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Sialic acid storage disorders
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Adalimumab
I have RA and Parkinson’s and noticed after starting Adalimumab that my tremors, cramps and stiffness has increased. Any thoughts anyone?
I have RA and Parkinson’s and noticed after starting Adalimumab that my tremors, cramps and stiffness has increased. Any thoughts anyone?
Tickles1960
in
NRAS
2 years ago
Why would SMALL increase in T3 meds have caused fT3 to go DOWN a LOT and fT4 to also go DOWN?
Can someone help explain the mechanism? Given all nutrients of importance are optimal, why would a very slight increase in cytomel from 10 mcg to 12.5mcg, keeping Synthroid the same (at 75 mcg) have caused — fT3 to have dropped significantly from 65.6% to 37.5% of the reference range (from Oct 24 2022
Can someone help explain the mechanism? Given all nutrients of importance are optimal, why would a very slight increase in cytomel from 10 mcg to 12.5mcg, keeping Synthroid the same (at 75 mcg) have caused — fT3 to have dropped significantly from 65.6% to 37.5% of the reference range (from Oct 24 2022
Joyya
in
Thyroid UK
1 year ago
Caffeine and progression of Parkinson’s disease: A deleterious interaction with Creatine
So I was thinking of adding Creatine to my stack based on a VERY positive video I watched from a "doctor" who it turns out graduated from an unimpressive medical school within the last 10 years and has already surrendered his license. So then I thought I should research his claims about Creatine and
So I was thinking of adding Creatine to my stack based on a VERY positive video I watched from a "doctor" who it turns out graduated from an unimpressive medical school within the last 10 years and has already surrendered his license. So then I thought I should research his claims about Creatine and
Bolt_Upright
in
Cure Parkinson's
1 year ago
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Surviving
Hi. I have depression, anxiety & insomnia. I like to stay indoors, not see anyone or do anything. Happy Days! I'm next trying rTMS which I hope gets me back on track. I have a loving family and supportive GP so can't complain about support.
Hi. I have depression, anxiety & insomnia. I like to stay indoors, not see anyone or do anything. Happy Days! I'm next trying rTMS which I hope gets me back on track. I have a loving family and supportive GP so can't complain about support.
Carthorse
in
Mental Health Support
2 years ago
Confused! Shocked by Dexa Scan Results!
Six months ago, I believed that I was reasonably fit and healthy for a 69 year old. I've always kept active - dancing and walking - and have never smoked. I actually LIKE healthy food and drinking water! I was sent for a Dexa Scan because I noticed my finger joints were swelling and painful after
Six months ago, I believed that I was reasonably fit and healthy for a 69 year old. I've always kept active - dancing and walking - and have never smoked. I actually LIKE healthy food and drinking water! I was sent for a Dexa Scan because I noticed my finger joints were swelling and painful after
Taranda
in
Bone Health and Osteoporosis UK
2 years ago
Fear of driving?
Does anyone have similar problem? I start to sweat, sometimes get panic attacks. I was putting off this for a long time but now I really need to drive every day, and this anxiety is blocking me badly. It feels like everyone learns to drive in one day, and just continue to do it without problems, and
Does anyone have similar problem? I start to sweat, sometimes get panic attacks. I was putting off this for a long time but now I really need to drive every day, and this anxiety is blocking me badly. It feels like everyone learns to drive in one day, and just continue to do it without problems, and
issueresolver
in
Anxiety and Depression Support
1 year ago
Hypothyroidism and Quercetin
Hello i've recently posted about my subclinical hypothyroidism results and i'm having some confirmatory tests next week. I've been looking at my supplement regime and i've been taking Quercetin with Bromelain regularly for about the last 15 years only 500mg a day. There have been a few papers recently
Hello i've recently posted about my subclinical hypothyroidism results and i'm having some confirmatory tests next week. I've been looking at my supplement regime and i've been taking Quercetin with Bromelain regularly for about the last 15 years only 500mg a day. There have been a few papers recently
ockerdoc
in
Thyroid UK
1 year ago
Buprenorphine
I am currently taking 300 mg Pregabalin around 7pm and 2x 30 g of codeine (sometimes 3x 30g) during the night. I am also taking ferrous sulphate at 10pm each night. This isn’t working. I take the first codeine half an hour before bedtime and maybe sleep for 1 to 2hours. I then have to walk around/have
I am currently taking 300 mg Pregabalin around 7pm and 2x 30 g of codeine (sometimes 3x 30g) during the night. I am also taking ferrous sulphate at 10pm each night. This isn’t working. I take the first codeine half an hour before bedtime and maybe sleep for 1 to 2hours. I then have to walk around/have
Happykaz
in
Restless Legs Syndrome
1 year ago
RLS & BURPRENORPHINE
Hello everyone, I had been on Oxy for the past couple of years for pain. Recently I switched pain doctors and he switched the Oxy to Buprenorphine 8mg (film). The Buprenorphine, like a miracle, stopped my RLS immediately and it also controlled my pain so much better than the Oxy. In the past couple
Hello everyone, I had been on Oxy for the past couple of years for pain. Recently I switched pain doctors and he switched the Oxy to Buprenorphine 8mg (film). The Buprenorphine, like a miracle, stopped my RLS immediately and it also controlled my pain so much better than the Oxy. In the past couple
Josana13
in
Restless Legs Syndrome
1 year ago
the keyword
Is this PTSD? Last week a special word lead me to a very painful drama far in the past that hasnt been thought of in many years. Now memories and images repeat and all the painful is ever present with each image. Brain wants to process, so the painful emotions and tears return. Im taking Zoloft
Is this PTSD? Last week a special word lead me to a very painful drama far in the past that hasnt been thought of in many years. Now memories and images repeat and all the painful is ever present with each image. Brain wants to process, so the painful emotions and tears return. Im taking Zoloft
kainasar
in
Heal My PTSD
1 year ago
Supplements
I am waiting to start zoledronic acid infusion, the way things are it will be a while and dental work, will it be ok to take supplements, like magnesium and boron.
I am waiting to start zoledronic acid infusion, the way things are it will be a while and dental work, will it be ok to take supplements, like magnesium and boron.
Radars
in
Bone Health and Osteoporosis UK
2 years ago
Anxiety
So I am struggling ended up going to hospital with feeling such anxiety and my stomach in knots a shaking mess. They gave me ativan and stomach meds. Within 15 min I felt completely better. Like pysch ward material to wow I feel okay. Now its comes in waves and has completely made me not be able to work
So I am struggling ended up going to hospital with feeling such anxiety and my stomach in knots a shaking mess. They gave me ativan and stomach meds. Within 15 min I felt completely better. Like pysch ward material to wow I feel okay. Now its comes in waves and has completely made me not be able to work
Ladytrue
in
Anxiety and Depression Support
1 year ago
Alendronic Acid
I have been taking AA now for 3 years and 4 months every Sunday morning. I wondered if it would matter if I miss taking it on Christmas Day. What do others think? I did have a dexa scan a few months ago and the result was low body mass. I am 82.
I have been taking AA now for 3 years and 4 months every Sunday morning. I wondered if it would matter if I miss taking it on Christmas Day. What do others think? I did have a dexa scan a few months ago and the result was low body mass. I am 82.
caftan
in
PMRGCAuk
2 years ago
Can I ask for a full psychological eval and not just talk for 10 minutes and get a label?
Do I ask Psychiatrist or psychologist for a more in depth eval? [i] wonder if it more than just anxiety and depression. ADHD and or autism well trained and masked from childhood and now as I struggle with health if I have having trouble masking and holding it in. What might a more in-depth eval look
Do I ask Psychiatrist or psychologist for a more in depth eval? [i] wonder if it more than just anxiety and depression. ADHD and or autism well trained and masked from childhood and now as I struggle with health if I have having trouble masking and holding it in. What might a more in-depth eval look
Lightswitch
in
Mental Health Support
1 year ago
does anyone have any tips for dealing with dp/dr
hi Everytime I have intense anxiety or a panic attacks the dp/dr lingers and it just causes me to be in a highly anxious state for days it’s like a vicious loop. I can handle anxiety it’s the weird scary and disconnected feeling I can not and I can’t really find any tips to deal with it. I’ve tried the
hi Everytime I have intense anxiety or a panic attacks the dp/dr lingers and it just causes me to be in a highly anxious state for days it’s like a vicious loop. I can handle anxiety it’s the weird scary and disconnected feeling I can not and I can’t really find any tips to deal with it. I’ve tried the
Danzdanz123
in
Anxiety and Depression Support
1 year ago
alpha lipoic acid
does anyone take alphalipoic acid? What is its effect on you?
does anyone take alphalipoic acid? What is its effect on you?
Neworleanslady
in
My MSAA Community
2 years ago
A critical review of Provenge. Your inputs welcomed?
Any thoughts on this critical review. One thing that strikes me as odd, is how there is no information regarding efficacy since 2012. That's 10 years. If something works well, then why isn't there new data showing that? Some people say, it can't hurt, so just do it. That makes sense if it is true
Any thoughts on this critical review. One thing that strikes me as odd, is how there is no information regarding efficacy since 2012. That's 10 years. If something works well, then why isn't there new data showing that? Some people say, it can't hurt, so just do it. That makes sense if it is true
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
Letrozole/CTD agony. Yoga is better than massage says Med Research!
Dear all Hope you are all doing as well as possible. I rarely post as have been through an interesting journey with multiple commodities on top of 4 times recurrent breast cancer. I am writing as hitting the end of the third month mark on Letrozole (am 60, and 10yrs post menopausal) and REALLY struggling
Dear all Hope you are all doing as well as possible. I rarely post as have been through an interesting journey with multiple commodities on top of 4 times recurrent breast cancer. I am writing as hitting the end of the third month mark on Letrozole (am 60, and 10yrs post menopausal) and REALLY struggling
DJK99
in
My Breast Cancer Community
1 year ago
What first?: Provenge or Nubeqa?
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
B12 by 💉, . . . & synergistic nutrients to consider ! 😑
Hello ! 😊 The first step on the B12 💉 now taken - although seeing improvements, with a even twice-a-week frequency may take . . . weeks or months . . . in the case of a v long term medical condition ? So far, not feeling too different either way - & in all, the 1000ug was pretty much a cinch, n⛔
Hello ! 😊 The first step on the B12 💉 now taken - although seeing improvements, with a even twice-a-week frequency may take . . . weeks or months . . . in the case of a v long term medical condition ? So far, not feeling too different either way - & in all, the 1000ug was pretty much a cinch, n⛔
Sid_Arthur
in
Pernicious Anaemia Society
1 year ago
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