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IPFR in Wales - who’s had one approved for lupus services or treatments?
Our health board will only let you out of Wales currently, to a Centre of Excellence if you have kidney involvement and/or they are considering
Rituximab
(as indicated to do so under the NICE Approved BSR Guidelines for Lupus.
Our health board will only let you out of Wales currently, to a Centre of Excellence if you have kidney involvement and/or they are considering
Rituximab
(as indicated to do so under the NICE Approved BSR Guidelines for Lupus.
Wendy39
in
LUPUS UK
4 years ago
Nephrotic Syndrome
Following two
Rituximab
infusions, I am on dialysis since 8 months. My albumin has improved. Can I come off dialysis if the neprotic syndrome improves? I am not diabetic and continue to pass urine. Thanks in anticipation for your input/advise.
Following two
Rituximab
infusions, I am on dialysis since 8 months. My albumin has improved. Can I come off dialysis if the neprotic syndrome improves? I am not diabetic and continue to pass urine. Thanks in anticipation for your input/advise.
Potuar
in
Kidney Dialysis
4 years ago
Help with choosing the right Biologic
They are: Abatacept injections;
Rituximab
infusions; Baricitinib tablets (Jak inhibitor). Thank you all for you thoughts xx
They are: Abatacept injections;
Rituximab
infusions; Baricitinib tablets (Jak inhibitor). Thank you all for you thoughts xx
Aloquifiqie
in
NRAS
4 years ago
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Which biologic to take? Help!
Any advice between Abatacept injections,
Rituximab
infusions or Baricitinib tables (jak inhibitor). Anyone got any good thoughts? Thank you so much xxx
Any advice between Abatacept injections,
Rituximab
infusions or Baricitinib tables (jak inhibitor). Anyone got any good thoughts? Thank you so much xxx
Aloquifiqie
in
Arthritis Action
4 years ago
Has anyone experienced swollen legs after Rituximab Infusion?
Liver blood results showed damage, however my Rheumy is convinced it was a side effect of the
Rituximab
, which I truly hope not as the infusions really work. I was given water tablets to get rid of the fluid and I have to weigh myself every day at the same time.
Liver blood results showed damage, however my Rheumy is convinced it was a side effect of the
Rituximab
, which I truly hope not as the infusions really work. I was given water tablets to get rid of the fluid and I have to weigh myself every day at the same time.
Paisley58
in
NRAS
4 years ago
Information for CLL chemo
First chemo was a combination of
Rituximab
and endoxon.Now he has suggested to go on oral.chemo..ibrutinin..can the treatment be shifted from one method to another after 1 chemo? What foods should be usually restricted for ibritunin?
First chemo was a combination of
Rituximab
and endoxon.Now he has suggested to go on oral.chemo..ibrutinin..can the treatment be shifted from one method to another after 1 chemo? What foods should be usually restricted for ibritunin?
sweetromeet
in
CLL Support
4 years ago
Wishes
For a very odd Easter I wish you all lots of health and successes ! Seven month after FCR I feel very well and healthy and wish you all the same ! Anna
For a very odd Easter I wish you all lots of health and successes ! Seven month after FCR I feel very well and healthy and wish you all the same ! Anna
Ankakoza
in
CLL Support
4 years ago
Neutropenia
I have a date for
Rituximab
infusion in 3 weeks but I may not be able to have it. The only meds I am on are plaquenil and prednisone, and I am beginning to flare.
I have a date for
Rituximab
infusion in 3 weeks but I may not be able to have it. The only meds I am on are plaquenil and prednisone, and I am beginning to flare.
UCTD
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Shield or not to shield - confusing advice
I was diagnosed with CLL in Spring of 2011 and undertook a variation of the FCR chemo treatment on the ARCTIC clinical trial in the Autumn. Several years ago I was advised that I was in full remission and see my consultant every 4-6 months. I have not received a letter or text from the NHS advising
I was diagnosed with CLL in Spring of 2011 and undertook a variation of the FCR chemo treatment on the ARCTIC clinical trial in the Autumn. Several years ago I was advised that I was in full remission and see my consultant every 4-6 months. I have not received a letter or text from the NHS advising
Hidden
in
Positive Wellbeing During Self-Isolation
4 years ago
NEW TREATMENT: RITUXIMAB AND BENDAMUSTINE
Rituximab
and Bendamustine chemotherapy combination. Has anybody had any experience using these drugs together? Many thanks,
Rituximab
and Bendamustine chemotherapy combination. Has anybody had any experience using these drugs together? Many thanks,
pollyg2016
in
Non Hodgkin's Lymphoma Friends
4 years ago
Truxima (Rituximab) Advice please?
I had two
Rituximab
infusions in December, these were my 5th cycles.
I had two
Rituximab
infusions in December, these were my 5th cycles.
3LittleBirds2
in
NRAS
4 years ago
Advice for 1st Rituximab?
Hi all After having allergic reactions to the first 2 biologics they tried, I’m having my first
Rituximab
infusion on Monday. I really want this to go well so is there anything I should do/take/expect? Any advice at all would be gratefully received.
Hi all After having allergic reactions to the first 2 biologics they tried, I’m having my first
Rituximab
infusion on Monday. I really want this to go well so is there anything I should do/take/expect? Any advice at all would be gratefully received.
mhlmom
in
NRAS
4 years ago
ACCEPTED INTO LOXO-305 CLINICAL TRIAL
LOXO-305 TRIAL UPDATE TWO MONTHS IN Hey everyone, I started this trial on 2/02/2020 at Memorial Sloan Kettering in NJ. After being diagnosed in 2009 with CLL, I have been through 3 prior treatments, FCR, Ibrutinib and Venclaxta. I had a 5 1/2 year remission with FCR, 3 with Ibrutinib,and about 18
LOXO-305 TRIAL UPDATE TWO MONTHS IN Hey everyone, I started this trial on 2/02/2020 at Memorial Sloan Kettering in NJ. After being diagnosed in 2009 with CLL, I have been through 3 prior treatments, FCR, Ibrutinib and Venclaxta. I had a 5 1/2 year remission with FCR, 3 with Ibrutinib,and about 18
steve5441
in
CLL Support
4 years ago
Osteo causing RA problems?
Going to hospital on the 9th January for
rituximab
infusion (4th set). Because of this flare had steroid injection only worked for 10 days. So stiff and sore.
Going to hospital on the 9th January for
rituximab
infusion (4th set). Because of this flare had steroid injection only worked for 10 days. So stiff and sore.
28maggie11
in
NRAS
4 years ago
Rituximab infusion cont..
Thank you all so much for responding to me , with your own personal experience of
Rituximab
infusions ( it means so so much ) this is great news ; Many Thanks Again.
Thank you all so much for responding to me , with your own personal experience of
Rituximab
infusions ( it means so so much ) this is great news ; Many Thanks Again.
weymouth321
in
NRAS
4 years ago
Ineffective Rituximab Infusions Anyone ?
Baricitinib 4 mg ( last year - and now
Rituximab
infusions , first x2 session ( October and begin November 2019 ) neither having worked . Wish to know of anyone out there experience same / similar.
Baricitinib 4 mg ( last year - and now
Rituximab
infusions , first x2 session ( October and begin November 2019 ) neither having worked . Wish to know of anyone out there experience same / similar.
weymouth321
in
NRAS
4 years ago
Lymphocyte count after FCR
9 months after end of FCR and lymphocytes 0.50 Meaning immune system still weak So as from tomorrow self isolate Also now see anyone with the coronavirus . One thing is they always have a low lymphocyte count So if I got it my count could go more say 0.15 and alone how dangerous would that be ?
9 months after end of FCR and lymphocytes 0.50 Meaning immune system still weak So as from tomorrow self isolate Also now see anyone with the coronavirus . One thing is they always have a low lymphocyte count So if I got it my count could go more say 0.15 and alone how dangerous would that be ?
Jsk1950
in
CLL Support
4 years ago
Are we part of the vulnerable group.
Hi folks Given today’s announcement may be obvious but I’m 7 years post FCR and bloods good. Question, are we in the vulnerable group and should socially isolate for 12 weeks. Stated at press conference vulnerable with chronic conditions and mentioned leukaemia. Thanks
Hi folks Given today’s announcement may be obvious but I’m 7 years post FCR and bloods good. Question, are we in the vulnerable group and should socially isolate for 12 weeks. Stated at press conference vulnerable with chronic conditions and mentioned leukaemia. Thanks
Billys60
in
CLL Support
4 years ago
After FCR are we more vulnerable to CoVid 19?
Given that after FCR treatment we are more at risk of lung cancer, are we more susceptible to becoming very ill or dying if we catch Covid19? I worry because my lungs are so much more sensitive now. I finished FCR eighteen months ago and I start to cough if I am near an open fire. My lungs begin to ache
Given that after FCR treatment we are more at risk of lung cancer, are we more susceptible to becoming very ill or dying if we catch Covid19? I worry because my lungs are so much more sensitive now. I finished FCR eighteen months ago and I start to cough if I am near an open fire. My lungs begin to ache
Mandy56
in
CLL Support
4 years ago
Greetings of the season!
Combined with an initial course our
rituximab
, my WBC was back to normal within 6 weeks and everything else stabilized within another month of so. My latest checkup in March revealed nearly perfect numbers across the board.
Combined with an initial course our
rituximab
, my WBC was back to normal within 6 weeks and everything else stabilized within another month of so. My latest checkup in March revealed nearly perfect numbers across the board.
Jcalichi
in
CLL Support
4 years ago
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