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Maybe not PMR update 5 years on
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Pawscat11
in
PMRGCAuk
3 months ago
Massive leap in heart rate following Covid vaccination - a coincidence?
I'm 80, diagnosed with persistent AF in 2020, and have lived carefully and happily with few symptoms. The excellent Bristol Heart Institute has organised two echos, an MRI and an angiogram showing, to my satisfaction, acceptable results. My heart rate is always low ranging from 30 to 55 beats per
I'm 80, diagnosed with persistent AF in 2020, and have lived carefully and happily with few symptoms. The excellent Bristol Heart Institute has organised two echos, an MRI and an angiogram showing, to my satisfaction, acceptable results. My heart rate is always low ranging from 30 to 55 beats per
vbonariensis
in
Atrial Fibrillation Support
3 months ago
trauma after icu stay
hi in2020 I was rushed to kings hospital London with septic shock due to ulcers on my liver. I was in an induced coma for a week and in hospital for 5 weeks. During the last 3 months I have been having really bad nightmares about being in a coma, specifically that my doctor is trying to kill me (i really
hi in2020 I was rushed to kings hospital London with septic shock due to ulcers on my liver. I was in an induced coma for a week and in hospital for 5 weeks. During the last 3 months I have been having really bad nightmares about being in a coma, specifically that my doctor is trying to kill me (i really
ZoeH1974
in
ICUsteps
6 months ago
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Follow up to initial appt
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
hazelcats
in
NRAS
3 months ago
Pain Relief
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
How to interpret thyroid antibodies test ?
Hello , I do an annual private blood test with monitor my health and haven’t tested the antibodies for 4 years . I’ve been feeling really awful again , very achey and tired so want to check this aswell as after having 2 covid jabs and a booster in this time . Can anyone tell me how to interpret the
Hello , I do an annual private blood test with monitor my health and haven’t tested the antibodies for 4 years . I’ve been feeling really awful again , very achey and tired so want to check this aswell as after having 2 covid jabs and a booster in this time . Can anyone tell me how to interpret the
Blackpanther46
in
Thyroid UK
3 months ago
COVID time again
Hubby got COVID jab on Saturday and on Sunday in bed and that's strange for him ,he's a big guy 6ft 2in and a good healthy build, sister also got her COVID and she was in bed as well, nurse told hubby it was stronger this time, puts me off a little with having PMR andGCA don't want to flare, any of
Hubby got COVID jab on Saturday and on Sunday in bed and that's strange for him ,he's a big guy 6ft 2in and a good healthy build, sister also got her COVID and she was in bed as well, nurse told hubby it was stronger this time, puts me off a little with having PMR andGCA don't want to flare, any of
Harrywogan
in
PMRGCAuk
3 months ago
Is it back? 🙈
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Croft9232
in
PMRGCAuk
3 months ago
Pain and stiffness in hand after covid booster
I was diagnosed back in 2020. Took a few months but the methotrexate kicked in and I greatly improved. Yet now I am getting pain and stiffness in one hand. I had the covid booster the other week and it made me feel rotten for days after. I do wonder if there is a link. Has anyone else experienced this
I was diagnosed back in 2020. Took a few months but the methotrexate kicked in and I greatly improved. Yet now I am getting pain and stiffness in one hand. I had the covid booster the other week and it made me feel rotten for days after. I do wonder if there is a link. Has anyone else experienced this
Fenella34
in
NRAS
3 months ago
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV?
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV? Answered by Sebastian Denison, RPh https://youtu.be/ifWvF7Yz52Y
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV? Answered by Sebastian Denison, RPh https://youtu.be/ifWvF7Yz52Y
Shewulf
Administrator
in
LDN Research Trust
6 months ago
Angina and arthritis pain.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
graemeparsons
in
British Heart Foundation
3 months ago
Severe pain in Hips
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Shamrockgirl
in
NRAS
3 months ago
Covid and PSP
My husband who has PSP has Covid now (for the first time). He is in our community hospital for IV fluids and antibiotics. They said Covid medication is arriving today. Recently he has had bad reactions to new medications tried and I’m concerned about these. Have any PSP people had medication for Covid
My husband who has PSP has Covid now (for the first time). He is in our community hospital for IV fluids and antibiotics. They said Covid medication is arriving today. Recently he has had bad reactions to new medications tried and I’m concerned about these. Have any PSP people had medication for Covid
Rose1sunflower
in
PSP Association
3 months ago
vita health group physio? & Simponi question
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Km27
in
NRAS
3 months ago
IBS/Covid/Stress - Help!
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
MidnightReader
in
IBS Network
3 months ago
Covid spring booster
Wanted to thank all of you who replied to my earlier post about the covid spring booster,much appreciated and after a lot of thought about pros and cons , I paid for the phizer vaccine (obviously I would rather have not) so fingers crossed. I have had some technical difficulty in replying before.still
Wanted to thank all of you who replied to my earlier post about the covid spring booster,much appreciated and after a lot of thought about pros and cons , I paid for the phizer vaccine (obviously I would rather have not) so fingers crossed. I have had some technical difficulty in replying before.still
caroline_284
in
MPN Voice
3 months ago
Covid vax?
I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want to comment?
I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want to comment?
Oshmar
in
PMRGCAuk
3 months ago
Update on Covid/AF
Hi all, Last week I reported that despite my daily dose of medication (60mg x 2 Diltiazem) I was consistently going in and out of AF due to COVID. I increased my Diltiazem by 60mg as (PIP) to try and eliminate/reduce the episodes. However, I found despite helping, this was exacerbating my AF - episodes
Hi all, Last week I reported that despite my daily dose of medication (60mg x 2 Diltiazem) I was consistently going in and out of AF due to COVID. I increased my Diltiazem by 60mg as (PIP) to try and eliminate/reduce the episodes. However, I found despite helping, this was exacerbating my AF - episodes
Fight-the-good-fight
in
Atrial Fibrillation Support
3 months ago
pneumonia vaccination
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
Collie4
in
Lung Conditions Community Forum
6 months ago
COVID vaccine May 2024
I had my latest covid vaccine on Saturday and it’s now Monday and my side effects as usual are horrible. Vomiting, thumping headache, stomach pain. The lymph node on the side of my neck is swollen much more than normal. I wondered is it just me?
I had my latest covid vaccine on Saturday and it’s now Monday and my side effects as usual are horrible. Vomiting, thumping headache, stomach pain. The lymph node on the side of my neck is swollen much more than normal. I wondered is it just me?
Braveheart19
in
CLL Support
3 months ago
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