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Question, each month with rising PSA, when do I do a pet scan
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Carbo/Caelyx and CA 125
Hi Ladies, My mom has been treated for her first recurrence with the Carbo/Caelyx combo since September 2023 and she so far has finished 4 rounds. Her CA 125 went down from 258 to 18 after the third round and the CT scan showed the cancer in her peritoneum shrank significantly. After the 4th round
Hi Ladies, My mom has been treated for her first recurrence with the Carbo/Caelyx combo since September 2023 and she so far has finished 4 rounds. Her CA 125 went down from 258 to 18 after the third round and the CT scan showed the cancer in her peritoneum shrank significantly. After the 4th round
Centaur17
in
My Ovacome
6 months ago
Consider the options?
Post total hysterectomy, etc., one cycle of carboplatin (couldn't tolerate paclitaxel) and now on Avastin i/v and Olaparib. CA 9, which is fantastic. Side effects are just destroying me. I am 80, the Olaparib goes through to mid June 2026 and the Avastin finishes at the end of this year. Oncologist
Post total hysterectomy, etc., one cycle of carboplatin (couldn't tolerate paclitaxel) and now on Avastin i/v and Olaparib. CA 9, which is fantastic. Side effects are just destroying me. I am 80, the Olaparib goes through to mid June 2026 and the Avastin finishes at the end of this year. Oncologist
Pawpaw22
in
My Ovacome
23 days ago
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slight CEA Elevation
hi everyone- my father has MBC and is currently on Lynparza / Olaparib to target the BRCA2 gene mutation. He has been on it for 9 months and had a scan that showed complete control over his breast cancer on May 21st (not too long ago at all). The only thing that “lit up” on the scan was his Prostate
hi everyone- my father has MBC and is currently on Lynparza / Olaparib to target the BRCA2 gene mutation. He has been on it for 9 months and had a scan that showed complete control over his breast cancer on May 21st (not too long ago at all). The only thing that “lit up” on the scan was his Prostate
Jenniferp2122
in
SHARE Metastatic Breast Cancer
23 days ago
Be careful: Pluvicto controversy, dammit!
not saying that it does not work, in fact for some patients it is simply fantastic, but still...they have damaged their reputation with patients https://www.nature.com/articles/s44276-024-00065-7 The PSMAfore and VISION trials for Lutetium-177 PSMA-617 in prostate cancer exhibit design flaws that bias
not saying that it does not work, in fact for some patients it is simply fantastic, but still...they have damaged their reputation with patients https://www.nature.com/articles/s44276-024-00065-7 The PSMAfore and VISION trials for Lutetium-177 PSMA-617 in prostate cancer exhibit design flaws that bias
Maxone73
in
Advanced Prostate Cancer
23 days ago
thinning hair and skin problem with IBS
I have had IBS(D) for more than 40 years which has gradually got worse over the years , more pain all over my abdomen radiating under right and left ribs ! I have had cat scans ,colonoscopies and blood tests over the years all normal ; I notice in the last few years my hair is getting thinner and
I have had IBS(D) for more than 40 years which has gradually got worse over the years , more pain all over my abdomen radiating under right and left ribs ! I have had cat scans ,colonoscopies and blood tests over the years all normal ; I notice in the last few years my hair is getting thinner and
Mascot68
in
IBS Network
23 days ago
Advise for a new diagnosis
Dear community, I wanted to post a message to this forum to ask for advice for my mum who has recently been diagnosed with metastatic breast cancer. Her biopsy is still being tested to determine the exact subtype. Doctors could not see anything un the breast and took a biopsy was taken from one of
Dear community, I wanted to post a message to this forum to ask for advice for my mum who has recently been diagnosed with metastatic breast cancer. Her biopsy is still being tested to determine the exact subtype. Doctors could not see anything un the breast and took a biopsy was taken from one of
Blossom751
in
SHARE Metastatic Breast Cancer
24 days ago
The party is over …
Hi Everyone, Well, that dripping tap must have got me, finally!! No symptoms but a routine Rheumy appt preceded by the usual blood tests revealed that my CRP is over 100 😱 and my ESR is 80 something. But I feel no pain, except for the usual little niggles that I thought came with being nearly 70.
Hi Everyone, Well, that dripping tap must have got me, finally!! No symptoms but a routine Rheumy appt preceded by the usual blood tests revealed that my CRP is over 100 😱 and my ESR is 80 something. But I feel no pain, except for the usual little niggles that I thought came with being nearly 70.
LemonZest11
in
PMRGCAuk
24 days ago
MRI report shows enhancing bone lesion is noted involving the left sphenoid bone.
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
Gl448
in
Advanced Prostate Cancer
24 days ago
Stop Ibrance?
My HB and Platelets have been bad for a while. Mainly because I haven' eaten anything. I am now eating again and feel much better (I had other reasons), but she has ordered me back for new blood tests and wants me to change to Xeloda. I want a chance to get my appetite back up and eating normally before
My HB and Platelets have been bad for a while. Mainly because I haven' eaten anything. I am now eating again and feel much better (I had other reasons), but she has ordered me back for new blood tests and wants me to change to Xeloda. I want a chance to get my appetite back up and eating normally before
SwedishSissi
in
SHARE Metastatic Breast Cancer
25 days ago
upcoming PET scan
so, here’s where we are… My Joe has been experiencing increasing pain in his left hip and thigh. Today he said the thigh is numb. PET scan scheduled this coming Tuesday. He thinks it’s a hairline fracture. Is it wrong of me to hope he’s right, vs his cancer having landed there? He’s 4 months post-Pluvicto
so, here’s where we are… My Joe has been experiencing increasing pain in his left hip and thigh. Today he said the thigh is numb. PET scan scheduled this coming Tuesday. He thinks it’s a hairline fracture. Is it wrong of me to hope he’s right, vs his cancer having landed there? He’s 4 months post-Pluvicto
Cateydid
in
Advanced Prostate Cancer
25 days ago
High risk vs. aggressive cancer
I understand the definition of high-risk prostate cancer (Gleason, PSA and/or spread), but that doesn't necessarily seem to be the same thing as aggressive cancer. How can aggressiveness be determined for high risk, localized cancer? Thanks for any insight and information.
I understand the definition of high-risk prostate cancer (Gleason, PSA and/or spread), but that doesn't necessarily seem to be the same thing as aggressive cancer. How can aggressiveness be determined for high risk, localized cancer? Thanks for any insight and information.
RugbyVLS
in
Advanced Prostate Cancer
5 months ago
ASCO 2023: AI-Derived Digital Pathology Biomarker Predicts Benefit of Long-Term ADT with Radiotherapy in Localized High-Risk Prostate Cancer
https://www.urotoday.com/conference-highlights/asco-2023/asco-2023-prostate-cancer/144902-asco-2023-development-and-validation-of-an-ai-derived-digital-pathology-based-biomarker-to-predict-benefit-of-long-term-androgen-deprivation-therapy-with-radiotherapy-in-men-with-localized-high-risk-prostate-cancer-across-multiple-phase-iii-nrg-rtog-trials.html
https://www.urotoday.com/conference-highlights/asco-2023/asco-2023-prostate-cancer/144902-asco-2023-development-and-validation-of-an-ai-derived-digital-pathology-based-biomarker-to-predict-benefit-of-long-term-androgen-deprivation-therapy-with-radiotherapy-in-men-with-localized-high-risk-prostate-cancer-across-multiple-phase-iii-nrg-rtog-trials.html
zeitgeistxx
in
Advanced Prostate Cancer
6 months ago
Thoughts
Two weeks ago I was diagnosed with non small cell lung cancer. I have an appointment with md Anderson in 4 weeks which seems like eternity. I ended up at md Anderson emergency room due to some blood clots. They ran a ct with contrast & this is what report says Bilateral segmental/subsegmental pulmonary
Two weeks ago I was diagnosed with non small cell lung cancer. I have an appointment with md Anderson in 4 weeks which seems like eternity. I ended up at md Anderson emergency room due to some blood clots. They ran a ct with contrast & this is what report says Bilateral segmental/subsegmental pulmonary
Bahan
in
Lung Cancer Support
25 days ago
Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
alipali
in
CLL Support
5 months ago
sweet sugar taste after 3rd docetaxel infusion
anyone ever have a really sweet sugary taste after docetaxel. after the first 2 my taste went back to normal after about 7 days but the only problem i had was with spicy foods. after my 3rd round i have a super sweet sugary taste all the time for 16 days now. i have a hard time eating because almost
anyone ever have a really sweet sugary taste after docetaxel. after the first 2 my taste went back to normal after about 7 days but the only problem i had was with spicy foods. after my 3rd round i have a super sweet sugary taste all the time for 16 days now. i have a hard time eating because almost
casperrose
in
Advanced Prostate Cancer
25 days ago
Minor psa increase again
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Runner1957
in
Prostate Cancer Network
26 days ago
Ready, Set, GO!! LOL
Hi all of my beautiful warrior friends!!! I would like to know what you all have had as far as treatment. I am really most interested in people like me, who have had NO mutations. I am ER+, HER2 LOW I am about to start on Enhertu, but my doctor is hedging to the possibility that I am running out
Hi all of my beautiful warrior friends!!! I would like to know what you all have had as far as treatment. I am really most interested in people like me, who have had NO mutations. I am ER+, HER2 LOW I am about to start on Enhertu, but my doctor is hedging to the possibility that I am running out
CTGirl1962
in
SHARE Metastatic Breast Cancer
26 days ago
Enhertu
Good morning. Has anyone taken Enhertu for breast cancer? What are your pros/cons? Little back story: dx stage 4 metastatic breast cancer, ER/PR +, HERS2 -, but I am considered HERS2 low w/ a count of 1, in April 2022, I was 44 at the time. Left breast, lymph node in left armpit, multiple spots in my
Good morning. Has anyone taken Enhertu for breast cancer? What are your pros/cons? Little back story: dx stage 4 metastatic breast cancer, ER/PR +, HERS2 -, but I am considered HERS2 low w/ a count of 1, in April 2022, I was 44 at the time. Left breast, lymph node in left armpit, multiple spots in my
Felicia1228
in
SHARE Metastatic Breast Cancer
26 days ago
MRI scan results
I have had back issues for many years but in March this flare up seemed different. I finally went private for a consultation which quickly lead to an MRI scan last week. The consultant called me within 5 days, this set off alarm bells as usually takes 2 weeks plus, to say I have a growth which he would
I have had back issues for many years but in March this flare up seemed different. I finally went private for a consultation which quickly lead to an MRI scan last week. The consultant called me within 5 days, this set off alarm bells as usually takes 2 weeks plus, to say I have a growth which he would
NickyRobinson
in
MPN Voice
26 days ago
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