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Join Us! Tomorrow, June 13th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, June 13th, at 5pm PT/8pm ET. At this meeting
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, June 13th, at 5pm PT/8pm ET. At this meeting
Michelezeh
Partner
in
Lung Cancer Support
11 months ago
***NEW SUPPORT GROUPS!!***
[u][i]
ARE YOU INTERESTED IN GETTING SOME SUPPORT? - NEW GROUPS STARTING IN JULY
[/i][/u] [i]
GENETIC MUTATION LUNG CANCER - We are looking for people to join our Genetic Mutation Specific support group. This will be our third group and is a great way to get information and meet people in a similar
[u][i]
ARE YOU INTERESTED IN GETTING SOME SUPPORT? - NEW GROUPS STARTING IN JULY
[/i][/u] [i]
GENETIC MUTATION LUNG CANCER - We are looking for people to join our Genetic Mutation Specific support group. This will be our third group and is a great way to get information and meet people in a similar
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
7 months ago
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Waiting game
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
purdeyspringer
in
Lung Conditions Community Forum
7 months ago
just advice support
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
Helpplease_
in
ICUsteps
7 months ago
CBD; worth a try for pain relief..?
Hello all, hope you're all reasonably well! As have posted here before, Dad is weak with Stage 4 Lung cancer an the immunotherapy that he's having. There's some pain and he keeps this at bay with paracetamol3x/day. I understand that CBD oil could be a good thing to try for pan relief. wondering
Hello all, hope you're all reasonably well! As have posted here before, Dad is weak with Stage 4 Lung cancer an the immunotherapy that he's having. There's some pain and he keeps this at bay with paracetamol3x/day. I understand that CBD oil could be a good thing to try for pan relief. wondering
Vip1
in
The Roy Castle Lung Cancer Foundation
1 year ago
PV & Gene Editing for Sickle cell anemia
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
ERei
in
MPN Voice
5 months ago
Severe heartburn after lobectomy
Hello,2/14/23 I had a lower rt lung lobectomy. Since that time I have horrific heartburn. Not just a little but debilitating. Has anyone else experienced this? I have had an endoscopy done and the dr reports that he can see no reason for my symptoms. I am now being referred to other Dr's one being a
Hello,2/14/23 I had a lower rt lung lobectomy. Since that time I have horrific heartburn. Not just a little but debilitating. Has anyone else experienced this? I have had an endoscopy done and the dr reports that he can see no reason for my symptoms. I am now being referred to other Dr's one being a
MeLyndi
in
The Roy Castle Lung Cancer Foundation
7 months ago
Questions
Anyone on here lived a long life after heart surgery lung surgery?
Anyone on here lived a long life after heart surgery lung surgery?
Chaseree
in
British Heart Foundation
7 months ago
FDA Approves Imjudo and Imfinzi in Combination with Chemotherapy for Patients with NSCLC
On November 10th, 2022, the Food and Drug Administration (FDA) approved Imjudo (tremelimumab) in combination with Imfinzi (durvalumab) and platinum-based chemotherapy for treatment of non-
small
cell
lung
cancer
where there are no changes in ALK or EGFR.
On November 10th, 2022, the Food and Drug Administration (FDA) approved Imjudo (tremelimumab) in combination with Imfinzi (durvalumab) and platinum-based chemotherapy for treatment of non-
small
cell
lung
cancer
where there are no changes in ALK or EGFR.
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
labs results that contraindicate one another
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Katep66875
in
Pernicious Anaemia Society
2 days ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
10 days ago
New drug approved for those with KRAS G-12C
On December 12th, 2022, the Food and Drug Administration (FDA) approved Krazati (adagrasib) for treatment of non-
small
cell
lung
cancer
(nsclc) where there is a KRAS G12C mutation. This approval is for patients who have received at least one line of prior treatment such as chemotherapy.
On December 12th, 2022, the Food and Drug Administration (FDA) approved Krazati (adagrasib) for treatment of non-
small
cell
lung
cancer
(nsclc) where there is a KRAS G12C mutation. This approval is for patients who have received at least one line of prior treatment such as chemotherapy.
Miranda_GO2
Partner
in
Lung Cancer Support
1 year ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
20 days ago
Severe reaction to immunotherapy
Hi My husband has mesothelioma and has been having immunotherapy (Ipilimumab and Nivolumab) every 3 weeks since early January this year. All was going well until last week when he had a severe reaction - diabetic ketoacidosis - and has been in hospital for a week while they try to stabilise his blood
Hi My husband has mesothelioma and has been having immunotherapy (Ipilimumab and Nivolumab) every 3 weeks since early January this year. All was going well until last week when he had a severe reaction - diabetic ketoacidosis - and has been in hospital for a week while they try to stabilise his blood
toffeepudding
in
The Roy Castle Lung Cancer Foundation
1 year ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
2 months ago
Blood Work
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Canadian77
in
Pernicious Anaemia Society
2 months ago
Lung Cancer Research
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
Time flies... when you're having babies!
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
4 months ago
Genetics - Children of Lung Cancer Patients
Hi all - I am a young mom who just underwent a lung wedge resection. I will be monitored for life, most likely - but I am wondering about my child. I have two EGFR mutations and am concerned about what this means for my son. Does anyone know much about testing younger patients -he is much too young now
Hi all - I am a young mom who just underwent a lung wedge resection. I will be monitored for life, most likely - but I am wondering about my child. I have two EGFR mutations and am concerned about what this means for my son. Does anyone know much about testing younger patients -he is much too young now
JustBreathe82
in
The Roy Castle Lung Cancer Foundation
1 year ago
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