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Thrombophilia bloods back after recurrent miscarriages, I have anticardoplin antibodies - sticky blood Anyone else?
So after having the blood tests Thrombophilia, it came back I have anticardiolipin antibodies and need to retest in 3 months. On googling it’s called antiphospholipid syndrome. The most common cause for miscarriages. Sticky blood basically and an immune system that attacks growing baby. Has anyone
So after having the blood tests Thrombophilia, it came back I have anticardiolipin antibodies and need to retest in 3 months. On googling it’s called antiphospholipid syndrome. The most common cause for miscarriages. Sticky blood basically and an immune system that attacks growing baby. Has anyone
JojoWash
in
Pregnancy and Parenting Support
5 years ago
Thrombophilia blood tests for re-current miscarriages are back I have anticardiolipin antibodies an immune condition. Any one have any info
So after having the blood tests Thrombophilia, it came back I have anticardiolipin antibodies and need to retest in 3 months. On googling it’s called antiphospholipid syndrome. The most common cause for miscarriages. Sticky blood basically and an immune system that attacks growing baby. Has anyone
So after having the blood tests Thrombophilia, it came back I have anticardiolipin antibodies and need to retest in 3 months. On googling it’s called antiphospholipid syndrome. The most common cause for miscarriages. Sticky blood basically and an immune system that attacks growing baby. Has anyone
JojoWash
in
Fertility, Miscarriage & IVF Support
5 years ago
Hughes syndrome antiphospholipid syndrome
REVIEW ARTICLE Year : 2018 | Volume : 11 | Issue : 4 | Page : 169-174 Hughes syndrome antiphospholipid syndrome Graham Robert Vivian Hughes The London Lupus Centre, London Bridge Hospital, London, England, UK Date of Web Publication9-Nov-2018 Correspondence Address: Prof. Graham Robert Vivian
REVIEW ARTICLE Year : 2018 | Volume : 11 | Issue : 4 | Page : 169-174 Hughes syndrome antiphospholipid syndrome Graham Robert Vivian Hughes The London Lupus Centre, London Bridge Hospital, London, England, UK Date of Web Publication9-Nov-2018 Correspondence Address: Prof. Graham Robert Vivian
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
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"Sticky Blood" - Antiphospholipid Syndrome, POTS, Chronic Fatigue Syndrome and Fibromyalgia - The Dysautonomia Conference
by Cort Johnson | Aug 15, 2018 | This blog is part IV in a series of blogs covering the issues presented at the 2018 Dysautonomia International Conference in Nashville, Tennessee. APS and POTS and ME/CFS This is the fourth blog on issues presented in the 2018 Dysautonomia International Conference.
by Cort Johnson | Aug 15, 2018 | This blog is part IV in a series of blogs covering the issues presented at the 2018 Dysautonomia International Conference in Nashville, Tennessee. APS and POTS and ME/CFS This is the fourth blog on issues presented in the 2018 Dysautonomia International Conference.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
EPIC Study - interesting finding and recommendations
https://www.medscape.com/viewarticle/920110?src=wnl_edit_tpal&uac=323143ET&impID=2152866&faf=1 As it’s medscape you do have to join to read but the highlights were:- The EPIC-Oxford study recruited 48,000 people without stroke or ischemic heart disease and followed them for 20 years. Participants were
https://www.medscape.com/viewarticle/920110?src=wnl_edit_tpal&uac=323143ET&impID=2152866&faf=1 As it’s medscape you do have to join to read but the highlights were:- The EPIC-Oxford study recruited 48,000 people without stroke or ischemic heart disease and followed them for 20 years. Participants were
CDreamer
in
AF Association
5 years ago
Feeling ready to speak.
Hi, It’s taken me a while to gather my thoughts and to introduce myself properly, I’m Joe and I’m 42 years old. My story feels like a bit of a long one, despite only being diagnosed with the JAK2 mutation in May. I’d been feeling very under the weather for at least a year before, visiting my GP initially
Hi, It’s taken me a while to gather my thoughts and to introduce myself properly, I’m Joe and I’m 42 years old. My story feels like a bit of a long one, despite only being diagnosed with the JAK2 mutation in May. I’d been feeling very under the weather for at least a year before, visiting my GP initially
cabinetmaker
in
MPN Voice
5 years ago
When to start heparin?
Hi everyone, I’m due to start my FET soon and at our consultation after our failed round they said we could have heparin to improve blood flow - I just wanted to check is this a tablet medication or injection and when should you start them? Thanks in advance :)
Hi everyone, I’m due to start my FET soon and at our consultation after our failed round they said we could have heparin to improve blood flow - I just wanted to check is this a tablet medication or injection and when should you start them? Thanks in advance :)
L2213
in
Fertility Network UK
5 years ago
Is clexane used instead of baby aspirin? Or in conjunction?
If I had a chemical whilst on 75mg baby aspirin would going onto Clexane/ Heparin be of any use? Would you still continue with baby aspirin alongside the others? Apparently a TEG blood clotting test revealed my blood clots slightly quicker than average...
If I had a chemical whilst on 75mg baby aspirin would going onto Clexane/ Heparin be of any use? Would you still continue with baby aspirin alongside the others? Apparently a TEG blood clotting test revealed my blood clots slightly quicker than average...
Fingerscrossed38
in
Fertility Network UK
5 years ago
My Port keeps clogging.
My port has been clogging... they used that Activace (for TIAs) to unclog it... but read that can be risky. Should be saline or is heparin better?
My port has been clogging... they used that Activace (for TIAs) to unclog it... but read that can be risky. Should be saline or is heparin better?
Butitisme
in
CLL Support
5 years ago
Update
We had a few hiccups over the first couple of days, but she is now on a full compliment of treatment including IV colomycin (as a result of the concerns over whether she has ototoxicity from aminoglycoside use), IV aztreonam, oral
septrin
(to cover the s.maltophilia she cultured in July, just in case
We had a few hiccups over the first couple of days, but she is now on a full compliment of treatment including IV colomycin (as a result of the concerns over whether she has ototoxicity from aminoglycoside use), IV aztreonam, oral
septrin
(to cover the s.maltophilia she cultured in July, just in case
Hidden
in
Lung Conditions Community Forum
5 years ago
Issues with Apixaban
Menopause Hi Everyone, not been on for a while, it’s been a dreadful year for me and my family!! As I’m going through early menopause, hot flushes, mood swings and heavy bleeding, because I’m on Apixaban, I’ve been told I can’t have HRT. I also just been diagnosed of having ovarian cysts and cysts on
Menopause Hi Everyone, not been on for a while, it’s been a dreadful year for me and my family!! As I’m going through early menopause, hot flushes, mood swings and heavy bleeding, because I’m on Apixaban, I’ve been told I can’t have HRT. I also just been diagnosed of having ovarian cysts and cysts on
Tmax71
in
AF Association
5 years ago
DVT, PE, and EKOS
I've been in persistent atrial fibrillation for the last 11 years. My anxiety issues also began around the same time. I was in Sick Sinus Rythm, tachy-brady with skipped beats and pauses. Five years ago, my cardiologist decided to put me on 2mg Xanax, 10mg Eliquis and 125 mcg Digoxin daily to slow the
I've been in persistent atrial fibrillation for the last 11 years. My anxiety issues also began around the same time. I was in Sick Sinus Rythm, tachy-brady with skipped beats and pauses. Five years ago, my cardiologist decided to put me on 2mg Xanax, 10mg Eliquis and 125 mcg Digoxin daily to slow the
Wright59
in
Arrhythmia Alliance
5 years ago
Diabetes Cure Part 4
This was a very bad time for me. Hitting my head on Concrete, Drill Presses, Car Bumpers, running outa stores to drop and flop in parking lots etc. Doctors played Doctors, checked everything, still nothing. Gave me drugs that nearly killed me. Sores on my Fire Hydrant legs would not heal. Went into
This was a very bad time for me. Hitting my head on Concrete, Drill Presses, Car Bumpers, running outa stores to drop and flop in parking lots etc. Doctors played Doctors, checked everything, still nothing. Gave me drugs that nearly killed me. Sores on my Fire Hydrant legs would not heal. Went into
Hidden
in
Diabetes & Hypertension Help Society
5 years ago
Dr Graham RV Hughes Blog: July 2019
This week, we held the 33rd annual “Ten Topics in Rheumatology” meeting in London. Organised by Professor Chris Edwards and his team from the London Lupus Centre – Professor David D’Cruz, Professor Munther Khamashta and Dr Arvind Kaul, it was a full house of 300 doctors from far and wide, including
This week, we held the 33rd annual “Ten Topics in Rheumatology” meeting in London. Organised by Professor Chris Edwards and his team from the London Lupus Centre – Professor David D’Cruz, Professor Munther Khamashta and Dr Arvind Kaul, it was a full house of 300 doctors from far and wide, including
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Update
Well regarding being out of breath started last Sunday 6/30 went for a paracenticis at my local hospital they removed 4.2 liters fluid released me still out of breath went to local pcp said lungs clear sounded good I asked if could be blood clot he said no. So went back to onc in Cleveland Wednesday
Well regarding being out of breath started last Sunday 6/30 went for a paracenticis at my local hospital they removed 4.2 liters fluid released me still out of breath went to local pcp said lungs clear sounded good I asked if could be blood clot he said no. So went back to onc in Cleveland Wednesday
library2019
in
SHARE Metastatic Breast Cancer
5 years ago
APS - pregnant again after 3 miscarriages
Hey all again, I'm pregnant after having 3 recurrent miscarriages in row and as per my previous post I have been diagnosed with APS weak positive. I'm slightly confused if I should start taking Heparin Injections from today? My rheumatologist said from pregnancy so not sure plus my follow up appointment
Hey all again, I'm pregnant after having 3 recurrent miscarriages in row and as per my previous post I have been diagnosed with APS weak positive. I'm slightly confused if I should start taking Heparin Injections from today? My rheumatologist said from pregnancy so not sure plus my follow up appointment
Beepi
in
Hughes Syndrome APS Forum
5 years ago
Blood clot tests
One of the things my clinic has suggested is that I get some tests for blood clots in hope it will prevent another chemical pregnancy. Apparently a low dose of heparin will be prescribed if I come up positive for anything. These tests are expensive. Wondering if anyone else had such tests and they made
One of the things my clinic has suggested is that I get some tests for blood clots in hope it will prevent another chemical pregnancy. Apparently a low dose of heparin will be prescribed if I come up positive for anything. These tests are expensive. Wondering if anyone else had such tests and they made
Rainbowhope
in
Fertility Network UK
5 years ago
Taking Imbruvica in Spain
I live in Spain and have been recently diagnosed with Sll/Cll 17p deletion. Ive been taking Imbruvica for three weeks. As yet no side effects and feeling a lot better/ more upbeat. I did have a couple of small bleeds a couple of days back. A bit of a spurt after my now regular bloods and similar following
I live in Spain and have been recently diagnosed with Sll/Cll 17p deletion. Ive been taking Imbruvica for three weeks. As yet no side effects and feeling a lot better/ more upbeat. I did have a couple of small bleeds a couple of days back. A bit of a spurt after my now regular bloods and similar following
Hidden
in
CLL Support
5 years ago
Heparin Dosage
I was diagnosed with the big 3 by Prof Hughes 2 years ago and had a problem with taking Plaquanil and can not take high dose Steriods - so I have been very unwell, but now I have been in the most severe relapse for 5 months to a point of being bed bound so I have an appointment at the London Lupus Centre
I was diagnosed with the big 3 by Prof Hughes 2 years ago and had a problem with taking Plaquanil and can not take high dose Steriods - so I have been very unwell, but now I have been in the most severe relapse for 5 months to a point of being bed bound so I have an appointment at the London Lupus Centre
riannabri
in
Hughes Syndrome APS Forum
5 years ago
History of obstetric APS: Heparin not required anymore for long-distance air travel?
Hello, I just very recently discovered this site & what a wonderful resource it is. I've already learned a lot of new information so quickly. I'm wondering if someone might be able to help me think this through. I am travelling soon from Vancouver, BC, Canada to Auckland, New Zealand (14 hours flight
Hello, I just very recently discovered this site & what a wonderful resource it is. I've already learned a lot of new information so quickly. I'm wondering if someone might be able to help me think this through. I am travelling soon from Vancouver, BC, Canada to Auckland, New Zealand (14 hours flight
Candyland
in
Hughes Syndrome APS Forum
5 years ago
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