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Another long haul flight question. Help?! I'm so nervous!
I fly in 2 days from the US to Ireland (about 8 hours). First long haul flight since diagnosed. Only take low dose aspirin now. No clotting events to date, but many other symptoms. I know to get up and move often, but wondering if I should ask Dr to give me heparin for the trip only???? I'm a nervous
I fly in 2 days from the US to Ireland (about 8 hours). First long haul flight since diagnosed. Only take low dose aspirin now. No clotting events to date, but many other symptoms. I know to get up and move often, but wondering if I should ask Dr to give me heparin for the trip only???? I'm a nervous
Hilariew930
in
Hughes Syndrome APS Forum
11 years ago
Another long haul flight question. Help?! I'm so nervous!
I fly in 2 days from the US to Ireland (about 8 hours). First long haul flight since diagnosed. Only take low dose aspirin now. No clotting events to date, but many other symptoms. I know to get up and move often, but wondering if I should ask Dr to give me heparin for the trip only???? I'm a nervous
I fly in 2 days from the US to Ireland (about 8 hours). First long haul flight since diagnosed. Only take low dose aspirin now. No clotting events to date, but many other symptoms. I know to get up and move often, but wondering if I should ask Dr to give me heparin for the trip only???? I'm a nervous
Hilariew930
in
Hughes Syndrome APS Forum
11 years ago
Has anyone taken low molecular weight heparin to help their lymphodema ?
KMDB
in
LSN
11 years ago
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Has anyone taken low molecular weight heparin to help their lymphodema ?
KMDB
in
LSN
11 years ago
The story of the discovery of heparin and warfarin
Found this if you have a few minutes to spare great reading. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2141.2008.07119.x/pdf Be Well Offcut
Found this if you have a few minutes to spare great reading. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2141.2008.07119.x/pdf Be Well Offcut
Offcut
in
Atrial Fibrillation Support
11 years ago
Human killer cells
Hi guys, so after my 3rd m/c I finally got to see someone. My problem is keeping it, my sac grows but my baby dies. I had loads of bloods taken, all fine, I had a biopsy of uterus to check for killer cells. Results came bk as boarder line. Been instructed to have pessarys (progesterone) twice a day and
Hi guys, so after my 3rd m/c I finally got to see someone. My problem is keeping it, my sac grows but my baby dies. I had loads of bloods taken, all fine, I had a biopsy of uterus to check for killer cells. Results came bk as boarder line. Been instructed to have pessarys (progesterone) twice a day and
Jewles
in
Pregnancy and Parenting Support
11 years ago
Never-ending confusion! Positive and negative IGg blood results
Hi there, I've used the site before but as my rheum told me he was pretty sure I didn't have Hughes I disappeared for a while... 3 years ago I was tested for Hughes as part of a work up done by my migraine specialist. My IGg levels came back at 300+ (normal 1-10) but were followed by a normal result
Hi there, I've used the site before but as my rheum told me he was pretty sure I didn't have Hughes I disappeared for a while... 3 years ago I was tested for Hughes as part of a work up done by my migraine specialist. My IGg levels came back at 300+ (normal 1-10) but were followed by a normal result
Fairypies
in
Hughes Syndrome APS Forum
11 years ago
Symptoms fluctuating
Hi, I am fairly new to all this as I was only diagnosed a couple of months ago. I have had a diagnosis of MS for 10 years and my mobility has been badly affected by it to the point of needing a scooter and sticks etc. After being on Clexane injections for a couple of weeks my mobility improved to the
Hi, I am fairly new to all this as I was only diagnosed a couple of months ago. I have had a diagnosis of MS for 10 years and my mobility has been badly affected by it to the point of needing a scooter and sticks etc. After being on Clexane injections for a couple of weeks my mobility improved to the
Hidden
in
Hughes Syndrome APS Forum
11 years ago
Warfarin alternatives
I've been on Warfarin for nearly a year after aortic valve replacement for congenital aortic stenosis. After the operation I had AF but was successfully cardioverted 6 months ago with no apparent relapse. I would like to discuss alternatives with my GP and/or cardiologist but do not know what local
I've been on Warfarin for nearly a year after aortic valve replacement for congenital aortic stenosis. After the operation I had AF but was successfully cardioverted 6 months ago with no apparent relapse. I would like to discuss alternatives with my GP and/or cardiologist but do not know what local
Mrspat
in
Anticoagulation Support
11 years ago
To all pregnant ladies....
I just wondered how you're all getting on? I'm currently in my 19th week and so far so good. My heparin levels have remained 'perfect' since injecting, I have my 20 week scan scheduled with fetal medicine this Friday and then further scans at 28,32 and 36 weeks. I feel like I've struck gold with
I just wondered how you're all getting on? I'm currently in my 19th week and so far so good. My heparin levels have remained 'perfect' since injecting, I have my 20 week scan scheduled with fetal medicine this Friday and then further scans at 28,32 and 36 weeks. I feel like I've struck gold with
Maybells
in
Hughes Syndrome APS Forum
11 years ago
New here and is heparin OK long term?
Hi, I am new here. I had bilateral pulmonary embolisms last year and that started a flurry of investigations as to the cause as there was no logical reason for me to have got them. Given my history of severe hemiplegic migraines and the fact I'd had 5 miscarriages between my two children it was pretty
Hi, I am new here. I had bilateral pulmonary embolisms last year and that started a flurry of investigations as to the cause as there was no logical reason for me to have got them. Given my history of severe hemiplegic migraines and the fact I'd had 5 miscarriages between my two children it was pretty
Hidden
in
Hughes Syndrome APS Forum
11 years ago
I need help! Prof. Khasmashta treated me with Clexane & since then I have tried other meds, that are not working. Anyone else
I am seronagative with a strong history. I suffer with some MS symptoms & I use a wheelchair. I saw prof. Khasmashta in April & he prescribed Clexane. It was a miracle & I was able to walk better, it actually felt easier to walk. I felt like if things progressed I would be out of the chair in a few months
I am seronagative with a strong history. I suffer with some MS symptoms & I use a wheelchair. I saw prof. Khasmashta in April & he prescribed Clexane. It was a miracle & I was able to walk better, it actually felt easier to walk. I felt like if things progressed I would be out of the chair in a few months
designer16
in
Hughes Syndrome APS Forum
11 years ago
Advice on power port
Can anyone tell me why my new power port is not working? it was put in 2 weeks ago my GP tried to access it this morning he managed to put heparin into it but no draw back of blood. I am on my 3rd portacath now the first lasted 2 half years and the last one was just 15 moths, i am so disappointed my
Can anyone tell me why my new power port is not working? it was put in 2 weeks ago my GP tried to access it this morning he managed to put heparin into it but no draw back of blood. I am on my 3rd portacath now the first lasted 2 half years and the last one was just 15 moths, i am so disappointed my
rlupus
in
LUPUS UK
11 years ago
Jobs worth GP strikes again, I'm so mad
I mad again on behalf of my adult son. I have written before about his useless jobs worth GP. The last thing was giving him exactly 30 heparin to tide him over until he saw the Prof again at end of May. But no follow up appointment, this guy only works part time too. The prof want DS to see Dr D'Cruz
I mad again on behalf of my adult son. I have written before about his useless jobs worth GP. The last thing was giving him exactly 30 heparin to tide him over until he saw the Prof again at end of May. But no follow up appointment, this guy only works part time too. The prof want DS to see Dr D'Cruz
Jade
in
Hughes Syndrome APS Forum
11 years ago
Now just on heparin 100mg due to procedure on thursday i get confused as ehat is ideal level
Because of procedure told to just take heparin and leave warfarin until after all of my ops over. What is the ideal inr on heparin i had tia whilst the haem dept tryng to get their heads together two years ago. And then they put me on warfarin. Mind you it was only 40mg then.
Because of procedure told to just take heparin and leave warfarin until after all of my ops over. What is the ideal inr on heparin i had tia whilst the haem dept tryng to get their heads together two years ago. And then they put me on warfarin. Mind you it was only 40mg then.
daisy11
in
Hughes Syndrome APS Forum
11 years ago
I went from being excited because I had a diagnosis & a treatment , to totally depressed and frustrated.
I feel like I have no help with the doctors, so I am reaching out to anyone for help. Prof. Khasmashta dx me with Sero-negative Hughes syndrome. I started Clexane & instantly improved. I am in a wheelchair & walk short distances w/a walker. I walked better & was exercising so I can get out of this damm
I feel like I have no help with the doctors, so I am reaching out to anyone for help. Prof. Khasmashta dx me with Sero-negative Hughes syndrome. I started Clexane & instantly improved. I am in a wheelchair & walk short distances w/a walker. I walked better & was exercising so I can get out of this damm
designer16
in
Hughes Syndrome APS Forum
11 years ago
Scared and upset!
Having been diagnosed with AF following a bout of flu before Christmas I finally underwent an angiogram followed a couple of weeks later by a cardio version. When I first got it I was rushed up to hospital as they told me my clotting levels were too high and I was at risk of a stroke. They gave me
Having been diagnosed with AF following a bout of flu before Christmas I finally underwent an angiogram followed a couple of weeks later by a cardio version. When I first got it I was rushed up to hospital as they told me my clotting levels were too high and I was at risk of a stroke. They gave me
Hettyw
in
Atrial Fibrillation Support
11 years ago
Warfarin v heparin
I had a three month trial of heparin in 2008 and from what I can recall felt good. Then I went onto warfarin but this coincided with the first of four shoulder operations. Since then I have been diagnosed with fibro which adds to the brain fog and don 't know how effective warfarin is. have discussed
I had a three month trial of heparin in 2008 and from what I can recall felt good. Then I went onto warfarin but this coincided with the first of four shoulder operations. Since then I have been diagnosed with fibro which adds to the brain fog and don 't know how effective warfarin is. have discussed
panda60
in
Hughes Syndrome APS Forum
11 years ago
It's official.....
It has taken from 2nd August 2012 (stroke) until 9th May 2013 but I have now officially been labelled with APS - having had 2 postive tests etc. Not sure if I am happy about it - on the postive at least I now know why as a person in my 40's (late but still in them) with none of the normal risk factors
It has taken from 2nd August 2012 (stroke) until 9th May 2013 but I have now officially been labelled with APS - having had 2 postive tests etc. Not sure if I am happy about it - on the postive at least I now know why as a person in my 40's (late but still in them) with none of the normal risk factors
Elaine77c
in
Hughes Syndrome APS Forum
11 years ago
Evidence for Clopidogrel as well as Wafarin
You may remember that about a month or so ago I asked a question about the use of these two drugs together as the GP had stopped my Clopidogrel and I was feeling unwell without it. They put me back on it but only temporarily and no longer on a repeat prescription so they review it every time. I discovered
You may remember that about a month or so ago I asked a question about the use of these two drugs together as the GP had stopped my Clopidogrel and I was feeling unwell without it. They put me back on it but only temporarily and no longer on a repeat prescription so they review it every time. I discovered
Elaine77c
in
Hughes Syndrome APS Forum
11 years ago
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