I have had my vitamin levels tested by my Dr and tested my full thyroid panel through monitor my health, following on from advice provided here.
Still feel I am losing the plot as symptoms continuing are:
Swollen , scalloped white tongue
Dry, ridged peeling nails
Incredibly dry eyes requiring hourly eye drops after seeing my optician which are causing blurred vision
Swollen fingers
Dry mouth
Dry skin
Brain fog
Aching joints
My test results are all normal according to my Dr, has referred me to a specialist but apparently they are refusing to see people?! Suggested testosterone to take alongside my HRT, then incorrectly informed me I could buy it from the chemist 🤦♀️have another appointment this week to discuss.
Here are my results, please can I have advice on supplements as fed up of feeling rubbish:
Magnesium 0.77 mmol/L
Serum TSH 1.58 miu/L
Vit D 61 nmol/L
B12 78 pmol/L
Serum ferritin 43 ug/L
Serum folate 3.9 ug/L
Private test last monday:
TSH 1.23mu/L
Thyroxine FT4 16.9 pmol/L
Triodothyronine FT3 4.2 pmol/L
Thankyou in advance
Written by
Vorney
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I weigh approximately 14 stone (heaviest I have ever been) I eat clean, do intermittent fasting, and nothing I do enables me to lose weight) and am on a dose of 100 micrograms of levo since November, previously on 50
Folate is very low so a good B complex like Thorne Basic B or Igennus Super B will sort this (and top up your B12 which isn't too bad)
Ferritin is on the low side so adding in more leafy greens and chicken liver pate
Magnesium could do with a boost, there are different forms so often a complex is a good option... soaking in an epsom salts bath is a joy 🤗healthunlocked.com/thyroidu...
Free T4 (fT4) 16.9 pmol/L (12 - 22) 49.0%
Free T3 (fT3) 4.2 pmol/L (3.1 - 6.8) 29.7%
T4:T3 Ratio 4.024
As a rough guide your weight in kg x 1.6 suggests a dose of around 140mcg so I'd certainly be asking for the next increase of 25mcg, I wouldn't beat yourself up about losing weight whilst under replaced as it's counter productive
you don’t need separate biotin as well as vitamin B complex
Vitamin B complex has high dose biotin in it
Do you always get Teva
Are you lactose intolerant
Many people find Levothyroxine brands are not interchangeable.
Most easily available (and often most easily tolerated) are Mercury Pharma or Accord
Mercury Pharma make 25mcg, 50mcg and 100mcg tablets
Mercury Pharma also boxed as Eltroxin. Both often listed by company name on pharmacy database - Advanz
Accord only make 50mcg and 100mcg tablets. Accord is also boxed as Almus via Boots,
Wockhardt is very well tolerated, but only available in 25mcg tablets. Some people remain on Wockhardt, taking their daily dose as a number of tablets
Lactose free brands - currently Teva or Vencamil only
Teva makes 25mcg, 50mcg, 75mcg and 100mcg
Many patients do NOT get on well with Teva brand of Levothyroxine.
Teva is lactose free.But Teva contains mannitol as a filler instead of lactose, which seems to be possible cause of problems. Mannitol seems to upset many people, it changes gut biome
Teva is the only brand that makes 75mcg tablet.
So if avoiding Teva for 75mcg dose ask for 25mcg to add to 50mcg or just extra 50mcg tablets to cut in half
But for some people (usually if lactose intolerant, Teva is by far the best option)
Aristo (currently 100mcg only) is lactose free and mannitol free.
If a patient reports persistent symptoms when switching between different levothyroxine tablet formulations, consider consistently prescribing a specific product known to be well tolerated by the patient.
Physicians should: 1) alert patients that preparations may be switched at the pharmacy; 2) encourage patients to ask to remain on the same preparation at every pharmacy refill; and 3) make sure patients understand the need to have their TSH retested and the potential for dosing readjusted every time their LT4 preparation is switched (18).
Thankyou. I am not lactose intolerant, have a telephone appointment with the dr on Thursday as dr had also suggested testosterone to take alongside hrt to see if that helped. Incorrectly said I could purchase it!!
So ask for increase in levo by 25 and to have a different brand name and start vitamins excluding biotin when they arrive 🤞
Had my appointment, I could cry?! Dr would not listen, spoke over me. Reeled off all my symptoms, to be told will you are perimenopausal???? And there can be a crossover in symptoms.
Tried to say but I am on HRT, levo and STILL have all these symptoms which are affecting my day to day life. Then she said endochronology have come back and said they don’t need to see me as my levels are normal.
I feel completely defeated, that’s the 3rd doctor in just a few weeks who has refused to listen
So you need to go over GP head to see thyroid specialist
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations
So managed to speak to my dr, they had tested for antibodies which in his words “were through the roof”, he said no wonder I have been feeling so rubbish with so many symptoms (my voice has become hoarse the last week too)so, definitely Hashimotos.
(Please add that to your profile)
Have you had coeliac disease blood test done yet
Are you now on strictly gluten free diet and/or dairy free diet
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first as per NICE guidelines
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
which brand of levothyroxine are you currently taking
Levothyroxine is an extremely fussy hormone and should always be taken on an empty stomach and then nothing apart from water for at least an hour after
Many people take Levothyroxine soon after waking, but it may be more convenient and perhaps more effective taken at bedtime
No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.
Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away
(Time gap doesn't apply to Vitamin D mouth spray)
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Guidelines on dose by weight suggests you need dose increase
Can you see GP who increased your Levo last time
14 stone = 89kilo
89kg x 1.6mcg Levo = 140mcg as likely daily dose levothyroxine
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