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Trab went well
I just wanted to share that my trab on Tuesday went very well, despite my fears about having only a local anaesthetic. I got some great support from people on here back in the summer when I knew it was on the cards which was very helpful. I was made very comfortable and didn't feel a thing, not even
I just wanted to share that my trab on Tuesday went very well, despite my fears about having only a local anaesthetic. I got some great support from people on here back in the summer when I knew it was on the cards which was very helpful. I was made very comfortable and didn't feel a thing, not even
Petrolblue
in
Glaucoma UK
3 years ago
Interesting Webinar Takeaways
I watched a webinar yesterday morning on a site called New Horizons and they shared some hopeful new developments in glaucoma research so I thought I'd share them on here: Vitamin B3 Nicotinamide showed slight improvement in the vision of the participants of a limited study. It could possibly be neuroprotective
I watched a webinar yesterday morning on a site called New Horizons and they shared some hopeful new developments in glaucoma research so I thought I'd share them on here: Vitamin B3 Nicotinamide showed slight improvement in the vision of the participants of a limited study. It could possibly be neuroprotective
Hidden
in
Glaucoma UK
3 years ago
First diagnosis finally
I don’t no how I feel about this. Not sure I lf I am happy or sad. But today after months of eye hospital visits I have been diagnosed with severe autoimmune inflammatory eye disease and given immunosuppression eye drops and more steroids. My rheumatologist has now handed me over to the connective tissue
I don’t no how I feel about this. Not sure I lf I am happy or sad. But today after months of eye hospital visits I have been diagnosed with severe autoimmune inflammatory eye disease and given immunosuppression eye drops and more steroids. My rheumatologist has now handed me over to the connective tissue
BabyOleg
in
LUPUS UK
3 years ago
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PEX glaucoma and cataract surgery
I have pseudoexfoliation glaucoma and bilateral cataracts. The ophthalmologist has referred me for cataract surgery in one eye. The other, she says, does not need it yet - her opinion not mine. Slight smile from me. Ophthalmologist fully explained all the possible complications and the fact that it
I have pseudoexfoliation glaucoma and bilateral cataracts. The ophthalmologist has referred me for cataract surgery in one eye. The other, she says, does not need it yet - her opinion not mine. Slight smile from me. Ophthalmologist fully explained all the possible complications and the fact that it
Windflower
in
Glaucoma UK
3 years ago
Fibromyalgia
Hi everyone lv got dry eyes and allergic to dust and pollen I'm constantly tired and depressed/ brain fog I was wondering if you could let me know if these symptoms are part of fibromyalgia??
Hi everyone lv got dry eyes and allergic to dust and pollen I'm constantly tired and depressed/ brain fog I was wondering if you could let me know if these symptoms are part of fibromyalgia??
amozan
in
Fibromyalgia Action UK
3 years ago
Double vision while bending over
I went back up to 40mg Prednisolone on Thursday as a result of a GCA flare. No symptoms on Thursday or Friday, but then today I've had six short periods of double vision (which I was having when first diagnosed back in January, and then during the first part of this flare). Three of today's were while
I went back up to 40mg Prednisolone on Thursday as a result of a GCA flare. No symptoms on Thursday or Friday, but then today I've had six short periods of double vision (which I was having when first diagnosed back in January, and then during the first part of this flare). Three of today's were while
Lutra2
in
PMRGCAuk
3 years ago
DVLA Visual Field Test
Hi, I’ve just got my letter from DVLA asking me to arrange a VFT as expected. However, I’ve only ever had one VFT and this is the first time for DVLA and I am nervous about it. It doesn’t help that it’s at Specsavers who I went to 5 times in 2019 telling them I had a problem with my vision and they
Hi, I’ve just got my letter from DVLA asking me to arrange a VFT as expected. However, I’ve only ever had one VFT and this is the first time for DVLA and I am nervous about it. It doesn’t help that it’s at Specsavers who I went to 5 times in 2019 telling them I had a problem with my vision and they
Spanieldoglover
in
Glaucoma UK
3 years ago
Besremi in Prague
The Municipal Court in Prague has ruled that the insurance company is obliged to approve an extraordinary reimbursement for the client's treatment with the medicinal product Besremi. At the same time, in his judgment, he explained the relationship between on-label and off-label treatment. In a dispute
The Municipal Court in Prague has ruled that the insurance company is obliged to approve an extraordinary reimbursement for the client's treatment with the medicinal product Besremi. At the same time, in his judgment, he explained the relationship between on-label and off-label treatment. In a dispute
Manouche
in
MPN Voice
3 years ago
Operation friday
Hi has anyone had decompression eye surgery due to having Graves eye disease
Hi has anyone had decompression eye surgery due to having Graves eye disease
AP1960
in
Thyroid UK
3 years ago
Endermitriosis and Adymiosis
Hey everyone, it has been over 2 years since I have suffered with Endermitriosis and Adymiosis when diagnosed they said my body has been like this and has deteriated since the age of 11. I'm 24 years old and still no progress of my health I have been put on pills left right and centre and now they are
Hey everyone, it has been over 2 years since I have suffered with Endermitriosis and Adymiosis when diagnosed they said my body has been like this and has deteriated since the age of 11. I'm 24 years old and still no progress of my health I have been put on pills left right and centre and now they are
Jam-Jam21
in
Endometriosis UK
3 years ago
Abnormal bloodwork
Hi all, I have decided to see a different Hematologist. Bloodwork was done and I don't know what to think. RBC low 3.75 HCT low 36.4% MCH high 33.7 MPV low 7.3 Lymphs high 41% Baso high 3% Chloride low 97 mEq/L Uric Acid high 7.3 mg
Hi all, I have decided to see a different Hematologist. Bloodwork was done and I don't know what to think. RBC low 3.75 HCT low 36.4% MCH high 33.7 MPV low 7.3 Lymphs high 41% Baso high 3% Chloride low 97 mEq/L Uric Acid high 7.3 mg
Wilma66
in
MPN Voice
3 years ago
Finding the right housing solution for ADHD
I am 29 years old and have a huge problem being financially independent and standing on my own. I take Adderall 30mg XR for the past 10 years (it helps). I also just finished EMDR therapy which was helpful for my PTSD. My biggest problem now is finding the way to generate enough income to be fully independent
I am 29 years old and have a huge problem being financially independent and standing on my own. I take Adderall 30mg XR for the past 10 years (it helps). I also just finished EMDR therapy which was helpful for my PTSD. My biggest problem now is finding the way to generate enough income to be fully independent
Mozartgreen
in
CHADD's Adult ADHD Support
3 years ago
Yellow skin after injecting methotrexate!
So very random. I inject methotrexate and this morning I used my thigh as the injection site but now my skin is yellow around the area. This hasn’t happened before. Any idea ?
So very random. I inject methotrexate and this morning I used my thigh as the injection site but now my skin is yellow around the area. This hasn’t happened before. Any idea ?
RumMonkey
in
NRAS
3 years ago
W4R2 - it's getting easier
Evening 🏃♀️ 🏃♂️, I just completed W4R2 and after my last post and reading recommendation, not even my own head got in the way. 😃 My problem is this. Almost 4 years ago I was struck with Bell's Palsy and to this day the right side of my face is paralysed with no hope of recovery. The only blessing
Evening 🏃♀️ 🏃♂️, I just completed W4R2 and after my last post and reading recommendation, not even my own head got in the way. 😃 My problem is this. Almost 4 years ago I was struck with Bell's Palsy and to this day the right side of my face is paralysed with no hope of recovery. The only blessing
Janec1956
in
Couch to 5K
3 years ago
Traumatic afternoon at eye clinic!
Had an appointment yesterday afternoon at 1.45pm to check my eye pressures. Got there, only to be told that my appointment for some unknown reason had been cancelled! I hadn't received any communication to let me know, so had to wait for about 20 minutes while the receptionist looked for my notes and
Had an appointment yesterday afternoon at 1.45pm to check my eye pressures. Got there, only to be told that my appointment for some unknown reason had been cancelled! I hadn't received any communication to let me know, so had to wait for about 20 minutes while the receptionist looked for my notes and
Engima
in
Glaucoma UK
3 years ago
Rinvoq 5 days
I started my Rinvoq on Wednesday. The first 3 days I was so tired I could barely get off the couch and couldn't keep my eyes open. This has improved somewhat the past couple of days. This morning some of my joints actually feel less painful. I was able to get up off the toilet without too much
I started my Rinvoq on Wednesday. The first 3 days I was so tired I could barely get off the couch and couldn't keep my eyes open. This has improved somewhat the past couple of days. This morning some of my joints actually feel less painful. I was able to get up off the toilet without too much
ElizabethW
in
NRAS
3 years ago
Headaches
Hi everyone, I’m desperately trying to cut down on pred, for a about 10 days I’ve reduced quite a lot, I’ve got down to 2 or 3 mg per day but have started to get headaches again also feeling very tired, plus started getting very sore tongue, ulcers and pain. I was taking 5mg before I started to reduce
Hi everyone, I’m desperately trying to cut down on pred, for a about 10 days I’ve reduced quite a lot, I’ve got down to 2 or 3 mg per day but have started to get headaches again also feeling very tired, plus started getting very sore tongue, ulcers and pain. I was taking 5mg before I started to reduce
2013mayo
in
PMRGCAuk
3 years ago
Cold Laser and EMDR!
On November 3rd 2021 I started seeing a new chiropractor who uses cold laser treatments. It’s like red light therapy on steroids. Look it up! My smell that was diminished is now almost normal. Gait and stiffness improved greatly. Little tremor I had is gone. Can Type 75% better! He does a laser treatment
On November 3rd 2021 I started seeing a new chiropractor who uses cold laser treatments. It’s like red light therapy on steroids. Look it up! My smell that was diminished is now almost normal. Gait and stiffness improved greatly. Little tremor I had is gone. Can Type 75% better! He does a laser treatment
38yroldmale
in
Cure Parkinson's
3 years ago
Thyroid capsules from Porcine and Bovine side effect
Has any one use Bovine Thyroid capsules and Porcine. What was the different? I think there is some side effect. My tongue tip fells strange. Inflammation in the eyes . special one. I dont know if it is because I am very low? i have got puffy face know.
Has any one use Bovine Thyroid capsules and Porcine. What was the different? I think there is some side effect. My tongue tip fells strange. Inflammation in the eyes . special one. I dont know if it is because I am very low? i have got puffy face know.
Eva56
in
Thyroid UK
3 years ago
Feels like thin ice....
Yesterday I cut my Prednisone by 10mg. I've taken injections of Actemra on the 5th, 12th and yesterday. Last night I noticed bleeding in my left (blind) eye. It was a bit worse this a.m. so I made an appointment with the ophthalmologist. Not GCA-related, just severely dry eyes so I picked up another
Yesterday I cut my Prednisone by 10mg. I've taken injections of Actemra on the 5th, 12th and yesterday. Last night I noticed bleeding in my left (blind) eye. It was a bit worse this a.m. so I made an appointment with the ophthalmologist. Not GCA-related, just severely dry eyes so I picked up another
Grammy80
in
PMRGCAuk
3 years ago
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