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Respiratory distress syndrome
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Pregabalin/ropinirole
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
SilverEvie
in
Restless Legs Syndrome
2 years ago
Severe Cold, to Bronchitis; PMR has not returned
Had gotten a cold that became tenacious, as after 1 week of a head cold it progressed to my chest. A week later I had Bronchitis for the first time in my life and starting with week 3 my GP put me on a Prednisone routine of 40 mg, 30, 20, 10 over a course of 10 days. As if that wasn’t enough, she
Had gotten a cold that became tenacious, as after 1 week of a head cold it progressed to my chest. A week later I had Bronchitis for the first time in my life and starting with week 3 my GP put me on a Prednisone routine of 40 mg, 30, 20, 10 over a course of 10 days. As if that wasn’t enough, she
Boss302Fan
in
PMRGCAuk
2 years ago
COPD update and next steps.
Well, hello again. I hope you're all well. My wife saw the ANP yesterday. Given a full rundown of all she has had done and been given etc. She did not prescribe anymore antibiotics as she wants a sputum sample over 3 days to find out exactly what sort of bacteria they are dealing with. Not helpful
Well, hello again. I hope you're all well. My wife saw the ANP yesterday. Given a full rundown of all she has had done and been given etc. She did not prescribe anymore antibiotics as she wants a sputum sample over 3 days to find out exactly what sort of bacteria they are dealing with. Not helpful
Alwaysreading_46
in
Lung Conditions Community Forum
2 years ago
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Paying for Horizant
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
grassgree
in
Restless Legs Syndrome
2 years ago
Morning cough
Hi folks hope you are all doing as well as possible. I was diagnosed with copd a few years ago and never had any real problems except the odd bronchitis flare and treated with antibiotics . In November I caught a cold and had 3 lots of steroids and antibiotics. My question is I now have a morning cough
Hi folks hope you are all doing as well as possible. I was diagnosed with copd a few years ago and never had any real problems except the odd bronchitis flare and treated with antibiotics . In November I caught a cold and had 3 lots of steroids and antibiotics. My question is I now have a morning cough
Gladys27
in
Lung Conditions Community Forum
2 years ago
Do you feel the cold more than folk who don't have ssc?
I read somewhere that people with ssc feel the cold/complain about feeling cold more than those without this condition, and because of the ssc, rather than if you have raynaurd's alone. I am one of those who needs the room temperature to be 19 degrees or above. Embarrassingly, at work l put the heating
I read somewhere that people with ssc feel the cold/complain about feeling cold more than those without this condition, and because of the ssc, rather than if you have raynaurd's alone. I am one of those who needs the room temperature to be 19 degrees or above. Embarrassingly, at work l put the heating
Blue_feather
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Covid /Flu Jabs
I have recently been diagnosed after being misdiagnosed for rotator cuff! It seems odd this started after Covid/Flu jabs and my Doctor also said she had heard of this, depending how high up the arm the jabs were given. I do not think I will have any more jabs whilst having PMR. Could be coincidence
I have recently been diagnosed after being misdiagnosed for rotator cuff! It seems odd this started after Covid/Flu jabs and my Doctor also said she had heard of this, depending how high up the arm the jabs were given. I do not think I will have any more jabs whilst having PMR. Could be coincidence
JAC1947
in
PMRGCAuk
2 years ago
Sore, dry mouth
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Keswick73
in
Fibromyalgia Action UK
2 years ago
Mother-in-law with EDS has very low Potassium readings
We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has
We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has
liverish
in
Ehlers-Danlos Support UK
2 years ago
Ropinirole and Pregablin
Hi first post I am so glad I have found this site it has helped me in a big way in my fight against RLS. My doctor has very limited knowledge of RLS At one time I was on 8 mg of Ropinirole extended release with no pregabalin, my doctor knew this was over the recommended dose of 6 mg but decided
Hi first post I am so glad I have found this site it has helped me in a big way in my fight against RLS. My doctor has very limited knowledge of RLS At one time I was on 8 mg of Ropinirole extended release with no pregabalin, my doctor knew this was over the recommended dose of 6 mg but decided
jmnw15359
in
Restless Legs Syndrome
2 years ago
Buprenorphine Naloxone dose
Hello again! I have had RLS for most of my life. I was taking 6mg Pramipexol per day until given better advice here on the site. I used 100 MG of Tramadol per day and in 18 months managed to cut down to .25mg Pramipexol. Then I got stuck and couldn't cut down any more. I found a Neurologist who prescribed
Hello again! I have had RLS for most of my life. I was taking 6mg Pramipexol per day until given better advice here on the site. I used 100 MG of Tramadol per day and in 18 months managed to cut down to .25mg Pramipexol. Then I got stuck and couldn't cut down any more. I found a Neurologist who prescribed
welschrispy
in
Restless Legs Syndrome
2 years ago
An Update after Echo Stress test
Background, had 20 beat run of "possibly dangerous" NSVT at end of November, had stress echo ordered by cardiologist. Am in process of seeking ablation consult at the end of this month so was sidetracked. Just heard from my doctor this morning about my stress test from Thursday. Let's start with my
Background, had 20 beat run of "possibly dangerous" NSVT at end of November, had stress echo ordered by cardiologist. Am in process of seeking ablation consult at the end of this month so was sidetracked. Just heard from my doctor this morning about my stress test from Thursday. Let's start with my
ChasMartin
in
AF Association
2 years ago
Carnivore diet and ketogenic diet is reportedly reversing many conditions. Can we heal our bodies with our diets.
I do not know if I actually have restless legs syn drome, but for years I have had involuntary leg movements every day, all day. I have jerking and muscle tension that is very uncomfortable and exhausting. I am not certain if it is the side effects of restoril, I take to sleep, or temazapam, that was
I do not know if I actually have restless legs syn drome, but for years I have had involuntary leg movements every day, all day. I have jerking and muscle tension that is very uncomfortable and exhausting. I am not certain if it is the side effects of restoril, I take to sleep, or temazapam, that was
Yecam1949
in
Restless Legs Syndrome
2 years ago
Why do we all Reduce ..............
at stressful times? holidays, Christmas, Easter, Summer holidays, just before travelling, weddings etc. Mainly I have noticed it is women who do so. The above are times when women always are the ones who have to 'do things'. Sitting where you are till these more stressful times are over makes
at stressful times? holidays, Christmas, Easter, Summer holidays, just before travelling, weddings etc. Mainly I have noticed it is women who do so. The above are times when women always are the ones who have to 'do things'. Sitting where you are till these more stressful times are over makes
jinasc
in
PMRGCAuk
2 years ago
IVIG after heart surgery and stopping IBRUTIMIB
12 months ago I was on an Ibrutinib clinical trial for my CLL. Ibrutinib worked great for me for years. I found out I needed a triple bypass due to 95% LAD artery blockage. Not good! A stent wasn’t an option in my case due to necessity for blood thinners. Can’t do blood thinners, aspirin and Irbutinib
12 months ago I was on an Ibrutinib clinical trial for my CLL. Ibrutinib worked great for me for years. I found out I needed a triple bypass due to 95% LAD artery blockage. Not good! A stent wasn’t an option in my case due to necessity for blood thinners. Can’t do blood thinners, aspirin and Irbutinib
misterbee
in
CLL Support
2 years ago
otc cold meds with prednisolone?
I’ve come down with the mother of all colds, there were several people at work dropping like flies over the last week or so. Just asking if I can take otc cold meds, or is there anything I need to avoid? Feeling very tired, achy and weak……. Thanks to all…..
I’ve come down with the mother of all colds, there were several people at work dropping like flies over the last week or so. Just asking if I can take otc cold meds, or is there anything I need to avoid? Feeling very tired, achy and weak……. Thanks to all…..
Cfmad298601
in
PMRGCAuk
2 years ago
My wife has potential pneumonia.
Hey everyone. My first post and I've been reading the threads. A brilliant place you have here. My better half came down with what the doctors believe was a very bad (in their words) chest/viral infection. Coughing a lot. Could not get warm at points. Feeling sick at points. Coughing up green phlegm
Hey everyone. My first post and I've been reading the threads. A brilliant place you have here. My better half came down with what the doctors believe was a very bad (in their words) chest/viral infection. Coughing a lot. Could not get warm at points. Feeling sick at points. Coughing up green phlegm
Alwaysreading_46
in
Lung Conditions Community Forum
2 years ago
higher risk of Down’s syndrome
After going through three rounds of ivf with pgd for a genetic condition I have we got our risk for downs back after combined test Nt = 1.5 (normal) Papp-a = 0.86 mom ( normal) Free beta hcg = 6.9 mom (elevated) Risk = 1:51 Anyone also had normal measurements other than the hcg? And what was the
After going through three rounds of ivf with pgd for a genetic condition I have we got our risk for downs back after combined test Nt = 1.5 (normal) Papp-a = 0.86 mom ( normal) Free beta hcg = 6.9 mom (elevated) Risk = 1:51 Anyone also had normal measurements other than the hcg? And what was the
sj482
in
Pregnancy and Parenting Support
2 years ago
discomfort but only at night
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
brown1688
in
IBS Network
2 years ago
Perspective: The High-Folate–Low-Vitamin B-12 Interaction Is a Novel Cause of Vitamin B-12 Depletion with a Specific Etiology—A Hypothesis
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
helvella
Thyroid UK
in
Thyroid UK
2 years ago
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