PSA is back: I was 51 yr old diagnosed... - Prostate Cancer N...

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PSA is back

LBbeachbum profile image
13 Replies

I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy.

Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 .

Just started Hormonal Therapy with radiation scheduled for August.

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LBbeachbum profile image
LBbeachbum
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13 Replies
Tall_Allen profile image
Tall_Allen

Will your pelvic lymph nodes get radiation too?

prostatecancer.news/2022/05...

LBbeachbum profile image
LBbeachbum in reply to Tall_Allen

yes

leach234 profile image
leach234

what year did you have surgery?

LBbeachbum profile image
LBbeachbum in reply to leach234

2019

Mike968 profile image
Mike968

Sorry to hear that. My biggest concern since my RALP surgery is recurrence. Best of luck with your treatments and hopefully this does the trick.

LBbeachbum profile image
LBbeachbum in reply to Mike968

Thank you!

BettyandBob profile image
BettyandBob

I’m sorry to hear of the recurrence. The same thing happened to me last year after my RP. The radiation treated ended in February and 6 months of ADT wraps up this week. I’m feeling your pain — yet you have to have a positive outlook. That’s what I’m doing, and I hope you do the same. We’re battling a sinister disease, and it’s important to keep spirits high (and also for your loved ones). Wishing you a successful journey.

LBbeachbum profile image
LBbeachbum in reply to BettyandBob

Thank you for the support. Lot of things going through my head and just trying to block them and stay positive. Easily said then done as you know. Wishing to the best also.

leach234 profile image
leach234

are you in Long Beach? If so, who was your surgeon (i’m in Costa Mesa).

LBbeachbum profile image
LBbeachbum in reply to leach234

I'm in NY

j-o-h-n profile image
j-o-h-n

Back? Once those little suckers decide to swim around your private beach.... they're never gone. BUT it's not the end.... there's so many arrows in the quiver nowadays that you can fight them to a stand still until they breach the wall and own your private beach. My prediction for you, is that it won't happen until 2054.

Good Luck, Good Health and Good Humor.

j-o-h-n

dans_journey profile image
dans_journey

I'm sorry to hear that's happened to you. I'm about 2 years ahead of you with similar circumstances.

Diagnosed at 52, PSA 5.0, 3+3 pre-surgery, 3+4 post-surgery. Negative margins, no ECE, LNI, SVI. PSA became detectable again 54 months after the surgery at 0.05. But my PSA took almost 6 years to reach 0.20.

I went for a PSMA PET scan when my PSA was 0.22 in hopes that it could guide the radiation oncologist in where to zap. It was inconclusive.

Like you, I did a six-month dose of Eligard two months before starting my salvage radiation therapy. My PSA had increased to 0.36 just before the hormone and radiation therapy started. Unlike you, we only zapped the prostate bed and not the pelvic lymph nodes. My SRT ended in August 2022.

My initial PSA tests after the SRT and after the hormone therapy wore off were promising, with my PSA at 0.13 and then at 0.11 a few months later. But six months later, my PSA had nearly doubled to 0.21, and a confirmation test 5 weeks after that was at 0.33. It was still lower than when we started, but going in the wrong direction.

In January 2024, my PSA was up to 0.37 just before a second PSMA PET scan which was also inconclusive, showing no signs of cancer or metastases.

My PSA is now 0.52, indicating the SRT failed, too.

At this point, we're going to wait a bit longer and hope to do another PSMA PET test within the next 6 months. My team is reluctant to start ADT this early, and I am generally okay with that.

I hope that your results are better than mine. In retrospect, perhaps we should have zapped the pelvic lymph nodes, too. (BTW, if you want to check out more specifics about my experience, go to the link in my profile.)

Good luck!

cpl901 profile image
cpl901

i wish you good luck. I also had surgery and i would be very concerned having recurence. How was the pathology after surgery ? The Gleason after surgery ? You didnt had an agressiv cancer ?!

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