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Oxbryta Receives FDA Approval for Treating Sickle Cell Disease
On Monday, the U.S. Food and Drug Administration (FDA) announced accelerated approval of Oxbryta (voxelotor) for the treatment of sickle cell disease in patients aged 12 and above. “Oxbryta is the first approved treatment for sickle cell disease that directly inhibits the root cause of the disease,
On Monday, the U.S. Food and Drug Administration (FDA) announced accelerated approval of Oxbryta (voxelotor) for the treatment of sickle cell disease in patients aged 12 and above. “Oxbryta is the first approved treatment for sickle cell disease that directly inhibits the root cause of the disease,
RobertReny
in
Sickle Cell Society
5 years ago
Dietary Restrictions to Prolong the Life of a Kidney Transplant
It has been found that if patients substitute soya or some vegetable source for the animal proteins they normally eat and severely restrict the amount of salt they normally consume they can significantly slow the decline of renal transplants. From personal experience I can say that such a diet really
It has been found that if patients substitute soya or some vegetable source for the animal proteins they normally eat and severely restrict the amount of salt they normally consume they can significantly slow the decline of renal transplants. From personal experience I can say that such a diet really
Falkenhayn
in
Kidney Transplant Patient Support
5 years ago
DIL vs SLE - Anti Histone Antibody
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
katidid
in
LUPUS UK
5 years ago
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Newest Test Lab result shows increase of eGFR
Hi everyone, I have done the lab after 3 months of first diagnosed as CKD stage 2 and just received both good news and bad news on it. Good news: eGFR increased from 82 to 97.5 and Albuminuria is no more occurring. Bad news: My HbA1c is 6.4%, which is showing that I am severely at the threshold between
Hi everyone, I have done the lab after 3 months of first diagnosed as CKD stage 2 and just received both good news and bad news on it. Good news: eGFR increased from 82 to 97.5 and Albuminuria is no more occurring. Bad news: My HbA1c is 6.4%, which is showing that I am severely at the threshold between
spiritvan
in
Early CKD Support
5 years ago
Hashimoto’s now Ana positive
Hello I have had Hashimoto’s since I was 16, and never had a positive Ana, I’m now 39 with positive ana of 1:40 and homogeneous pattern has anyone seen this happen with thyroid disease only?
Hello I have had Hashimoto’s since I was 16, and never had a positive Ana, I’m now 39 with positive ana of 1:40 and homogeneous pattern has anyone seen this happen with thyroid disease only?
Litha
in
Thyroid UK
5 years ago
Post transplant tacrolimus doses
Just curious - husband had liver transplant 2014 and came home on 8mg which was reduced to 5mg and has since been taking the same amount of Advagraf - so 5 years later he is still on 5mg 🤔🤔🤔 his last bloods said it was below target range (4-10 I think) 🤷♀️ - has anyone else experienced this ????
Just curious - husband had liver transplant 2014 and came home on 8mg which was reduced to 5mg and has since been taking the same amount of Advagraf - so 5 years later he is still on 5mg 🤔🤔🤔 his last bloods said it was below target range (4-10 I think) 🤷♀️ - has anyone else experienced this ????
cherrygirl13
in
British Liver Trust
5 years ago
Buprenorphine update 😴😴🤸🏼♀️💃🧘🏻♂️🙏😄
Absolutely the best RSL drug . My husband is shocked he told the good doctor he has never ever known me be still in bed . He said even on oxycodene and stillnox I was fidgety . So what difference do I notice I feel NORMAL I actually don’t feel like I take medication I can take wafer medication
Absolutely the best RSL drug . My husband is shocked he told the good doctor he has never ever known me be still in bed . He said even on oxycodene and stillnox I was fidgety . So what difference do I notice I feel NORMAL I actually don’t feel like I take medication I can take wafer medication
Shumbah
in
Restless Legs Syndrome
5 years ago
Need expert fertility information & face-face support from others trying to conceive?
Join the fertility group meeting on Thursday 7th November in Swansea. A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques
Join the fertility group meeting on Thursday 7th November in Swansea. A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques
AliceMatthews
in
Thyroid UK
5 years ago
Molybdenum
Hi, I was recently diagnosed as extremely deficient in B12, extremely high MMA and homecysteine. (highest MMA he has on record) The bio-chemist I am working with (lifelong research with B12 and B vitamins in general) insists that I need to get Molybdenum on board before effectively supplementing with
Hi, I was recently diagnosed as extremely deficient in B12, extremely high MMA and homecysteine. (highest MMA he has on record) The bio-chemist I am working with (lifelong research with B12 and B vitamins in general) insists that I need to get Molybdenum on board before effectively supplementing with
EiCa
in
Pernicious Anaemia Society
5 years ago
New Blog from Dr Bronstein re alzeimers medications
He states "I do not claim to know the cure for Alzheimer’s disease, but I do know that Aricept and other Alzheimer’s medications should not be used". https://www.drbrownstein.com/22871-2/?inf_contact_key=d0e96b85cfad51c5d850b7483f1888a7d18a532c4142cb79caf2b269de1401fa
He states "I do not claim to know the cure for Alzheimer’s disease, but I do know that Aricept and other Alzheimer’s medications should not be used". https://www.drbrownstein.com/22871-2/?inf_contact_key=d0e96b85cfad51c5d850b7483f1888a7d18a532c4142cb79caf2b269de1401fa
shaws
Administrator
in
Thyroid UK
5 years ago
Slight bad news
Hi just over 5 months since liver transplant and had call from consultant after clinic visit on Tuesday. I need a liver scan so I presume when bloods taken not good. Hopefully it can be sopted. I have just come off mycophenolate tablets and have been put on prednisolone again. See what happens. I supposed
Hi just over 5 months since liver transplant and had call from consultant after clinic visit on Tuesday. I need a liver scan so I presume when bloods taken not good. Hopefully it can be sopted. I have just come off mycophenolate tablets and have been put on prednisolone again. See what happens. I supposed
Steak
in
British Liver Trust
5 years ago
2 months post kidney transplant
Hello everyone! I am a new member here and was really happy to found this group. I am 27 years old and of my kidneys failed due to HSP (Henoch Schonlein Purpura) April of last year. I was on hemodialysis for a over year and I am super blessed to received a call from my Transplant Center back in July
Hello everyone! I am a new member here and was really happy to found this group. I am 27 years old and of my kidneys failed due to HSP (Henoch Schonlein Purpura) April of last year. I was on hemodialysis for a over year and I am super blessed to received a call from my Transplant Center back in July
Trouper
in
Kidney Transplant Patient Support
5 years ago
Adoport
New to group. Have had liver transplant 6 years ago due to hep c through contaminated blood transfusion. Prograf used for immune suppressant but now been told I’ve to change to Adoport to save money. Cannot find any real info on adoport which is new product offered. I got hep c because government wanted
New to group. Have had liver transplant 6 years ago due to hep c through contaminated blood transfusion. Prograf used for immune suppressant but now been told I’ve to change to Adoport to save money. Cannot find any real info on adoport which is new product offered. I got hep c because government wanted
Tourguide
in
British Liver Trust
5 years ago
Kidney transplant
My husband’s GFR was 15 on his last blood test. The doctor is saying he should go on a transplant list. I heard that the immune suppressant drugs after the surgery are brutal. Those of you who’ve had transplants, (or knew someone who has) what was your/their experience? Thank you in advance ❤️
My husband’s GFR was 15 on his last blood test. The doctor is saying he should go on a transplant list. I heard that the immune suppressant drugs after the surgery are brutal. Those of you who’ve had transplants, (or knew someone who has) what was your/their experience? Thank you in advance ❤️
Christina1960
in
Vasculitis UK
5 years ago
High creatinine normal bun
Hi there I have iga nephropathy. I got diagnosed with this last year with 1.8 creatinine. Now latest tests showed Bun 17mg and creatinine 3mg/dl.has anyone got any experience as I have heard that if creatinine is high bun is also high. Any comments please.
Hi there I have iga nephropathy. I got diagnosed with this last year with 1.8 creatinine. Now latest tests showed Bun 17mg and creatinine 3mg/dl.has anyone got any experience as I have heard that if creatinine is high bun is also high. Any comments please.
Umerpk
in
Early CKD Support
5 years ago
GRAVES AND THYROTOXICOSIS : URINARY TRACT, ENDOCRINE SYSTEM
Graves’ Disease and the Manifestations of Thyrotoxicosis DeGroot LJ. https://www.ncbi.nlm.nih.gov/books/NBK285567/ URINARY TRACT Polyuria and occasionally glycosuria are seen in uncomplicated thyrotoxicosis. Standard clinical renal function tests give normal results. Glycosuria may reflect accelerated
Graves’ Disease and the Manifestations of Thyrotoxicosis DeGroot LJ. https://www.ncbi.nlm.nih.gov/books/NBK285567/ URINARY TRACT Polyuria and occasionally glycosuria are seen in uncomplicated thyrotoxicosis. Standard clinical renal function tests give normal results. Glycosuria may reflect accelerated
ling
in
Thyroid UK
5 years ago
Keto acid supplementation?
Does anyone use keto acid supplementation along with a low protein diet to help preserve kidney function and prevent further decline in eGFR? I have read anecdotal reports from people who were able to stabilize and even increase their eGFR and other kidney function values by using this protocol. I am
Does anyone use keto acid supplementation along with a low protein diet to help preserve kidney function and prevent further decline in eGFR? I have read anecdotal reports from people who were able to stabilize and even increase their eGFR and other kidney function values by using this protocol. I am
HisLittleOne
in
Early CKD Support
5 years ago
Stage 5 Kidney Disease
Can you sleep well while on peritoneal dialysis, or does it keep you up at night. Is it painful? Patricia Diesso
Can you sleep well while on peritoneal dialysis, or does it keep you up at night. Is it painful? Patricia Diesso
huskiesarenumberone
in
Early CKD Support
5 years ago
Dialysis Nurses Trying to give unsolicited medical advice
At my dialysis center I currently use a permacath due to my graft that I've had for 6 years stopped working. Tried having it declotted. But, they don't last forever. The Charge Nurse keeps hounding me about a new access. I've had 2 PD pumps before both after the graph. The first one placed on the left
At my dialysis center I currently use a permacath due to my graft that I've had for 6 years stopped working. Tried having it declotted. But, they don't last forever. The Charge Nurse keeps hounding me about a new access. I've had 2 PD pumps before both after the graph. The first one placed on the left
ReedNovember
in
Kidney Dialysis
5 years ago
CKF 3 Plant based diet
My Creatinine level is 1.72. My GFR currently is 43. ( has been below 60 for the last 5 years and primary care doctor never mentioned any concern until I emailed about the consistently high creatinine levels, referred to nephrologist who put me on complete plant based diet along with no sodium, no processed
My Creatinine level is 1.72. My GFR currently is 43. ( has been below 60 for the last 5 years and primary care doctor never mentioned any concern until I emailed about the consistently high creatinine levels, referred to nephrologist who put me on complete plant based diet along with no sodium, no processed
nsm5813
in
Early CKD Support
5 years ago
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