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Good morning
Hello … I have been following the group for over 2 years now having been diagnosed with scleroderma and simultaneously breast cancer. I had a mastectomy, chemo etc and have returned to work .. teaching. . Two years on , where I thought I’d done a good job at keeping on track , keeping fit, I have developed
Hello … I have been following the group for over 2 years now having been diagnosed with scleroderma and simultaneously breast cancer. I had a mastectomy, chemo etc and have returned to work .. teaching. . Two years on , where I thought I’d done a good job at keeping on track , keeping fit, I have developed
bananasplits
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
8 months ago
Still here & BRCA elective Mastectomy
Hi all! Just thought I’d pop my head up and say hello and that I’m still here. 🎉 As I’m now 6 years 😱 post OC treatment I’ve taken the plunge and am having the operation to remove my potentially life threatening boobs! (I found out post OC that I’m BRCA 1 so have a ridiculously high chance of getting
Hi all! Just thought I’d pop my head up and say hello and that I’m still here. 🎉 As I’m now 6 years 😱 post OC treatment I’ve taken the plunge and am having the operation to remove my potentially life threatening boobs! (I found out post OC that I’m BRCA 1 so have a ridiculously high chance of getting
Emsymits
in
My Ovacome
9 months ago
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Hello
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
chancemiracle12
in
SHARE Metastatic Breast Cancer
9 months ago
Too much pain
Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.
Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.
auntysue
in
Fibromyalgia Action UK
9 months ago
Too little Pred?
hello all- new here and am still working to understand PMR. I have a ton of blood tests done and my father has RA. I just turned 50 and am a very active, flexible former gymnast. I work out 6 times a week and have done Pilates and/or yoga and elliptical daily. My symptoms came on quickly about 6 weeks
hello all- new here and am still working to understand PMR. I have a ton of blood tests done and my father has RA. I just turned 50 and am a very active, flexible former gymnast. I work out 6 times a week and have done Pilates and/or yoga and elliptical daily. My symptoms came on quickly about 6 weeks
Hwle
in
PMRGCAuk
8 days ago
ZEJULA PROS AND CONS
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Mommashark6
in
SHARE Ovarian Cancer Support
9 months ago
New primary plus first progression
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
RachH20
in
SHARE Metastatic Breast Cancer
10 months ago
Nubeqa and pain medication
I'm starting Nubeqa and from what I read your not suppose to take pain meds like tylenol, aleve, ibebrofin, asprin etc. My question is ... has anyone taking Nubeqa used any pain meds for their pain, if so what kind and did it react with the Nubeqa. I ask alot of questions on here because I need to know
I'm starting Nubeqa and from what I read your not suppose to take pain meds like tylenol, aleve, ibebrofin, asprin etc. My question is ... has anyone taking Nubeqa used any pain meds for their pain, if so what kind and did it react with the Nubeqa. I ask alot of questions on here because I need to know
woppaginny
in
Advanced Prostate Cancer
5 months ago
Struggling to have a physical body
I've been diagnosed as BRCA1 positiveIn Nov. 2022 I had a bilateral mastectomy On Aug 17 I had my ovaries and fallopian tubes removed. These were both surgeries to prevent me from hopefully developing cancer in the future. I also have alopecia areata (have had for 19 years) I'm really struggling to
I've been diagnosed as BRCA1 positiveIn Nov. 2022 I had a bilateral mastectomy On Aug 17 I had my ovaries and fallopian tubes removed. These were both surgeries to prevent me from hopefully developing cancer in the future. I also have alopecia areata (have had for 19 years) I'm really struggling to
Themightiestrin
in
Anxiety and Depression Support
10 months ago
advice please for Creon
my mum had total gastrectomy in 2012 but since suffered from pancreatitis as a result The hospital started her on Creon to help with digestion of food, 2 capsules twice a day, I am messaging to see if any of the members of OPA have experience with pancreatitis and how they have been getting on with
my mum had total gastrectomy in 2012 but since suffered from pancreatitis as a result The hospital started her on Creon to help with digestion of food, 2 capsules twice a day, I am messaging to see if any of the members of OPA have experience with pancreatitis and how they have been getting on with
Strawberry23
in
Oesophageal & Gastric Cancer
1 year ago
Newbie
Hi At age 32 I had a triple negative tumour removed (lumpectomy) followed by chemo and radiotherapy. Fast forward 31 years I have just had a mastectomy after I had an oestrogen positive tumour. No chemo needed-phew! The op was 3 weeks ago & I still have a large haematoma that has already been drained
Hi At age 32 I had a triple negative tumour removed (lumpectomy) followed by chemo and radiotherapy. Fast forward 31 years I have just had a mastectomy after I had an oestrogen positive tumour. No chemo needed-phew! The op was 3 weeks ago & I still have a large haematoma that has already been drained
sissjg
in
SHARE Breast Cancer Support
11 months ago
Must manage your own healthcare
Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now tell everyone I know that women cannot rely on mammograms to find breast cancer. Must do regular self exams. Had double mastectomy and found macrometatastisis
Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now tell everyone I know that women cannot rely on mammograms to find breast cancer. Must do regular self exams. Had double mastectomy and found macrometatastisis
B17865
in
SHARE Metastatic Breast Cancer
11 months ago
Kazza
Hi all. Hope your all doing well. In Jan 2023 I had bilateral tumours each being 7mm. Was tested for braca2 came up positive (history of bc in family rife!). Lymph nodes clear. Opted for double mastectomy and oomphaloompha surgery (removal of ovaries and tubes). Its not really called that but close
Hi all. Hope your all doing well. In Jan 2023 I had bilateral tumours each being 7mm. Was tested for braca2 came up positive (history of bc in family rife!). Lymph nodes clear. Opted for double mastectomy and oomphaloompha surgery (removal of ovaries and tubes). Its not really called that but close
Karenborg
in
SHARE Metastatic Breast Cancer
11 months ago
Coming off Pramipexole
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
GreyMaus
in
Restless Legs Syndrome
11 months ago
Disopyramide Replacement?
Hi all, I have been on Disopyramide (Rhythmodan Retard 250mg) for the past 5/6 years, but now finding it almost impossible to obtain from the pharmacists in the Wiltshire area, so I am looking for an alternative. Back in January, my GP switched me to Bisprolol, but that didn't work as its rate rather
Hi all, I have been on Disopyramide (Rhythmodan Retard 250mg) for the past 5/6 years, but now finding it almost impossible to obtain from the pharmacists in the Wiltshire area, so I am looking for an alternative. Back in January, my GP switched me to Bisprolol, but that didn't work as its rate rather
DE-AF
in
Atrial Fibrillation Support
15 hours ago
"Weight loss drug could ease sleep apnoea in people with obesity, study says"
As RLS and obstructive sleep apnoea are often linked, this story about research concluding that tirzepatide (Mounjaro, Zepbound) could become the first pharmaceutical treatment for OSA may be of interest: https://www.theguardian.com/society/article/2024/jun/21/weight-loss-drug-could-ease-sleep-apnoea-in-people-with-obesity-study-says
As RLS and obstructive sleep apnoea are often linked, this story about research concluding that tirzepatide (Mounjaro, Zepbound) could become the first pharmaceutical treatment for OSA may be of interest: https://www.theguardian.com/society/article/2024/jun/21/weight-loss-drug-could-ease-sleep-apnoea-in-people-with-obesity-study-says
ChrisColumbus
in
Restless Legs Syndrome
5 days ago
Rasagiline
my partner has just been prescribed rasagiline to help with sleep and stiffness she is not on any other medications - done if the side effects look grim - anyone out there tried this? Abd what was your experience thanks ( she had had tremor 2 years internal tremor stopping sleep and soreness in upper
my partner has just been prescribed rasagiline to help with sleep and stiffness she is not on any other medications - done if the side effects look grim - anyone out there tried this? Abd what was your experience thanks ( she had had tremor 2 years internal tremor stopping sleep and soreness in upper
Biscuit61
in
Cure Parkinson's
7 days ago
confused about Buserelin
Hi lovely ladies I am on my 10dp5dt frozen embry transfer. On the trasnfer day, I got trigger injection Buserelin. i have been getting positive lines from Day 5 from light lines to current day progressing to darker lines now am worried that it might be due to buserelin that am getting positive result
Hi lovely ladies I am on my 10dp5dt frozen embry transfer. On the trasnfer day, I got trigger injection Buserelin. i have been getting positive lines from Day 5 from light lines to current day progressing to darker lines now am worried that it might be due to buserelin that am getting positive result
Ferlove
in
Fertility Network UK
10 days ago
Kemadrin (Procyclidin)
This medicine has been very less discussed on this forum. I have read that it's very effective in controlling dystonia and tremors.Has anyone tried it?
This medicine has been very less discussed on this forum. I have read that it's very effective in controlling dystonia and tremors.Has anyone tried it?
Farooqji
in
Cure Parkinson's
11 days ago
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