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ADT Holiday?
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
RunnerBiker
in
Advanced Prostate Cancer
8 months ago
Chemo Failed
My dad finished Docetaxel in November. He went to oncologist today. His PSA went from 0.58 to 2.3. Things he tried: Lupron (on for years before failed) Zytiga (worked for 18 months) Orchidectomy Then the chemo. He is not a candidate for radiation because of a previous cancer. He is going to
My dad finished Docetaxel in November. He went to oncologist today. His PSA went from 0.58 to 2.3. Things he tried: Lupron (on for years before failed) Zytiga (worked for 18 months) Orchidectomy Then the chemo. He is not a candidate for radiation because of a previous cancer. He is going to
Jshaw916
in
Advanced Prostate Cancer
8 months ago
How to say it
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
Blueribbon63
in
Advanced Prostate Cancer
4 months ago
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Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
8 months ago
Personal update
Ok, first blood work, 3 weeks after the last chemo of ARASENS protocol PSA is 0.39, it was 70 at diagnosis and 15 after 4-5 weeks (when I have started ARASENS) Testosterone 0.33 nmol/L well, that's it!
Ok, first blood work, 3 weeks after the last chemo of ARASENS protocol PSA is 0.39, it was 70 at diagnosis and 15 after 4-5 weeks (when I have started ARASENS) Testosterone 0.33 nmol/L well, that's it!
Maxone73
in
Advanced Prostate Cancer
8 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
8 months ago
mHSPCa with undetectable PSA - chemo-only?
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Purple-Bike
in
Advanced Prostate Cancer
8 months ago
liver lesions
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.💔
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.💔
BluHydrangea
in
SHARE Metastatic Breast Cancer
4 months ago
Platinum resistance
Hello, I'm stage 4 HGOC diagnosed Jan 2018. Had the usual surgery and chemo. Tried Parp Rubraca after recurrence and it didn't work reoccurred again last year, ended chemo of carboplatin and caelyx in October 2023. I've had CT scan and it's back again but as I'm now considered platinum resistant can
Hello, I'm stage 4 HGOC diagnosed Jan 2018. Had the usual surgery and chemo. Tried Parp Rubraca after recurrence and it didn't work reoccurred again last year, ended chemo of carboplatin and caelyx in October 2023. I've had CT scan and it's back again but as I'm now considered platinum resistant can
Fizzgirl
in
My Ovacome
8 months ago
Sugar Alcohols Ruined My Health: Learn from My Mistakes
Given the number of members who are intolerant to Teva levothyroxine, this video might be of some interest. Many suspect it is the mannitol content of Teva levothyroxine that lies behind the intolerance. After all, there were also many complaints around the world as Merck have slowly move from lactose
Given the number of members who are intolerant to Teva levothyroxine, this video might be of some interest. Many suspect it is the mannitol content of Teva levothyroxine that lies behind the intolerance. After all, there were also many complaints around the world as Merck have slowly move from lactose
helvella
Thyroid UK
in
Thyroid UK
8 months ago
Delay date for Lupron injection
I am due to get my third 6 monthly dose of Lupron injection in late May. I plan to travel during that time. Is there any harm if I should postpone the injection date by 2 or 3 weeks beyond the 6 months dateline?My PSA reading is currently below 0.1 ug/l. Secondly, I am contemplating going on ADT vacation
I am due to get my third 6 monthly dose of Lupron injection in late May. I plan to travel during that time. Is there any harm if I should postpone the injection date by 2 or 3 weeks beyond the 6 months dateline?My PSA reading is currently below 0.1 ug/l. Secondly, I am contemplating going on ADT vacation
John347
in
Advanced Prostate Cancer
8 months ago
Low PSA + high Gleason-FYI
I’ve just heard that this is a thing. Unfortunately it seems to affect my outcome. For instance, I had an initial PSA of 4.8 (4.6 after retesting), and I’m Gleason 9. Three of my doctors have mentioned it to me in passing (most recently today), which led me to Google it. https://www.ncbi.nlm.nih.gov
I’ve just heard that this is a thing. Unfortunately it seems to affect my outcome. For instance, I had an initial PSA of 4.8 (4.6 after retesting), and I’m Gleason 9. Three of my doctors have mentioned it to me in passing (most recently today), which led me to Google it. https://www.ncbi.nlm.nih.gov
Jpburns
in
Advanced Prostate Cancer
8 months ago
Lung Cancer Research
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
My Father died
Its been 23 days since i asked here About CLL i got a lot of optimistic response and answers After my father had TP53 mutation with 17p Deletion i was told that my father wont respond to chemotherapy anymore i told my father that but his doctor insisted , a strong dose, it took 2 weeks my father
Its been 23 days since i asked here About CLL i got a lot of optimistic response and answers After my father had TP53 mutation with 17p Deletion i was told that my father wont respond to chemotherapy anymore i told my father that but his doctor insisted , a strong dose, it took 2 weeks my father
Ornate2001
in
CLL Support
4 months ago
ibrance
thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised after 19 years. I was put on femara and Zometa. Then 2018 switched to ibrance , fasladex and Zometa. Oncologist retired so I went too Sloan. I ended
thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised after 19 years. I was put on femara and Zometa. Then 2018 switched to ibrance , fasladex and Zometa. Oncologist retired so I went too Sloan. I ended
Jewelyn
in
SHARE Metastatic Breast Cancer
4 months ago
Avastin + Taxol + Carbo & eye problems
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Kazzh
in
My Ovacome
4 months ago
OsteoDex: for mCRPC bone metastasis!
clinical trials are going well, and results are better than with zometa or Denosumab! https://mb.cision.com/Main/11652/3853506/2358495.pdf
clinical trials are going well, and results are better than with zometa or Denosumab! https://mb.cision.com/Main/11652/3853506/2358495.pdf
Maxone73
in
Advanced Prostate Cancer
8 months ago
Docetaxel results so far
People want to know if Docetaxel is worth doing due to the side effects. My husband just had a recent PSMA PET scan after 5 treatments and the result is compared with the same scan method done before treatment began: [i]Impression (Summary)[/i] [i]Mild improvement in subcarinal adenopathy, left lung
People want to know if Docetaxel is worth doing due to the side effects. My husband just had a recent PSMA PET scan after 5 treatments and the result is compared with the same scan method done before treatment began: [i]Impression (Summary)[/i] [i]Mild improvement in subcarinal adenopathy, left lung
Tinuriel
in
Advanced Prostate Cancer
8 months ago
It's Back!
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
Tjc1
in
Advanced Prostate Cancer
8 months ago
Am I crazy
Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver lesions undetectable and bone is stable I have been stable with no progression for 4 years on Herceptin /Prejeta. and Zometa I am in the process of booking a trip to Europe one year away. I have to book this early if I
Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver lesions undetectable and bone is stable I have been stable with no progression for 4 years on Herceptin /Prejeta. and Zometa I am in the process of booking a trip to Europe one year away. I have to book this early if I
Onedayatatime60
in
SHARE Metastatic Breast Cancer
5 months ago
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