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Sickle-cell anaemia
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Thyroid and Folate deficiency
I've been on Levothyroxine for many years (100mg). After contracting Covid last year and being unable to match previous physical performances, I was diagnosed with a folate deficiency. I was told this was common post Covid, was prescribed folic acid tablets and saw an immediate improvement. I was told
I've been on Levothyroxine for many years (100mg). After contracting Covid last year and being unable to match previous physical performances, I was diagnosed with a folate deficiency. I was told this was common post Covid, was prescribed folic acid tablets and saw an immediate improvement. I was told
rob1958
in
Thyroid UK
1 year ago
Will NHS GP accept results of Medichecks IFAB test if positive?
Thinking of testing privately for PA as have not managed to persuade my GP that declining B12 levels are a possible cause of increased fatigue, nerve pain and other symptoms. Latest test showed B12 at 212 range (211 - 911). I have Hashimotos and have corrected folate deficiency on prescription for
Thinking of testing privately for PA as have not managed to persuade my GP that declining B12 levels are a possible cause of increased fatigue, nerve pain and other symptoms. Latest test showed B12 at 212 range (211 - 911). I have Hashimotos and have corrected folate deficiency on prescription for
Realtiger
in
Pernicious Anaemia Society
1 year ago
New pernicious anaemia diagnosis
Hi, I am a 20 year old female who has recently been diagnosed with pernicious anaemia (around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels. Since having my initial loading doses, some of my symptoms have improved whilst
Hi, I am a 20 year old female who has recently been diagnosed with pernicious anaemia (around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels. Since having my initial loading doses, some of my symptoms have improved whilst
Ellamae2
in
Pernicious Anaemia Society
1 year ago
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MMA results - supplements or further test?
Can I ask for your advice please? I have Hashmito’s. Since learning that this can influence the absorption of nutrients, I have been to the doctor’s to request tests. Last B12 test: 229 ng/l (190-910) I used B12 symptoms checklist which suggests severe deficiency. Neither of this seemed to worry
Can I ask for your advice please? I have Hashmito’s. Since learning that this can influence the absorption of nutrients, I have been to the doctor’s to request tests. Last B12 test: 229 ng/l (190-910) I used B12 symptoms checklist which suggests severe deficiency. Neither of this seemed to worry
Dandelions
in
Pernicious Anaemia Society
1 year ago
Iron Levels
Hi, Just a quick question if anyone is able to answer. I had some blood tests done a few weeks back at my GP Practice, thought everything was fine as didn't hear back with the results but was called this morning out of the blue. I have been advised that my iron levels are high and he may need to refer
Hi, Just a quick question if anyone is able to answer. I had some blood tests done a few weeks back at my GP Practice, thought everything was fine as didn't hear back with the results but was called this morning out of the blue. I have been advised that my iron levels are high and he may need to refer
Lynzyc
in
MPN Voice
1 year ago
Ferritin
A blood test last Friday shows low ferritin. I eat loads of iron rich foods and self inject on top of my 8 weekly gp injections. Symptoms have increased recently with very easy bruising and bleeding after injections and blood test as well as pins and needles, fatigue....all the usual symptoms.Does anyone
A blood test last Friday shows low ferritin. I eat loads of iron rich foods and self inject on top of my 8 weekly gp injections. Symptoms have increased recently with very easy bruising and bleeding after injections and blood test as well as pins and needles, fatigue....all the usual symptoms.Does anyone
Hidden
in
Pernicious Anaemia Society
1 year ago
B12 Injections/B12 Drops ?
I have had a number of neurogical symptoms for over a year so my GP agreed to my having EOD B12 injections for two weeks - my main improvements were instant, I was waking earlier 7am - (against 9am or later) and able to watch television without falling asleep in the evening - he then agreed to my having
I have had a number of neurogical symptoms for over a year so my GP agreed to my having EOD B12 injections for two weeks - my main improvements were instant, I was waking earlier 7am - (against 9am or later) and able to watch television without falling asleep in the evening - he then agreed to my having
Lemondrizz1
in
Pernicious Anaemia Society
1 year ago
Advice on Medichecks and GP iron results please
On 21st June I had some tests done by GP early morning and fasting. Results were: IRON = 13 umol/l (6-35) SERUM TRANSFERRIN =2.52g/l (2-3.6) TRANSFERRIN SATURATION= 21% No range given FERRITIN = 69ug/l (13-150 or 13-300 if post meno) I am past meno
On 21st June I had some tests done by GP early morning and fasting. Results were: IRON = 13 umol/l (6-35) SERUM TRANSFERRIN =2.52g/l (2-3.6) TRANSFERRIN SATURATION= 21% No range given FERRITIN = 69ug/l (13-150 or 13-300 if post meno) I am past meno
Eton
in
Thyroid UK
1 year ago
Iron Infusions for RLS
Another research paper showing iron infusions of Ferric Carboxymaltose improves RLS. We now have the uphill battle of convincing our GPs and neurologists. If you are trying to persuade your medical team to follow the Mayo Clinic Algorithm and increase serum ferritin as first line treatment for RLS,
Another research paper showing iron infusions of Ferric Carboxymaltose improves RLS. We now have the uphill battle of convincing our GPs and neurologists. If you are trying to persuade your medical team to follow the Mayo Clinic Algorithm and increase serum ferritin as first line treatment for RLS,
Joolsg
in
Restless Legs Syndrome
1 year ago
How to pass the day
Eternities Day
Dawn whispers to your sleepy ears as nature awakens to herald daybreak. Quiet colours will bless your eyes, as suns soft rays do gently entice those leaden lids to rise and see the glory of my being. Stay with me awhile and see that glowing orb in haloed radiance
Eternities Day
Dawn whispers to your sleepy ears as nature awakens to herald daybreak. Quiet colours will bless your eyes, as suns soft rays do gently entice those leaden lids to rise and see the glory of my being. Stay with me awhile and see that glowing orb in haloed radiance
cycli
in
PMRGCAuk
1 year ago
Book I just bought about Vitamin B12 Deficiency
In order to better prepare myself for my next visit with my GP, I bought the book "Vitamin B12 Deficiency in Clinical Practice" by Dr Joseph Chandy. My GP has been renewing my B-12 prescriptions for a few years and I self inject every 2 weeks. For some reason this year he tested my B-12 level and
In order to better prepare myself for my next visit with my GP, I bought the book "Vitamin B12 Deficiency in Clinical Practice" by Dr Joseph Chandy. My GP has been renewing my B-12 prescriptions for a few years and I self inject every 2 weeks. For some reason this year he tested my B-12 level and
prillyb12
in
Pernicious Anaemia Society
1 year ago
start of my SCT journey
Hi pawb I’m primary MF and Cal-r positive. I’ve been on Epo injections for 30 weeks which has kept my red cells in the high 90s. My platelets are in the low 40s. I have started to take Ruxolitinib but because of my low platelets 5mg 2 times a day. This will hopefully reduce my spleen. I have been told
Hi pawb I’m primary MF and Cal-r positive. I’ve been on Epo injections for 30 weeks which has kept my red cells in the high 90s. My platelets are in the low 40s. I have started to take Ruxolitinib but because of my low platelets 5mg 2 times a day. This will hopefully reduce my spleen. I have been told
Grizly
in
MPN Voice
1 year ago
Questions regarding my B12 case (IF, veganism, oral sublingual, and other blood results)
Hi all, My case seems to be a little murky. In 2018 I found out that I had very low B12. I was a vegetarian at that time and for the last 2 years have been vegan. Back in 2018, I began injections which brought my level very high very quickly. At that time I also took my first intrinsic factor test. It
Hi all, My case seems to be a little murky. In 2018 I found out that I had very low B12. I was a vegetarian at that time and for the last 2 years have been vegan. Back in 2018, I began injections which brought my level very high very quickly. At that time I also took my first intrinsic factor test. It
Greeneyecolor
in
Pernicious Anaemia Society
1 year ago
Stem Cell Transplant update
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
Scaredy_cat
in
MPN Voice
1 year ago
letter from consultation
just had my letter from my meeting last week … still awaiting diagnosis but please I welcome your thoughts on this….. I note the serial blood counts that you kindly sent through from a number of different laboratories. These demonstrate a mild thrombocytosis, normal renal and liver function tests,
just had my letter from my meeting last week … still awaiting diagnosis but please I welcome your thoughts on this….. I note the serial blood counts that you kindly sent through from a number of different laboratories. These demonstrate a mild thrombocytosis, normal renal and liver function tests,
Carthe
in
MPN Voice
1 year ago
Tummy
Everytime I eat I get short of breath I have pain under sternum I don't no if it's lung n heart related ot it's my tummy I'm due endescopy in 2 weeks...I've had chest CT scan n 12hour holter test just waiting on results any one av any ideas?
Everytime I eat I get short of breath I have pain under sternum I don't no if it's lung n heart related ot it's my tummy I'm due endescopy in 2 weeks...I've had chest CT scan n 12hour holter test just waiting on results any one av any ideas?
Purple_1963
in
Lung Conditions Community Forum
1 year ago
Iron. So confused.
Hi all, I'm going crazy with trying to understand what is going on with my iron levels right now. I recently got a NHS iron panel test that came back high - suggesting iron overload to which my GP panicked, but critically they missed off serum ferritin as there was a national reagent shortage. Following
Hi all, I'm going crazy with trying to understand what is going on with my iron levels right now. I recently got a NHS iron panel test that came back high - suggesting iron overload to which my GP panicked, but critically they missed off serum ferritin as there was a national reagent shortage. Following
Ebx_design
in
Thyroid UK
1 year ago
blood test results
I have a multi nodular goitre and am awaiting ENT assessment. I had bloods redone as I’m feeling extremely fatigued and have symptoms such as breathlessness, tremors. my results were: Total white cell count: 5.2 X10^9/L (normal range: 3.9 - 11.1) Red blood cell (RBC) count: 3.97 ×10^12/L
I have a multi nodular goitre and am awaiting ENT assessment. I had bloods redone as I’m feeling extremely fatigued and have symptoms such as breathlessness, tremors. my results were: Total white cell count: 5.2 X10^9/L (normal range: 3.9 - 11.1) Red blood cell (RBC) count: 3.97 ×10^12/L
Kellyellen
in
Thyroid UK
1 year ago
Blood Tests for Children
Hi all Finally managed to get blood tests for my children but annoyingly, my daughter was not tested for all cofactors - just B12. Son is being tested tomorrow and I want to give him a list to give to the nurse, but I can’t remember all the cofactors. Not one off my best days today! B12 Vitamin
Hi all Finally managed to get blood tests for my children but annoyingly, my daughter was not tested for all cofactors - just B12. Son is being tested tomorrow and I want to give him a list to give to the nurse, but I can’t remember all the cofactors. Not one off my best days today! B12 Vitamin
Wwwdot
in
Pernicious Anaemia Society
1 year ago
Anemia question
Hello there, I've been tested multiple times over the years and gets results similar to my most recent results which follow. I am hypothyroid and have psoriatic arthritis and Drs say that these results are typical for people with these conditions and not to worry about them overly. I have chronic insufficient
Hello there, I've been tested multiple times over the years and gets results similar to my most recent results which follow. I am hypothyroid and have psoriatic arthritis and Drs say that these results are typical for people with these conditions and not to worry about them overly. I have chronic insufficient
EchoWS
in
Thyroid UK
1 year ago
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