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PSA is back
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
LBbeachbum
in
Prostate Cancer Network
4 months ago
Oncologist visit today
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
ppulatie
in
Advanced Prostate Cancer
4 months ago
Diagnosed with Richters
My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
Louie_CC
in
CLL Support
29 days ago
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Dad,83 - is biopsy necessary ?
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
Tinkudi
in
Advanced Prostate Cancer
4 months ago
Rise in psa
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
Runner1957
in
Advanced Prostate Cancer
4 months ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
5 months ago
Drugs and high Calcium
My Oncologist wants me to take Prolia, but the Insurance will not pay for it and wants me to take Zometa. However, I did research on Zometa and its reputation is questionable. What are the alternatives? Xgeva seems better. Any thoughts about this.
My Oncologist wants me to take Prolia, but the Insurance will not pay for it and wants me to take Zometa. However, I did research on Zometa and its reputation is questionable. What are the alternatives? Xgeva seems better. Any thoughts about this.
Poollover
in
Advanced Prostate Cancer
4 months ago
What Next After Xtandi Fail?
Morning all. Don't post much but now is the time. Been fighting the Beast since Nov 2016. On Lupron from the beginning and Xtandi since Nov 2019. Hit Nadir of .21 in Dec 2022. Since then, PSA has been jumping around, but trending upward. End of 2023, it was at .67. Feb 2024, PSA up to .87. Yesterday
Morning all. Don't post much but now is the time. Been fighting the Beast since Nov 2016. On Lupron from the beginning and Xtandi since Nov 2019. Hit Nadir of .21 in Dec 2022. Since then, PSA has been jumping around, but trending upward. End of 2023, it was at .67. Feb 2024, PSA up to .87. Yesterday
ppulatie
in
Advanced Prostate Cancer
4 months ago
Non invasive detection of neuroendocrine PCa
An innovation to detect neuroendocrine PCa...and one of the researchers is a friend so I wanted to promote this paper :-P https://www.urotoday.com/video-lectures/prostate-cancer/video/mediaitem/3995-non-invasive-detection-of-neuroendocrine-prostate-cancer-through-targeted-cell-free-dna-methylation-himisha-beltran-francesca-demichelis.html
An innovation to detect neuroendocrine PCa...and one of the researchers is a friend so I wanted to promote this paper :-P https://www.urotoday.com/video-lectures/prostate-cancer/video/mediaitem/3995-non-invasive-detection-of-neuroendocrine-prostate-cancer-through-targeted-cell-free-dna-methylation-himisha-beltran-francesca-demichelis.html
Maxone73
in
Advanced Prostate Cancer
4 months ago
Liquid Biopsy Method Enables Real-Time Monitoring of Metastatic Prostate Cancer…
….and can help in finding new targets for therapies! https://www.insideprecisionmedicine.com/topics/oncology/new-liquid-biopsy-method-enables-real-time-monitoring-of-metastatic-prostate-cancer/
….and can help in finding new targets for therapies! https://www.insideprecisionmedicine.com/topics/oncology/new-liquid-biopsy-method-enables-real-time-monitoring-of-metastatic-prostate-cancer/
Maxone73
in
Advanced Prostate Cancer
2 months ago
Toronto Prostate Cancer Specialist for Dad
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
Justgettingitright
in
Advanced Prostate Cancer
4 months ago
whenever i raise euthyrox100mg i get hbp headache nausea
is two weeks now i raised euthyrox from 75 yo 100mg and i dont think i can tolerate twice i tried and got hbp that even pills dont take it down
is two weeks now i raised euthyrox from 75 yo 100mg and i dont think i can tolerate twice i tried and got hbp that even pills dont take it down
morcan54
in
Thyroid UK
4 months ago
Update, small cell
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Fdccs
in
Advanced Prostate Cancer
4 months ago
New DX
I am a 76 yo woman. I was DX in 2016 and was in a trial at MD Anderson from 2017-2019. I achieved UMRD at the end of the trial of Ibrutinib and Venetoclax. I remained in total remission until my first visit after my husband died from Alzheimer’s in Oct 2021. Since then it’s been downhill. Dr Wierda
I am a 76 yo woman. I was DX in 2016 and was in a trial at MD Anderson from 2017-2019. I achieved UMRD at the end of the trial of Ibrutinib and Venetoclax. I remained in total remission until my first visit after my husband died from Alzheimer’s in Oct 2021. Since then it’s been downhill. Dr Wierda
pkpayne
in
CLL Support
4 months ago
Positive effect of diet on the whole PCa / APCa spectrum
https://www.urologytimes.com/view/plant-based-diet-demonstrates-benefits-along-spectrum-of-prostate-cancer +lots of exercise
https://www.urologytimes.com/view/plant-based-diet-demonstrates-benefits-along-spectrum-of-prostate-cancer +lots of exercise
Derf4223
in
Advanced Prostate Cancer
4 months ago
In vivo/vitro: Dickkopf-1 (DKK1) drives growth and metastases in castration-resistant prostate cancer
...does "kopf" mean head? because I could switch to call my cancer dickkopf in that case! Anyway, thanks to CRISPR we have discovered another pathway...they have discovered another pathway! https://communities.springernature.com/posts/dickkopf-1-dkk1-drives-growth-and-metastases-in-castration-resistant-prostate-cancer
...does "kopf" mean head? because I could switch to call my cancer dickkopf in that case! Anyway, thanks to CRISPR we have discovered another pathway...they have discovered another pathway! https://communities.springernature.com/posts/dickkopf-1-dkk1-drives-growth-and-metastases-in-castration-resistant-prostate-cancer
Maxone73
in
Advanced Prostate Cancer
4 months ago
Stage 4, GL 9 seeking advice
After 10 months without pain, I'm starting to have pain in my back. Orgovyx and Zytiga have appeared to keep the cancer relatively quiet until now. Next month I turn 87. I'm quite healthy, apart from Prostate cancer. I have no illusions about a cure but would like to have as many QOL days as possible
After 10 months without pain, I'm starting to have pain in my back. Orgovyx and Zytiga have appeared to keep the cancer relatively quiet until now. Next month I turn 87. I'm quite healthy, apart from Prostate cancer. I have no illusions about a cure but would like to have as many QOL days as possible
Poollover
in
Advanced Prostate Cancer
4 months ago
rash reaction to Xtandi
I was taking Xtandi and developed a rash in a few places. my oncologist insisted on getting me off of this medication.. I went to the dermatologist and he explained that he has been able to help people stay on medication even if they develop a rash. The dermatologist did a biopsy and contacted the oncologist
I was taking Xtandi and developed a rash in a few places. my oncologist insisted on getting me off of this medication.. I went to the dermatologist and he explained that he has been able to help people stay on medication even if they develop a rash. The dermatologist did a biopsy and contacted the oncologist
spolyu
in
Advanced Prostate Cancer
4 months ago
Casodex(tablet) Vs lupron(injection)
Hi allCasodex (bicalutamide) 57% for driving down PSA Lupron 87% BUT........ maybe for an individual would it be worth trying to see if casodex tablets worked better for driving down PSA instead of the lupron injection????
Hi allCasodex (bicalutamide) 57% for driving down PSA Lupron 87% BUT........ maybe for an individual would it be worth trying to see if casodex tablets worked better for driving down PSA instead of the lupron injection????
Mrtroxely
in
Advanced Prostate Cancer
4 months ago
Found a Reliable Place to Buy Enzalutamide Prostate Cancer Medication at Low Price
I found a trustworthy place to purchase Enzalutamide, a medication for prostate cancer, at a fair price. I bought it from Oddway International, an Indian pharmaceutical distributor. They were really helpful and answered all my questions patiently. The medicine arrived on time and at a price I could afford
I found a trustworthy place to purchase Enzalutamide, a medication for prostate cancer, at a fair price. I bought it from Oddway International, an Indian pharmaceutical distributor. They were really helpful and answered all my questions patiently. The medicine arrived on time and at a price I could afford
davidjroberts
in
Fight Prostate Cancer
4 months ago
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