Too much pain: Within under 2 years I... - Fibromyalgia Acti...

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Too much pain

auntysue profile image
9 Replies

Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.

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auntysue profile image
auntysue
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9 Replies
Gigiruth profile image
Gigiruth

Hi AuntysueSo sorry to hear you have so much going on.

That would be overwhelming for most people. The pain can stop you being able to think straight.

Reach out to those you trust right now.

If you don't have people close that can help look after yourself as well as you can.

As for help from services if you need it.

I think of the sky like an enormous canopy when I am in pain I know there are others too feeling the same and I am not alone.

Take care

Gigi

auntysue profile image
auntysue in reply toGigiruth

Thankyou. I don't have anyone, but I know this forum is full of sufferers. I think of you all. X

Gigiruth profile image
Gigiruth in reply toauntysue

Yes Thinking of you tooGentle hug.

auntysue profile image
auntysue in reply toGigiruth

Gratefully received x

Jinty7 profile image
Jinty7

I am so sorry that you are going through so much, thinking of you 🤗🤗virtual hugs

JaimeJo profile image
JaimeJo

HI Sue, I'm sorry to hear what you are going through, I am going through the exact thing, however my double mastectomy and lymph node dissection is next Monday I don't think I will make it through the surgery tbh with you, I weigh 7 stone and have been bed ridden for 16 years now, so we are on the same page here, I just take1hr at a time my love, sleeping is my only pain free space, but now the pain is waking me up constantly.

If you can please let me know more about the mastectomy, I really need to hear what to expect from a fellow survivor, as the hospitals only give us the text book generic bla bla bla

I have advanced her2+ breast cancer which has spread to lymph nodes, so I would really love to talk to you on here or via email.

Keep strong, and sending big love

JJ Kane x

auntysue profile image
auntysue in reply toJaimeJo

Hi, thanks for your reply. Sorry to hear of your situation. The operation itself was fine, but its 3 weeks tomorrow and I have fluid growing where my breaststroke were, like hot water bottles. Very uncomfortable and a bit confusing 😕. Apparently this happens to alot but not all women after mastectomy. I was a bit hormonal, behaviour for the 1st week, but my moods have settled. I didn't have the lymph node done, but its safer for you, considering your situation. You will get through this, and remember it will help you. The op wasn't too painful, good luck, be strong.

Maud-ie profile image
Maud-ie

Bless you're poor battered self. You've been through so much. You're a hero. Gentle hugs.

KimiJay profile image
KimiJay

Dear auntysue, This is too much for anybody to cope with! Certainly would be for me. You have obviously been very brave about what you have been through so far and given that you sound very much alone, I would suggest calling your local Samaritans. They are absolutely not just for suicides. They give their time to be there at the end of a phone to help people and they have muscle and connections to get you more support than you are obviously getting. Above all, they can listen. Large gentle hug coming your way. xOx

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