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Newly diagnosed Wegners with Polyangitis
I have been taking steroids and
Rituximab
which have put it into remission. As my immune system is suppressed I've been advised not to travel as I could pick up infection from flying by being in confined spaces. Has anyone else living with Wegners got around this problem?
I have been taking steroids and
Rituximab
which have put it into remission. As my immune system is suppressed I've been advised not to travel as I could pick up infection from flying by being in confined spaces. Has anyone else living with Wegners got around this problem?
pamleseelleur
in
Vasculitis UK
8 years ago
Month 6 on iFCR and Going Strong
I last posted four months ago when my wife "NoMoreCLL" began the Ibrutinib plus FCR Study. We're here at the Farber today, on Day 1 of 3, Month 6 of 6 for the final set of infusions. As of mid-Study (end of Cycle 3) she had MRD Positive for both blood and marrow...then on the cusp of MRD Negativity
I last posted four months ago when my wife "NoMoreCLL" began the Ibrutinib plus FCR Study. We're here at the Farber today, on Day 1 of 3, Month 6 of 6 for the final set of infusions. As of mid-Study (end of Cycle 3) she had MRD Positive for both blood and marrow...then on the cusp of MRD Negativity
ltcbbaker
in
CLL Support
8 years ago
Out of remission?
My very first post but I have been following for awhile. Exactly when is a person considered out of remission? I was Dx with CLL in 2012. 4 rounds of FCR in 2013. In remission for almost three years. But for the last year my blood numbers have been trending up. White count now 8.2, ACL 3. If they rise
My very first post but I have been following for awhile. Exactly when is a person considered out of remission? I was Dx with CLL in 2012. 4 rounds of FCR in 2013. In remission for almost three years. But for the last year my blood numbers have been trending up. White count now 8.2, ACL 3. If they rise
Bama-Girl
in
CLL Support
8 years ago
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Rheumatology review: Scotland
It may not be until May in order to be synchronized with the
rituximab
infusion.
It may not be until May in order to be synchronized with the
rituximab
infusion.
cathie
in
NRAS
8 years ago
FCR follow up is CT necessary?
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
dwolden
in
CLL Support
8 years ago
Rituximab and bendamustine
Is anyone else on
rituximab
and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and
rituximab
nearly 5 years ago with great results.
Is anyone else on
rituximab
and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and
rituximab
nearly 5 years ago with great results.
Donegal
in
CLL Support
8 years ago
17 years and counting
Currently I'm in the early stages of
rituximab
treatment, a little scared and unsure but I made the decision and I'm now running with it .... Ish! First few weeks felt fab! I think I'm on the slow come Down from the steroids but not feeling awful as I normally would this time of year!
Currently I'm in the early stages of
rituximab
treatment, a little scared and unsure but I made the decision and I'm now running with it .... Ish! First few weeks felt fab! I think I'm on the slow come Down from the steroids but not feeling awful as I normally would this time of year!
N-work28
in
NRAS
8 years ago
CLL Global Alliance January Newsletter
The meeting ended with an exciting discussion of the development of vaccines against cancer that have the potential to transform treatment options in much the same way monoclonal antiboides have since the advent of
rituximab
."
The meeting ended with an exciting discussion of the development of vaccines against cancer that have the potential to transform treatment options in much the same way monoclonal antiboides have since the advent of
rituximab
."
AussieNeil
Administrator
in
CLL Support
8 years ago
World Cancer Day
Hence, CLL and other liquid cancers such as CML (chronic myelogenous leukemia) are the poster children for the development of biological (think monoclonal antibodies such as
rituximab
) and targeted non-chemo therapies such as imatinib or Gleevec for CML (the first truly targeted therapy and a true miracle
Hence, CLL and other liquid cancers such as CML (chronic myelogenous leukemia) are the poster children for the development of biological (think monoclonal antibodies such as
rituximab
) and targeted non-chemo therapies such as imatinib or Gleevec for CML (the first truly targeted therapy and a true miracle
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Rituxin
I was wondering for those who have done Rituxin/
Rituximab
how soon you saw results, if any? I finished on the 30tb of December (with a week off in between my 3rd and 4th treatment because I had to get IVIG). My platelets keep dropping. Thank you.
I was wondering for those who have done Rituxin/
Rituximab
how soon you saw results, if any? I finished on the 30tb of December (with a week off in between my 3rd and 4th treatment because I had to get IVIG). My platelets keep dropping. Thank you.
Anna77M
in
ITP Support Association
8 years ago
Sciatica??
Husband has GPA (Wegener's) which is just about going into remission with 3rd session of
Rituximab
on 30 Dec. Prednisilone is now down to 7mg per day. All good news but........since July he has been suffering from what we believe is Sciatica. Knee Xray & MRI of back show no squashed nerve.
Husband has GPA (Wegener's) which is just about going into remission with 3rd session of
Rituximab
on 30 Dec. Prednisilone is now down to 7mg per day. All good news but........since July he has been suffering from what we believe is Sciatica. Knee Xray & MRI of back show no squashed nerve.
Nadine99
in
Vasculitis UK
8 years ago
Sharing the good news
I got an infusion with
Rituximab
(combined with Prednison to prevent side effects). Yesterday I had my 4th infusion of
Rituximab
. I have to take the Venetoclax pills every day for a period of 2 years. Until now everything is going very well.
I got an infusion with
Rituximab
(combined with Prednison to prevent side effects). Yesterday I had my 4th infusion of
Rituximab
. I have to take the Venetoclax pills every day for a period of 2 years. Until now everything is going very well.
Korstiaan
in
CLL Support
8 years ago
FLAIR update Round 2
FLAIR trial Ibrutinib
Rituximab
arm. So....after first round I felt OK if tired, massive bruising, but am usually easily bruised so can cope with that, so long as no one sees my legs. By day 15 or so I had horrid mouth ulcers. And some muscle pain.
FLAIR trial Ibrutinib
Rituximab
arm. So....after first round I felt OK if tired, massive bruising, but am usually easily bruised so can cope with that, so long as no one sees my legs. By day 15 or so I had horrid mouth ulcers. And some muscle pain.
romarin
in
CLL Support
8 years ago
WEGENERS / GPA
(
rituximab
and daily steroids 25mg/od). I've been wondering if as I get older (I'm talking like in my 40's) if I can expect to find it harder to 'get over' flair ups of the disease or if its totally random from each patient...
(
rituximab
and daily steroids 25mg/od). I've been wondering if as I get older (I'm talking like in my 40's) if I can expect to find it harder to 'get over' flair ups of the disease or if its totally random from each patient...
Marcus1988
in
Vasculitis UK
8 years ago
Offer of enrolling on CALiBRe trial
I can only find info on people who have had previous treatments and receive the drug in combination with
Rituximab
and who also have the 17p deletion. I on the other hand am treatment naive and do not have the 17p deletion. My dilemma is this.
I can only find info on people who have had previous treatments and receive the drug in combination with
Rituximab
and who also have the 17p deletion. I on the other hand am treatment naive and do not have the 17p deletion. My dilemma is this.
kendo1
in
CLL Support
8 years ago
Treatment starting 4th February
Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months starting on the 4th Febuary. My consultant has talked me through the treatment and explained why this is suitable for me. I have an appointment on the
Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months starting on the 4th Febuary. My consultant has talked me through the treatment and explained why this is suitable for me. I have an appointment on the
Louiej
in
CLL Support
8 years ago
Wegeners (GPA)
(Like rotting) Does/did this happen to anyone else In the early stages and when should I expect the smell to stop as someone else told me the
Rituximab
takes a while to start working... Cheers
(Like rotting) Does/did this happen to anyone else In the early stages and when should I expect the smell to stop as someone else told me the
Rituximab
takes a while to start working... Cheers
Marcus1988
in
Vasculitis UK
8 years ago
recently diagnosed with CLL
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
ohiojim
in
CLL Support
8 years ago
FCR remission period
Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am feeling nodes in in neck. What is average remission period in FCR ? What is other treatment option ?
Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am feeling nodes in in neck. What is average remission period in FCR ? What is other treatment option ?
mag1309
in
CLL Support
8 years ago
4 Christmas: open studio
I don't think the
Rituximab
has really kicked in yet, but the worst bit is tapering the Prednisilone. I'm having to get fairly quickly from 10mg to 5mg, so that the consultant can see what I am really like on 19th December.
I don't think the
Rituximab
has really kicked in yet, but the worst bit is tapering the Prednisilone. I'm having to get fairly quickly from 10mg to 5mg, so that the consultant can see what I am really like on 19th December.
Jora
in
NRAS
8 years ago
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