Langerhans cell histiocytosis

[Mrsclh]

I was diagnosed last year and would like to hear from anyone else diagnosed with lch

[Hidden]

Sorry you haven’t had any replies so far. I had to look this up as I’d never heard of it before. It seems to be a very rare diagnosis, but with very good survival rates for something that some want classified as a cancer. Is it effecting your lungs? You may find people are able to relate in relation to the lung effects rather than the condition as a whole: can’t say for sure as there are thousands of members here, but it’s not a diagnosis I’ve seen come up at all in the 3 years I’ve been part of the forum.