The analogy is about how when we measure “total” things - like Total T4 and total D (which is apparently the way we test D now) - it doesn’t account for the part of that thing that is not available/free, rather it’s attached to binding things (like globulins or whatever the equivalent is for D). Understanding thyroid binding globulins are what led to the preference for testing Free T4. They are saying at some point it might be helpful to test Free D in the same way.
Does the NHS only measure Free T4? I thought my total T4 had been measured before, but could be mistaken.
This advice seems very site specific.
When my sister worked in an NHS hospital where she a lot of Asian patients, and especially south Asian patients, well over 15 years ago, she said that she and colleagues assumed that patients being admitted were Vit D deficient, such was the high number who were seriously deficient, when tested, over many years.
Vit D deficiency is being implicated in an ever increasing number of illnesses, complaints and symptoms… why would doctors want not to have it as part of their game plan, apart from as part of a cost cutting exercise?
Krisinua I didn’t have a login, no sign in required even though that pop up makes it look like you need to. You just need to scroll down to read the whole thing, comments are viewable too.
On Medscape I can't get rid of the popup asking me whether or not I will accept cookies. It makes no difference whether I accept cookies or not - it just keeps asking me over and over again. It's very annoying.
I'm on an iron age laptop , with broken keys for R and W , so needs a wireless keyboard sat next to it ..... 'running' (at a push) on windows 8 ... with gazillions of outdated everything ... and 0% battery life .
and now the screen is jumping around like a 1970's telly that needs a thump.
i'm astonished it manages to get me into anything.
it's deffo time to get a new device and the clock is running out as i write this .... however the thought of going laptop (or whatever) shopping makes me want to hide under the stairs and cry cos i don't understand anything about anything in computer land and even if you ask someone to explain it in terms a luddite can understand ,, they immediately start talking gobbledegook.
..... this must be what it's like for people coming here who don't know anything at all about thyroids.
Basically it says dont test Vit D because if it is out or range, we (doctors) have to decide what to do about it, and we dont want to do that. Or that is what I got from it.
Take this further, why test for anything, so then we dont have to fix it. Sort of like T3?
The labs refused two Vit D tests despite my phosphate being way low, and low Vit D can cause that. I am booked for another one next week and the GP is going to chase the labs. Not holding my breath!
Wow! People are seriously ill with vitamin d deficiency. I know I was one of them. Quality of life is most definitely affected by low vit d.Mine was only tested after an Endocrinologist some 20 years ago said no to thyroid issues but tested vit d..my level was 11. My sadistic gp at the time ignored Endocrinologist and deemed it normal. After fighting to get loading dose I felt like a new woman and thought that was the end of all my troubles..sadly just the start.
I don’t know who has an Endo that measures their Vitamin D levels …. In the 7 yrs that I have seen multiple Endo’s and they have never tested my Vitamin D.
I must be one of the lucky ones. My endo usually tests once a year but I'm known that I have deficiency to start with. You would think it be standard testing for thyroid patients as thyroid and vit d deficiency go hand in hand for most of us
The one thing my endocrinologist did right was to test my vitamin D. I have hypothyroidism (caused by Hashimoto’s) and osteoporosis and my vitamin D levels were near the low end of the “normal” range so too low. I now take vitamin D daily and my vitamin D labs are greatly improved. An orthopedist told me to try to get/keep my vitamin D levels near the high end of the “normal” range.
In my province (Manitoba/Canada) doctors are also heavily discouraged to test vitamin D levels, in fact they have to fill out a special form to give a reason why they want to test. It is an additional "burden" on the doctors and most don't bother. They prefer to take a guess. So within 6 months I had one doctor say I was probably taking too much D3 and an other saying I was probably deficient. It is beyond me why this regulation is in place, because Manitoba is the "MS capital" and there is plenty of evidence that links vitamin D deficiency to MS (and a whole lot of other health issues). But then again, I have no medical background. What do I know? 😜
Even on the US Medicare (which sets the rules for payment) is reluctant to pay for vitamin D testing and you need to sign a statement agreeing to pay for the test if turned down.
I see a healthcare provider I have to pay for (usually "free" in Canada) and she gives me a requisition for D testing twice a year. I also have to pay for those, but at least I can get them. Crossing into the US, you can most likely get whatever you can pay for, so those in Canada who fear a "two tier" healthcare system are not aware that we have that already. Only it is split between Canada and the US.
and I buy meds from Canada as Medicare wouldn’t approve one I need and I can’t afford US prices. (But my thyroid meds are covered for a small Copay.).
I haven’t looked for a while but several countries have hybrid government-private systems that actually complement each other - offhand I’ve heard Germany, Australia — others?
In Germany and Australia you pay in - separately to income tax - to get government health service entitlement. In Australia you pay up front for services received and then get reimbursed for them if you pay in to the central system. In Ireland, I believe it’s the same. I don’t know to what extent these are private-public hybrid systems.
The comments were far more illuminating than the article. I'm getting increasingly disenchanted with Medscape - invariably there's something faintly sensationalist that is being purported, with the usual caveat at the end about 'correlation is not causation' and it's at this point you wonder why they published the article in the first place.
And it's impossible to unsubscribe - I've tried several times, but it just doesn't work. In fact it's often got worse so I can only assume they have a funding model based on the number of readers so they need to hold on to as many people as possible (hence the sensationalist content, maybe?).
I was told very recently when requesting a vitamin d test that 'the labs don't do the test any more as everyone is low.' I even put a post up about it!
She did still put the request through, and fortunately it was done, so I got a result.
With all its faults , real or perceived , I am so grateful for the NHS! I have had a full check for everything and so far have been monitored closely for TSH, FT4 and FT3. All my data is accessible online and my GP also sends a text with any results and a comment to ensure I’m happy with whatever is suggested going forward and which I’m allowed to respond to . I’m so sorry that everyone doesn’t receive this level of care and hope that you are able to access the testing and medication you need
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