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labs results that contraindicate one another
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Katep66875
in
Pernicious Anaemia Society
4 months ago
Pain after lung surgery
I was diagnosed with a lung cancer in my lower left lung late January 2023,I had a surgery to remove it on 10th February 2023 .it started off keyhole but I had a bad bleed do they ended up doing open ,all went well and I was told all cancer was removed and there was no spread, all went well with recovery
I was diagnosed with a lung cancer in my lower left lung late January 2023,I had a surgery to remove it on 10th February 2023 .it started off keyhole but I had a bad bleed do they ended up doing open ,all went well and I was told all cancer was removed and there was no spread, all went well with recovery
Cakebaker2
in
The Roy Castle Lung Cancer Foundation
11 months ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
4 months ago
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some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
5 months ago
Join us in your community!
Hi there! My name is Bridget and I'm with the events team here at GO2 for Lung Cancer. We are excited to offer you four, in-person walk/runs we will be hosting this fall around the country for the lung cancer community. Participation is free for anyone who has received a lung cancer diagnosis as well
Hi there! My name is Bridget and I'm with the events team here at GO2 for Lung Cancer. We are excited to offer you four, in-person walk/runs we will be hosting this fall around the country for the lung cancer community. Participation is free for anyone who has received a lung cancer diagnosis as well
bpurchGO2
in
Lung Cancer Support
1 year ago
Keeping track of how you are feeling
When living with cancer, knowing what impact the disease is having on a your life is essential if you are to receive the best care. Your Health Companion is a free specialist app specifically designed for people who have been diagnosed with Lung Cancer. It is much like a private digital diary, that
When living with cancer, knowing what impact the disease is having on a your life is essential if you are to receive the best care. Your Health Companion is a free specialist app specifically designed for people who have been diagnosed with Lung Cancer. It is much like a private digital diary, that
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
Upcoming appointment with Rheumy Consultant - people's experiences/advice appreciated
Hi all Firstly, just wanting to explain that my user name is a reference to the nickname of the football team I support - I'm not interested in knife crime or anything like that! I might change it actually to avoid any confusion or concerns! I've got another appointment with Rheumy Consultant next
Hi all Firstly, just wanting to explain that my user name is a reference to the nickname of the football team I support - I'm not interested in knife crime or anything like that! I might change it actually to avoid any confusion or concerns! I've got another appointment with Rheumy Consultant next
BladesLover
in
PMRGCAuk
18 days ago
Hello - I'm interested in other GCA experiences
Hi. First time I've posted. I was diagnosed with GCA in February 2024 following hospital admission. It took medics a while to work it out but, once they did and started me on Prednisolone, my symptoms quickly improved. I returned to work early April and things seemed to be going in the right direction
Hi. First time I've posted. I was diagnosed with GCA in February 2024 following hospital admission. It took medics a while to work it out but, once they did and started me on Prednisolone, my symptoms quickly improved. I returned to work early April and things seemed to be going in the right direction
BladesLover
in
PMRGCAuk
1 month ago
Cholesterol readings
Hello medically-minded people Tryimg to decide whether to take statins or not. This is my latest cholesterol test readings. I knw that the total cholesterol level is high (as it tells me) but my diet is not bad (exercise level lowish though due to PMR) but are there any/enough mitigating factors? Due
Hello medically-minded people Tryimg to decide whether to take statins or not. This is my latest cholesterol test readings. I knw that the total cholesterol level is high (as it tells me) but my diet is not bad (exercise level lowish though due to PMR) but are there any/enough mitigating factors? Due
marionofnorwich
in
PMRGCAuk
1 month ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
6 months ago
*****SUPPORT GROUPS!*****
The next round of Roy Castle online support groups with start at the beginning of September. The groups take place online over Zoom and each last for one hour and are hosted by a trained facilitator. The groups are a great way to get support from your peers, share and recieve information and make connections
The next round of Roy Castle online support groups with start at the beginning of September. The groups take place online over Zoom and each last for one hour and are hosted by a trained facilitator. The groups are a great way to get support from your peers, share and recieve information and make connections
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
Blood Work
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Canadian77
in
Pernicious Anaemia Society
6 months ago
Life after Tocilizumab?
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
tweety_pie
in
PMRGCAuk
3 months ago
Re Introduction Hi everyone
Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example
Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example
horseygirl_0103
in
Living with Interstitial Lung Disease (ILD)
10 months ago
Tocilizumab
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
Niblick
in
PMRGCAuk
3 months ago
Lung Transplant appointment 28/11/23 Cancellled for the 2nd time due to Failure of Patient Transport
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
Sara_2611
in
Lung Conditions Community Forum
10 months ago
Please Join Us! Tuesday August 8th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tuesday, August 8th, at 5pm PT/8pm ET. At this
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tuesday, August 8th, at 5pm PT/8pm ET. At this
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Pulmonary Node revealed with PET scan not growing
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
Eadgbe
in
Advanced Prostate Cancer
4 months ago
Returning temporal headaches after stopping Tocilizumab, what to do ?
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
ghost123uk
in
PMRGCAuk
3 months ago
SUPPORT GROUPS!
We are starting our next round of online support groups this week! If any of the groups sound like they would suit you then please get in touch. All the groups are held over Zoom, last for one hour and are hosted by a trained facilitator. The groups are a great way to give and recieve support whilst
We are starting our next round of online support groups this week! If any of the groups sound like they would suit you then please get in touch. All the groups are held over Zoom, last for one hour and are hosted by a trained facilitator. The groups are a great way to give and recieve support whilst
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
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