I’m sorry to hear of the recurrence. The same thing happened to me last year after my RP. The radiation treated ended in February and 6 months of ADT wraps up this week. I’m feeling your pain — yet you have to have a positive outlook. That’s what I’m doing, and I hope you do the same. We’re battling a sinister disease, and it’s important to keep spirits high (and also for your loved ones). Wishing you a successful journey.
Thank you for the support. Lot of things going through my head and just trying to block them and stay positive. Easily said then done as you know. Wishing to the best also.
Back? Once those little suckers decide to swim around your private beach.... they're never gone. BUT it's not the end.... there's so many arrows in the quiver nowadays that you can fight them to a stand still until they breach the wall and own your private beach. My prediction for you, is that it won't happen until 2054.
I'm sorry to hear that's happened to you. I'm about 2 years ahead of you with similar circumstances.
Diagnosed at 52, PSA 5.0, 3+3 pre-surgery, 3+4 post-surgery. Negative margins, no ECE, LNI, SVI. PSA became detectable again 54 months after the surgery at 0.05. But my PSA took almost 6 years to reach 0.20.
I went for a PSMA PET scan when my PSA was 0.22 in hopes that it could guide the radiation oncologist in where to zap. It was inconclusive.
Like you, I did a six-month dose of Eligard two months before starting my salvage radiation therapy. My PSA had increased to 0.36 just before the hormone and radiation therapy started. Unlike you, we only zapped the prostate bed and not the pelvic lymph nodes. My SRT ended in August 2022.
My initial PSA tests after the SRT and after the hormone therapy wore off were promising, with my PSA at 0.13 and then at 0.11 a few months later. But six months later, my PSA had nearly doubled to 0.21, and a confirmation test 5 weeks after that was at 0.33. It was still lower than when we started, but going in the wrong direction.
In January 2024, my PSA was up to 0.37 just before a second PSMA PET scan which was also inconclusive, showing no signs of cancer or metastases.
My PSA is now 0.52, indicating the SRT failed, too.
At this point, we're going to wait a bit longer and hope to do another PSMA PET test within the next 6 months. My team is reluctant to start ADT this early, and I am generally okay with that.
I hope that your results are better than mine. In retrospect, perhaps we should have zapped the pelvic lymph nodes, too. (BTW, if you want to check out more specifics about my experience, go to the link in my profile.)
i wish you good luck. I also had surgery and i would be very concerned having recurence. How was the pathology after surgery ? The Gleason after surgery ? You didnt had an agressiv cancer ?!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.