Hello I am a 55 years old and in October was put on a ventilator for damage to lungs and sinuses due to Wegners. I have been taking steroids and Rituximab which have put it into remission. As my immune system is suppressed I've been advised not to travel as I could pick up infection from flying by being in confined spaces. Has anyone else living with Wegners got around this problem? Also having a lot of joint pain reducing the steroids. Is this likely to improve? I've read about people living with Wegners for nine years or more. Has anyone lived with this disease for considerably longer? Any advice would be appreciated.
Newly diagnosed Wegners with Polyangitis - Vasculitis UK
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