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Doing the best with what we have
I've really enjoyed reading some of these posts written by people that deal with CMT and overcoming obstacles. You all are very courageous and I admire you all. It was a huge disappointment to be diagnosed with CMT when I was 11 years old but even worse when I lost my vision at the age of 12 and had
I've really enjoyed reading some of these posts written by people that deal with CMT and overcoming obstacles. You all are very courageous and I admire you all. It was a huge disappointment to be diagnosed with CMT when I was 11 years old but even worse when I lost my vision at the age of 12 and had
Samson360
in
Charcot-Marie-Tooth UK
3 years ago
Loose suture 7 months after eye surgery
Following implantation of a Preserflo micro shunt in my Left eye last March the eye has not been any trouble. Three weeks ago I began having dry eye symptoms and it was a little red. This did not improve despite my flooding the eye with lubricating drops and now it is still aching, sore, watering and
Following implantation of a Preserflo micro shunt in my Left eye last March the eye has not been any trouble. Three weeks ago I began having dry eye symptoms and it was a little red. This did not improve despite my flooding the eye with lubricating drops and now it is still aching, sore, watering and
muddledme
in
Glaucoma UK
3 years ago
5dp5dt testing too early again I'm sure :(
Here we go again I say every time I won't test but 5dp5dt and I'm certain if I squint and hold it to the light I can see a little line. I'm on double pessary cyclogest. Lubion injections. Dalteparin and prednisolone for the first time really hoping I have a sticky one I've been pregnant 8 times but still
Here we go again I say every time I won't test but 5dp5dt and I'm certain if I squint and hold it to the light I can see a little line. I'm on double pessary cyclogest. Lubion injections. Dalteparin and prednisolone for the first time really hoping I have a sticky one I've been pregnant 8 times but still
Kieneyl
in
Fertility Network UK
3 years ago
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My Life with CMT type 1a
So I thought it was time to give a little bit about living with CMT. My mother noticed that at about eight or nine years old that I was walking differently and took me to the doctor. It took a couple of years of being in and out of hospital and having every test imaginable. Finally a neurologist diagnosed
So I thought it was time to give a little bit about living with CMT. My mother noticed that at about eight or nine years old that I was walking differently and took me to the doctor. It took a couple of years of being in and out of hospital and having every test imaginable. Finally a neurologist diagnosed
Samson360
in
Charcot-Marie-Tooth UK
3 years ago
SARS-CoV-2 virus-trapping chewing gum
This is not science fiction. It is from University of Pennsylvania researchers. Transform plant cells with a gene targeted to the chloroplast that codes for the SARS-CoV-2 virus spike-binding ACE2 receptor. Incorporate the transformed plant cells into chewing gum. When the gum is chewed, the ACE2
This is not science fiction. It is from University of Pennsylvania researchers. Transform plant cells with a gene targeted to the chloroplast that codes for the SARS-CoV-2 virus spike-binding ACE2 receptor. Incorporate the transformed plant cells into chewing gum. When the gum is chewed, the ACE2
gardening-girl
in
CLL Support
3 years ago
scratched cornea after lucentis getting injection
I have been getting lucentis injections to treat diabetic macular odema for the past 3-4 years. On the past 2 occasions , I’ve gotten a scratched cornea from it on my left eye. At the same time, I’ve gotten injections in my right eye and there’s been no problem at all. The consultant appears to not want
I have been getting lucentis injections to treat diabetic macular odema for the past 3-4 years. On the past 2 occasions , I’ve gotten a scratched cornea from it on my left eye. At the same time, I’ve gotten injections in my right eye and there’s been no problem at all. The consultant appears to not want
D_omeara
in
Macular Society
3 years ago
Sjogrens syndrome
Hi all , on Monday I had a follow up appointment with my Rheumatologist, 8 weeks ago when I saw her she took lots of Bloods and was very thorough. She has told me from the results from my blood tests that in actual fact she now suspects I have ‘Sjogrens disease and not Polymialgia!! To say I was shocked
Hi all , on Monday I had a follow up appointment with my Rheumatologist, 8 weeks ago when I saw her she took lots of Bloods and was very thorough. She has told me from the results from my blood tests that in actual fact she now suspects I have ‘Sjogrens disease and not Polymialgia!! To say I was shocked
Toobusyforthis
in
PMRGCAuk
3 years ago
Bleb massage
After moving to South Wales, from Birmingham, and obviously changing GP and getting myself registered as a Glaucoma patient with the latest cal health authority, I couldn't help but notice how different things were done here. Firstly, I'd never had photos taken of the back of my eyes, and also, never
After moving to South Wales, from Birmingham, and obviously changing GP and getting myself registered as a Glaucoma patient with the latest cal health authority, I couldn't help but notice how different things were done here. Firstly, I'd never had photos taken of the back of my eyes, and also, never
Chopper01
in
Glaucoma UK
3 years ago
Steroid injection
Hi everyone. I had a steroid injection this morning in my little finger. It's been locking alot lately and causing pain in my lower arm. I'm told it's because of skin thickening in my hand. Only diagnosed in July. Has anyone else had this experience?
Hi everyone. I had a steroid injection this morning in my little finger. It's been locking alot lately and causing pain in my lower arm. I'm told it's because of skin thickening in my hand. Only diagnosed in July. Has anyone else had this experience?
Pink07
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Tooth health !
Just a reminder to keep up with oral health. I go every six months but my dentist said that the plaque builds up faster because chemo gives you dry mouth . She found that I had cavities under two capped teeth which had to be removed , treated and be recapped , the last being Friday. My mouth is still
Just a reminder to keep up with oral health. I go every six months but my dentist said that the plaque builds up faster because chemo gives you dry mouth . She found that I had cavities under two capped teeth which had to be removed , treated and be recapped , the last being Friday. My mouth is still
MOOKIE-FOX1234
in
My Ovacome
3 years ago
Thank you and a couple of questions
Dear fellow suffers, if I may call you that. Thank you all of you for giving me your thoughts on my previous post. To add to the person who quoted Shakespeare’s ‘’flesh is heir to’’ ailments, then my contribution is a quote from an American writer whose name I forgot, ‘’old age and ailments make me
Dear fellow suffers, if I may call you that. Thank you all of you for giving me your thoughts on my previous post. To add to the person who quoted Shakespeare’s ‘’flesh is heir to’’ ailments, then my contribution is a quote from an American writer whose name I forgot, ‘’old age and ailments make me
charles555
in
Glaucoma UK
3 years ago
Eye pressure variability.
An interesting piece of recent American research has compared the slightly higher pressures in the colder months compared with warmer months. Also that pressures are lowered with dynamic exercise like jogging and cycling but probably not with weight lifting. I found it interesting that dry eyes tend
An interesting piece of recent American research has compared the slightly higher pressures in the colder months compared with warmer months. Also that pressures are lowered with dynamic exercise like jogging and cycling but probably not with weight lifting. I found it interesting that dry eyes tend
muddledme
in
Glaucoma UK
3 years ago
Follow up from trab
Hi there, I had my first appointment with the surgeon who did my trab yesterday. The pressure was 12, which is good fo me, and he said everything looked good so far. Though he said there was still a long way to go - I presume he means it has to drain consistently and the pressure remain stable. The
Hi there, I had my first appointment with the surgeon who did my trab yesterday. The pressure was 12, which is good fo me, and he said everything looked good so far. Though he said there was still a long way to go - I presume he means it has to drain consistently and the pressure remain stable. The
Petrolblue
in
Glaucoma UK
3 years ago
Bifocals glasses
Hallo everyone I have dry AMD in both eyes but worse in my Good, right eye which has PED (explained to me recently) . I am also a glaucoma suspect and on Monopost and Cosopt eye Drops. I attended the AMD clinic for the first time last week. I am petrified of losing my sight because of both conditions
Hallo everyone I have dry AMD in both eyes but worse in my Good, right eye which has PED (explained to me recently) . I am also a glaucoma suspect and on Monopost and Cosopt eye Drops. I attended the AMD clinic for the first time last week. I am petrified of losing my sight because of both conditions
EthelPledge94
in
Macular Society
3 years ago
Vision in "bad" slightly blurry; eye sensitive to bright lights
Hi all, I don't see my retinal specialist (I'm in the US) until January for my regular injection. My "bad" eye has been somewhat blurry, slight double vision with it, for several months. Last time I saw my doctor, she said "It's the macula." Unfortunately, I did not ask her to clarify. Recently
Hi all, I don't see my retinal specialist (I'm in the US) until January for my regular injection. My "bad" eye has been somewhat blurry, slight double vision with it, for several months. Last time I saw my doctor, she said "It's the macula." Unfortunately, I did not ask her to clarify. Recently
whiskbroom
in
Macular Society
3 years ago
So terrified..Help
I was diagnosed with glaucoma in my left eye with pseudo exfoliation in both eyes in July. I was put on Latanoprost, but went I went back to the hospital last week, there had been no change. I am now on bimoitol and Timilol drops (Sorry about the spelling its probably not right) Basically, I am terrified
I was diagnosed with glaucoma in my left eye with pseudo exfoliation in both eyes in July. I was put on Latanoprost, but went I went back to the hospital last week, there had been no change. I am now on bimoitol and Timilol drops (Sorry about the spelling its probably not right) Basically, I am terrified
Trainer47
in
Glaucoma UK
3 years ago
Still they don't get it
Thiis review yet again commits the cardinal sin of lumping in together the majority who are indifferent to T4 only therapy, and those who benefit from combination. Another useless waste of paper with as usual, the allegation that T4 only and T4/T3 therapy are no different (though a minority preferred
Thiis review yet again commits the cardinal sin of lumping in together the majority who are indifferent to T4 only therapy, and those who benefit from combination. Another useless waste of paper with as usual, the allegation that T4 only and T4/T3 therapy are no different (though a minority preferred
diogenes
in
Thyroid UK
3 years ago
Newly Diagnosed
Hi Everyone Was diagnosed with glaucoma and cataract in right eye at normal 2 year opticians visit and feel I have been thrust into a tumble drier. Don't fully undestand all the terminology but will do my best. I had no symptoms and a full field scan(?) pick up no sign of peripheral loss. Going back
Hi Everyone Was diagnosed with glaucoma and cataract in right eye at normal 2 year opticians visit and feel I have been thrust into a tumble drier. Don't fully undestand all the terminology but will do my best. I had no symptoms and a full field scan(?) pick up no sign of peripheral loss. Going back
cosynook
in
Glaucoma UK
3 years ago
Canaloplasty
It’s now a week since I had my right cataract removed and canaloplasty in that eye. So far so good! The vision in my right eye is now fantastic (because the cataract has been removed). It is a joy to see bright colours again and as I have worn glasses for short sight since I was 7 its amazing to be able
It’s now a week since I had my right cataract removed and canaloplasty in that eye. So far so good! The vision in my right eye is now fantastic (because the cataract has been removed). It is a joy to see bright colours again and as I have worn glasses for short sight since I was 7 its amazing to be able
Longwalks3
in
Glaucoma UK
3 years ago
Thyroid eye disease
I need help! I have hyperactive thyroid, one of my eye started to swell and bulge out little bit. Now one of my eye is bigger than the other one. I completely lost self confidence. My gp said his going to refer me to a eye specialist but this takes 10 days for the referral to be sent. I am on Carbinazole
I need help! I have hyperactive thyroid, one of my eye started to swell and bulge out little bit. Now one of my eye is bigger than the other one. I completely lost self confidence. My gp said his going to refer me to a eye specialist but this takes 10 days for the referral to be sent. I am on Carbinazole
Nil15192
in
Thyroid UK
3 years ago
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