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Hi, this is my story
I broke my foot following a fall off a high kerb in August 2021 and should have been referred for a DEXA scan by the minor injuries unit who treated this, but wasn't until I asked my GP for one, following a tip off from a friend who knew that that is NHS guidance. Following the DEXA scan and recommendation
I broke my foot following a fall off a high kerb in August 2021 and should have been referred for a DEXA scan by the minor injuries unit who treated this, but wasn't until I asked my GP for one, following a tip off from a friend who knew that that is NHS guidance. Following the DEXA scan and recommendation
GadgetBuster
in
Bone Health and Osteoporosis UK
2 months ago
Alendronic acid
Do you really need to keep taking those tablets when your managing to reduce your pred successfully? I must admit I don't tend to forget sometimes. Has anyone stopped taking them?
Do you really need to keep taking those tablets when your managing to reduce your pred successfully? I must admit I don't tend to forget sometimes. Has anyone stopped taking them?
Caulkhead63
in
PMRGCAuk
2 months ago
Calcium/vit d tabs
Alongside alendronic acid, I have been prescribed calcium tabs. I started them, but every time I take 1, I'm getting awful constipation, tried halving and separating dose, same problem. Do I really need to take these?? I am now taking more calcium in diet than I was before. I'm happy to take my vit
Alongside alendronic acid, I have been prescribed calcium tabs. I started them, but every time I take 1, I'm getting awful constipation, tried halving and separating dose, same problem. Do I really need to take these?? I am now taking more calcium in diet than I was before. I'm happy to take my vit
Sleeplessinlife
in
Bone Health and Osteoporosis UK
3 months ago
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Please Take Note.....
from the PBC Foundation · If you missed it in your inbox we have important videos for you: Short version https://youtu.be/VE95QEAdo2I Long long https://youtu.be/XkeQX0Q2vQo The latest news article for Obeticholic Acid in Europe has also been updated on the website https://www.pbcfoundation.org.uk
from the PBC Foundation · If you missed it in your inbox we have important videos for you: Short version https://youtu.be/VE95QEAdo2I Long long https://youtu.be/XkeQX0Q2vQo The latest news article for Obeticholic Acid in Europe has also been updated on the website https://www.pbcfoundation.org.uk
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Unrelated to Parkinson's
Prior to 1980 about the only relativly common form of thiamin was thiamin hcl and then most vitamins and enritched food products changed to thiamin mononitrate. While thiamin HCL is a wonderful form of thiamin for 99.99 % of the population for some reason I can't take it. When I take thiamin HCL in
Prior to 1980 about the only relativly common form of thiamin was thiamin hcl and then most vitamins and enritched food products changed to thiamin mononitrate. While thiamin HCL is a wonderful form of thiamin for 99.99 % of the population for some reason I can't take it. When I take thiamin HCL in
Woodyx2
in
Cure Parkinson's
1 year ago
Posted on The PBC Foundation FB page
Prof David Jones talks us through the current situation around the future of obeticholic acid (OCA) in Europe and what this means. Ckick here for the video: https://ow.ly/enRi50SzrF6 Read the news article on our website: https://ow.ly/PYh150SzrF7 Please add your voice by signing the petition here:
Prof David Jones talks us through the current situation around the future of obeticholic acid (OCA) in Europe and what this means. Ckick here for the video: https://ow.ly/enRi50SzrF6 Read the news article on our website: https://ow.ly/PYh150SzrF7 Please add your voice by signing the petition here:
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Alendronic acid for oa ?
Having had a dexa scan, my doctor wants me to take Alendrolic acid, once a week 75 mg. Having read the leaflet, it says not to take steroids whilst using? I have at least 4 lung infections every year and prednisolone has to be taken with antibiotics and dies help a lot. I am concerned that I can’t
Having had a dexa scan, my doctor wants me to take Alendrolic acid, once a week 75 mg. Having read the leaflet, it says not to take steroids whilst using? I have at least 4 lung infections every year and prednisolone has to be taken with antibiotics and dies help a lot. I am concerned that I can’t
Shalz
in
Lung Conditions Community Forum
3 months ago
Advice needed
Hi, my wife has endometriosis and I am wondering just how exactly I can convince a Dr about the level of pain she is in? Her journey started with very heavy and long periods on average between 10-20 days of very heavy bleeding, then she would have 3-5 days without and then again 10-20 days bleeding
Hi, my wife has endometriosis and I am wondering just how exactly I can convince a Dr about the level of pain she is in? Her journey started with very heavy and long periods on average between 10-20 days of very heavy bleeding, then she would have 3-5 days without and then again 10-20 days bleeding
bohica666
in
Endometriosis UK
3 months ago
Erasing Bad Memories Boosts Long-Term Parkinson's Care
Erasing Bad Memories Boosts Long-Term Parkinson's Care 9 July 2024
https://www.miragenews.com/erasing-bad-memories-boosts-long-term-1271295/ University of Alabama at Birmingham BIRMINGHAM, Ala. — Common treatments for Parkinson's disease can address short-term symptoms but can also cause extensive
Erasing Bad Memories Boosts Long-Term Parkinson's Care 9 July 2024
https://www.miragenews.com/erasing-bad-memories-boosts-long-term-1271295/ University of Alabama at Birmingham BIRMINGHAM, Ala. — Common treatments for Parkinson's disease can address short-term symptoms but can also cause extensive
Bolt_Upright
in
Cure Parkinson's
3 months ago
creatine monohydrate
I have been reading a lot of posts regarding creatine and if it's safe to take it,I have locally advanced prostate cancer psa 0.04 my testosterone has never recovered since finishing treatment rt/ht 2016,and my testosterone has never recovered and now I have osteoporosis, I have had 2 infusions of zoledronic
I have been reading a lot of posts regarding creatine and if it's safe to take it,I have locally advanced prostate cancer psa 0.04 my testosterone has never recovered since finishing treatment rt/ht 2016,and my testosterone has never recovered and now I have osteoporosis, I have had 2 infusions of zoledronic
Radars
in
Bone Health and Osteoporosis UK
3 months ago
tramadol
I was on tramadol for at least 10 years----100 mg. then my doc took me off because a neurologist put me on Clonazepam for REM/SBD (rapid eye movement sleep behavior disorder.) But I was also getting cervical and lumbar rhizotomies...and still do every 12-14 months or so. I am now working with the VA
I was on tramadol for at least 10 years----100 mg. then my doc took me off because a neurologist put me on Clonazepam for REM/SBD (rapid eye movement sleep behavior disorder.) But I was also getting cervical and lumbar rhizotomies...and still do every 12-14 months or so. I am now working with the VA
Shadowperson
in
Pain Concern
1 year ago
Please share experience or advice re Risedronic acid and zoledronic acid use for low T score/ osteoporosis in GCA/PMR.
I have recently had a follow up Dexa scan. The last one was 2 years ago. I have GCA and PMR. At 20 mg pred and reducing after a recent flare of GCA. The scan has shown a significant deterioration in my lumbar spine but not in my hips/femur region which are still osteopenic. L1-L4 5/6/2024. BMD
I have recently had a follow up Dexa scan. The last one was 2 years ago. I have GCA and PMR. At 20 mg pred and reducing after a recent flare of GCA. The scan has shown a significant deterioration in my lumbar spine but not in my hips/femur region which are still osteopenic. L1-L4 5/6/2024. BMD
Golfers1
in
PMRGCAuk
3 months ago
Difficulty in getting bone scan results
Hi there I had a bone scan in October last year and after months of chasing finally got a call from my GP surgery on 7 June to inform me they had my results, that I have osteoporosis and need to go on alendronic acid. I have been checking my NHS app for the actual results but they've not been added
Hi there I had a bone scan in October last year and after months of chasing finally got a call from my GP surgery on 7 June to inform me they had my results, that I have osteoporosis and need to go on alendronic acid. I have been checking my NHS app for the actual results but they've not been added
Lottieandlola
in
PMRGCAuk
3 months ago
Immonocompromised CLLer with numerous warts.
I've had CLL (chronic lymphocytic leukemia) for at least 15 years, currently on oral therapy (acalabrutinib) to control my leukemia. One annoying problem that has worsened in the past year is an increase of warts. I've had warts for over 10 years, but they have not been as numerous or cosmetically
I've had CLL (chronic lymphocytic leukemia) for at least 15 years, currently on oral therapy (acalabrutinib) to control my leukemia. One annoying problem that has worsened in the past year is an increase of warts. I've had warts for over 10 years, but they have not been as numerous or cosmetically
Bluesinthenight
in
MY SKIN
3 months ago
The latest news ( part 3 )
Dearest friends, You really do lift our spirits when you write such caring replies. Thank you from the bottom of our hearts! Dear Sunseaandsand, Fruitandnutcase & WELLNESS1, We were informed on Tuesday via the hospital portal that there was a new reply waiting for us to read. The day before we had
Dearest friends, You really do lift our spirits when you write such caring replies. Thank you from the bottom of our hearts! Dear Sunseaandsand, Fruitandnutcase & WELLNESS1, We were informed on Tuesday via the hospital portal that there was a new reply waiting for us to read. The day before we had
Angelicspirit
in
Bone Health and Osteoporosis UK
3 months ago
PBC Foundation Update regarding Ocaliva
Obeticholic Acid in Europe 29/6/2024 We are issuing this guidance in response to the announcement made by the European Medicines Agency (EMA) on 28th June 2024 about the future of obeticholic acid (OCA or Ocaliva) in Europe. We understand that this announcement may cause concern, especially amongst
Obeticholic Acid in Europe 29/6/2024 We are issuing this guidance in response to the announcement made by the European Medicines Agency (EMA) on 28th June 2024 about the future of obeticholic acid (OCA or Ocaliva) in Europe. We understand that this announcement may cause concern, especially amongst
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Just posted re alendronic acid
Sorry, forgot to add I am 80.
Sorry, forgot to add I am 80.
borednow
in
PMRGCAuk
3 months ago
Alendronic acid
New GP has recommended Alendronic acid following Dexa scan which shows problems with lower back. She said to ask Dentist for his opinion - he says OK as far as they're concerned although I couldn't have extractions if on AA (not planning on having any anyway)! One tablet per week for ever presumably
New GP has recommended Alendronic acid following Dexa scan which shows problems with lower back. She said to ask Dentist for his opinion - he says OK as far as they're concerned although I couldn't have extractions if on AA (not planning on having any anyway)! One tablet per week for ever presumably
borednow
in
PMRGCAuk
3 months ago
The latest news (part 2)
Dear Friends, I cannot believe that I’m writing this but after so many setbacks we have shared with you, Margaret’s lack of treatment is continuing and as each day passes we have no alternative other than to believe her care for severe osteoporosis has also stopped. Firstly however, an apology from
Dear Friends, I cannot believe that I’m writing this but after so many setbacks we have shared with you, Margaret’s lack of treatment is continuing and as each day passes we have no alternative other than to believe her care for severe osteoporosis has also stopped. Firstly however, an apology from
Angelicspirit
in
Bone Health and Osteoporosis UK
3 months ago
please can anyone help with how to manage the excruciating pain with endo?
I'm currently prescribed mefenamic acid (250mg tabs) and cocodamol (30/500mg tabs) but the gp said there is nothing else. They barely touch the sides and I'm in complete agony. Does anyone have any ideas/help that they could please offer me? I have a heat pad constantly attached to my tummy but even
I'm currently prescribed mefenamic acid (250mg tabs) and cocodamol (30/500mg tabs) but the gp said there is nothing else. They barely touch the sides and I'm in complete agony. Does anyone have any ideas/help that they could please offer me? I have a heat pad constantly attached to my tummy but even
AFC007
in
Endometriosis UK
3 months ago
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