Saw my new rheumatologist last Thursday, and so far I am impressed.
Lupus unit were dismissive as my bloods are normal but she says I could be sero negative.
This was at my local hospital, which on the whole does not have a very good reputation, but I have found since covid that they have improved a lot.
She was interested in my bowel and stomach problems too, and seems to be joining up all the dots.
Sent me for bloods and x rays.
A couple of days later I received a double appointment for next month.
I am to go for an mri( hands) and then go upstairs to see her.
I also have a follow up appointment for next year.
She might do a lip biopsy at some point, and might start me on sulthaziene ( have I spelled that correctly?)
She has increased my hydroxychloroquine
Finally got a diagnosis of Antiphospholipid syndrome.
Excellent haematologist and Rheumatologist in Kent, Uk
NZ Rheumatologist
end of my tether
