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Sunlight relief
For the last 4 days I have had no PMR pain or stiffness. Why? I am on St Kitts, where there is abundant sunshine. I'm probably making tons of vitamin D. Although since my PMR commenced in Dec 2022 I have taken a vitamin D pill daily, I can't trace any relief to that. As for "perfect" days, I've had
For the last 4 days I have had no PMR pain or stiffness. Why? I am on St Kitts, where there is abundant sunshine. I'm probably making tons of vitamin D. Although since my PMR commenced in Dec 2022 I have taken a vitamin D pill daily, I can't trace any relief to that. As for "perfect" days, I've had
papadapadoo
in
PMRGCAuk
5 months ago
Marie
My doctors have just done B12 and folic acid blood tests, I was diagnosed in 2002 with pernicious anaemia. I have just been told that both results are high and that a doctor may want to speak to me. There is rumours that the surgery are trying to cut back on prescription and I am worried they will stop
My doctors have just done B12 and folic acid blood tests, I was diagnosed in 2002 with pernicious anaemia. I have just been told that both results are high and that a doctor may want to speak to me. There is rumours that the surgery are trying to cut back on prescription and I am worried they will stop
Royalblue1
in
Pernicious Anaemia Society
5 months ago
Osteoporosis - treatment or not ??
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
mullochs
in
PMRGCAuk
5 months ago
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advice on blood results please
Hi Thanks for reading my post I hope you can help me . I am 57 year old woman diagnosed with Hashimos November 2022. At the time I had hyper symptoms HR 120 at rest exhausted weak muscles aching and feeling hot . Doctor insisted it was the menopause , I had already been on HRT for 4 years and had been
Hi Thanks for reading my post I hope you can help me . I am 57 year old woman diagnosed with Hashimos November 2022. At the time I had hyper symptoms HR 120 at rest exhausted weak muscles aching and feeling hot . Doctor insisted it was the menopause , I had already been on HRT for 4 years and had been
Poppygriff691
in
Thyroid UK
5 months ago
IV Zoledronic acid.
unfortunately time to move to Zoledronic acic fractures happening. Tried calcium and Vit D weight bearing exercises. Has anybody got any advice before I travel down the road of no return!!! thank you in advance.
unfortunately time to move to Zoledronic acic fractures happening. Tried calcium and Vit D weight bearing exercises. Has anybody got any advice before I travel down the road of no return!!! thank you in advance.
Lion321
in
Advanced Prostate Cancer
5 months ago
New Year New Bloods! It's time to titrate! Please help!
I made it to 8 weeks. This feels like a long post - I have both Thyroid and Iron issues to work out... I tried to make it shorter, but did not succeed, so here is a 5 bullet summary first.
TL;DR: Got results I didn't quite expect:
- I only changed a wee bit... + 12.5 on the levo
Changed
I made it to 8 weeks. This feels like a long post - I have both Thyroid and Iron issues to work out... I tried to make it shorter, but did not succeed, so here is a 5 bullet summary first.
TL;DR: Got results I didn't quite expect:
- I only changed a wee bit... + 12.5 on the levo
Changed
FallingInReverse
in
Thyroid UK
5 months ago
How long before vitamin B tablets out of system to take blood tests
My son had some blood test taken privately. Was supposed to be Active B12 and MMR folliwng borderline serum B12. The results came back middle of the range and I started him on some vitmain b tablets that include B12 to see if that helps. Anyway. I have just found out that they did total B12 test not
My son had some blood test taken privately. Was supposed to be Active B12 and MMR folliwng borderline serum B12. The results came back middle of the range and I started him on some vitmain b tablets that include B12 to see if that helps. Anyway. I have just found out that they did total B12 test not
Hectorsmum2
in
Pernicious Anaemia Society
1 month ago
Is 3 times enough? And inherit.
I've been si M,W & F for couple months now and beginning to think it's not enough. Not sure if this happens to anyone else, but I get very tired, and weak until I eat something. It's a night and day difference after I eat, then a few hours later that all repeats. Do you all think I may need to increase
I've been si M,W & F for couple months now and beginning to think it's not enough. Not sure if this happens to anyone else, but I get very tired, and weak until I eat something. It's a night and day difference after I eat, then a few hours later that all repeats. Do you all think I may need to increase
MrJustatip
in
Pernicious Anaemia Society
5 months ago
Latest results and problems raising dose
TL;DR - should I continue to try increasing my NDT dose slightly (from 1.75 to 2 grains per day, split dosing) based on the test results below, though I am getting some symptoms after increase (mild anxiety, hot flushes and sweats, and palpitations)? Further info/details below the results Inflammation
TL;DR - should I continue to try increasing my NDT dose slightly (from 1.75 to 2 grains per day, split dosing) based on the test results below, though I am getting some symptoms after increase (mild anxiety, hot flushes and sweats, and palpitations)? Further info/details below the results Inflammation
FoggyThinker
in
Thyroid UK
5 months ago
How to nurture bone health
Hello Community, Our bones are the structural architecture that connect us to the earth element. This mineralised matrix of collagen and calcium phosphate - magnesium an important bone nutrient too, helping to keep calcium in our bones. Osteocytes, osteoblasts and osteoclasts are bone cells. The activity
Hello Community, Our bones are the structural architecture that connect us to the earth element. This mineralised matrix of collagen and calcium phosphate - magnesium an important bone nutrient too, helping to keep calcium in our bones. Osteocytes, osteoblasts and osteoclasts are bone cells. The activity
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
5 months ago
Test results - please advise
Hi everyone, Can I please ask your thoughts on my last test results? TSH: 2.77 mU/l (Range 0.35 - 5.5) 46.99% FT4: 9 pmol/l (Range 9 - 23) 0.00% FT3: 4.7 pmol/l (Range 3.5 - 6.5) 40.00% Vitamin D is still at 87 nmol/L (50nmol/L - sufficiency) , while on
Hi everyone, Can I please ask your thoughts on my last test results? TSH: 2.77 mU/l (Range 0.35 - 5.5) 46.99% FT4: 9 pmol/l (Range 9 - 23) 0.00% FT3: 4.7 pmol/l (Range 3.5 - 6.5) 40.00% Vitamin D is still at 87 nmol/L (50nmol/L - sufficiency) , while on
Dandelions
in
Thyroid UK
5 months ago
Help with b12 deficiency
I have neurofibromatosis 1 and now I have low b12 my nerves help just wondering if there is something can help
I have neurofibromatosis 1 and now I have low b12 my nerves help just wondering if there is something can help
Vegan10
in
Changing Faces
5 months ago
Iron Levels
79yo male with classic tale of RLS. Started at 17yo. Progressing over the years. Augmentation last Christmas on Pramipexole and a hell of a time transitioning to gabapentin. Unfortunately though I could not stop the attacks even on high doses and taking it as advised by Sue Johnson. Helpful doc allowed
79yo male with classic tale of RLS. Started at 17yo. Progressing over the years. Augmentation last Christmas on Pramipexole and a hell of a time transitioning to gabapentin. Unfortunately though I could not stop the attacks even on high doses and taking it as advised by Sue Johnson. Helpful doc allowed
JOBAN1uk
in
Restless Legs Syndrome
5 months ago
thyroid?cortisol?
hello everyone , I’m writing from France, where information about thyroid/adrenals correlation are quite inexistants , as well as doctors aware of. One year ago I’ve been diagnostics of secondary hypothyroidism (TSH 0,6 FT4 7,9 range 9,2-17) FT3 2,5 range 2-4,4). At the ecography my gland is small
hello everyone , I’m writing from France, where information about thyroid/adrenals correlation are quite inexistants , as well as doctors aware of. One year ago I’ve been diagnostics of secondary hypothyroidism (TSH 0,6 FT4 7,9 range 9,2-17) FT3 2,5 range 2-4,4). At the ecography my gland is small
Ir18
in
Thyroid UK
5 months ago
Hello and happy new year everyone!! Aching legs when I walk more then 50 yards (in a nutshell)!!
Hello All, It's been ages since I wrote a post. I have been relatively OK for a while and then went down hill middle of December with my annual COPD freakout chest infection - heavy duty antibiotics sorted that out but of course, as I have discovered, "old age don't come alone". I am 70 now and although
Hello All, It's been ages since I wrote a post. I have been relatively OK for a while and then went down hill middle of December with my annual COPD freakout chest infection - heavy duty antibiotics sorted that out but of course, as I have discovered, "old age don't come alone". I am 70 now and although
sheenah
in
Thyroid UK
5 months ago
CT scan instead of gastroscopy / colonoscopy with all PA tests normal
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
Applethorpe
in
Pernicious Anaemia Society
5 months ago
Non-Stimulant Medication with Heart condition
Hi all, I'm wondering if you can help me. I am diagnosed with Adult ADHD, but due to minor Congenital Heart Disease, the doctors are not happy to prescribe stimulant meds, which I understand. I was on Ritalin up until the age of 16, but when I became an adult and have a heart condition, the doctors
Hi all, I'm wondering if you can help me. I am diagnosed with Adult ADHD, but due to minor Congenital Heart Disease, the doctors are not happy to prescribe stimulant meds, which I understand. I was on Ritalin up until the age of 16, but when I became an adult and have a heart condition, the doctors
Wight1210
in
CHADD's Adult ADHD Support
1 year ago
Tablets v Injections
Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets. Is anyone else on these ? I assumed from what I had read that injections were the primary option. Thanks
Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets. Is anyone else on these ? I assumed from what I had read that injections were the primary option. Thanks
Redmusic
in
Pernicious Anaemia Society
5 months ago
Low Folate
Hello, I was recently told I have low folic acid. I just wondered if anyone has experienced similar symptoms to mine. I have been given 5mg folate for 4 months and told to take over the counter folic acid forever once the course is completed. The main symptom is palpitations and constantly aware of
Hello, I was recently told I have low folic acid. I just wondered if anyone has experienced similar symptoms to mine. I have been given 5mg folate for 4 months and told to take over the counter folic acid forever once the course is completed. The main symptom is palpitations and constantly aware of
Atheo82
in
Pernicious Anaemia Society
5 months ago
TSAT low but Ferritin fine/maybe high
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
b1interest
in
Restless Legs Syndrome
2 months ago
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