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INVOLVEMENT OPPORTUNITY – CENTRAL LONDON (Hepatitis B)
[u]
Share your experiences to help researchers improve care for hepatitis B in the UK
[/u]
Do you live with hepatitis B and want to make the way it is diagnosed, monitored, and treated in the UK better for patients?
The British Liver Trust are working with researchers and clinicians to
[u]
Share your experiences to help researchers improve care for hepatitis B in the UK
[/u]
Do you live with hepatitis B and want to make the way it is diagnosed, monitored, and treated in the UK better for patients?
The British Liver Trust are working with researchers and clinicians to
BritishLiverTrust1
Partner
in
British Liver Trust
9 months ago
b12 purchase
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Maximus2222
in
Pernicious Anaemia Society
9 months ago
Anxiety or hormones?
I've been feeling light headed and off balance since being diagnosed hypothyroid years ago, could be meds side effects or the gland itself. I'm also post menopausal so low oestrogen. Allergies bung up the eustachian tunes cause imbalance. All of these can cause disequilibrium leading to anxiety. I had
I've been feeling light headed and off balance since being diagnosed hypothyroid years ago, could be meds side effects or the gland itself. I'm also post menopausal so low oestrogen. Allergies bung up the eustachian tunes cause imbalance. All of these can cause disequilibrium leading to anxiety. I had
celticlady
in
Anxiety Support
7 months ago
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obrilant bronchiolitis
hello all...my son was diagnosed he have obrilant bronchiolitis...he is in early position....only hard breathing when he runs around but without any oxygen...what can i expect from this?how long he can live with his own lungs?how fast this dissease progresive?
hello all...my son was diagnosed he have obrilant bronchiolitis...he is in early position....only hard breathing when he runs around but without any oxygen...what can i expect from this?how long he can live with his own lungs?how fast this dissease progresive?
care20
in
Lung Conditions Community Forum
2 months ago
Fatigue..again...Moderna jab?
Hello everyone. Reduced to 2.75, working slowly towards 2.5. Back from lovely break in Ireland tracing my roots. Had Moderna jab, aching arm and headache, then, coincidentally, full flu, nose like a tap, cough etc. Altho some neighbours had flu and not the jab. Cold symptoms finally going after 2 weeks
Hello everyone. Reduced to 2.75, working slowly towards 2.5. Back from lovely break in Ireland tracing my roots. Had Moderna jab, aching arm and headache, then, coincidentally, full flu, nose like a tap, cough etc. Altho some neighbours had flu and not the jab. Cold symptoms finally going after 2 weeks
Temoral
in
PMRGCAuk
2 months ago
Small Airways Disease
I had an infection the end of Jan (still not sure what it was - maybe RSV). Didn’t really start like a cold but airways closed up & excessive mucus. Mucus tested & nothing so no antibiotics. Things slowly got worse, although I was continuing to exercise to clear my chest of mucus (my primary issues is
I had an infection the end of Jan (still not sure what it was - maybe RSV). Didn’t really start like a cold but airways closed up & excessive mucus. Mucus tested & nothing so no antibiotics. Things slowly got worse, although I was continuing to exercise to clear my chest of mucus (my primary issues is
PW_R
in
Lung Conditions Community Forum
2 months ago
Cold virus
I’ve had PMR for two years now and on 8mg pred attempting my second tapering cycle. I’ve have a really heavy cold now for over a week which started as a mild cold for two weeks before that. I’m wondering if my immune system is reducing my ability to get on top of this and allowing it to prevail much
I’ve had PMR for two years now and on 8mg pred attempting my second tapering cycle. I’ve have a really heavy cold now for over a week which started as a mild cold for two weeks before that. I’m wondering if my immune system is reducing my ability to get on top of this and allowing it to prevail much
Mervetheswerve
in
PMRGCAuk
6 months ago
Mum grew her angel wings
hi all, I just wanted to write a post on here as I sadly lost my mum last week after a 7 year battle with PSP. Although it was pneumonia that took her in the end. I just wanted to write on here to say, give your loved ones suffering an extra big hug this Christmas and remember to be their loved one
hi all, I just wanted to write a post on here as I sadly lost my mum last week after a 7 year battle with PSP. Although it was pneumonia that took her in the end. I just wanted to write on here to say, give your loved ones suffering an extra big hug this Christmas and remember to be their loved one
Janice52
in
PSP Association
6 months ago
Always cold.
Hi suffer from OB since 14 have stayed stable for couple years but just wondered if its normal to be so cold all the time and my skin is so transparent and pale always has a blueish tint to it .
Hi suffer from OB since 14 have stayed stable for couple years but just wondered if its normal to be so cold all the time and my skin is so transparent and pale always has a blueish tint to it .
Cornflake123
in
Lung Conditions Community Forum
2 months ago
Finally got an endocrinology appointment
Hi there everyone!In early January this year I caught COVID and was really rough with it even though I have had all my jabs, come February I was still feeling rough, tired, always cold, brain fog... The list goes on. I went to the GP and explained my symptoms but didn't say I'd had COVID (expecting
Hi there everyone!In early January this year I caught COVID and was really rough with it even though I have had all my jabs, come February I was still feeling rough, tired, always cold, brain fog... The list goes on. I went to the GP and explained my symptoms but didn't say I'd had COVID (expecting
unlucky-angler
in
Thyroid UK
7 months ago
Covid and Blood Tests
Hello lovely people. I wasn't given the jab this year and I've recently had a pretty bad dose of Covid (four days of fever at 102, oxygen sats down to 92% at one point) and my heart rate went crazy and I had one episode of SVT briefly the first time I got out of bed after the fever. Only one, mind
Hello lovely people. I wasn't given the jab this year and I've recently had a pretty bad dose of Covid (four days of fever at 102, oxygen sats down to 92% at one point) and my heart rate went crazy and I had one episode of SVT briefly the first time I got out of bed after the fever. Only one, mind
SilverSavvy
in
Thyroid UK
7 months ago
Cough
So, since having a virus causing a sinus cold at the start of Easter holidays, I have had a flare up which has gradually gotten worse since. I think, symptoms-wise I might have stabilized. Anyhow, I have realized that since about halfway through April I started with a light cough and it has increased
So, since having a virus causing a sinus cold at the start of Easter holidays, I have had a flare up which has gradually gotten worse since. I think, symptoms-wise I might have stabilized. Anyhow, I have realized that since about halfway through April I started with a light cough and it has increased
Obsdian
in
Thyroid UK
2 months ago
Nodular Melanoma
‼ The most common sites for nodular melanoma to present are on sun-exposed areas such as the head and neck, also often found on the trunk in men and legs in women - but it can appear in other areas of the body. They grow fast, downward and become quickly invasive (within months) so early detection is
‼ The most common sites for nodular melanoma to present are on sun-exposed areas such as the head and neck, also often found on the trunk in men and legs in women - but it can appear in other areas of the body. They grow fast, downward and become quickly invasive (within months) so early detection is
SkcinHQ
Partner
in
Skin Cancer UK
1 year ago
Cough, chest pressure, GCA
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
Moaningxcat
in
PMRGCAuk
2 months ago
Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
2 months ago
Methotrexate and a head cold
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
pattypatchwork
in
LUPUS UK
2 months ago
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 Data is starting to roll in on Covid-19 vaccine inequities this fall
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
lankisterguy
Volunteer
in
CLL Support
7 months ago
Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
2 months ago
what to do - advice please
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
Billiebobdog
in
PMRGCAuk
7 months ago
*MCAS
We are currently in the middle of an important fundraising campaign to kickstart the production of a documentary. We are contacting businesses and individuals who share our passion for helping people with MCAS. Your donation, no matter how big or small, can make a meaningful impact and will be put to
We are currently in the middle of an important fundraising campaign to kickstart the production of a documentary. We are contacting businesses and individuals who share our passion for helping people with MCAS. Your donation, no matter how big or small, can make a meaningful impact and will be put to
Shewulf
Administrator
in
LDN Research Trust
1 year ago
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