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On treating micro-metastatic disease
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
John347
in
Advanced Prostate Cancer
8 months ago
Colon cancer after CLL diagnosis
Things were going so well. At 63 and while living in France for a work contract, my husband, who already has HF low EF (which I managed to improve recently to an EF of 43%) and who has always been in excellent shape with diet and physical exercise, was diagnosed with CLL in the spring of 2023 . We
Things were going so well. At 63 and while living in France for a work contract, my husband, who already has HF low EF (which I managed to improve recently to an EF of 43%) and who has always been in excellent shape with diet and physical exercise, was diagnosed with CLL in the spring of 2023 . We
Minou1
in
CLL Support
8 months ago
pet scan result ?? Meaning?
There is tracer uptake within both lobes of the thyroid, left significantly more than the right. The high-grade tracer uptake within the left lobe of thyroid corresponds to a 19 mm nodule. Physiological brown fat within bilateral neck, supraclavicular fossa and mediastinum. Physiological tracer uptake
There is tracer uptake within both lobes of the thyroid, left significantly more than the right. The high-grade tracer uptake within the left lobe of thyroid corresponds to a 19 mm nodule. Physiological brown fat within bilateral neck, supraclavicular fossa and mediastinum. Physiological tracer uptake
Jo-boo64
in
Thyroid UK
8 months ago
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Lymph node Metastasis
After 7 years, and multiple PSMA scans, my husband had a FDG CT scan and it showed what they quoted as “several” metastasis In the lymphs In the para aortic area in abdomen. One doc wants to biopsy to check if cancer DNA has changed from original pathology in 2017. Another doc says… No to biopsy due
After 7 years, and multiple PSMA scans, my husband had a FDG CT scan and it showed what they quoted as “several” metastasis In the lymphs In the para aortic area in abdomen. One doc wants to biopsy to check if cancer DNA has changed from original pathology in 2017. Another doc says… No to biopsy due
JolleySprings
in
Advanced Prostate Cancer
7 months ago
Should something be done with a “moderately high” ALP?
Good moring! I had my bloods drawn last week and both ALT and AST went back to normal. My GGT came down but not normal, and ALP stayed the same as three months ago at 177 It was previously 385. (here, the ULN is 122). I have been on Urso for nine months, but only on the optimal dose for four months
Good moring! I had my bloods drawn last week and both ALT and AST went back to normal. My GGT came down but not normal, and ALP stayed the same as three months ago at 177 It was previously 385. (here, the ULN is 122). I have been on Urso for nine months, but only on the optimal dose for four months
Gaspereaux
in
PBC Foundation
2 months ago
Bechets support pip
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Tibz
in
Behçet's UK
5 months ago
how did your GI/gut symptoms start?
Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and wondered if this was the beginning of SSC related gut problems and if there is anything I can do to prevent worse progression. I’ve found my
Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and wondered if this was the beginning of SSC related gut problems and if there is anything I can do to prevent worse progression. I’ve found my
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Mildly sprained ankle and tapering
Hello, I injured my ankle yesterday during a 3 mile walk where I was in a hurry and apparently walked too fast. It is somewhat painful to walk on but not excruciating. I am icing and elevating the ankle and am wearing compression garments (which I continuously wear except when in the shower due to
Hello, I injured my ankle yesterday during a 3 mile walk where I was in a hurry and apparently walked too fast. It is somewhat painful to walk on but not excruciating. I am icing and elevating the ankle and am wearing compression garments (which I continuously wear except when in the shower due to
Donna5658
in
PMRGCAuk
2 months ago
Promethazine and Hydroxyzine?
Do you know why the anti histamine promethazine is available over the counter (in UK) but the antihistamine hydroxyzine isn’t? Why is this? What is the difference between the two? Do you know? Thank you!
Do you know why the anti histamine promethazine is available over the counter (in UK) but the antihistamine hydroxyzine isn’t? Why is this? What is the difference between the two? Do you know? Thank you!
tnefeh
in
Anxiety and Depression Support
2 months ago
any other suggestions
I finally had some normalcy past few days. I finally got the help I needed. I’m taking 50mg of Zoloft and 1/2 15mg tablet of Matazipine at night. I left the house finally this weekend (with my boyfriend driving) and went to the outdoor mall and some other stores I even made it to brunch. I still had
I finally had some normalcy past few days. I finally got the help I needed. I’m taking 50mg of Zoloft and 1/2 15mg tablet of Matazipine at night. I left the house finally this weekend (with my boyfriend driving) and went to the outdoor mall and some other stores I even made it to brunch. I still had
Panicfree
in
Anxiety and Depression Support
2 months ago
Tuesday's Tip
[i]
For the most part physicians have given Urso up to a year to decide if you are a responder or not -- has the Urso decreased your numbers significantly in that time period.
[/i] [i]
According to Dr. Jones (world 's leading expert on PBC) the thinking may soon be that only a 6 month period
[i]
For the most part physicians have given Urso up to a year to decide if you are a responder or not -- has the Urso decreased your numbers significantly in that time period.
[/i] [i]
According to Dr. Jones (world 's leading expert on PBC) the thinking may soon be that only a 6 month period
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
high b12 high mch and mcv
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
nyx19
in
Pernicious Anaemia Society
5 months ago
vitamin D and magnesium deficiency from B12 loading doses
good day, I'm on my sixth month of loading methy B12 and learning so much on with every ones posts, I am trying to balance out my cofactors now that I've started to feel better along this journey. So with other factors I'm finding out I'm deficient in from all my gastritis from B12 deficiency for several
good day, I'm on my sixth month of loading methy B12 and learning so much on with every ones posts, I am trying to balance out my cofactors now that I've started to feel better along this journey. So with other factors I'm finding out I'm deficient in from all my gastritis from B12 deficiency for several
JesusMercy60
in
Pernicious Anaemia Society
5 months ago
Anxiety and confusion
hi, I have suffered anxiety my entire life. Last year, my anxiety got real high, and I awake early every morning, very anxious with racing thoughts, nausea, etc. My GP added Abilify to my Zoloft, and I started to feel better, but then I started awakening every couple hours with nightmares. Finally got
hi, I have suffered anxiety my entire life. Last year, my anxiety got real high, and I awake early every morning, very anxious with racing thoughts, nausea, etc. My GP added Abilify to my Zoloft, and I started to feel better, but then I started awakening every couple hours with nightmares. Finally got
Geodog
in
Anxiety and Depression Support
2 months ago
Pericardial Window
I had my 2cd thoracentesis. It was more painful and for a very long time. They did drain a little more 950 ml. I am waiting for a thoracic surgery appointment. We will discuss possible placement of a pleural catheter for drainage, possible pleurodesis. And something new: turns out a lot of the chest
I had my 2cd thoracentesis. It was more painful and for a very long time. They did drain a little more 950 ml. I am waiting for a thoracic surgery appointment. We will discuss possible placement of a pleural catheter for drainage, possible pleurodesis. And something new: turns out a lot of the chest
NPmary
in
SHARE Metastatic Breast Cancer
8 months ago
Info on Golexanolone
May 23, 2024MenuSECTIONS Golexanolone Phase 2 Trial for PBC Begins With First Patient Randomizations Avatar photoJuliana Campos, PhD | May 23, 2024 Umecrine Cognition has announced the randomization of the first 2 patients into the second part of its ongoing phase 1b/2 clinical study of golexanolone
May 23, 2024MenuSECTIONS Golexanolone Phase 2 Trial for PBC Begins With First Patient Randomizations Avatar photoJuliana Campos, PhD | May 23, 2024 Umecrine Cognition has announced the randomization of the first 2 patients into the second part of its ongoing phase 1b/2 clinical study of golexanolone
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Omg just received the prescription for peppermint capsules 🙈
Hi AGAIN everyone ❤️ This saga is beyond belief🤷♀️ just reading the leaflet accompanying the peppermint oil capsules. First there's a lot of 💩 fillers in it , as well as containing 0.2 ml of actual peppermint oil, it also contains the following. Gelatin, glycerol, purified water, titanium divide
Hi AGAIN everyone ❤️ This saga is beyond belief🤷♀️ just reading the leaflet accompanying the peppermint oil capsules. First there's a lot of 💩 fillers in it , as well as containing 0.2 ml of actual peppermint oil, it also contains the following. Gelatin, glycerol, purified water, titanium divide
birkie
in
Thyroid UK
2 months ago
perforated Gallbladder advice
Hey there. So i’ve only just realised that my records say I have a perforated Gallbladder. I didn't realise this and thought my Doctor said it hadn’t perforated. (I blame my ADHD) Anyway. Is it normal procedure to be on a 18 week waiting list surgery? I had read that Perforation is quite serious.
Hey there. So i’ve only just realised that my records say I have a perforated Gallbladder. I didn't realise this and thought my Doctor said it hadn’t perforated. (I blame my ADHD) Anyway. Is it normal procedure to be on a 18 week waiting list surgery? I had read that Perforation is quite serious.
Chewie1
in
British Liver Trust
2 months ago
64Cu-SAR-bisPSMA Is Safe and Highly Effective in Detecting Tumours in Prostate Cancer Patients: results from COBRA trial
This could mean being way more precise in finding micro metastasis and in guided surgery! https://www.urotoday.com/recent-abstracts/urologic-oncology/prostate-cancer/149903-initial-cobra-results-clarity-s-sar-bispsma-is-safe-and-highly-effective-in-detecting-tumours-in-prostate-cancer-patients-phase
This could mean being way more precise in finding micro metastasis and in guided surgery! https://www.urotoday.com/recent-abstracts/urologic-oncology/prostate-cancer/149903-initial-cobra-results-clarity-s-sar-bispsma-is-safe-and-highly-effective-in-detecting-tumours-in-prostate-cancer-patients-phase
Maxone73
in
Advanced Prostate Cancer
8 months ago
High volume, advanced metastatic prostate cancer
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
lgutman
in
Advanced Prostate Cancer
8 months ago
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