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Request for Input
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Shamrock46
in
Advanced Prostate Cancer
4 months ago
How much targeted radiation to mets?
Hi, Warriors. I've been through Zytiga, Pluvicto and Xtandi - all failed. Have aggressive metastatic cancer and mets head to toe. Starting to get pain in bones and already had one major blast of radiation to ribs. Can they keep blasting spots as they get painful, or is there a radiation limit?
Hi, Warriors. I've been through Zytiga, Pluvicto and Xtandi - all failed. Have aggressive metastatic cancer and mets head to toe. Starting to get pain in bones and already had one major blast of radiation to ribs. Can they keep blasting spots as they get painful, or is there a radiation limit?
jersy
in
Advanced Prostate Cancer
4 months ago
Large Prostate more difficult to remove ?
In 2013 I had robotic prostatectomy. My prostate was quite large, volume 130ml, size 7.43x5.61x5.97cm. As a result, prostate was removed in two pieces, no seminal vesicles where removed and path: "pT2c bilateral, pNx, GL 4+3 Tertiary 5, EPE not identified, SUV not identified". I understand, pNx means
In 2013 I had robotic prostatectomy. My prostate was quite large, volume 130ml, size 7.43x5.61x5.97cm. As a result, prostate was removed in two pieces, no seminal vesicles where removed and path: "pT2c bilateral, pNx, GL 4+3 Tertiary 5, EPE not identified, SUV not identified". I understand, pNx means
Maxi54
in
Advanced Prostate Cancer
4 months ago
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Husband getting extremely tired on Zytiga
Tim began Zytiga one month ago. He is also doing Lupron and EBRT which will be over in 5 sessions (he had 5 weeks of them all together). Up until about 5 days ago, he was working and then going to Pilates once a week and to the gym, but now he is coming home EXHAUSTED from work and barely has the energy
Tim began Zytiga one month ago. He is also doing Lupron and EBRT which will be over in 5 sessions (he had 5 weeks of them all together). Up until about 5 days ago, he was working and then going to Pilates once a week and to the gym, but now he is coming home EXHAUSTED from work and barely has the energy
Usernameitis
in
Advanced Prostate Cancer
4 months ago
High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
4 months ago
Has anyone heard of trial DB-1311-O-1001?
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Stefciaa
in
Advanced Prostate Cancer
4 months ago
Finally Something’s Working
I have had this mutherf*cker of a disease 19 years. I have had numerous rounds of Lupron. I have been on Casodex, Erleada, Nubeqa. Zytiga, Provenge, 8 rounds of Docetaxel and, now, Pluvicto. As is standard, after my third round of Pluvicto I had a PSMA PET scan. Finally, something seems to be working
I have had this mutherf*cker of a disease 19 years. I have had numerous rounds of Lupron. I have been on Casodex, Erleada, Nubeqa. Zytiga, Provenge, 8 rounds of Docetaxel and, now, Pluvicto. As is standard, after my third round of Pluvicto I had a PSMA PET scan. Finally, something seems to be working
MJCA
in
Advanced Prostate Cancer
4 months ago
Consult urologist or medical oncologist ?
My dad , 83 , was detected with prostate cancer with mets to bones and psa 18. Is it better to take treatment through a medical oncologist or a urologist ?
My dad , 83 , was detected with prostate cancer with mets to bones and psa 18. Is it better to take treatment through a medical oncologist or a urologist ?
Tinkudi
in
Advanced Prostate Cancer
4 months ago
How many treatments of Chemo can the body handle
I have had 7 cycles of docetaxel and 3 of cabazitaxel. The oncologist wants to continue with another 7 cycles of cabazitaxel. My question is how much of this poison can the body handle. Does this chemo destroy things permanently in the body. I know that the fatigue is taking over. I couldn't run
I have had 7 cycles of docetaxel and 3 of cabazitaxel. The oncologist wants to continue with another 7 cycles of cabazitaxel. My question is how much of this poison can the body handle. Does this chemo destroy things permanently in the body. I know that the fatigue is taking over. I couldn't run
Islandboy2021
in
Advanced Prostate Cancer
4 months ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
5 months ago
I’m still here :)
it’s been a while and my last post was not very positive . This is a quick update . I’m still unclear as to how I got here with my illness but I received palliative chemotherapy six cylcles one every three weeks. I think it was a variation of chop plus an immunotherapy drug beginning with B . The treatment
it’s been a while and my last post was not very positive . This is a quick update . I’m still unclear as to how I got here with my illness but I received palliative chemotherapy six cylcles one every three weeks. I think it was a variation of chop plus an immunotherapy drug beginning with B . The treatment
Hilo13
in
CLL Support
8 days ago
Kindly seeking advice about my options
I'm metastatic HSPCa on Lupron/Erleada over two years now. Three periaortic lymph nodes and two ribs lesions. Sooner or later, I will go metastatic HRPCa (average about 3 years to become hormone resistant). So, my question is what kind of treatment coming next Thanks for your input
I'm metastatic HSPCa on Lupron/Erleada over two years now. Three periaortic lymph nodes and two ribs lesions. Sooner or later, I will go metastatic HRPCa (average about 3 years to become hormone resistant). So, my question is what kind of treatment coming next Thanks for your input
Maxi54
in
Advanced Prostate Cancer
4 months ago
PSA Testing Scandal Repost
This was my first post two years ago. It was about the scandal of my diagnosis. I don't think much has changed. Basically PSA testing is a good thing. https://healthunlocked.com/advanced-prostate-cancer/posts/148930895/psa-testing-scandal-lost-years-of-life-updated-re-qol [i]Posted later - please see
This was my first post two years ago. It was about the scandal of my diagnosis. I don't think much has changed. Basically PSA testing is a good thing. https://healthunlocked.com/advanced-prostate-cancer/posts/148930895/psa-testing-scandal-lost-years-of-life-updated-re-qol [i]Posted later - please see
JohnInTheMiddle
in
Advanced Prostate Cancer
4 months ago
Chronic sinus issues
I’m currently on an Xtandi, Zometa and Lupron treatment plan. Could there be a correlation between one of these drugs and chronic sinus stuffiness? I also take a cholesterol drug and 3 different blood pressure meds. Thanks in advance if anyone has information. My Best Jim
I’m currently on an Xtandi, Zometa and Lupron treatment plan. Could there be a correlation between one of these drugs and chronic sinus stuffiness? I also take a cholesterol drug and 3 different blood pressure meds. Thanks in advance if anyone has information. My Best Jim
NDJIM
in
Advanced Prostate Cancer
4 months ago
Will Existing Drugs Stop Cancer's Bone Spread? I don't know but it's driving me crazy!
Just because I cannot know which are the two repurposed drugs that seem to have such great results with metastasis. The chief researcher is Neta Erez who has great reputation in research about bone metastasis. I am inclined to think about Ivermectin as one of the possible components of the cocktail,
Just because I cannot know which are the two repurposed drugs that seem to have such great results with metastasis. The chief researcher is Neta Erez who has great reputation in research about bone metastasis. I am inclined to think about Ivermectin as one of the possible components of the cocktail,
Maxone73
in
Fight Prostate Cancer
4 months ago
Is Orgovyx as effective as Lupron/Degarelix ?
My Dad , 83 , with bone mets has started bicalutamide since a week and is soon to take the Lupron shot. But he has a fear of injections as many years back he has developed an abscess due to an injection wrongly given. Is orgovyx as effective as the injections in reducing testesterone ? One doctor
My Dad , 83 , with bone mets has started bicalutamide since a week and is soon to take the Lupron shot. But he has a fear of injections as many years back he has developed an abscess due to an injection wrongly given. Is orgovyx as effective as the injections in reducing testesterone ? One doctor
Tinkudi
in
Advanced Prostate Cancer
4 months ago
My Scan Story
Hi all...great info shared here that has helped me after my RP...I went from PSA of 2.4 in 2021 to a 4.91 in 10/23..Dr did a 12 core biopsy cause of 3 bro's and Dad all with PC. 2 cores came back with Gleason 7 and an 8. They did a PSMA test with nuclear dye that showed it confined to gland.(also did
Hi all...great info shared here that has helped me after my RP...I went from PSA of 2.4 in 2021 to a 4.91 in 10/23..Dr did a 12 core biopsy cause of 3 bro's and Dad all with PC. 2 cores came back with Gleason 7 and an 8. They did a PSMA test with nuclear dye that showed it confined to gland.(also did
wharr
in
Prostate Cancer Network
4 months ago
Mikemike
Hello....I am here and happy to help in any way I can. Will try to be concise. G-9...radiation only(28 sessions IMRT) a breeze. Declined lupron...because of a continuing anxiety condition. Metastices showed up 14 most later...PSA 6.7 up to 16.2 in 6 weeks. PSMA pet showed two rib mets and 1 other on
Hello....I am here and happy to help in any way I can. Will try to be concise. G-9...radiation only(28 sessions IMRT) a breeze. Declined lupron...because of a continuing anxiety condition. Metastices showed up 14 most later...PSA 6.7 up to 16.2 in 6 weeks. PSMA pet showed two rib mets and 1 other on
Poppy1952
in
Advanced Prostate Cancer
4 months ago
Lupron - are there heart risks?
My father , 83 , recently got diagnosed with Prostate cancer with mets to some bones , as per PSMA test. We have not done a biopsy as one doctor said there is no need to do it as treatment options won’t change but another doctor says it’s good to do it in case later down the line we need to add treatments
My father , 83 , recently got diagnosed with Prostate cancer with mets to some bones , as per PSMA test. We have not done a biopsy as one doctor said there is no need to do it as treatment options won’t change but another doctor says it’s good to do it in case later down the line we need to add treatments
Tinkudi
in
Advanced Prostate Cancer
4 months ago
Diagnosed with Richters
My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
Louie_CC
in
CLL Support
29 days ago
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