatment - When to start the ADT relative to simulation and CT of the prostate
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
CBRD
in
Advanced Prostate Cancer
6 months ago
Peeing , what to do?
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
positive-thinking
in
Advanced Prostate Cancer
4 months ago
vaginal bleeding post bowel motion
Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made notes and realised it was happening about twice a month (between periods), but I’ve had an increase in this recently. Not starting a period, and
Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made notes and realised it was happening about twice a month (between periods), but I’ve had an increase in this recently. Not starting a period, and
PopcornPJ
in
Endometriosis UK
4 months ago
Mild TI inflammation
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Sunita77
in
Bowel Disease Support
4 months ago
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