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'Rituximab cough '
Can I ask has anyone experienced a persistent cough, shortness of breath and fatigue after long term use of
Rituximab
? I have just read about '
Rituximab
cough' and wondered if this is what I'm experiencing ?
Can I ask has anyone experienced a persistent cough, shortness of breath and fatigue after long term use of
Rituximab
? I have just read about '
Rituximab
cough' and wondered if this is what I'm experiencing ?
Essex-jill
in
Vasculitis UK
8 years ago
Thoughts / experiences of Mycophenolate ?
Unfortunately I've relapsed after having 2 and 1/2 years remission from
Rituximab
. I had remission of 2 and a half years from 2010 to 2013?then had
Rituximab
again and got 2 and a half years remission again from 2013 till Feb this year.
Unfortunately I've relapsed after having 2 and 1/2 years remission from
Rituximab
. I had remission of 2 and a half years from 2010 to 2013?then had
Rituximab
again and got 2 and a half years remission again from 2013 till Feb this year.
AnthonyHeard
ITP Support Association
in
ITP Support Association
8 years ago
Under 50 and had FCR?
I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from others who might be similar to me on how long it was until the CLL returned and you needed treatment again. Thanks!
I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from others who might be similar to me on how long it was until the CLL returned and you needed treatment again. Thanks!
Mnance
in
CLL Support
8 years ago
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5 vs 6 rounds of FCR
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Mnance
in
CLL Support
8 years ago
RITUXIMAB
After recent setbacks on Tocilizumab/ MTX the rheumatology team would like to try me on
RITUXIMAB
. Having read some of the posts here and visited many
Rituximab
web sites, I have reached the conclusion this is not a drug to be taken lightly.
After recent setbacks on Tocilizumab/ MTX the rheumatology team would like to try me on
RITUXIMAB
. Having read some of the posts here and visited many
Rituximab
web sites, I have reached the conclusion this is not a drug to be taken lightly.
harryhunt43
in
NRAS
8 years ago
Follicular Lymphoma Patients and Caregivers Survey
Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Idelalisib (Zydelig) for the treatment of patients with follicular lymphoma who have received at least two prior systemic regimens and are refractory to both
rituximab
and an alkylating agent.
Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Idelalisib (Zydelig) for the treatment of patients with follicular lymphoma who have received at least two prior systemic regimens and are refractory to both
rituximab
and an alkylating agent.
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
My success with Imbruvica (ibrutinib
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
ohiojim
in
CLL Support
8 years ago
Curious_Patient with ITP
I told to the doctor about it but he ordered me to continue the
Rituximab
. Anybody who feels the same (body/muscle pain) after injecting
Rituximab
into your body?
I told to the doctor about it but he ordered me to continue the
Rituximab
. Anybody who feels the same (body/muscle pain) after injecting
Rituximab
into your body?
Alex_MC
in
ITP Support Association
8 years ago
I'm short of a wee bit of sympathy, just a little.
Greetings all, 2014 September finished six rounds of FCR good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours 2016 January chest infection 4 weeks multiple antibiotics February/March sciatica five weeks multiple variety of pills April just had
Greetings all, 2014 September finished six rounds of FCR good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours 2016 January chest infection 4 weeks multiple antibiotics February/March sciatica five weeks multiple variety of pills April just had
Bribin
in
CLL Support
8 years ago
Newbe
On Monday I will be having my first infusion of
Rituximab
. I've read all the leaflets spoken to consultant and special nurses so now it's down to me. Hope it will be okay? I'm having one flare up after another so must have faith in new treatment.
On Monday I will be having my first infusion of
Rituximab
. I've read all the leaflets spoken to consultant and special nurses so now it's down to me. Hope it will be okay? I'm having one flare up after another so must have faith in new treatment.
Jackie1947
in
NRAS
8 years ago
To Toc or not to Toc? That is the question
They want to try me on
Rituximab
but even with odds of 25000 to 1 against getting PML ( reactivated JC Virus and always fatal) I am not prepared to play Russian Roulette with odds that would be great for the lottery jackpot.
They want to try me on
Rituximab
but even with odds of 25000 to 1 against getting PML ( reactivated JC Virus and always fatal) I am not prepared to play Russian Roulette with odds that would be great for the lottery jackpot.
harryhunt43
in
NRAS
8 years ago
B Cells
Indicators as why
Rituximab
is effective in some though not all cases a research paper that if replicated identifies responders by profile of B cells a phenotype of this disease with a biological marker. http://onlinelibrary.wiley.com/doi/10.1111/cei.12749/abstract
Indicators as why
Rituximab
is effective in some though not all cases a research paper that if replicated identifies responders by profile of B cells a phenotype of this disease with a biological marker. http://onlinelibrary.wiley.com/doi/10.1111/cei.12749/abstract
readerlist
in
Ramsays Disease
8 years ago
CLL&Dizziness,Cloudy Brain....anyone?
I did 4 round of
Rituximab
and then a year later tried Imbruvica. I truly believe the
Rituximab
caused my random sores. After getting off the Imbruvica which has me more concerned. I have had 'cloudy brain' it is the best way I can explain it, along with dizziness, fatigue and lightheadedness.
I did 4 round of
Rituximab
and then a year later tried Imbruvica. I truly believe the
Rituximab
caused my random sores. After getting off the Imbruvica which has me more concerned. I have had 'cloudy brain' it is the best way I can explain it, along with dizziness, fatigue and lightheadedness.
deanna2289
in
CLL Support
8 years ago
Left sided heart failure and Vasculitis. Anyone else been diagnosed with this ?
I have been receiving
Rituximab
every 6 months for the last few years and have been lucky not to have had steroids for approx the last 10 years. I'm 55 years old.
I have been receiving
Rituximab
every 6 months for the last few years and have been lucky not to have had steroids for approx the last 10 years. I'm 55 years old.
Essex-jill
in
Vasculitis UK
8 years ago
Flair trail update Ibrutinib and Rituximab round 4
About to have infusion of Riutximab 5 this week. saw doctor yesterday. I have been suffering increasing joint and muscle pain over the last 2 months. Sometimes vey bad, and very debilitating. Maximum advised painkillers combining paracetemol and codeine do not really affect the pain at all. As mentioned
About to have infusion of Riutximab 5 this week. saw doctor yesterday. I have been suffering increasing joint and muscle pain over the last 2 months. Sometimes vey bad, and very debilitating. Maximum advised painkillers combining paracetemol and codeine do not really affect the pain at all. As mentioned
romarin
in
CLL Support
8 years ago
Giant cell hepatitis
two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months ago with it but thank god since he hasn't been to sick he is on sirolimus and gets Ivig every two weeks he has had lots of infusions of
rituximab
two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months ago with it but thank god since he hasn't been to sick he is on sirolimus and gets Ivig every two weeks he has had lots of infusions of
rituximab
Rueben13
in
Children's Liver Disease Foundation
8 years ago
Benlysta/Rituximab
Hi everyone! Has anyone here been treated with any of these 2 drugs? Was reading that there have been some (ongoing) trials with promising results...so i was just wondering. Hope to hear from you, A.
Hi everyone! Has anyone here been treated with any of these 2 drugs? Was reading that there have been some (ongoing) trials with promising results...so i was just wondering. Hope to hear from you, A.
jemozne
in
The Australian Sjögren's Syndrome Association
8 years ago
Want to Hear From a Man Who Has Lived With CLL for 38 Years? Read Doyle's Story Here!
Thought, since I was once told I had 3-5 years, 37 years ago, I would share some of my background with you. First treated by local hematology/oncologist in Denver with Leukeran and prednisone. Likely before it was needed. Later seen by Dr Freireich at MDA. His people round tabled my case and chose
Thought, since I was once told I had 3-5 years, 37 years ago, I would share some of my background with you. First treated by local hematology/oncologist in Denver with Leukeran and prednisone. Likely before it was needed. Later seen by Dr Freireich at MDA. His people round tabled my case and chose
aking90
in
CLL America Support
8 years ago
Have you been diagnosed with IgG4 Related Disease? If so, please contact John Mills @VUK.
2 ) Have you been diagnosed with IgG4 disease and been given
Rituximab
? If you can answer yes to either question , could you please contact John Mills, chairman of VUK, by 5pm today. john.mills@vasculitis.org.uk Thank you Susan
2 ) Have you been diagnosed with IgG4 disease and been given
Rituximab
? If you can answer yes to either question , could you please contact John Mills, chairman of VUK, by 5pm today. john.mills@vasculitis.org.uk Thank you Susan
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
Mr Steven Buckley
GPA Dx Sept 2010 with Kidney involvement.Relapse Nov 2015 with Lung nodule involvement,recently received initial 2
Rituximab
infusions and so far so good apart from the pred of course.
GPA Dx Sept 2010 with Kidney involvement.Relapse Nov 2015 with Lung nodule involvement,recently received initial 2
Rituximab
infusions and so far so good apart from the pred of course.
Steven_buckley1GPA
in
Vasculitis UK
8 years ago
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