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Sickle-cell anaemia
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TSAT low, ferretin high
Dear fellow sufferers in RLS hell. My sleep medicine doctor suggested an iron infusion because my TSAT is 28,87% while my ferretin is 145,40ng/ml. I was taking iron supplement for 6 months before the test. I am not very knowledgeable about the difference between TSAT and ferritin. How high are
Dear fellow sufferers in RLS hell. My sleep medicine doctor suggested an iron infusion because my TSAT is 28,87% while my ferretin is 145,40ng/ml. I was taking iron supplement for 6 months before the test. I am not very knowledgeable about the difference between TSAT and ferritin. How high are
sigurdur
in
Restless Legs Syndrome
4 months ago
intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
8 months ago
Aortitis
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
Dance62
in
PMRGCAuk
5 months ago
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iron and b12 test results
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
Bearo
in
Thyroid UK
4 months ago
Blood test results
Just had my yearly check up with full blood tests. I can access the results but will also be seeing my GP face to face (!) next week as this is part of the check up. Can you tell me what these two results mean, please? Serum Creactive protein level 7.8mg/L (normal below 5) and Mean corpus haemoglobin
Just had my yearly check up with full blood tests. I can access the results but will also be seeing my GP face to face (!) next week as this is part of the check up. Can you tell me what these two results mean, please? Serum Creactive protein level 7.8mg/L (normal below 5) and Mean corpus haemoglobin
oscarandchloe
in
PMRGCAuk
10 months ago
Eustachian tube dysfunction is it possible this is connected to b12 deficiency?
My partner has has b12 deficiency symptoms for years, only recently diagnosed. He gets a fullness in his ears, he cant pop them even with all methods ENT teach you. I was just wondering if anyone else had had these problems. Initially we thought his off balance feeling when walking was caused by this
My partner has has b12 deficiency symptoms for years, only recently diagnosed. He gets a fullness in his ears, he cant pop them even with all methods ENT teach you. I was just wondering if anyone else had had these problems. Initially we thought his off balance feeling when walking was caused by this
Nic878
in
Pernicious Anaemia Society
10 months ago
Iron results - any help please?
Inflammation CRP HS 1.850 mg/L (Range: < 3) Iron Status Iron 15.4 umol/L (Range: 10 - 30) TIBC 57.1 umol/L (Range: 45 - 81) UIBC 41.7 umol/L (Range: 13 - 56) Transferrin Saturation 27.0 % (Range: 25 - 45) Ferritin 123.00 ug/L (Range: 30 - 150) Morning all, I've finally got round to checking
Inflammation CRP HS 1.850 mg/L (Range: < 3) Iron Status Iron 15.4 umol/L (Range: 10 - 30) TIBC 57.1 umol/L (Range: 45 - 81) UIBC 41.7 umol/L (Range: 13 - 56) Transferrin Saturation 27.0 % (Range: 25 - 45) Ferritin 123.00 ug/L (Range: 30 - 150) Morning all, I've finally got round to checking
FoggyThinker
in
Thyroid UK
10 months ago
JFK - Kennedy and B12
Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the possibility of Pernicious Anaemia. This is a paragraph from near the end of the article. Not intended as anything other than an interesting footnote
Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the possibility of Pernicious Anaemia. This is a paragraph from near the end of the article. Not intended as anything other than an interesting footnote
helvella
in
Pernicious Anaemia Society
8 months ago
Possible dangers of too much iron.
Iron supplementation is often advised on this forum. This article points up new research on the effect of iron on Alzheimer's. I would appreciate anyone with medical knowledge running their eye over this in case of any relevance to RLS. They do mention MS, which can be associated with RLS. Lhlklttps
Iron supplementation is often advised on this forum. This article points up new research on the effect of iron on Alzheimer's. I would appreciate anyone with medical knowledge running their eye over this in case of any relevance to RLS. They do mention MS, which can be associated with RLS. Lhlklttps
Madlegs1
in
Restless Legs Syndrome
10 months ago
Low ferritin, high iron
I recently got a bunch of lab tests done by a functional medicine doctor. I thought I had too much iron. My UIBC was lab low at 91(range 131-425), my iron was lab high at 204(range 27-159), and iron saturation was lab high at 69%(range 15-55%).But ferritin was somewhat low, though not lab low. It was
I recently got a bunch of lab tests done by a functional medicine doctor. I thought I had too much iron. My UIBC was lab low at 91(range 131-425), my iron was lab high at 204(range 27-159), and iron saturation was lab high at 69%(range 15-55%).But ferritin was somewhat low, though not lab low. It was
CraftyGamer19
in
Thyroid UK
10 months ago
High Transferrin Saturation without optimal iron levels
Hello, I am currently trying to get my iron levels up and they are slowly creeping in the right direction. However. My latest bloods show that my TSAT is now too high at 65% (up from 39% two months ago), and ferritin at 70ug/L (up from 65ug/L.) Is this just something to monitor for now?
Hello, I am currently trying to get my iron levels up and they are slowly creeping in the right direction. However. My latest bloods show that my TSAT is now too high at 65% (up from 39% two months ago), and ferritin at 70ug/L (up from 65ug/L.) Is this just something to monitor for now?
Thywotsit
in
Thyroid UK
5 months ago
SCT journey update No.4
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
LFCLove
in
MPN Voice
10 days ago
ASXL1 mutation 39% Worried about MF turning into leukemia
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
merlisa
in
Fight MPN
12 days ago
Mayo Clinic studies B12 def, are very interesting!!
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
brenanddave
in
Pernicious Anaemia Society
11 months ago
8 week bloodtest
Hi all, I've been on a reduced levothyroxine dose of 125mcg for the last 8 weeks and i stopped taking the iron tablets as my stomach was too painful, so for the past 7 weeks i've been using an iron patch. My dr agreed to retest my iron as i didn't want to be wasting my time and money if the patches
Hi all, I've been on a reduced levothyroxine dose of 125mcg for the last 8 weeks and i stopped taking the iron tablets as my stomach was too painful, so for the past 7 weeks i've been using an iron patch. My dr agreed to retest my iron as i didn't want to be wasting my time and money if the patches
catpurple7
in
Thyroid UK
11 months ago
How much folic acid while on ED injections?
I inject b12 daily or at least every other day for over two years now. I'm lots better by now but have still slight polyneuropathy left. During this time I've experimented with different dosages of folic acid (as well as with methyl folate and folinic acid) but I'm still not sure what works best for
I inject b12 daily or at least every other day for over two years now. I'm lots better by now but have still slight polyneuropathy left. During this time I've experimented with different dosages of folic acid (as well as with methyl folate and folinic acid) but I'm still not sure what works best for
Asselchen
in
Pernicious Anaemia Society
11 months ago
Euthyroid Sick Syndrome
Hi everyone, Just wondering if anyone has been diagnosed with Euthyroid Sick Syndrome or thinks they may have it? I am now beginning to think that my problems are due to this and not Hypothyroidism. Am thinking of getting a reverse T3 test but it's quite expensive.This cannot be treated with meds so
Hi everyone, Just wondering if anyone has been diagnosed with Euthyroid Sick Syndrome or thinks they may have it? I am now beginning to think that my problems are due to this and not Hypothyroidism. Am thinking of getting a reverse T3 test but it's quite expensive.This cannot be treated with meds so
Sooty101
in
Thyroid UK
11 months ago
Ferritin levels
Got bloods taken last week, the GP who ordered them isn't in until Wed, but I spoke to receptionist who said all had been returned as "normal" levels. I asked her to read out my ferritin and she said it was 64. So I know this isn't "normal" for folks with RLS and I image the GP will put me on iron supplements
Got bloods taken last week, the GP who ordered them isn't in until Wed, but I spoke to receptionist who said all had been returned as "normal" levels. I asked her to read out my ferritin and she said it was 64. So I know this isn't "normal" for folks with RLS and I image the GP will put me on iron supplements
Mikamydog
in
Restless Legs Syndrome
11 months ago
Continued Journey
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
FiArt12X
in
CLL Support
23 days ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
5 months ago
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