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Fibro or B12 deficiency??
Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious anemia. I have been struggling lately with extreme fatigue, pins and needs, numbness in my arms, pain etc, worse then normal. I figured a Fibro
Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious anemia. I have been struggling lately with extreme fatigue, pins and needs, numbness in my arms, pain etc, worse then normal. I figured a Fibro
Blueoxo
in
Fibromyalgia Action UK
2 months ago
Unsure about increasing T3
Hi Everyone, I’ve had my appointment with my thyroid specialist today and she wants me to increase my T3 from 15mcg a day to 25mcg a day and keep levo at 100mcg. However I’m really hesitant to do this as last time I increased my T3 (see my original post below) I got my T4 to 6 and felt awful. Plus I
Hi Everyone, I’ve had my appointment with my thyroid specialist today and she wants me to increase my T3 from 15mcg a day to 25mcg a day and keep levo at 100mcg. However I’m really hesitant to do this as last time I increased my T3 (see my original post below) I got my T4 to 6 and felt awful. Plus I
Fallleaves
in
Thyroid UK
2 months ago
Help! Have I messed up
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
SpringerMom
in
Pernicious Anaemia Society
2 months ago
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Increased symptoms after injections.
I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not necessarily due to the P.A. So after 18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised by a consultant.
I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not necessarily due to the P.A. So after 18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised by a consultant.
Suesue246
in
Pernicious Anaemia Society
2 months ago
Advice before I see the endo
hi oracles I could really do with some advice as to what I should do next. I’m going to see my Endo next Tuesday and my TSH is under the range, she’s going to want to reduce my meds and I don’t know what I feel anymore. Here’s my last results from private tests from 2 weeks ago … TSH - 0.154 Range
hi oracles I could really do with some advice as to what I should do next. I’m going to see my Endo next Tuesday and my TSH is under the range, she’s going to want to reduce my meds and I don’t know what I feel anymore. Here’s my last results from private tests from 2 weeks ago … TSH - 0.154 Range
Fliplaar
in
Thyroid UK
2 months ago
Psoriasis, Vitamin D and Shea Butter
Hello! I wanted to share my recent success with plaque psoriasis. (Backstory alert - skip to last couple of paragraphs for "point"🙃) - I've had psoriasis for several years now. Started with guttate psoriasis about 7 years ago (though at the time, I thought it was just a rash/an allergic reaction).
Hello! I wanted to share my recent success with plaque psoriasis. (Backstory alert - skip to last couple of paragraphs for "point"🙃) - I've had psoriasis for several years now. Started with guttate psoriasis about 7 years ago (though at the time, I thought it was just a rash/an allergic reaction).
Raniasophea
in
Beyond Psoriasis
2 months ago
The ongoing battle to be well
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Hurtlocker
in
Thyroid UK
2 months ago
help please
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Windyway
in
Pernicious Anaemia Society
2 months ago
B12 Injection Side Effects
Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick and dizzy and my arms and legs hurt too. Is this normal? The nurse giving it said there shouldn’t be any side effects apart from a sore or red
Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick and dizzy and my arms and legs hurt too. Is this normal? The nurse giving it said there shouldn’t be any side effects apart from a sore or red
Hidden
in
Pernicious Anaemia Society
2 months ago
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections?
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections? Answered by Sebastian Denison, RPh https://youtu.be/jA1P9Jpf2_Y
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections? Answered by Sebastian Denison, RPh https://youtu.be/jA1P9Jpf2_Y
Shewulf
Administrator
in
LDN Research Trust
2 months ago
Uncooperative GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
Eulophia47
in
Pernicious Anaemia Society
2 months ago
anyone with AIT and Lichen Sclerosis?
hi there, does anyone on this wonderful forum also have Lichen Sclerosis? My Mum (85) is really suffering, she has followed all guidelines for 20+ years, had biopsies, used steroids as directed and special non soap washes. She isn’t diagnosed with AIT, but I inherited it from somewhere and she had
hi there, does anyone on this wonderful forum also have Lichen Sclerosis? My Mum (85) is really suffering, she has followed all guidelines for 20+ years, had biopsies, used steroids as directed and special non soap washes. She isn’t diagnosed with AIT, but I inherited it from somewhere and she had
Regenallotment
in
Thyroid UK
2 months ago
Advice please
Could I have some advice as to whether these Monitor My Health results are low even though they are in range. MMH were unable to test folate and haemoglobin due to error with sample. Thank you
Could I have some advice as to whether these Monitor My Health results are low even though they are in range. MMH were unable to test folate and haemoglobin due to error with sample. Thank you
Sailing14
in
Thyroid UK
2 months ago
BD microfine integral needle and syringe. 199 surplus to requirements.PM me if anyone wants them
Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back
Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back
Noelnoel
in
Pernicious Anaemia Society
2 months ago
Draft NICE B12?
Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false
Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false
RoseFlowerDew
in
Pernicious Anaemia Society
2 months ago
Winter Down Turn
I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light, less sun energy, lower outside ambivalent temperature and only 16 weeks of not under supplementing. It is also a factor I have learned to expect
I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light, less sun energy, lower outside ambivalent temperature and only 16 weeks of not under supplementing. It is also a factor I have learned to expect
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Long Covid, B12 and Iron Deficiency
From our friend Mixteca A long listen - so make a brew, or two! 👂 https://podcasts.apple.com/gb/podcast/tlc-sessions-living-with-long-covid/id1574768076?i=1000647589189
From our friend Mixteca A long listen - so make a brew, or two! 👂 https://podcasts.apple.com/gb/podcast/tlc-sessions-living-with-long-covid/id1574768076?i=1000647589189
Wwwdot
in
Pernicious Anaemia Society
2 months ago
Results
Opinions please gratefully received TSH. 0.13. (0.27- 4.2) Free T4. 16.8 ( 10 - 21) Folate 3.7 (1.5 - 20) B12. 324. ( 180 - 2000 )
Opinions please gratefully received TSH. 0.13. (0.27- 4.2) Free T4. 16.8 ( 10 - 21) Folate 3.7 (1.5 - 20) B12. 324. ( 180 - 2000 )
foamfollower
in
Thyroid UK
2 months ago
Fosteum Plus
My endocrinologist in Houston prescribed Fosteum Plus. It has 500mg of calcium with vitamin K and other important ingredients. Anyone taking it? You don’t hear much mentioned about it even though it’s been around several years.
My endocrinologist in Houston prescribed Fosteum Plus. It has 500mg of calcium with vitamin K and other important ingredients. Anyone taking it? You don’t hear much mentioned about it even though it’s been around several years.
intexasnloveit
in
Osteoporosis Support
2 months ago
B12 ??
Hi does anyone else have episodes of lightheadedness, reaching out for an object to miss it or keep dropping things. Also miss judging space, like walking into things. I have constant brain fog and fatigue . I have lucid dreaming it's not fun it's like having a tv on in my head 24/7 I am excusted all
Hi does anyone else have episodes of lightheadedness, reaching out for an object to miss it or keep dropping things. Also miss judging space, like walking into things. I have constant brain fog and fatigue . I have lucid dreaming it's not fun it's like having a tv on in my head 24/7 I am excusted all
LorraineQ
in
Pernicious Anaemia Society
2 months ago
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