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Advice needed please
I have had my vitamin levels tested by my Dr and tested my full thyroid panel through monitor my health, following on from advice provided here. Still feel I am losing the plot as symptoms continuing are: Swollen , scalloped white tongue Dry, ridged peeling nails Incredibly dry eyes requiring hourly
I have had my vitamin levels tested by my Dr and tested my full thyroid panel through monitor my health, following on from advice provided here. Still feel I am losing the plot as symptoms continuing are: Swollen , scalloped white tongue Dry, ridged peeling nails Incredibly dry eyes requiring hourly
Vorney
in
Thyroid UK
5 months ago
vit b12 Hashis
Hello, I’m still quite new to the group. History of hypothyroid 9 years. Less well controlled symptoms last 18+months. If I’m honest I’ve never felt the same since going through huge stress 5 years ago when my husband was having treatment for a serious illness right after I’d just had our second
Hello, I’m still quite new to the group. History of hypothyroid 9 years. Less well controlled symptoms last 18+months. If I’m honest I’ve never felt the same since going through huge stress 5 years ago when my husband was having treatment for a serious illness right after I’d just had our second
Vizslaaddict
in
Thyroid UK
5 months ago
Neuropathy in feet, stopping Cymbalta - try more natural?
I'd like to get your opinion if you have been on something like Cymbalta (Duloxetine) and came off to do more natural methods. I'd like to stop the Cymbalta that I've been using for years to help with the neuropathy in my feet and look at other way to see if I can control it vs using an SNRI. I've
I'd like to get your opinion if you have been on something like Cymbalta (Duloxetine) and came off to do more natural methods. I'd like to stop the Cymbalta that I've been using for years to help with the neuropathy in my feet and look at other way to see if I can control it vs using an SNRI. I've
Shomacco
in
Neuropathy Support
5 months ago
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Taking Blood Sample (Help)
I recently took a blood sample for Monitor My Health - just to get my vitamin D done . I made a complete mess of it - (I should have used the simple method of the drops of blood on the card using another company but completely forgot about it). Something happened my blood in the process and they
I recently took a blood sample for Monitor My Health - just to get my vitamin D done . I made a complete mess of it - (I should have used the simple method of the drops of blood on the card using another company but completely forgot about it). Something happened my blood in the process and they
Sunflower535
in
Thyroid UK
5 months ago
Medicheck Dr's notes suppressed TSH with low T4
MEDICHECK -
(7.45 am, pre-breakfast and no meds 24hr) CRP HS 1.430 mg/L (Range: < 3) Ferritin 168.00 ug/L (Range: 30 - 264) Folate - Serum 21.6 nmol/L (Range: > 7) Vitamin B12 - Active 124.0 pmol/L (Range: 37.5 - 188) Vitamin D 60.9 nmol/L (Range: 50 - 250) TSH X 0.050 mIU/L (Range
MEDICHECK -
(7.45 am, pre-breakfast and no meds 24hr) CRP HS 1.430 mg/L (Range: < 3) Ferritin 168.00 ug/L (Range: 30 - 264) Folate - Serum 21.6 nmol/L (Range: > 7) Vitamin B12 - Active 124.0 pmol/L (Range: 37.5 - 188) Vitamin D 60.9 nmol/L (Range: 50 - 250) TSH X 0.050 mIU/L (Range
66olives
in
Thyroid UK
5 months ago
How do I defeat extreme tiredness?
Waking up tired and most days feeling exhausted. My brilliant haematologist checked bloods and has given me an infusion of iron plus daily folic acid. But still tired. Is this a symptom of CLL and/or Avalabrutinib?
Waking up tired and most days feeling exhausted. My brilliant haematologist checked bloods and has given me an infusion of iron plus daily folic acid. But still tired. Is this a symptom of CLL and/or Avalabrutinib?
Nucleusman
in
CLL Support
5 months ago
Vitamin K2
Trying to find best vitamin K2 supplement. I can’t take calcium but lots of dairy and take D3 on its own daily. I take methotrexate, steroids and other meds so I don’t want the strongest K2 but one I can absorb without a problem. I have been on risedronate for two years but dexa scan had not improved
Trying to find best vitamin K2 supplement. I can’t take calcium but lots of dairy and take D3 on its own daily. I take methotrexate, steroids and other meds so I don’t want the strongest K2 but one I can absorb without a problem. I have been on risedronate for two years but dexa scan had not improved
5lupins
in
PMRGCAuk
5 months ago
Would I absorb B12 in tablet form if I had PA?
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
WitchingHour2point0
in
Pernicious Anaemia Society
8 days ago
iron tests
my iron blood tests results are as follows : Ferritin =73. ng/ml Folic acid =11.3 ng/ml Iron =113. ug/dl Do I need to take iron supplement. ? For aching/ restless legs at night. I will be grateful for recommendations
my iron blood tests results are as follows : Ferritin =73. ng/ml Folic acid =11.3 ng/ml Iron =113. ug/dl Do I need to take iron supplement. ? For aching/ restless legs at night. I will be grateful for recommendations
Tennis52
in
Restless Legs Syndrome
11 days ago
recurring illnesses
I’ve been trying to get stable on t3/4 combination, still a way to go as last results after increasing to 10 mcg liothyronine in 2 doses were the worst yet, t3 and t4 both at bottom of range, vitamin D draining away again despite supplements. I’ve increased levothyroxine back up to 75 ( I was advised
I’ve been trying to get stable on t3/4 combination, still a way to go as last results after increasing to 10 mcg liothyronine in 2 doses were the worst yet, t3 and t4 both at bottom of range, vitamin D draining away again despite supplements. I’ve increased levothyroxine back up to 75 ( I was advised
Mag999
in
Thyroid UK
5 months ago
Help please
Can anyone recommend a b12 specialist in the south of England? And can burning in the buttocks be a symptom of b12 deficiency?
Can anyone recommend a b12 specialist in the south of England? And can burning in the buttocks be a symptom of b12 deficiency?
Popcorn12345
in
Pernicious Anaemia Society
12 days ago
Why has my ferritin risen so quickly!?
So I got my yearly iron panel check, and my ferritin had dropped to 42! even though I eat iron rich foods and take vitamin C with meals! All my vitamin levels are now optimal I take an expensive powder form of probiotic by Biomel and the Rheal gut feel greens powder, all supporting my gut health and
So I got my yearly iron panel check, and my ferritin had dropped to 42! even though I eat iron rich foods and take vitamin C with meals! All my vitamin levels are now optimal I take an expensive powder form of probiotic by Biomel and the Rheal gut feel greens powder, all supporting my gut health and
ThyroidObsessed
in
Thyroid UK
13 days ago
Suppression of TSH but low T4/T3 levels whilst taking Levo/Lio Combo
A few years ago, my thyroid results were looking a lot better but NHS GP over the last 2 years has told me to reduce my dosage twice (because of the 'risks' of overtreatment). I'm now on 100mcg levothyroxine (75mcg supplied by GP and topped up by myself) and 25mcg liothyronine (self-sourced). I now don't
A few years ago, my thyroid results were looking a lot better but NHS GP over the last 2 years has told me to reduce my dosage twice (because of the 'risks' of overtreatment). I'm now on 100mcg levothyroxine (75mcg supplied by GP and topped up by myself) and 25mcg liothyronine (self-sourced). I now don't
Louise1610
in
Thyroid UK
4 months ago
Needles for B12 self injection
Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order B12 from but they do not supply the needles. Does anybody have a good supplier in Europe? I can't order from the UK as I now in France and there
Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order B12 from but they do not supply the needles. Does anybody have a good supplier in Europe? I can't order from the UK as I now in France and there
Mariemcdo
in
Pernicious Anaemia Society
5 months ago
Vitamin B1
I read that if you have RLS you might be short of vitamin B1. Has anyone knowledge of this.
I read that if you have RLS you might be short of vitamin B1. Has anyone knowledge of this.
Bridall
in
Restless Legs Syndrome
14 days ago
Vital Role of B12 and Folate
https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of methionine and one of the side effects of improper synthesis is depression and cognitive impairment. However, I want to emphasise that poor synthesis
https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of methionine and one of the side effects of improper synthesis is depression and cognitive impairment. However, I want to emphasise that poor synthesis
B12life
in
Pernicious Anaemia Society
5 months ago
hEDS and B12 comorbidity?
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
MindfulSquirrel
in
Pernicious Anaemia Society
5 months ago
Folate when SI?
Hi everyone, How much folate is recommended when injecting B12? The folate tablets I have are 400µg. Also, can anyone kindly comment on my sudden lip problems? I awoke 4 mornings ago to blistered lips, they were slightly worse the next morning. The blistering seems to have stopped but my lips are
Hi everyone, How much folate is recommended when injecting B12? The folate tablets I have are 400µg. Also, can anyone kindly comment on my sudden lip problems? I awoke 4 mornings ago to blistered lips, they were slightly worse the next morning. The blistering seems to have stopped but my lips are
J972
in
Pernicious Anaemia Society
5 months ago
is this a sign my meds are struggling or just how it is now?
Sorry for the long message but would appreciate knowing if this is typical or if I am being a little dramatic and unrealistic. diagnosed with RA nearly 2 years ago. Took a while but pretty much back to normal after moving to injecting 20mg MTX, 200g hydroxy and folic acid 6 days a week. Took just over
Sorry for the long message but would appreciate knowing if this is typical or if I am being a little dramatic and unrealistic. diagnosed with RA nearly 2 years ago. Took a while but pretty much back to normal after moving to injecting 20mg MTX, 200g hydroxy and folic acid 6 days a week. Took just over
Newbie73
in
NRAS
5 months ago
Getting myself in a hell of a muddle!
I have been on levothyroxine for 10+ years and never had a problem (well not since the early years) - I have been getting along nicely on a dose of 75 for the last few years. I was at the GP's a few weeks ago about something not related to my thyroid and happened to mention in the conversation that
I have been on levothyroxine for 10+ years and never had a problem (well not since the early years) - I have been getting along nicely on a dose of 75 for the last few years. I was at the GP's a few weeks ago about something not related to my thyroid and happened to mention in the conversation that
Loobs39
in
Thyroid UK
5 months ago
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