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Secondary cancer
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Nocillo
in
SHARE Metastatic Breast Cancer
1 month ago
Secondary cancer
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Nocillo
in
SHARE Metastatic Breast Cancer
1 month ago
Thyroid Cancer Reoccurrence?
I'm having a bit of a panic. Had my thyroid panel done through medichecks with THYROGLOBULIN of 12. Had a TT for papillary thyroid cancer 13 years ago when I was 26. I was discharged from oncology 2 years ago and thyroglobulin not been checked since. I was always told it should be undectable. Should
I'm having a bit of a panic. Had my thyroid panel done through medichecks with THYROGLOBULIN of 12. Had a TT for papillary thyroid cancer 13 years ago when I was 26. I was discharged from oncology 2 years ago and thyroglobulin not been checked since. I was always told it should be undectable. Should
DarkStar85
in
Thyroid UK
5 months ago
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Do I need an MRI with Contrast or without?
Soon will get a Prostate MRI done and I am worried about possible side effects of the gadolinium based contrast agent (dye). Can I decline the dye and ask for a MRI without contrast? I don't have any prior cancer diagnosis, but my PSA is 10.9 and 12.15 (two readings, 5 days apart, different labs)
Soon will get a Prostate MRI done and I am worried about possible side effects of the gadolinium based contrast agent (dye). Can I decline the dye and ask for a MRI without contrast? I don't have any prior cancer diagnosis, but my PSA is 10.9 and 12.15 (two readings, 5 days apart, different labs)
cederpicket
in
Prostate Cancer Network
1 month ago
Considering orchiectomy due to chronic constipation from Orgovyx
I've been on Orgovyx for 33 months for metastatic prostate cancer. Constipation is a known issue with Orgovyx and it has affected me to some degree most of the 33 months. Earlier this year it seem to get more chronic and intractable. I'm also currently using a 37.5mg weekly E2 patch, up from 0.025 twice
I've been on Orgovyx for 33 months for metastatic prostate cancer. Constipation is a known issue with Orgovyx and it has affected me to some degree most of the 33 months. Earlier this year it seem to get more chronic and intractable. I'm also currently using a 37.5mg weekly E2 patch, up from 0.025 twice
NewPotatoCaboose
in
Advanced Prostate Cancer
1 month ago
Proton Therapy Had PT Therapy 15 years (2009) ago 5 year follow Up No Cancer Just Diagnosed with Mets in Bone/Pelvic Lymph Nodes in 2024
Had PT Therapy at MD Anderson 15 years ago with Pencil beam radiation. Gleason at the time 2009 was 6 (3 +3) and PSA was 5.9. I am now 73. Successfully treated and follow up every year for 5 years showed my PSA at between .2-.4. For 15 years up untiil now, no symptoms. According to MD Anderson,
Had PT Therapy at MD Anderson 15 years ago with Pencil beam radiation. Gleason at the time 2009 was 6 (3 +3) and PSA was 5.9. I am now 73. Successfully treated and follow up every year for 5 years showed my PSA at between .2-.4. For 15 years up untiil now, no symptoms. According to MD Anderson,
Rcole727
in
Advanced Prostate Cancer
1 month ago
Eribulin/ Halaven experiences.
starting Eribulin after trodelvy did the trick for 6 months. I’m beet nervous and scared as you all know when starting anew chemo. Scared it won’t work and scared of side effects. I now have liver Mets🥹. I’m devastated. Can someone share some experiences with this drug? Side effects? How long they
starting Eribulin after trodelvy did the trick for 6 months. I’m beet nervous and scared as you all know when starting anew chemo. Scared it won’t work and scared of side effects. I now have liver Mets🥹. I’m devastated. Can someone share some experiences with this drug? Side effects? How long they
Maraki
in
SHARE Metastatic Breast Cancer
1 month ago
My mom just got diagnosed with CLL at 59 - we have questions - thank you for all the support on my previous post!
1. We live in Southern California - does anyone know a great specialist near by? 2. Her ABSOLUTE LYMPHOCYTES are 9533 - does anyone have similar numbers but they have increased 24% from a month ago when they were at 7732?? Is this alarming? 3. Her IGHV test came back at 6.87% - what does that mean?
1. We live in Southern California - does anyone know a great specialist near by? 2. Her ABSOLUTE LYMPHOCYTES are 9533 - does anyone have similar numbers but they have increased 24% from a month ago when they were at 7732?? Is this alarming? 3. Her IGHV test came back at 6.87% - what does that mean?
Chickenoodlesoup
in
CLL Support
6 months ago
Is it Prostate Metastases or Lung cancer
Brief background- Current age 75. Prostate cancer 8 years ago. Gleason 4+3 Radiation and Eligard shots for six months. All good until 6/2023 when PSA went to .6. On 1/2024 went to 1.0 then 1.6 on 6/2024. During the last year I have had many scans. 8/23 - Pet/PSMA - Multiple right lung nodules but
Brief background- Current age 75. Prostate cancer 8 years ago. Gleason 4+3 Radiation and Eligard shots for six months. All good until 6/2023 when PSA went to .6. On 1/2024 went to 1.0 then 1.6 on 6/2024. During the last year I have had many scans. 8/23 - Pet/PSMA - Multiple right lung nodules but
wpeebles
in
Advanced Prostate Cancer
1 month ago
Life after ADT
Hello, I finished my ADT treatment 7 months ago ( ORGOVYX for 22 months . Still having emotional rollercoaster. Held my own during the cancer journey ( Brachy therapy, 25 sessions of IMRT, then ORGOVYX. I guess I was lucky only mind numbing, soul crushing fatigue, bad brain fog/confusion, shrunken
Hello, I finished my ADT treatment 7 months ago ( ORGOVYX for 22 months . Still having emotional rollercoaster. Held my own during the cancer journey ( Brachy therapy, 25 sessions of IMRT, then ORGOVYX. I guess I was lucky only mind numbing, soul crushing fatigue, bad brain fog/confusion, shrunken
watertender
in
Advanced Prostate Cancer
1 month ago
DIPNECH diagnosis.
DIPNECH - carcinoid lung nodules. Has anybody had this recognised as cancer by DWP when there is minimal cancel active, although present? I was told by an ILD consultant at Rbh that they don’t? Even though it requires regular Pet CT scans. Bella.
DIPNECH - carcinoid lung nodules. Has anybody had this recognised as cancer by DWP when there is minimal cancel active, although present? I was told by an ILD consultant at Rbh that they don’t? Even though it requires regular Pet CT scans. Bella.
Bellaowl
in
Lung Conditions Community Forum
1 month ago
Lost my lovely Dad 48 hours ago....want to thank you all.
Dad had another spinal cord compression at C2. PSA at this point was 3700. Radiotherapy was out of the question; having had treatment there before. Came home from hospital, and we tried desperately to take him to Istanbul for Lu177. We even booked the tickets. Sadly, 24 hours later, he deteriorated
Dad had another spinal cord compression at C2. PSA at this point was 3700. Radiotherapy was out of the question; having had treatment there before. Came home from hospital, and we tried desperately to take him to Istanbul for Lu177. We even booked the tickets. Sadly, 24 hours later, he deteriorated
kikinini
in
Advanced Prostate Cancer
1 month ago
post-op incisions
Hi everyone, I had surgery (ovarian cystectomy & excision of endometriosis) on 18/02/24 One of my wounds seems to be open. I feel ‘fobbed off’ by doctors who state it will close on its own. Did anyone else’s incisions look like this? Did they heal okay? Also, my belly button scab has now fallen
Hi everyone, I had surgery (ovarian cystectomy & excision of endometriosis) on 18/02/24 One of my wounds seems to be open. I feel ‘fobbed off’ by doctors who state it will close on its own. Did anyone else’s incisions look like this? Did they heal okay? Also, my belly button scab has now fallen
sxnam
in
Endometriosis UK
6 months ago
Calquence
I just was diagnosed with sll after getting an mri on my back for back pain showed a swollen lymph node on my spine. Ct and biopsy showed sll. I am supposed to get a pet scan this week and then start calquence. I am normally a very active person and am wondering what my tolerance to physical activity
I just was diagnosed with sll after getting an mri on my back for back pain showed a swollen lymph node on my spine. Ct and biopsy showed sll. I am supposed to get a pet scan this week and then start calquence. I am normally a very active person and am wondering what my tolerance to physical activity
1reb
in
CLL Support
1 month ago
Just wanted to share my Primary Myelofibrosis journey so far…….
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
LFCLove
in
MPN Voice
7 months ago
At what point for scan ?
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
positive-thinking
in
Advanced Prostate Cancer
6 months ago
recently diagnosed with 3.5cm acoustic neuroma
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse
Longtallsally22
in
Acoustic Neuroma Support
1 month ago
FDA approved Inavolisib for PIK3 mutation
I am back on here and I wanted to share that my blood biopsy last month showed a PIK3 mutation. Then, since I am a reader, I found out that Inavolisib has just been approved to be taken with ibrance and fulvestrant I currently take ibrance and letrozole. It seems the Inavolisib has less side effects
I am back on here and I wanted to share that my blood biopsy last month showed a PIK3 mutation. Then, since I am a reader, I found out that Inavolisib has just been approved to be taken with ibrance and fulvestrant I currently take ibrance and letrozole. It seems the Inavolisib has less side effects
Godbeforme
in
SHARE Metastatic Breast Cancer
1 month ago
Seeking guidance with different Prostate Cancer biopsy results
My urologist had a local pathology laboratory perform the analysis of my biopsy and it resulted in a 4+3=7. I chose radiation therapy and went to a center of excellence and they performed another assessment of the biopsy which resulted in a 4+5=9. Finally we had Joh Hopkins assess the slides and they
My urologist had a local pathology laboratory perform the analysis of my biopsy and it resulted in a 4+3=7. I chose radiation therapy and went to a center of excellence and they performed another assessment of the biopsy which resulted in a 4+5=9. Finally we had Joh Hopkins assess the slides and they
Larry954
in
Prostate Cancer Network
1 month ago
First post
I joined the community over a year ago when i got a routine blood test back that was a bit high but below the threshold for further tests. Continued that way for 18 months until last week CLL was confirmed while doing a biopsy for a suspect mole and having a melanoma removed. So a double whammy. More
I joined the community over a year ago when i got a routine blood test back that was a bit high but below the threshold for further tests. Continued that way for 18 months until last week CLL was confirmed while doing a biopsy for a suspect mole and having a melanoma removed. So a double whammy. More
Mokoia
in
CLL Support
1 month ago
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