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Experiences with
Richter's syndrome
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Surgery
I have had parkinsons for 5 years and need a hip replacement, I fear how the anesthesia will affect my symptons. I have an appointment with a new neurologist, but it's not until the end of March. My surgeon can only tell me that it's my decision,
I have had parkinsons for 5 years and need a hip replacement, I fear how the anesthesia will affect my symptons. I have an appointment with a new neurologist, but it's not until the end of March. My surgeon can only tell me that it's my decision,
davissw
in
Cure Parkinson's
1 year ago
Catastrophic APS
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Lind8
in
Hughes Syndrome APS Forum
1 year ago
Caffeine / pregabalin / conflicting advice
I am under Professor Walker at Queen Square, a specialist for RLS. I am on Pregabalin (300mg before bedtime). But also on Citalopram for HRT, which he said should be switched to Bupropion as it worsens RLS. Unfortunately he did not give an amount, so my GP had to phone the "hot line" to a bank of
I am under Professor Walker at Queen Square, a specialist for RLS. I am on Pregabalin (300mg before bedtime). But also on Citalopram for HRT, which he said should be switched to Bupropion as it worsens RLS. Unfortunately he did not give an amount, so my GP had to phone the "hot line" to a bank of
67Waterman
in
Restless Legs Syndrome
1 year ago
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Hell: Weaning off pramipexole
I need your help: I am on my transiation from pramipexole to Gabapentin. I'm now at 300mg gabapentin at 6pm and 600mg gabapentin at 10pm. My maximum dose of prami was 0.125. I am almost off it. Every couple of days (first: weeks) I am reducing the dose which was not easy because I can't divide the tablet
I need your help: I am on my transiation from pramipexole to Gabapentin. I'm now at 300mg gabapentin at 6pm and 600mg gabapentin at 10pm. My maximum dose of prami was 0.125. I am almost off it. Every couple of days (first: weeks) I am reducing the dose which was not easy because I can't divide the tablet
Happyfriday123
in
Restless Legs Syndrome
1 year ago
Opioids
Good morning one & all I am, as you know, now on 2,100 gabapentin taken in divided doses in the evenings to no avail. Today I spoke to my GP and to my amazement he is happy to start me on low dose oxycodone (to take at night). Thank you so much Sue & Jools for suggesting I sent him all the articles
Good morning one & all I am, as you know, now on 2,100 gabapentin taken in divided doses in the evenings to no avail. Today I spoke to my GP and to my amazement he is happy to start me on low dose oxycodone (to take at night). Thank you so much Sue & Jools for suggesting I sent him all the articles
Simkin
in
Restless Legs Syndrome
1 year ago
any experience with vitex / agnus castus / herbs? Help!
I’m in a real panic. I took the Holland and Barrett vitex/Agnus castus supplement for about a week in December (at a high dose). I immediately experienced sore boobs and my period came dramatically a week early. The two cycles after this i have not ovulated but had a period. As I’m TTC this is the
I’m in a real panic. I took the Holland and Barrett vitex/Agnus castus supplement for about a week in December (at a high dose). I immediately experienced sore boobs and my period came dramatically a week early. The two cycles after this i have not ovulated but had a period. As I’m TTC this is the
CarlottaD27
in
Fertility Network UK
1 year ago
Trisomy 22 - POC result. Anybody been in same boat but eventually succeeded? Plz share
Hi ladies So my 4th MC POC was tested and result came back with trisomy 22. No ivf yet. My heart aches to read that it was defective. Good stories always make me feel positive and give me belief that I can carry on. Has anybody in this circle had same issue but eventually succeeded. Did you do
Hi ladies So my 4th MC POC was tested and result came back with trisomy 22. No ivf yet. My heart aches to read that it was defective. Good stories always make me feel positive and give me belief that I can carry on. Has anybody in this circle had same issue but eventually succeeded. Did you do
Preety1983
in
Fertility Network UK
1 year ago
Augmentation
I have been taking 0.26mg of Pramapexole plus 100mg Tramadol for around 8 years. This is my second bout of Pramapexole, first time around after a good few years I augmented, had a break then started again. It really has been a good drug for me but of course I am paying the price again. My question is
I have been taking 0.26mg of Pramapexole plus 100mg Tramadol for around 8 years. This is my second bout of Pramapexole, first time around after a good few years I augmented, had a break then started again. It really has been a good drug for me but of course I am paying the price again. My question is
keiralee
in
Restless Legs Syndrome
1 year ago
Mild Sjogrens? Is that a thing?
I've googled it and I still have no idea. Lots of cross over symptoms with thyroid but I've started pondering on my dry eyes and mouth. Neither are dry to the point of pain but my husband has noticed I've developed an eye 'tic'. I'm sort of rolling my eyes and opening my eyes wide; I've realised
I've googled it and I still have no idea. Lots of cross over symptoms with thyroid but I've started pondering on my dry eyes and mouth. Neither are dry to the point of pain but my husband has noticed I've developed an eye 'tic'. I'm sort of rolling my eyes and opening my eyes wide; I've realised
Hidden
in
Thyroid UK
1 year ago
Glycine
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
RCHD
in
Restless Legs Syndrome
1 year ago
Anovulatory medicated FET success rates
Hello ivf warriors, I am having doubts before our FET. I am currently not ovulating (still breastfeeding my ivf double rainbow). Clinic is happy to induce ovulation by medication for the purposes of the transfer. I am having doubts whether there could be less chance of success given my body has not returned
Hello ivf warriors, I am having doubts before our FET. I am currently not ovulating (still breastfeeding my ivf double rainbow). Clinic is happy to induce ovulation by medication for the purposes of the transfer. I am having doubts whether there could be less chance of success given my body has not returned
pink_lemon
in
Fertility Network UK
1 year ago
My experience with Ropinirole
Hi All I wanted to let people know of my experience with RLS, what I thought was augmentation, changing medications and seeing a Consultant. So it all started when the 0.5mg Ropinirole I was on did not have the same effect. Doing my own research I considered that augmentation was happening. When
Hi All I wanted to let people know of my experience with RLS, what I thought was augmentation, changing medications and seeing a Consultant. So it all started when the 0.5mg Ropinirole I was on did not have the same effect. Doing my own research I considered that augmentation was happening. When
SimonMorriss
in
Restless Legs Syndrome
1 year ago
Richters Syndrome
My husband was just diagnosed with
Richters
Syndrome
. Non-hodgkins. Anyone have any success stores? I’m looking for any information. Thank you.
My husband was just diagnosed with
Richters
Syndrome
. Non-hodgkins. Anyone have any success stores? I’m looking for any information. Thank you.
Deserthope
in
CLL Support
2 years ago
Pain control with PLMD
I take 100 mg Lyrica for PLMD, the lowest possible dosage as I never have been able to shake the daytime sedation. Now I have some kind of pinched nerve that has been causing chronic pain. Tylenol is not sufficient (I am going to try a lidocaine patch today for the first time and hope that will help
I take 100 mg Lyrica for PLMD, the lowest possible dosage as I never have been able to shake the daytime sedation. Now I have some kind of pinched nerve that has been causing chronic pain. Tylenol is not sufficient (I am going to try a lidocaine patch today for the first time and hope that will help
wantokporo
in
Restless Legs Syndrome
1 year ago
Dad admitted to ICU with Sepsis on 31/12/22
my dad was admitted to the ICU on New Year’s Eve, he’s had pneumonia, strep a and sepsis, he’s currently got the Trachi and is on the kidney filter machine. The doctors are saying that they need to sedate him 100% now so he can get the rest he needs as everything is failing on him. They’ve talked about
my dad was admitted to the ICU on New Year’s Eve, he’s had pneumonia, strep a and sepsis, he’s currently got the Trachi and is on the kidney filter machine. The doctors are saying that they need to sedate him 100% now so he can get the rest he needs as everything is failing on him. They’ve talked about
Omwils
in
ICUsteps
1 year ago
sensitive post about early loss
Hello all I had been elated that after our third frozen transfer I had a positive pregnancy result and a heart beat at 7 weeks. At an early reassurance scan this wknd no heart beat was found. I should be 11w5days but foetus measured 10weeks and no heartbeat. They’ve booked me an appointment with
Hello all I had been elated that after our third frozen transfer I had a positive pregnancy result and a heart beat at 7 weeks. At an early reassurance scan this wknd no heart beat was found. I should be 11w5days but foetus measured 10weeks and no heartbeat. They’ve booked me an appointment with
ShelleyBalders
in
Fertility Network UK
1 year ago
Magnesium salts and RLS: malate, glycinate or citrate
Just following up on a recent post recommending magnesium malate for RLS, quoting recommendations made by Californian company Pure Biogenics in promoting their RLS supplement Seratame. Looking into this, experiments on rats suggested that malate may be the most bio-available form of magnesium; there
Just following up on a recent post recommending magnesium malate for RLS, quoting recommendations made by Californian company Pure Biogenics in promoting their RLS supplement Seratame. Looking into this, experiments on rats suggested that malate may be the most bio-available form of magnesium; there
ChrisColumbus
in
Restless Legs Syndrome
1 year ago
blood test results
blood test on Monday . These are some of the results SCR 8.3 no further action required. ESR 2 ditto above. Both outside references range Platelet count 463 as above NFA Basophil 0.17 NFA ORR Can you tell me what they mean please
blood test on Monday . These are some of the results SCR 8.3 no further action required. ESR 2 ditto above. Both outside references range Platelet count 463 as above NFA Basophil 0.17 NFA ORR Can you tell me what they mean please
Suffererc
in
PMRGCAuk
1 year ago
Oxycodone not working well
I have been alternating between Tramadol and Oxycodone for awhile now. I do pretty well on the Tramadol but after a month or so,, sometimes sooner, it isn’t as effective so I switch off to oxycodone. I don’t do near as well on the oxy and am wondering if it’s a dosage issue, a timing issue, or maybe
I have been alternating between Tramadol and Oxycodone for awhile now. I do pretty well on the Tramadol but after a month or so,, sometimes sooner, it isn’t as effective so I switch off to oxycodone. I don’t do near as well on the oxy and am wondering if it’s a dosage issue, a timing issue, or maybe
SleeplessinOR
in
Restless Legs Syndrome
1 year ago
Using Lactulose long term
Does anyone know if it is safe to use Lactulose long term? I have IBS-C and have tried all the other remedies such as kiwis, psyllium, prunes ,linseeds, chia seeds and I drink plenty of water but find they either don’t work or give me terrible griping pains. Although I’d prefer to take a natural product
Does anyone know if it is safe to use Lactulose long term? I have IBS-C and have tried all the other remedies such as kiwis, psyllium, prunes ,linseeds, chia seeds and I drink plenty of water but find they either don’t work or give me terrible griping pains. Although I’d prefer to take a natural product
Ella59
in
IBS Network
1 year ago
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