Search
Search
About
Log in
Join
Experiences with
Skin cancer
Posts
Communities
31,371 public posts
Filter results
Feeling fed up
Hi, just been told I'm to start chemo again in coupleoif weeks so gutted and fed up. Caelyx this time as carbo taxol didnt last 6 months. How was it? I've always had carboplatin/ packlitaxol up till now Coming up to 4years since I joined the OC club. Had chemo / radical op/ chemo/ olaparib/ more chemo
Hi, just been told I'm to start chemo again in coupleoif weeks so gutted and fed up. Caelyx this time as carbo taxol didnt last 6 months. How was it? I've always had carboplatin/ packlitaxol up till now Coming up to 4years since I joined the OC club. Had chemo / radical op/ chemo/ olaparib/ more chemo
Casamimosa
in
My Ovacome
3 months ago
What's different between Xtandi vs NUBEQA® (darolutamide) vs ERLEADA® (apalutamide)
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
NEPC RESEARCH
Any research done on NEPC (neuroendocrine prostate cancer) ie ademo that morphs into a neuroendocrine carcinoma?
Any research done on NEPC (neuroendocrine prostate cancer) ie ademo that morphs into a neuroendocrine carcinoma?
safari123
in
Advanced Prostate Cancer
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
stage 4 prostrate cancer
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
bubbacora
in
Advanced Prostate Cancer
3 months ago
Update for kestrel5
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Kestrel5
in
Advanced Prostate Cancer
3 months ago
Pluvicto still working well
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Miccoman
in
Advanced Prostate Cancer
3 months ago
Humorous/informative videos on prostate cancer
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
Caldonia
in
Advanced Prostate Cancer
3 months ago
terrified of oc
during a routine gynae appt I was found to have a fallopian tube complex mass with septations and solid components inside. I am 36 and we were trying to conceive. Now they think I have cancer and need surgery to remove everything. I am terrified
during a routine gynae appt I was found to have a fallopian tube complex mass with septations and solid components inside. I am 36 and we were trying to conceive. Now they think I have cancer and need surgery to remove everything. I am terrified
Vivibeatris
in
My Ovacome
3 months ago
Rising PSA
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
JolleySprings
in
Advanced Prostate Cancer
3 months ago
I'm new here
Hi I'm new here. I am a couple of days out from skin graft surgery to treat chemical burns to the right side of my face. I have complex mental health problems which I have struggled to gain support with over the years and I'm anxious about reaching out to others as my injury was self-inflicted and I
Hi I'm new here. I am a couple of days out from skin graft surgery to treat chemical burns to the right side of my face. I have complex mental health problems which I have struggled to gain support with over the years and I'm anxious about reaching out to others as my injury was self-inflicted and I
Twirlygirlskates
in
Changing Faces
1 year ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
3 months ago
ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
3 months ago
considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
3 months ago
Battling two cancers on two fronts, simultaneously
Has anyone fought PCa and NEPc simultaneously? I have had PCa-classic since 2011. After lupron/lusinipril for years, I began Casodex . Bad reaction, switched to Zytiga. That affected my liver enzymes, so on to Xtandi. It worked well. So, this last August a lump was found under my jaw at the lymph node
Has anyone fought PCa and NEPc simultaneously? I have had PCa-classic since 2011. After lupron/lusinipril for years, I began Casodex . Bad reaction, switched to Zytiga. That affected my liver enzymes, so on to Xtandi. It worked well. So, this last August a lump was found under my jaw at the lymph node
CharlieBC
in
Advanced Prostate Cancer
3 months ago
Early Breast Cancer - Radiation Treatment
I'm about to embark on a 4 week radiation therapy after my lumpectomy. I'm not looking forward to it. I have a weak heart and ultra sensitive skin. The more I read about its long term side effects, the more hesitant I become. Any advice for me? Has anyone skipped radiation treatment?
I'm about to embark on a 4 week radiation therapy after my lumpectomy. I'm not looking forward to it. I have a weak heart and ultra sensitive skin. The more I read about its long term side effects, the more hesitant I become. Any advice for me? Has anyone skipped radiation treatment?
jawsbar75
in
SHARE Breast Cancer Support
3 months ago
Lead Prostate Cancer Candidate Bria-Pros+, Initiates GMP Manufacturing
I do not like headers like "Ground-breaking" or "Practice changing" but hopefully they will keep their promise in this case... "We are enthusiastic about commencing GMP manufacturing for our prostate cancer clinical candidate, continuing our efforts at transforming targeted cancer therapy via the introduction
I do not like headers like "Ground-breaking" or "Practice changing" but hopefully they will keep their promise in this case... "We are enthusiastic about commencing GMP manufacturing for our prostate cancer clinical candidate, continuing our efforts at transforming targeted cancer therapy via the introduction
Maxone73
in
Advanced Prostate Cancer
3 months ago
Suspect colorectal cancer
I am 47 . At the age of 40 I went for colonoscopy which came fine. In 2021 I started having soft wedged poop .the Dr said I must take high fibre food. The wages poop still continues on and off. Sometimes I am constipated and had to pass that soft stools which come out wedged like. I am scared and see
I am 47 . At the age of 40 I went for colonoscopy which came fine. In 2021 I started having soft wedged poop .the Dr said I must take high fibre food. The wages poop still continues on and off. Sometimes I am constipated and had to pass that soft stools which come out wedged like. I am scared and see
Beautybee
in
Colon Cancer Connected
3 months ago
Is a false-positive biopsy possible?
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
CBRD
in
Advanced Prostate Cancer
3 months ago
Should I sell and retire with PSA at 0.1 following 9 months undetectable?
Diagnosed early 2022, Gleason 4+4. Metastasis to multiple sites on the pelvis, no other detectable spread. Triplet therapy with ongoing goserelin and abiraterone with prednisone. Abiraterone is once per day with a low fat meal. Following nine months of undetectable PSA results, I recently received
Diagnosed early 2022, Gleason 4+4. Metastasis to multiple sites on the pelvis, no other detectable spread. Triplet therapy with ongoing goserelin and abiraterone with prednisone. Abiraterone is once per day with a low fat meal. Following nine months of undetectable PSA results, I recently received
LakeT
in
Advanced Prostate Cancer
3 months ago
Docetaxel for mCRPC
My dad 81 was diagnosed in Aug 23 with PC Gleason 8/9 with local spread. He was on Lupron immediately and underwent TURP and orchiectomy in Nov and 10 rounds of radiation. A PET scan in Dec revealed further spread and the doctor started him on abiraterone. The diagnosis was also updated to hormone resistance
My dad 81 was diagnosed in Aug 23 with PC Gleason 8/9 with local spread. He was on Lupron immediately and underwent TURP and orchiectomy in Nov and 10 rounds of radiation. A PET scan in Dec revealed further spread and the doctor started him on abiraterone. The diagnosis was also updated to hormone resistance
Fuck_Cancer
in
Advanced Prostate Cancer
3 months ago
1
...
29
30
31
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
11913 results
My Ovacome
3514 results
SHARE Metastatic Breast Cancer
2153 results
View top 10 communities
Sort by
Most Relevant
Newest