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Small cell lung cancer
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Late diagnosis of asbestosis
My Dad is 96 and has had progressive lung disease for many years. He's a non-smoker and I always wondered about the cause. On 16 October this year he was referred to a respiratory consultant for the first time. She took a detailed work history (again, the first one to do so) and we realised just how
My Dad is 96 and has had progressive lung disease for many years. He's a non-smoker and I always wondered about the cause. On 16 October this year he was referred to a respiratory consultant for the first time. She took a detailed work history (again, the first one to do so) and we realised just how
tchouli
in
Lung Conditions Community Forum
7 months ago
Aortitis
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
Dance62
in
PMRGCAuk
3 months ago
Scared I might have lung cancer
Home About Cancer Cancer Chat Post I have a cough most of my life, but just lately I have had a horrible, relentless tickly cough, to the point I gag, and pee myself! I went to AnE in February for a cough that was really hurting my ribs.... They saw me and sent me to ambulatory care. They did test
Home About Cancer Cancer Chat Post I have a cough most of my life, but just lately I have had a horrible, relentless tickly cough, to the point I gag, and pee myself! I went to AnE in February for a cough that was really hurting my ribs.... They saw me and sent me to ambulatory care. They did test
Loosygoosey7
in
The Roy Castle Lung Cancer Foundation
1 year ago
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Join Us! Tomorrow, April 11th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, April 11th, at 5pm PT/8pm ET. At this
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, April 11th, at 5pm PT/8pm ET. At this
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Has anyone navigated Medicare while trying to get the TPIAT?
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Skye_MC
Administrator
in
Chronic Pancreatitis Support
8 months ago
Small Cell Lung Cancer and the Brain
Sahgal gives a wealth of information about brain radiation in this video presentation from the LiveLung
small
cell
lung
cancer
virtual group (www.livelung.org/smallcell).
Sahgal gives a wealth of information about brain radiation in this video presentation from the LiveLung
small
cell
lung
cancer
virtual group (www.livelung.org/smallcell).
AmyKamp
Partner
in
Small Cell Lung Cancer Support
2 years ago
Please take a moment today to read Tim's unique and powerful story about surviving small cell lung cancer and so much more...
Thank you so much for sharing your story, Tim. You are such a wonderful person and your remarkable story offers hope to so many! https://go2.org/blog/survivor-spotlight-tim-s/
Thank you so much for sharing your story, Tim. You are such a wonderful person and your remarkable story offers hope to so many! https://go2.org/blog/survivor-spotlight-tim-s/
AmyKamp
Partner
in
Small Cell Lung Cancer Support
1 year ago
Prognosis Stage
My husband had throat cancer and was cleared in 2017. Then lung cancer last year, was cleared but its now returned.He is currently receiving Immunotherapy as chemotherapy wasn't helping. My question is why when we ask the consultant or her Registrar for a prognosis they don't know, we haven't been told
My husband had throat cancer and was cleared in 2017. Then lung cancer last year, was cleared but its now returned.He is currently receiving Immunotherapy as chemotherapy wasn't helping. My question is why when we ask the consultant or her Registrar for a prognosis they don't know, we haven't been told
Hidden
in
The Roy Castle Lung Cancer Foundation
1 year ago
Adenocarcinoma lung cancer
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
SharonTan
in
Lung Cancer Support
1 year ago
Adenocarcinoma lung cancer
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
SharonTan
in
The Roy Castle Lung Cancer Foundation
1 year ago
Genetic Mutation Driven lung Cancer Support
As our last online support group for genetically mutated lung cancer was so succesful we are starting up a new group. We provide a safe space for peer support and a chance to make true connections with others who understand. Our groups are hosted by trained facilitators and this group will run weekly
As our last online support group for genetically mutated lung cancer was so succesful we are starting up a new group. We provide a safe space for peer support and a chance to make true connections with others who understand. Our groups are hosted by trained facilitators and this group will run weekly
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
Happy Monday 😊
Good morning all, well after finally getting an appointment with the Chest clinic at the hospital, after my phoned appointment was cancelled four times. I got to see a specialist. I have had COPD for years now, taken lots of different inhalers. The specialist told me I have severe COPD, and told Trimbow
Good morning all, well after finally getting an appointment with the Chest clinic at the hospital, after my phoned appointment was cancelled four times. I got to see a specialist. I have had COPD for years now, taken lots of different inhalers. The specialist told me I have severe COPD, and told Trimbow
purdeyspringer
in
Lung Conditions Community Forum
10 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
5 months ago
New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
13 days ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
14 days ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
16 days ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
18 days ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
21 days ago
The Bone-Marrow-Transplant Revolution
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
Hidden
in
CLL Support
1 month ago
How often to Self Inject
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
MrJustatip
in
Pernicious Anaemia Society
7 months ago
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