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The Wind Beneath My Wings Caregiver Award
Behind every lung cancer patient stands a caregiver walking together with their loved one diagnosed with lung cancer. Whether it’s a shoulder to cry on or a ride to the doctor — caregivers are there to help. The caregiver is often the person behind the curtain, ensuring their loved one has everything
Behind every lung cancer patient stands a caregiver walking together with their loved one diagnosed with lung cancer. Whether it’s a shoulder to cry on or a ride to the doctor — caregivers are there to help. The caregiver is often the person behind the curtain, ensuring their loved one has everything
Miranda_GO2
Partner
in
Lung Cancer Support
1 year ago
post surgery recovery
I had lung surgery five weeks ago, lower left hand lobe The tumour was removed completely and the test results came back that it hasn’t spread to the lymph nodes which is fantastic news The problem I’m having is, I am still in excruciating pain in the area where the chest drain was , at the hospital
I had lung surgery five weeks ago, lower left hand lobe The tumour was removed completely and the test results came back that it hasn’t spread to the lymph nodes which is fantastic news The problem I’m having is, I am still in excruciating pain in the area where the chest drain was , at the hospital
Rosegarden100
in
The Roy Castle Lung Cancer Foundation
1 year ago
Life insurance
Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?
Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?
Hidden
in
Lung Conditions Community Forum
7 months ago
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new procedure
Using metered cryospray technology, pre-determined doses (based on patient anatomy) of liquid nitrogen are delivered systematically through the airways,” says Professor Shah. The RejuvenAir® System is designed with safety cut-off technology, which stops the flow of nitrogen once it reaches the required
Using metered cryospray technology, pre-determined doses (based on patient anatomy) of liquid nitrogen are delivered systematically through the airways,” says Professor Shah. The RejuvenAir® System is designed with safety cut-off technology, which stops the flow of nitrogen once it reaches the required
Trevor6
in
COPD Friends
7 months ago
Have you taken LUMAKRAS (sotorasib)? If so, you might be interested ... read more below
Food and Drug Administration (FDA) Oncologic Drugs Advisory Committee (ODAC) will review data supporting the supplemental New Drug Application (sNDA) for the full approval of LUMAKRAS® (sotorasib) for adults with previously treated locally advanced or metastatic KRAS G12C-mutated non-
small
cell
lung
Food and Drug Administration (FDA) Oncologic Drugs Advisory Committee (ODAC) will review data supporting the supplemental New Drug Application (sNDA) for the full approval of LUMAKRAS® (sotorasib) for adults with previously treated locally advanced or metastatic KRAS G12C-mutated non-
small
cell
lung
Miranda_GO2
Partner
in
Lung Cancer Support
1 year ago
Given Private Diagnosis But Antibody Test Is Negative? A Little Confused.
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
B12again
in
Pernicious Anaemia Society
25 days ago
Given Private Diagnosis But Antibody Test Is Negative?
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
B12again
in
Thyroid UK
25 days ago
Autologous Cell Transplants - Promising Clinical Trial Getting Underway
August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment
August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment
Shorebirdsotherhalf
in
Cure Parkinson's
1 month ago
I got my results back for pernicious anemia! Looks like folate deficiency, but would really appreciate any comments
I finally got my blood test results back for pernicious anemia. It looks like I don't have it, and that my problem is folate deficiency. And low reticulocyte count which would be caused by low folate I suppose. My other results are all in range, though active B12 could maybe be higher I am thinking
I finally got my blood test results back for pernicious anemia. It looks like I don't have it, and that my problem is folate deficiency. And low reticulocyte count which would be caused by low folate I suppose. My other results are all in range, though active B12 could maybe be higher I am thinking
Carrie234
in
Pernicious Anaemia Society
2 months ago
B12 how much and how often
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
Jeep13
in
Pernicious Anaemia Society
2 months ago
Lung damage, ECMO, time taken to recover.
Hi, my uncle was diagnosed with pnemonia and a 90% lung damage on 18Dec. He was put on ventilator and ECMO on 20th, its been 35 days ans there has been no improvement in the lungs. he took about 20 days to come out of induced coma, doctors are now making him sit occasionally and hoping for some improvement
Hi, my uncle was diagnosed with pnemonia and a 90% lung damage on 18Dec. He was put on ventilator and ECMO on 20th, its been 35 days ans there has been no improvement in the lungs. he took about 20 days to come out of induced coma, doctors are now making him sit occasionally and hoping for some improvement
shivnajain
in
ICUsteps
8 months ago
Please Join Us! Tuesday September 12th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, September 12th, at 5pm PT/8pm ET.
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, September 12th, at 5pm PT/8pm ET.
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Gastric Parietal Cell Antibody
Just wondering whether any members have had this test? I'm not really thinking about those who have had a B12 deficiency (or suspected Pernicious Anaemia) followed up by this test. Rather has anyone had done spontaneously as the link below [i]appears[/i] to imply. As I read it, the words say GPC should
Just wondering whether any members have had this test? I'm not really thinking about those who have had a B12 deficiency (or suspected Pernicious Anaemia) followed up by this test. Rather has anyone had done spontaneously as the link below [i]appears[/i] to imply. As I read it, the words say GPC should
helvella
Thyroid UK
in
Thyroid UK
3 months ago
Hi everyone - Welcome to small cell lung cancer support. We are so glad you joined us!
Please take a moment to share a little about yourself and your
small
cell
lung
cancer
story. Ask questions, share updates, and anything you've learned along the way. Reading your story could be just what someone needs today.
Please take a moment to share a little about yourself and your
small
cell
lung
cancer
story. Ask questions, share updates, and anything you've learned along the way. Reading your story could be just what someone needs today.
AmyKamp
Partner
in
Small Cell Lung Cancer Support
1 year ago
GENETIC MUTATION SUPPORT GROUP
[u][i]
THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING!
[/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted
[u][i]
THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING!
[/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
LUNG CANCER TREATMENT SUPPORT
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
Would you like to get more involved?
Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences
Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 year ago
Mycophenolate instead of Perfinedine or Nintenanib?
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
DaveLister
in
Lung Conditions Community Forum
8 months ago
GET INVOLVED! - Lung Cancer Support
This is the week that a new round of our groups kick starts. If you are thinking of joining please reach out, the groups have benefitted people massively and could really give valuable help during a difficult time.
Immunotherapy & Treatment
- Tuesday evening 5th September 7-8pm - fortnightly
This is the week that a new round of our groups kick starts. If you are thinking of joining please reach out, the groups have benefitted people massively and could really give valuable help during a difficult time.
Immunotherapy & Treatment
- Tuesday evening 5th September 7-8pm - fortnightly
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
Actinic keratosis & Lung cancer
Hi, Dad is in 5th week of taking Erlotinib and corresponding face rash appears to be under control with prescribed cream / antibiotics. Also good to see that his cough has reduced in frequency by around 90% and no increase in fatigue. My question is- dad has actinic keratosis ( for around 25 years +
Hi, Dad is in 5th week of taking Erlotinib and corresponding face rash appears to be under control with prescribed cream / antibiotics. Also good to see that his cough has reduced in frequency by around 90% and no increase in fatigue. My question is- dad has actinic keratosis ( for around 25 years +
Adaughter
in
The Roy Castle Lung Cancer Foundation
1 year ago
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