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Back after a long time
Hi everyone, I haven't posted in quite some time, but I'm back because I need input from all the wonderful people on this platform. More than five years ago, my mom had a fall and was put on hospice care. They gave up on us too quickly, and she ended up with an NG tube down her throat for months
Hi everyone, I haven't posted in quite some time, but I'm back because I need input from all the wonderful people on this platform. More than five years ago, my mom had a fall and was put on hospice care. They gave up on us too quickly, and she ended up with an NG tube down her throat for months
mymomhaspd
in
Cure Parkinson's
3 months ago
Tips for Circumcision
These are just some handy tips from what I have been through and I thought to share them as many have helped me and gave me advice. It’s a long read but hopefully it’s helpful. There can be a lot of uncertainty and impatience over the first 10 days or so but it’s really helpful to find someone to talk
These are just some handy tips from what I have been through and I thought to share them as many have helped me and gave me advice. It’s a long read but hopefully it’s helpful. There can be a lot of uncertainty and impatience over the first 10 days or so but it’s really helpful to find someone to talk
Barkincroup
in
Men's Health Forum (Penis Health)
3 months ago
Surprised!!!
I have been feeling bit cocky as I think I've been doing well.....decided to take the step method of tapering (Kate Gilbert book) Dr supporting me.....Now down to 8/7 mg of steroids 2 days for this week..... discomfort in right shoulder but nothing to complain about... Yesterday I was poleaxed could
I have been feeling bit cocky as I think I've been doing well.....decided to take the step method of tapering (Kate Gilbert book) Dr supporting me.....Now down to 8/7 mg of steroids 2 days for this week..... discomfort in right shoulder but nothing to complain about... Yesterday I was poleaxed could
Tescohednesford
in
PMRGCAuk
3 months ago
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LDH high
Looking back, my specialist tested my LDH at diagnosis and it was in fact elevated. He told me that it’s very common for MPN’s to cause elevated LDH levels and said with treatment we can correct them.. is that true? I was worried for a second about any organ or tissue damage, but he reassured and said
Looking back, my specialist tested my LDH at diagnosis and it was in fact elevated. He told me that it’s very common for MPN’s to cause elevated LDH levels and said with treatment we can correct them.. is that true? I was worried for a second about any organ or tissue damage, but he reassured and said
JAKboy
in
MPN Voice
1 year ago
zoledronic acid infusion
I had my second infusion of zoledronic acid on the 25th April and I must say it seems to be helping I am not getting as much back pain, I know that they don't know exactly when to stop it because it begins to make bones brittle after a time, and then it looks like prolia which seems dodgy,
I had my second infusion of zoledronic acid on the 25th April and I must say it seems to be helping I am not getting as much back pain, I know that they don't know exactly when to stop it because it begins to make bones brittle after a time, and then it looks like prolia which seems dodgy,
Radars
in
Bone Health and Osteoporosis UK
3 months ago
Hot flushes
Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes - mainly at night but yesterday evening had a horrible sweaty and ill feeling 30 mins. Very reminiscent of my early menopause days pre HRT. I have
Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes - mainly at night but yesterday evening had a horrible sweaty and ill feeling 30 mins. Very reminiscent of my early menopause days pre HRT. I have
NewPMR53
in
PMRGCAuk
3 months ago
Neuropathy fatty liver
Hi, I have fatty liver with minimal scarring. For last 6 years both my big toes have been numb from neuropathy. Recently I have started getting numbness in my thumbs and thighs. Has anyone else had such problems and what to do about it? My Dr prescribed 300mg gabapentin 2 times a day but doesn't really
Hi, I have fatty liver with minimal scarring. For last 6 years both my big toes have been numb from neuropathy. Recently I have started getting numbness in my thumbs and thighs. Has anyone else had such problems and what to do about it? My Dr prescribed 300mg gabapentin 2 times a day but doesn't really
glander2405
in
British Liver Trust
4 months ago
How is PMR diagnosed?
At the end of January after starting on a weekly alendronate, I began having stiffness in legs and shoulder / arm pain. I couldn't get up from an arm chair and sleeping was disrupted by pain and trips to the bathroom because I was taking various pain meds. My doctor thought it was arthritis but did
At the end of January after starting on a weekly alendronate, I began having stiffness in legs and shoulder / arm pain. I couldn't get up from an arm chair and sleeping was disrupted by pain and trips to the bathroom because I was taking various pain meds. My doctor thought it was arthritis but did
JubileePenny
in
PMRGCAuk
4 months ago
Blood Tests to show if Calcium is being absorbed into the bones and not elsewhere....
Does anyone know if there's blood test than can tell if the calcium supplements are in fact going to the right place ( the bones) and not being absorbed into the bloodstream, if so what's it called? I have been diagnosed, via the DEXA scan, with severe osteoporosis, but I don't understand the explanation
Does anyone know if there's blood test than can tell if the calcium supplements are in fact going to the right place ( the bones) and not being absorbed into the bloodstream, if so what's it called? I have been diagnosed, via the DEXA scan, with severe osteoporosis, but I don't understand the explanation
Cheerleader123
in
Bone Health and Osteoporosis UK
4 months ago
Estrogen for Bone Health in PCa patient.
I am under treatment for Prostrate Cancer since mid 2019. Gleason 9-10 when detected with 250 PSA. Pet CT showed all contained in prostrate but with one ECE and seminal vesicles involvement. No spread visible to lymph nodes or anywhere in the body. Treatment was conventional ADT using Firmagon for 4
I am under treatment for Prostrate Cancer since mid 2019. Gleason 9-10 when detected with 250 PSA. Pet CT showed all contained in prostrate but with one ECE and seminal vesicles involvement. No spread visible to lymph nodes or anywhere in the body. Treatment was conventional ADT using Firmagon for 4
binati
in
Advanced Prostate Cancer
4 months ago
Persistent UTI's, appears only with sexual activity without protection
History of urinary tract infection I have had this infection for 3 years, Escherichia coli always comes out in the urine culture, except for one time when Proteus came out. For treatment I have used ciprofloxacin, amikacin, nitrofurantoin, levofloxacin (but there was resistance to it), Amoxicillin
History of urinary tract infection I have had this infection for 3 years, Escherichia coli always comes out in the urine culture, except for one time when Proteus came out. For treatment I have used ciprofloxacin, amikacin, nitrofurantoin, levofloxacin (but there was resistance to it), Amoxicillin
tere126
in
Women's Health
4 months ago
Ursodeoxycholic acid (UDCA) and tauroursodeoxycholic acid (TUDCA)
The paper below is the most detailed and well referenced I have read regarding UDCA and TUDCA. Incredibly thorough. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10258966/#CR128
The paper below is the most detailed and well referenced I have read regarding UDCA and TUDCA. Incredibly thorough. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10258966/#CR128
JDRhope
in
Cure Parkinson's
4 months ago
Please share any experience of meds to try and prevent osteoporosis especially Zoledronic acid and Romosozumab
I've recently had spinal or vertebral compression fractures and am now talking to various health care professionals and researching my options to try and prevent further fractures in the future. Because the risk is so high given my age (young at 63 but post-menopause) and long-term steroids I may
I've recently had spinal or vertebral compression fractures and am now talking to various health care professionals and researching my options to try and prevent further fractures in the future. Because the risk is so high given my age (young at 63 but post-menopause) and long-term steroids I may
tangocharlie
in
PMRGCAuk
4 months ago
TSH increased but no medication change
Hi, My recent blood tests showed my TSH has increased from 1.12 to 2.4 and I haven’t changed anything. Is there a reason this would happen or does it just fluctuate? I have been eating a lot of cruciferous everyday. Would that have an impact? My FT4 has remained pretty constant.
Hi, My recent blood tests showed my TSH has increased from 1.12 to 2.4 and I haven’t changed anything. Is there a reason this would happen or does it just fluctuate? I have been eating a lot of cruciferous everyday. Would that have an impact? My FT4 has remained pretty constant.
Emj001
in
Thyroid UK
1 year ago
Alendronic Acid
Hi I have been getting heartburn after taking Alendronic Acid recently. Am on weekly dose. Have been taking for 3 months. My Dexa scan came back normal and the Rheumy says to stay on until Prednisolone stops which would be at least next March. I want to stop now as would rather risk fractures
Hi I have been getting heartburn after taking Alendronic Acid recently. Am on weekly dose. Have been taking for 3 months. My Dexa scan came back normal and the Rheumy says to stay on until Prednisolone stops which would be at least next March. I want to stop now as would rather risk fractures
Havanahula
in
PMRGCAuk
4 months ago
Nycii
Anyone have experience of Alendronic acid .? Good or bad please ?
Anyone have experience of Alendronic acid .? Good or bad please ?
Nyci
in
PMRGCAuk
4 months ago
Important from The PBC Foundation....
We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked on: more important than the surveys, more important than the helpline, more important than the name change. We are writing a letter which we
We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked on: more important than the surveys, more important than the helpline, more important than the name change. We are writing a letter which we
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Advice on P1NP test please....
I was diagnosed with osteoporosis of the spine 2 years ago and have (after lots of deliberation) agreed I should start taking alendronic acid. I also have hypothyroidism and when I saw my endocronologist (who happens to also be a osteoporosis specialist) he said I should get a P1NP marker test done before
I was diagnosed with osteoporosis of the spine 2 years ago and have (after lots of deliberation) agreed I should start taking alendronic acid. I also have hypothyroidism and when I saw my endocronologist (who happens to also be a osteoporosis specialist) he said I should get a P1NP marker test done before
Zadock
in
Bone Health and Osteoporosis UK
4 months ago
kyphosis
I was diagnosed with OP about 10 years ago due to an early menopause at 38 and was put on the weekly medication of Alendronic Acid along with calcichew. Everything was ok until 2021 when I had emergency abdominal surgery, I was in ICU for nine days and my family were told I only had a 30% chance of
I was diagnosed with OP about 10 years ago due to an early menopause at 38 and was put on the weekly medication of Alendronic Acid along with calcichew. Everything was ok until 2021 when I had emergency abdominal surgery, I was in ICU for nine days and my family were told I only had a 30% chance of
Kimm4
in
Bone Health and Osteoporosis UK
4 months ago
When PMR Goes Away
When first diagnosed with PMR and feeling like I was never going to be myself again, some friends, acquaintances and even a couple medical professionals assured me the diagnosis was the best of the myalgia’s to have to deal with because it is the one that actually goes away. If you do some research,
When first diagnosed with PMR and feeling like I was never going to be myself again, some friends, acquaintances and even a couple medical professionals assured me the diagnosis was the best of the myalgia’s to have to deal with because it is the one that actually goes away. If you do some research,
fondofforest
in
PMRGCAuk
4 months ago
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