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Sickle-cell anaemia
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Question about Celiac or NCGS...
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
Suffering_sunny
in
Gluten Free Guerrillas
3 months ago
Monitoring when starting Folic Acid and Ferrous fumerate
Hi guys, my Folate wa only midly low, been prescribed Folic Acid and GP just said I can make an appointment in a couple of months "if I want to" Reading on the NICE website, I see it says the following What monitoring is required after treatment for vitamin B12 or folate deficiency has started? Perform
Hi guys, my Folate wa only midly low, been prescribed Folic Acid and GP just said I can make an appointment in a couple of months "if I want to" Reading on the NICE website, I see it says the following What monitoring is required after treatment for vitamin B12 or folate deficiency has started? Perform
yewotc23
in
Thyroid UK
3 months ago
Why is iron over-range yet TIBC shows a need ro take more please?
I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results like the following have come up,on more than one occasion. Iron 24.19 (6,6,-22) Tibc 115.49 (41-77) Transferrin saturation 20.95% (20-55) Kind
I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results like the following have come up,on more than one occasion. Iron 24.19 (6,6,-22) Tibc 115.49 (41-77) Transferrin saturation 20.95% (20-55) Kind
Jo5454
in
Pernicious Anaemia Society
3 months ago
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Some more results
I’ve had these results and all have back in range but wondered what people’s thoughts were as some were on the lower side. Thank you! Serum vitamin B12: 426 ng/L Normal range: 187 to 883 Serum folate: 5.2 ug/L Normal range: 3.1 to 20.5 Serum ferritin: 42 ng/mL Normal range: 20 to 235
I’ve had these results and all have back in range but wondered what people’s thoughts were as some were on the lower side. Thank you! Serum vitamin B12: 426 ng/L Normal range: 187 to 883 Serum folate: 5.2 ug/L Normal range: 3.1 to 20.5 Serum ferritin: 42 ng/mL Normal range: 20 to 235
Lollipop93
in
Thyroid UK
4 months ago
Three Arrows Iron Repair has arrived! :-)
Last iron results from 1 month ago were: Iron 10.9 umol/L (Range: 10 - 30) TIBC 56.5 umol/L (Range: 45 - 81) UIBC 45.6 umol/L (Range: 13 - 56) Transferrin Saturation X 19.3 % (Range: 25 - 45) Ferritin X 14.90 ug/L (Range: 30 - 207) I have only been taking Spatone drinks since then as iron supplement
Last iron results from 1 month ago were: Iron 10.9 umol/L (Range: 10 - 30) TIBC 56.5 umol/L (Range: 45 - 81) UIBC 45.6 umol/L (Range: 13 - 56) Transferrin Saturation X 19.3 % (Range: 25 - 45) Ferritin X 14.90 ug/L (Range: 30 - 207) I have only been taking Spatone drinks since then as iron supplement
jenny876
in
Thyroid UK
4 months ago
Vit B12 sublingual
I've just changed to the igennus b12 sublingual as I get on very well with their super-b complex. reading the label I notice it contains methylcobalamin, adenosylcobalamin and hydroxocobalamin, the previous b12 supp I used didn't have hydroxocobalamin - what is it?
I've just changed to the igennus b12 sublingual as I get on very well with their super-b complex. reading the label I notice it contains methylcobalamin, adenosylcobalamin and hydroxocobalamin, the previous b12 supp I used didn't have hydroxocobalamin - what is it?
Jamima
in
Thyroid UK
4 months ago
low serum iron. Normal ferritin
been getting very tired lately. ET (MPL) on pegysus 45ug every 2 weeks. Mentioned fatigue to haematologist and he suggested reducing peg further to 3 weekly. Got the above results after we got home. Also raised CRP but I do have a cold . raised neutrophils and wbc. Haem thought this was good as mounting
been getting very tired lately. ET (MPL) on pegysus 45ug every 2 weeks. Mentioned fatigue to haematologist and he suggested reducing peg further to 3 weekly. Got the above results after we got home. Also raised CRP but I do have a cold . raised neutrophils and wbc. Haem thought this was good as mounting
Sprat19
in
MPN Voice
4 months ago
Hi all
I was PA negative and celiac negative in November 2023 but was having problems with B12 and folate Deficiency ( I am also Hypothyroid). My B12 serum was 226 ( >178ng/L) Folate 6 (>2.9ug/L So new (March 2024) N.I.C.E guidlines says indeterminate test result- possible B12 deficiency! I have a phonecall
I was PA negative and celiac negative in November 2023 but was having problems with B12 and folate Deficiency ( I am also Hypothyroid). My B12 serum was 226 ( >178ng/L) Folate 6 (>2.9ug/L So new (March 2024) N.I.C.E guidlines says indeterminate test result- possible B12 deficiency! I have a phonecall
Doris11
in
Pernicious Anaemia Society
4 months ago
Do I need to increase folic acid/folate intake with B12 shots?
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
JazzSoprano
in
Pernicious Anaemia Society
4 months ago
Folate timing
Good morning, I’m taking folate as we’re trying for a baby and I’ve read this is better than folic acid. My question is do I need to take it at a different time to levothyroxine? I take it 30 mins to an hour after, but I’m not sure if it’s like iron and should be several hours apart. Many thanks for
Good morning, I’m taking folate as we’re trying for a baby and I’ve read this is better than folic acid. My question is do I need to take it at a different time to levothyroxine? I take it 30 mins to an hour after, but I’m not sure if it’s like iron and should be several hours apart. Many thanks for
mountaingoat83
in
Thyroid UK
4 months ago
Would like some suggestions for a B complex product with low dose B12 and folate please
Homocysteine Nutrients
https://www.seekinghealth.com/products/homocysteine-nutrients I really like the sound of this product but I’m concerned about the B vitamins that are missing, namely B3 and B1. It also doesn’t have inositol, choline or biotin, although I don’t know how important they
Homocysteine Nutrients
https://www.seekinghealth.com/products/homocysteine-nutrients I really like the sound of this product but I’m concerned about the B vitamins that are missing, namely B3 and B1. It also doesn’t have inositol, choline or biotin, although I don’t know how important they
Noelnoel
in
Thyroid UK
4 months ago
virtual appointment
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
0range5520
in
British Liver Trust
4 months ago
Folate supplements with B12 injections
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
La2016
in
Pernicious Anaemia Society
4 months ago
Mum's ,bloodtest results
Recieved my Mum's, blood test results today, 7 sheets of, a4 printout , totally out of my league, on a investigation /normality /result format..In normality only ones picked out are serum ferritin level(xe24r)- above range, commented.. Serum creatinelevel(xe2q5)-above range. Monocyte count ,observation
Recieved my Mum's, blood test results today, 7 sheets of, a4 printout , totally out of my league, on a investigation /normality /result format..In normality only ones picked out are serum ferritin level(xe24r)- above range, commented.. Serum creatinelevel(xe2q5)-above range. Monocyte count ,observation
Gazdad
in
Thyroid UK
4 months ago
methylcobalamin
Can anyone tell me if it's possible to get a private prescription for methylcobalamin, given it's not available on the NHS? I am allergic to hydroxocobalamin, so have injectible cyanocobalamin 3-weekly, but it's not available at present and unlikely to be for at least a few months. It's almost 7 weeks
Can anyone tell me if it's possible to get a private prescription for methylcobalamin, given it's not available on the NHS? I am allergic to hydroxocobalamin, so have injectible cyanocobalamin 3-weekly, but it's not available at present and unlikely to be for at least a few months. It's almost 7 weeks
ren41
in
Pernicious Anaemia Society
4 months ago
Iron test results - 6 weeks pregnant
Hello again My last iron test results suggested I was oversupplementing, so I reduced it to 1 Thorne Iron, alternate days. I have since found out I'm pregnant, but not sure that it makes any difference to what I'm doing...guess it will just need monitoring as we go, as iron is one of the things that
Hello again My last iron test results suggested I was oversupplementing, so I reduced it to 1 Thorne Iron, alternate days. I have since found out I'm pregnant, but not sure that it makes any difference to what I'm doing...guess it will just need monitoring as we go, as iron is one of the things that
Molly161018
in
Thyroid UK
4 months ago
12 Day Trial
1.5mg methylcobalamin, 1.5mg adenosylcobalamin, 1mg hydroxocobalamin. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. Results of this trial are positive. Much closer to knowing what is most effective
1.5mg methylcobalamin, 1.5mg adenosylcobalamin, 1mg hydroxocobalamin. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. Results of this trial are positive. Much closer to knowing what is most effective
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Megaloblastic anaemia
Hi, I was diagnosed with megaloblastic anaemia yesterday. My gp, sent over a prescription for Cyanocobalamin 1mg/1ml solution for injection ampoules. My pharmacy and other pharmacies don't stock it. I left a note for my doctor with the receptionist to ask for possibly a different brand or type. I'm new
Hi, I was diagnosed with megaloblastic anaemia yesterday. My gp, sent over a prescription for Cyanocobalamin 1mg/1ml solution for injection ampoules. My pharmacy and other pharmacies don't stock it. I left a note for my doctor with the receptionist to ask for possibly a different brand or type. I'm new
fatfatfat
in
Pernicious Anaemia Society
4 months ago
help interpreting last test results
Hello Ive written here in the past with my issues on Thyroid-S and have decided to stick it out and go slow. I was wondering if I can get your thoughts on my last results: Im on 1.75 grains of ndt for 5 weeks and premenopausal. I did not have my period for 6 months (since August) I beleive due to low
Hello Ive written here in the past with my issues on Thyroid-S and have decided to stick it out and go slow. I was wondering if I can get your thoughts on my last results: Im on 1.75 grains of ndt for 5 weeks and premenopausal. I did not have my period for 6 months (since August) I beleive due to low
MiaMam
in
Thyroid UK
4 months ago
Scoliosis Surgery at 75
I finally went through the Scoliosis Surgery that I had scheduled and canceled a couple of times. I had been on Buprenorphine for over a year and was RLS free. The minute I woke up from my surgery, that ugly monster showed up again. This time I could not even move, much less walk. It started very
I finally went through the Scoliosis Surgery that I had scheduled and canceled a couple of times. I had been on Buprenorphine for over a year and was RLS free. The minute I woke up from my surgery, that ugly monster showed up again. This time I could not even move, much less walk. It started very
Josana13
in
Restless Legs Syndrome
4 months ago
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