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So apparently I'm normal...but I'm definitely perplexed!
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Myoldcat
in
Pernicious Anaemia Society
3 months ago
live blood analysis …migraines
Around 7 years ago following blood tests for TATT and various other ailments, it was found that I had a low B12 (156) and GP agreed to prescribe the usual injections… loading dose and then 3 monthly. After lots of research on this site and through trial and error I finally settled on SE every 2 weeks
Around 7 years ago following blood tests for TATT and various other ailments, it was found that I had a low B12 (156) and GP agreed to prescribe the usual injections… loading dose and then 3 monthly. After lots of research on this site and through trial and error I finally settled on SE every 2 weeks
Countrylou
in
Pernicious Anaemia Society
3 months ago
Over heating
I have been suffering from overheating since I had covid in 2022, thought it was my HRT tablets but wasn't (doctor has since taken me off them, another story) and has gotten worse over the period from then until now. I start sweating no matter what the weather or temperature is day and night, I can
I have been suffering from overheating since I had covid in 2022, thought it was my HRT tablets but wasn't (doctor has since taken me off them, another story) and has gotten worse over the period from then until now. I start sweating no matter what the weather or temperature is day and night, I can
pramela
in
Pernicious Anaemia Society
3 months ago
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Just diagnosed with autoimmune atrophic gastritis with intestinal metaplasia
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
ReallyWondering
in
Pernicious Anaemia Society
3 months ago
zinc and magnesium dosage
hello! I have hashimotos after having postpartum thyroiditis with my three children. I take vit d, and iron and folic acid as my nhs blood tests showed I was deficient. My b12 was fine. I also take Selenium. I believe I should be taking magnesium and zinc too but wasn’t sure at what dosage and if
hello! I have hashimotos after having postpartum thyroiditis with my three children. I take vit d, and iron and folic acid as my nhs blood tests showed I was deficient. My b12 was fine. I also take Selenium. I believe I should be taking magnesium and zinc too but wasn’t sure at what dosage and if
HiRach
in
Thyroid UK
11 months ago
I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
3 months ago
so confused with different doctors and their differing advice
hello, I have underactive thyroid with high thyroid antibodies So I’ve posted here a couple of times over the last year. I feel like I’m getting no where. To cut a long story short, was given T3 to take each day as well as my levo 75 per day. This was back in November. I did see some signs of improvement
hello, I have underactive thyroid with high thyroid antibodies So I’ve posted here a couple of times over the last year. I feel like I’m getting no where. To cut a long story short, was given T3 to take each day as well as my levo 75 per day. This was back in November. I did see some signs of improvement
Sppr
in
Thyroid UK
1 year ago
Freezing Temperatures
Does anyone know if below freezing temperatures negatively affect ampules of B12? My latest order from Canada was left in the mailbox overnight and it was a very cold night.
Does anyone know if below freezing temperatures negatively affect ampules of B12? My latest order from Canada was left in the mailbox overnight and it was a very cold night.
MoKayD
in
Pernicious Anaemia Society
3 months ago
Help with blood test interpretation please?
Hello clever people, I wonder if someone could cast an eye on my latest blood results. Taken last week approx 9am with only water (no levothyroxine) - however I only stopped b vitamins including biotin 4 days prior to test. TSH 0.96 (0.27-4.2) FT3 2.9 (2-4.4) FT4 1.18 (0.93-1.7) I am currently
Hello clever people, I wonder if someone could cast an eye on my latest blood results. Taken last week approx 9am with only water (no levothyroxine) - however I only stopped b vitamins including biotin 4 days prior to test. TSH 0.96 (0.27-4.2) FT3 2.9 (2-4.4) FT4 1.18 (0.93-1.7) I am currently
florasmate
in
Thyroid UK
3 months ago
Endo blood test codes
Hi after my recent post about rising TSH I asked my nhs endo to do the reccommend thyroid blood tests. I have received the blood test form today but am not sure what some of the codes mean. I know he said he couldn’t do all of them so I wanted to work out which to pay for privately. I recognise
Hi after my recent post about rising TSH I asked my nhs endo to do the reccommend thyroid blood tests. I have received the blood test form today but am not sure what some of the codes mean. I know he said he couldn’t do all of them so I wanted to work out which to pay for privately. I recognise
sulamaye
in
Thyroid UK
4 months ago
Antibiotics and Increasing B12
Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) for an ear infection (caused by covid). I've noticed since I began ceftin (8 days ago) that I'm experiencing fingers and toes tingling. Do you know if antibiotics can cause b12 depletion? I take daily 3000 mgs sublingually
Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) for an ear infection (caused by covid). I've noticed since I began ceftin (8 days ago) that I'm experiencing fingers and toes tingling. Do you know if antibiotics can cause b12 depletion? I take daily 3000 mgs sublingually
LynetteinUSA
in
Pernicious Anaemia Society
4 months ago
You tube videos
Just an update from previous posts. I'm currently in the process of experimentation with my RLS. I have tried to avoid sugar / chocolate and MSG. The MSG comes from eating out ! My Thai girlfriend makes healthy meals for me each day with no added 'stuff' ! I can have nights which are bad for
Just an update from previous posts. I'm currently in the process of experimentation with my RLS. I have tried to avoid sugar / chocolate and MSG. The MSG comes from eating out ! My Thai girlfriend makes healthy meals for me each day with no added 'stuff' ! I can have nights which are bad for
Summer194
in
Restless Legs Syndrome
4 months ago
Advise on blood test results
Hi Everyone All advice gratefully received. Although I have had hypothyroidism for 20+ years plus many other health problems. I have always just believed everything my doctors told me and I was either told my results were normal and everything was ok or not normal and I needed medication. I have
Hi Everyone All advice gratefully received. Although I have had hypothyroidism for 20+ years plus many other health problems. I have always just believed everything my doctors told me and I was either told my results were normal and everything was ok or not normal and I needed medication. I have
AlphaWolf5195
in
Thyroid UK
4 months ago
Doubling Dose of Thyroxine?
Hi, I’d like your thoughts and opinions (I’ll make the decision 🙂) on doubling my thyroxine dose by taking two tablets per day. I’m on 50mg, been at that for years, but I still feel cold especially feet and hands. My TSH level is 3.28 and whilst it might be in range, I understand it should be more around
Hi, I’d like your thoughts and opinions (I’ll make the decision 🙂) on doubling my thyroxine dose by taking two tablets per day. I’m on 50mg, been at that for years, but I still feel cold especially feet and hands. My TSH level is 3.28 and whilst it might be in range, I understand it should be more around
B12again
in
Thyroid UK
4 months ago
Every other day injections UK
There have been references on here of the possibility of having B12 injections every other day when neurological symptoms existing (or persist) by can someone point me at a formal UK NHS or NICE source for this please? My neurologist has suggested monthly injections but my GP is still seeking advice
There have been references on here of the possibility of having B12 injections every other day when neurological symptoms existing (or persist) by can someone point me at a formal UK NHS or NICE source for this please? My neurologist has suggested monthly injections but my GP is still seeking advice
Pa234aw
in
Pernicious Anaemia Society
4 months ago
Doubling Dose For Hypothyroidism?
Hi, I know this is not the thyroid thread. I’m here because I’m B12 deficient, SI with hydroxocobalamim. But because it’s an autoimmune problem I sure a number of others are affected by hypothyroidism hence my desire to get thoughts and opinions (I’ll make the decision 🙂) on doubling my thyroxine dose
Hi, I know this is not the thyroid thread. I’m here because I’m B12 deficient, SI with hydroxocobalamim. But because it’s an autoimmune problem I sure a number of others are affected by hypothyroidism hence my desire to get thoughts and opinions (I’ll make the decision 🙂) on doubling my thyroxine dose
B12again
in
Pernicious Anaemia Society
4 months ago
USA Travel
I’m travelling to the US. Anything I should know about bringing in B12 SI supplies. And can I buy them there? Thanks.
I’m travelling to the US. Anything I should know about bringing in B12 SI supplies. And can I buy them there? Thanks.
MrsTuft
in
Pernicious Anaemia Society
4 months ago
Folic acid and B12 deficiency blood test
Hi I wonder if someone could give me some advice please I tried a vitamin B complex supplement for 3 days I was only able to take it for 3 days as it made me so ill this was about 6 days ago Then today my Rheumatologist decided to take some blood to check if I have a B12 or folate deficiency (I was actually
Hi I wonder if someone could give me some advice please I tried a vitamin B complex supplement for 3 days I was only able to take it for 3 days as it made me so ill this was about 6 days ago Then today my Rheumatologist decided to take some blood to check if I have a B12 or folate deficiency (I was actually
mully
in
Pernicious Anaemia Society
4 months ago
Full list of autoimmune tests I got
This has come up in various threads, so I figure it's worth posting. I got all these in search of severe then-unspecific neuro/immune troubles. There are always more tests, but this covers a good set. -- The ones with ** are esp common rheum tests : ------- PROTEIN ELECTROPHORESIS SERUM CK
This has come up in various threads, so I figure it's worth posting. I got all these in search of severe then-unspecific neuro/immune troubles. There are always more tests, but this covers a good set. -- The ones with ** are esp common rheum tests : ------- PROTEIN ELECTROPHORESIS SERUM CK
EPguy
in
MPN Voice
4 months ago
Feeling worse
Hi all Hope everyone's had a good start to 2024. I was started on levothyroxine 25mcg on 19th December, after being on it for 2 weeks I did feel a very slight improvement, it only lasted a couple days, and have been feeling worse since. The levo was teva brand. I have collected my new month prescription
Hi all Hope everyone's had a good start to 2024. I was started on levothyroxine 25mcg on 19th December, after being on it for 2 weeks I did feel a very slight improvement, it only lasted a couple days, and have been feeling worse since. The levo was teva brand. I have collected my new month prescription
Cabbages123
in
Thyroid UK
4 months ago
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