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Cramp plus update
Hi everyone- just thought I would do an update on where I am at the moment. For the first time ever I am on my way down from 3mg to 2 and three quarter mg , never made it this far before without a flare. Very happy about that. I have also gradually stopped using Lansoprazole after 6.5 years. I went
Hi everyone- just thought I would do an update on where I am at the moment. For the first time ever I am on my way down from 3mg to 2 and three quarter mg , never made it this far before without a flare. Very happy about that. I have also gradually stopped using Lansoprazole after 6.5 years. I went
Purplegloss
in
PMRGCAuk
3 months ago
More on D3 supplementation (only if you're really into it)
This may be a bit boring, as well as off-topic; but I was curious; so I looked up a bit more on how much to supplement vitamin D, so as to get the benefits and still be on the safe side.
What's recommended?
In the U.S., the NIH (National Institutes of Health) advises "consumers" to aim for
This may be a bit boring, as well as off-topic; but I was curious; so I looked up a bit more on how much to supplement vitamin D, so as to get the benefits and still be on the safe side.
What's recommended?
In the U.S., the NIH (National Institutes of Health) advises "consumers" to aim for
UsableThought
in
Restless Legs Syndrome
3 months ago
Advice re levothyroxine dosage
HelloI would be very greatful for advice regarding my next move re Levothyroxine dosage. On 10 May 2024 began 100mcg levothyroxine after titrating up following blood tests and still experiencing symptoms since Jan 24. Did finger prick test on 20 June (test taken at 7.30 am, fasted and no levo 24 hours
HelloI would be very greatful for advice regarding my next move re Levothyroxine dosage. On 10 May 2024 began 100mcg levothyroxine after titrating up following blood tests and still experiencing symptoms since Jan 24. Did finger prick test on 20 June (test taken at 7.30 am, fasted and no levo 24 hours
pastashapes
in
Thyroid UK
3 months ago
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Just a quick update, Endo appointment 👿
went to Royal Liverpool Endo dept , was hoping to see the consultant who is on TUK Uk list. Unfortunately this did not happen, the person I saw was less than helpful, see I can be tactful, sometimes. Introduced herself as diabetes consultant and she lived up to that name. The first thing she said
went to Royal Liverpool Endo dept , was hoping to see the consultant who is on TUK Uk list. Unfortunately this did not happen, the person I saw was less than helpful, see I can be tactful, sometimes. Introduced herself as diabetes consultant and she lived up to that name. The first thing she said
Polo22
in
Thyroid UK
3 months ago
Hot flushes
Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes - mainly at night but yesterday evening had a horrible sweaty and ill feeling 30 mins. Very reminiscent of my early menopause days pre HRT. I have
Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes - mainly at night but yesterday evening had a horrible sweaty and ill feeling 30 mins. Very reminiscent of my early menopause days pre HRT. I have
NewPMR53
in
PMRGCAuk
3 months ago
Advice re calcium, K2 and vit D
Blood tests show normal levels of calcium, should I now take extra given the pred.? Also how much Vit D and K vit, reading through I have managed to get confused. Today decided not to take AA until I have a dexa scan, which many on here have advised. Iron and VitB12 low (recently gone pescatarian,
Blood tests show normal levels of calcium, should I now take extra given the pred.? Also how much Vit D and K vit, reading through I have managed to get confused. Today decided not to take AA until I have a dexa scan, which many on here have advised. Iron and VitB12 low (recently gone pescatarian,
Fatsiajaponica
in
PMRGCAuk
3 months ago
High blood pressure
As well as Tzc, I am taking 5mg pred, 10mg amitryptiline, naproxen, lanzoprazole, risendronate sodium, calcium and vit D. Could any of these be the culprit for high blood pressure rather than Tocilizumab injections?
As well as Tzc, I am taking 5mg pred, 10mg amitryptiline, naproxen, lanzoprazole, risendronate sodium, calcium and vit D. Could any of these be the culprit for high blood pressure rather than Tocilizumab injections?
AliDeJ
in
PMRGCAuk
3 months ago
osteopenia
I’m currently on 2.5. First diagnosed 2018. My dexa scan shows osteopenia, I guess it was inevitable. I am going gym regularly now and can manage an hour Pilates. Anyone got any diet tips, am taking vit D.
I’m currently on 2.5. First diagnosed 2018. My dexa scan shows osteopenia, I guess it was inevitable. I am going gym regularly now and can manage an hour Pilates. Anyone got any diet tips, am taking vit D.
Alazarin
in
PMRGCAuk
3 months ago
Vit D
Last weeks test 177 range 50-150 said to be abnormal. I remember some posts about newer thoughts on higher levels being better. Is this too high?
Last weeks test 177 range 50-150 said to be abnormal. I remember some posts about newer thoughts on higher levels being better. Is this too high?
annnsandell
in
Thyroid UK
3 months ago
Thyroid autoantibodies/TPO test results
I have primary hyperparathyroid disease and very low vit D. I'm waiting for a surgical referral, and I am waiting to have localisation scans. My thyroid TSH and T4 are within normal ranges, but this antibody test result is 68.7 (normal range is 0-9). Is this high or very high, please, and has anyone
I have primary hyperparathyroid disease and very low vit D. I'm waiting for a surgical referral, and I am waiting to have localisation scans. My thyroid TSH and T4 are within normal ranges, but this antibody test result is 68.7 (normal range is 0-9). Is this high or very high, please, and has anyone
Hidden
in
Thyroid UK
3 months ago
Advice please- should I increase T3 a little now, as advised by prescriber or do bloods first?
Looking for some advice. I’m a few weeks into an increase of levo, back up to 100mcg from 75mcg. I was advised by my prescriber to do this and then to increase my T3 v slowly to get to 20mcg from my current 10mcg. I take both meds together overnight and don’t split my T3. The increase in levo has made
Looking for some advice. I’m a few weeks into an increase of levo, back up to 100mcg from 75mcg. I was advised by my prescriber to do this and then to increase my T3 v slowly to get to 20mcg from my current 10mcg. I take both meds together overnight and don’t split my T3. The increase in levo has made
Slowrunner1208
in
Thyroid UK
3 months ago
Update on Labs - What is Going On? :-)
Labs done ~7AM - 24 hours after T4 and 12 hours after T3, having stopped biotin 4 days prior. My endo has been good about letting me have needed T3 after being deficient for over a decade with other doctors. I am not sure what to make of the labs since she upped my T3 back in December. I started dosage
Labs done ~7AM - 24 hours after T4 and 12 hours after T3, having stopped biotin 4 days prior. My endo has been good about letting me have needed T3 after being deficient for over a decade with other doctors. I am not sure what to make of the labs since she upped my T3 back in December. I started dosage
clethe
in
Thyroid UK
4 months ago
Aortic stenosis
Hi, I have heart disease and had a stent 2 years ago,I'm on a cocktail of medication.I had an echocardiogram recently that shows mild aortic stenosis and mild/ moderate aortic reguritation. This was a surprise to me as this has never been mentioned until now.Looking back at a CT Angiogram from 2019
Hi, I have heart disease and had a stent 2 years ago,I'm on a cocktail of medication.I had an echocardiogram recently that shows mild aortic stenosis and mild/ moderate aortic reguritation. This was a surprise to me as this has never been mentioned until now.Looking back at a CT Angiogram from 2019
LEMCON
in
British Heart Foundation
4 months ago
Hike in T-Score due to steroid use. Worrying.
Hi All, just yesterday I finally got results from my DEXA .scan which I had done on 3rd of April. My T Score was T-2.3 (osteopina). My last DEXA scan showed my T-Score as -1.7 and deemed to be ok. This is quite a hike and I'm quite upset by i seeing that T-2.5 is Osteoporosis. I am Prednisolone
Hi All, just yesterday I finally got results from my DEXA .scan which I had done on 3rd of April. My T Score was T-2.3 (osteopina). My last DEXA scan showed my T-Score as -1.7 and deemed to be ok. This is quite a hike and I'm quite upset by i seeing that T-2.5 is Osteoporosis. I am Prednisolone
lkcreedon
in
PMRGCAuk
4 months ago
Hypothyroidism help!
hello, I have not long found out I have hypothyroidism. T4 4.1 T3 1.5 TSH 87.1 along with Hashimotos and Vit D deficient. I’ve started on medication (50mg) and I feel so ill. Far worse than I did before. My biggest issue is feeling sick and not being able to manage my sugar levels. I feel like I’m having
hello, I have not long found out I have hypothyroidism. T4 4.1 T3 1.5 TSH 87.1 along with Hashimotos and Vit D deficient. I’ve started on medication (50mg) and I feel so ill. Far worse than I did before. My biggest issue is feeling sick and not being able to manage my sugar levels. I feel like I’m having
WallyOct1
in
Thyroid UK
4 months ago
New guideline about testing for Vitamin D from Boston, USA
I thought this might be of interest to someone : Title : 'Don't Screen' for Vitamin D: New Endo Society Guideline Link : https://www.medscape.com/viewarticle/dont-screen-vitamin-d-new-endo-society-guideline-2024a1000aez Date Published : 03/06/2024 The article is short but it has 133 comments, some
I thought this might be of interest to someone : Title : 'Don't Screen' for Vitamin D: New Endo Society Guideline Link : https://www.medscape.com/viewarticle/dont-screen-vitamin-d-new-endo-society-guideline-2024a1000aez Date Published : 03/06/2024 The article is short but it has 133 comments, some
humanbean
in
Thyroid UK
4 months ago
Newly diagnosed with PMR and thank you for all the info here
Hi everyone, I received a firm-ish diagnosis of PMR this morning, after a 1-week trial on prednisone that greatly reduced my symptoms. I’d say I’m about 60 to 70% better compared to a week ago, if one can really assign numbers to such things. I still have a slight burning in my arms but not painful
Hi everyone, I received a firm-ish diagnosis of PMR this morning, after a 1-week trial on prednisone that greatly reduced my symptoms. I’d say I’m about 60 to 70% better compared to a week ago, if one can really assign numbers to such things. I still have a slight burning in my arms but not painful
Bunchberry
in
PMRGCAuk
4 months ago
vitamin d insufficient
can anyone advise what strength of Vitamin D l should start to take . Blood test came back at 39nmol insufficient. Normal range 50-150 Neolithic Thank you
can anyone advise what strength of Vitamin D l should start to take . Blood test came back at 39nmol insufficient. Normal range 50-150 Neolithic Thank you
Jack123456
in
Thyroid UK
4 months ago
Bloating and thyroxine hormone absorption
Would bloating of the digestive system after some liquid medication I have been given for an infection affect the T4 tablet absorbtion? I am also avoiding lactose and have noticed an improvement in the absorption but I have not managed gluten at the moment due to trying to recover. I know T4 is absorbed
Would bloating of the digestive system after some liquid medication I have been given for an infection affect the T4 tablet absorbtion? I am also avoiding lactose and have noticed an improvement in the absorption but I have not managed gluten at the moment due to trying to recover. I know T4 is absorbed
Sailing14
in
Thyroid UK
4 months ago
magnesium
I have been taking vit D and K2 for a while now and have been told that I should be taking magnesium to help with the absorption , only not sure which one to take, there’s so many . A friend has recommended magnesium bisglycinate , which I’ve not heard of. Also I’ve read that taking magnesium can interfere
I have been taking vit D and K2 for a while now and have been told that I should be taking magnesium to help with the absorption , only not sure which one to take, there’s so many . A friend has recommended magnesium bisglycinate , which I’ve not heard of. Also I’ve read that taking magnesium can interfere
Lucy1578
in
Bone Health and Osteoporosis UK
4 months ago
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