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Not sleeping and tummy probs
Hi am I correct in thinking the tummy problems and not being able to sleep are due to steroids The only way I can explain the tummy prob is that it feels like gnawing feeling taking a omerprozle seems to help Don't like to ring renal unit as I am a kidney transplant patient as feel like I am moaning
Hi am I correct in thinking the tummy problems and not being able to sleep are due to steroids The only way I can explain the tummy prob is that it feels like gnawing feeling taking a omerprozle seems to help Don't like to ring renal unit as I am a kidney transplant patient as feel like I am moaning
Rusty8
in
PMRGCAuk
8 years ago
Left sided heart failure and Vasculitis. Anyone else been diagnosed with this ?
I was diagnosed with WG over 17 years ago with Saddle nose deformity and I have chronic kidney failure too. I have been receiving Rituximab every 6 months for the last few years and have been lucky not to have had steroids for approx the last 10 years. I'm 55 years old. Since my last infusion in October
I was diagnosed with WG over 17 years ago with Saddle nose deformity and I have chronic kidney failure too. I have been receiving Rituximab every 6 months for the last few years and have been lucky not to have had steroids for approx the last 10 years. I'm 55 years old. Since my last infusion in October
Essex-jill
in
Vasculitis UK
8 years ago
Retinol
Hi I would like to know if Retinol is suitable for sensitive skin, I have never used it. Thinking to just use it at night. Thanks Junie
Hi I would like to know if Retinol is suitable for sensitive skin, I have never used it. Thinking to just use it at night. Thanks Junie
Junie2
in
MY SKIN
8 years ago
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here we go again
my mom is 87. she has afib, had chf, and now out of the blue gfr 26.6 bun 26 creat 1.7 bp normal no diabetes. stage 4 chronic kidney disease. surprise! SHE is on lasix 40 kidney dr raised it to 80 mg some fluid in legs. she does not need dialysis. urine and rest of bloodwork good. stay on low sodium
my mom is 87. she has afib, had chf, and now out of the blue gfr 26.6 bun 26 creat 1.7 bp normal no diabetes. stage 4 chronic kidney disease. surprise! SHE is on lasix 40 kidney dr raised it to 80 mg some fluid in legs. she does not need dialysis. urine and rest of bloodwork good. stay on low sodium
afib1
in
Early CKD Support
8 years ago
FibroScan result
Hi my FibroScan result Is 6.1kPa CAP 194 Blood test mildly elevated bilirubin, Alt. ANA positive 1/80 with smooth muscle antibody 1/40 she does not have active autoimmune hepatitis this will need monitoring What's all this numbers mean? I have pain in my upper right side for 3years Sorry for the long
Hi my FibroScan result Is 6.1kPa CAP 194 Blood test mildly elevated bilirubin, Alt. ANA positive 1/80 with smooth muscle antibody 1/40 she does not have active autoimmune hepatitis this will need monitoring What's all this numbers mean? I have pain in my upper right side for 3years Sorry for the long
Amena1610
in
British Liver Trust
8 years ago
Fibro warrior
Hi there, I'm new to this site and looking for a local group to join for a cuppa and chat. I live in Milton keynes with my long suffering hubby π I have recently been diagnosed with fibromyalgia but have had symptoms for over 4 years. I also have hypothyroidism and chronic kidney disease. I am 46yrs
Hi there, I'm new to this site and looking for a local group to join for a cuppa and chat. I live in Milton keynes with my long suffering hubby π I have recently been diagnosed with fibromyalgia but have had symptoms for over 4 years. I also have hypothyroidism and chronic kidney disease. I am 46yrs
bishboshmanor
in
Fibromyalgia Action UK
9 years ago
Medicines reduced..
Hi: I am new to this forum. I have been a type2 diabetic from 21 years. I followed LCHF diet from a month and my medications have been reduced as follows: Mornings 1. Victoza injection 1.8 to 0.6 now. 2. Metsmall 1000 mg to nil. Nights. 1. GlimyMP2- 500 mg to nil. 2. Trajenta 5 mg continuing. My HbA1C
Hi: I am new to this forum. I have been a type2 diabetic from 21 years. I followed LCHF diet from a month and my medications have been reduced as follows: Mornings 1. Victoza injection 1.8 to 0.6 now. 2. Metsmall 1000 mg to nil. Nights. 1. GlimyMP2- 500 mg to nil. 2. Trajenta 5 mg continuing. My HbA1C
27parims
in
Diabetes India
9 years ago
Long term
Does anyone take Rayos for their maintenance of PRM? Also any thoughts on eating an anti- inflammatory diet. Trying to wade through all the info that I have found and come up with an eating plan that helps me to stay as pain free as possible. So far I've noticed that sugar and gluten are big triggers
Does anyone take Rayos for their maintenance of PRM? Also any thoughts on eating an anti- inflammatory diet. Trying to wade through all the info that I have found and come up with an eating plan that helps me to stay as pain free as possible. So far I've noticed that sugar and gluten are big triggers
PMRnewbie
in
PMRGCAuk
9 years ago
Renal parenchyma disease
My fiance has MPO vasculitis. He recently had a kidney biopsy and was diagnosed as having Moderate Echogenic Left Renal Parenchyma. Does anyone know what that is? Is a kidney transplant an option?
My fiance has MPO vasculitis. He recently had a kidney biopsy and was diagnosed as having Moderate Echogenic Left Renal Parenchyma. Does anyone know what that is? Is a kidney transplant an option?
Christina1960
in
Vasculitis UK
9 years ago
HBA1C always around 9
Hi, I am a diabetic type 1 diagnosed in 2002 and since then on Huminsulin 30/70(Morning 38 units and night 40 units) and oral drugs Gluconorm G1 (Daily Twice); 1 mutivitamin tab every night( A to Z vit). In a week, I wake up with Low Sugars almost every alternate day, but still my HBA1C is always around
Hi, I am a diabetic type 1 diagnosed in 2002 and since then on Huminsulin 30/70(Morning 38 units and night 40 units) and oral drugs Gluconorm G1 (Daily Twice); 1 mutivitamin tab every night( A to Z vit). In a week, I wake up with Low Sugars almost every alternate day, but still my HBA1C is always around
vinodbachu
in
Diabetes India
9 years ago
Transplant advice
I was just wondering if any of you have experience a kidney transplant. A friend of mine has been told they need a premtive one. I am just curious how long it will take him to bounce back from the operation and if there is anything I should look out for. It's just a bit scary!!!!
I was just wondering if any of you have experience a kidney transplant. A friend of mine has been told they need a premtive one. I am just curious how long it will take him to bounce back from the operation and if there is anything I should look out for. It's just a bit scary!!!!
aec79
in
Early CKD Support
9 years ago
Kidney waiting list
Hi all can anyone tell on average how long we have to wait on the transpalnt list, I am about to start dialysis but like most people hope to have a kidney transplant in the near future. I do have a couple of family members and a couple of friends that have offered to be tested but if they are not a match
Hi all can anyone tell on average how long we have to wait on the transpalnt list, I am about to start dialysis but like most people hope to have a kidney transplant in the near future. I do have a couple of family members and a couple of friends that have offered to be tested but if they are not a match
goldenboy12345
in
Dialysis Support
9 years ago
Food Food Food.
Hey guys, I'm wondering if anyone can help me with some advice. My name is Shane, I'm 30 years old. I am living with stage 5 renal failure. Although my treatment is going well ( peritoneal dialysis ) I find myself struggling with food. Especially with everything I have to keep an eye on. I'm thinking
Hey guys, I'm wondering if anyone can help me with some advice. My name is Shane, I'm 30 years old. I am living with stage 5 renal failure. Although my treatment is going well ( peritoneal dialysis ) I find myself struggling with food. Especially with everything I have to keep an eye on. I'm thinking
Shane84
in
Early CKD Support
9 years ago
Adcal-D3 caplets
Hi everyone again. Grateful thanks for yesterday's input. Today my query is about taking Adcal-D3 which my surgery has changed from Calcichew. The Calcichew was not a problem to take as they could be sucked or chewed, I kept mine by the bed and had the morning one before I got up and the evening one
Hi everyone again. Grateful thanks for yesterday's input. Today my query is about taking Adcal-D3 which my surgery has changed from Calcichew. The Calcichew was not a problem to take as they could be sucked or chewed, I kept mine by the bed and had the morning one before I got up and the evening one
Sandybo
in
PMRGCAuk
9 years ago
Newbie looking for help π
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Kidney or pancreas kidney - ??????????
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Tacrolimus (advagraf)
Hello - hope everyone is as well as they can be ππ We are having some problems with Robs 'tacrolimus' - he forgets if he has taken it and we have said that 'I' will give it to him and then he says 'he has already taken it' and then asks hours later if he has had it ?????? Does anyone have any experience
Hello - hope everyone is as well as they can be ππ We are having some problems with Robs 'tacrolimus' - he forgets if he has taken it and we have said that 'I' will give it to him and then he says 'he has already taken it' and then asks hours later if he has had it ?????? Does anyone have any experience
Hidden
in
British Liver Trust
9 years ago
Withdrawal seizures
Hi, first post in here so forgive me. I went on a 3 month booze binge due to some distressing events that occurred in my life once again. Did the same thing 2 yrs ago and doc said I had AH. But no meds or recommendations to do anything but cut down?! Which I did and went first 3 months of this year sober
Hi, first post in here so forgive me. I went on a 3 month booze binge due to some distressing events that occurred in my life once again. Did the same thing 2 yrs ago and doc said I had AH. But no meds or recommendations to do anything but cut down?! Which I did and went first 3 months of this year sober
tgillies
in
British Liver Trust
9 years ago
Clicking noise when breathing
I was diagnosed with WG over 16 years ago and have Saddle Nose Deformity. My partner is quite concerned that when I'm asleep my breathing sounds like a regular loud clicking sound down a hollow tube and at times the ' death 'rattle ' !!!! his been so concerned at times he has sat up a lot of the
I was diagnosed with WG over 16 years ago and have Saddle Nose Deformity. My partner is quite concerned that when I'm asleep my breathing sounds like a regular loud clicking sound down a hollow tube and at times the ' death 'rattle ' !!!! his been so concerned at times he has sat up a lot of the
Essex-jill
in
Vasculitis UK
9 years ago
Auto Imun
Hi my name is diana and i am new to this group. So happy that i found this site, it make me feel not alone and can read information and success story from the member. I had kidney failure due to auto imune, is there anyone have the same case with me? Doctor said that if i got transplant there is a possibility
Hi my name is diana and i am new to this group. So happy that i found this site, it make me feel not alone and can read information and success story from the member. I had kidney failure due to auto imune, is there anyone have the same case with me? Doctor said that if i got transplant there is a possibility
DianaSa
in
Kidney Transplant Patient Support
9 years ago
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